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Post op/ pathology
I had left nephrectomy ( lap) October 10. surgery went well I was up and walking 24 hrs after my surgery and I was home 48hrs after surgery. still recovering getting better but the day.lots water and walking around. Got my pathology result Kidney, left, nephrectomy 9cm chromophope stage2 no renal vain invasion.…
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Treatment and work?
We are just begunning this journey and my dad (the one with lung mets) wonders if he is going to be able to continue working or will he have to take disability from work? And if you did leave work have you can you go back, and at what point?
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OMG! Mayo clinic appt moved to TOMORROW!!!!!!!
HELP! thought I would have more time to get a list of questions ready fort he doctors at mayo but we are going tomorrow!!!!! W have only ever talked to the urologist never an oncologist So what are so must questions? dad had a radiacal nephrectomy 2 years ago and now has 6 mets in both lungs. Okay GO'!!!!!!!!!
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Surgery on Tues the 15th
After 7 months of waiting, time is finally flying. I'm a little scared. I'm a big wimp and hate pain-especially after the 4 surgeries I've already had in the last year :( . At my pre-op appt, the anesthetist ordered an Epi and PCA, but warned me I will still have likely signifigant pain. Ugh We have an added wrinkle as…
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New caregiver with lots of questions
Hello all, So glad to have found this resource. DH was diagnosed about one month ago and had his left kiidney removed. It's RCC clear cell. The tumor size was 9 cm and had the tumor thrombosis, although it had not turned into the vena cava yet. It was stage 3a with a Furhman Grade 4. He is only 49 and had no risk factors…
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Cedar Point vs Kalahari
A short while back, Iceman proposed a trip to Cedar Point in August 2014, for all interested members of this elite group of survivors. Several of you had positive responses, indicating interest in going. When Iceman made that post, I was already planning on going to Cedar Point with my family, which I did this past…
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just diagnosed
just got the news on sept.6,right kidney cancer 12cm by 8cm ,going in tomorrow(friday sept.20) to have everything removed including some lymph nodes.scared but keeping positive,docs have been great ,everything is going so quickly.luckily i live in a city with a great cancer hospital..4to 6 hour operation tomorrow.results…
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Kidney tumor 3.7 partial nephrectomy
I'm 39 yrs old male and they found a 3.7cm lower pole tumor on left kidney.. surgery is some time next month.. They say it's slow growing. They are doing the robotic procedure.. What does that mean anyway.. So 85 percent it's malignant.. What happens after surgery .. Please you guys help me give me advice, what am I…
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Kidney lesion
A week ago, I was eating and started feeling bloated. It carried me through the week but wasn't having any other symptoms, just fullness in belly and burping. Got worse through the week and was down 11 pounds total in 8 days from not wanting to eat. Didn't have bowel trouble or anything else. I have now been to the dr…
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CLEAR SCAN!!!
Thanks everyone for all the well wishes my scan was clear today! My next appointment is in March 2014! Love and prayers for good health! Brenda
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Weird update on BLKJAK
So, last we updated, he was recommended to start chemo for collecting duct carcinoma and we had requested a pathology review from Mayo. B wanted to wait on these results before starting chemo, and that hasn't come back yet. He was told to stop taking Votrient a couple weeks ago, and has been sick since that time....fever,…
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Info on Avastin
Hi all I have been off the radar for awhile but doing much better. Its been since March 7 2012 that I had my left kidney and lymph node removed, 2 rounds of sutent in May, June 2012 for lung metastasis but had to stop due to the pain that it caused to my mouth (had numerous mouth surgeries for prior tongue cancer and the…
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Newbie
Hi I have just come across this site. i had an open nephrectomy on my right kidney due to a 9cm tumour which had spread to lymph node, attached itself to my liver and also my back muscles. Currently suspected T3, N0, M0 although waiting for pathology results. I am on day 8 of my recovery. Question on has anyone else had…
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Questions on complex cyst/surgery recovery/need for surgery
As happens with so many people, I discovered I had a small renal mass during an ultrasound being conducted for other reasons entirely. My local doctor advised me, after an additional CT scan and an MRI, that the chances of it being cancerous were 90% and it needed to be removed. This was three years ago. The mass was 2.1…
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chocolate cyst???
hi All, My dads surgery was wed. All went well. removed it and froze the base. Said it was a chocolate cyst. 5% chance of it being cancerous. Has anyone heard of this type of cyst on the kidney.?I have heard it on ovary's but not the kidney. Any info would be great. Bill
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I am happy to report nothing....
