SORCE TRIAL PARTICIPANT WISHING TO SHARE EXPERIENCES

Alimac
Alimac Member Posts: 10
in Kidney Cancer #1

Hi all,

I am currently on the SORCE trial at Addenbrookes in Cambridge. I was diagnosed with kidney cancer on 5th August 2012 as a 46 year old man and had the affected kidney removed approx 3 weeks later. It was checked and found to be stage 1 and grade 4. Due to the aggressive nature of it I was offered a place on the sorce trial, which I started on 5th November 2012. I am still on it and now on year  2 of 3. Loads of side effects and only a quarter dose as a result. Before I write any more it would be good to communicate with someone going through the same trial. I would be really pleased If someone could respond ?

Many thanks

Ali

Comments

  • Suekub
    Suekub Member Posts: 137
    #2
    SORCE

    Hi Ali

    i particpated in this trial from September 2011. I was on drug for 12 months and had several side effects - hair loss, painful feet, diarahea, fatigue. If you read my bio it will tell more of my story.

    good luck.

    Sue

     

  • Alimac
    Alimac Member Posts: 10
    #3
    Suekub said:

    SORCE

    Hi Ali

    i particpated in this trial from September 2011. I was on drug for 12 months and had several side effects - hair loss, painful feet, diarahea, fatigue. If you read my bio it will tell more of my story.

    good luck.

    Sue

     

    SORCE

    Hi Sue,

    Many thanks for replying. I will have a look at your bio as you suggest. 

    Rehards

    Ali

  • Alimac
    Alimac Member Posts: 10
    #4
    Suekub said:

    SORCE

    Hi Ali

    i particpated in this trial from September 2011. I was on drug for 12 months and had several side effects - hair loss, painful feet, diarahea, fatigue. If you read my bio it will tell more of my story.

    good luck.

    Sue

     

    Further reply

    Hi Sue, have just read your bio and really sorry to hear that there have been further problems. I sincerely hope you discover that the trial you are on works for you.

    regards

    Ali

  • parul
    parul Member Posts: 24
    #5
    Alimac said:

    Further reply

    Hi Sue, have just read your bio and really sorry to hear that there have been further problems. I sincerely hope you discover that the trial you are on works for you.

    regards

    Ali

    Hi ali sorry to hear abt your

    Hi ali sorry to hear abt your story .. wht is the cancer tht youbare dealing wih and the medication you are been using

  • Alimac
    Alimac Member Posts: 10
    #6
    parul said:

    Hi ali sorry to hear abt your

    Hi ali sorry to hear abt your story .. wht is the cancer tht youbare dealing wih and the medication you are been using

    Hi Parul, 

    Kidney cancer and on the sorafenib drug as part of the SORCE trial in the uk.

    Regards

    Ali

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