As in nothing growing inside of me; no evidence of disease. Maybe it is possible to beat sarcomitoid metastatic renal cell carcinoma. 50 or so more NED's and I am done: 6 quartly scans, 4 6 month scans, and then 40 annual scans will take me to 94.
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RCC and Vitamin D deficiency
Hey everyone! A few years back when I started to feel sick, the only thing that ever showed up in all 5 million of my blood tests was that I was severely Vitamin D deficient. My doctor had me on multiple rounds of 50,000 IU's of Vitamin D and nothing brought my levels up. It all makes sense now after my ChRCC diagnosis. I…
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T-shirts
Group, I am ready to put together an order of T-shirts 100 minimun. I figure that person sholp have at least 3, 1 for the morning, i for the waterpark or amusement park and 1 for evening ware. so that we are recognizable at all times. I figure with individual delivery we are looking at about 13 dollars per shirt. The…
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Chest X-Ray vs CT Scan
How reliable are Chest X-Rays for spotting lung mets vs a CT Scan? My dr. seems concerned about the amount of radiation and wants to alternate between the two. My original tumor was small (2.5 cm) but already stage 3. (Got into the sinus fat). coming up on 18 months since surgery.
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Lung Surgery Soon - Still Quietly Freaking Out
Hi Everybody, I saw the thoracic surgeon yesterday. He said that my lung nodule was in a bad spot. He said that it was on the right lobe, closer to the heart and where there are a lot of major blood vessels. He said that ordinarily they just make 3 cuts and wedge the nodule out. He said that in my case, they might have to…
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Surgery in 22 hours
Driving up to Tampa this afternoon. Have to be at the Moffitt Cancer Center at 5 a.m. tomorrow. Dr. Sexton. Have been able to keep the anxiety away by keeping busy. It's out of my control at this point. Thanks for all the feedback and support. Will be posting as soon as I feel up to it.
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Scans Tomorrow
I debated doing this, but here goes. I'm having my 18 week scans tomorrow and, yes, I'm incredibly anxious. I had gone to a kidney cancer support group meeting last night to hear a lawyer speak about the new healthcare law and I met two new fellow kidney cancer patients, and their personal stories added to my worry over…
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Intro, my story (12 days post nephrectomy), and THANKS to those who have posted here!
Hi, everyone! This is my first time posting (though I spent some time reading before my surgery). THANK YOU to those of you who have posted your stories. They were incredibly helpful in letting me know what to expect, and what questions to ask. This experience would have been far worse if you guys hadn't prepared me --…
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Legal Resource for People with Cancer
The talk I went to last night was given by a lawyer from the Cancer Legal Resource Center. They have a help line. I thought it might be nice to post the link to their website. They don't do litigation, but they help connect patients with legal resources and educate the public about legal issues related to cancer, rights,…
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Scan results- Clean!!
We met with the surgeon this morning and got the results of the first CT scan since surgery. I got an "all clear" on the scan!! I think I'll splurge and have a glass of wine tonight. Many thanks for all of your prayers and well wishes. I cannot tell how much they are appreciated. You are all wonderful and supportive. I vow…
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Participaing in a clinical trial?
For those who are participating in a clinical trial, does it cost you anything? Do they provide the med(s) and follow-up for free?
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Scan on Friday
Hi Everyone, My Scan is Friday morning at 9:30 and I am getting a little nervous. It has been 7 months since my Lung surgery and I really can't tell a difference in having had a portion of it removed. I am just hoping and praying my scan stays clear! Thanks to all of you for helping me through, I really have come to rely…
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Update on my husband...
Well today was the day Mark (hubby) saw the specialist and the news isn't good but it could have been worse. First, his lungs look fine. No sign of whatever they saw on last chest scan. This is a relief. However, there is definately a new mass in the same kidney as last march. This means, he will be having surgery again…
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I'm going back in!
Results are in from latest scan. My remaining tumors have been shrinking from the IL-2! I will be readmitted on the 30th for round #3 of IL-2. Still some issues with bone mets but we will deal with that later if they remain. I look forward to the treatment. I don't look forward to miserable side effects. I'll be out of…
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Ultrasound Results
I recently had a renal ultrasound and it found that I have a complex multiobulated 5.2 cm lesion within the upper pole of the left kidney that contains septation which demonstrates vascular flow on color doppler imaging. Also additional 1.9 cm lesion within the lower pole of the right kidney with mural nodule or…