Help needed
Hi all,
I'm not sure if I am using this site correctly? I have posted previously and also commented on a topic. However, I have received no replies etc. I am currently on a drug trial using sorafenib, having had a nephrectomy in August last year. I am keen to share experiences with others using that drug, which I believe is called nexavar as well. Hope to hear and a Merry Christmas to all on this site.
Regards
Ali
Comments
-
Nexavar
Hi Ali, Welcome.
You might wish to consider registering at: www.SmartPatients.com as well as checking in here. I think you may find more patients over there who have had some experience with this drug.
I hope you have a very Happy Holiday.
Best wishes,
-N
0 -
I can't relate
Hi Ali and welcome to our world. I've been using this site for about 7 months and am still not sure I use it correctly, so, you're in good company with me.
I can't relate to drug trials as I have never done one but wanted to chime in anyway to wish you a very Merry Christmas!
Sindy
0 -
twinthings said:
I can't relate
Hi Ali and welcome to our world. I've been using this site for about 7 months and am still not sure I use it correctly, so, you're in good company with me.
I can't relate to drug trials as I have never done one but wanted to chime in anyway to wish you a very Merry Christmas!
Sindy
Hi Sindy,
Thanks so much for replying and hope you have had a great christmas.
Regards
Ali
0 -
NanoSecond said:
Nexavar
Hi Ali, Welcome.
You might wish to consider registering at: www.SmartPatients.com as well as checking in here. I think you may find more patients over there who have had some experience with this drug.
I hope you have a very Happy Holiday.
Best wishes,
-N
Thanks N will check out that site.
Regards and a Merry Christmas
Ali
0 -
Hi AliAlimac said:Hi Sindy,
Thanks so much for replying and hope you have had a great christmas.
Regards
Ali
You were asking about the SORCE trial and from my experience there haven't been too many others in this trial who post on this board. I recall one other person some months ago and she withdraw from the trial due to side effects. I was on the drug for 12 months. i am in Australia.
Sue
0 -
Suekub said:
Hi Ali
You were asking about the SORCE trial and from my experience there haven't been too many others in this trial who post on this board. I recall one other person some months ago and she withdraw from the trial due to side effects. I was on the drug for 12 months. i am in Australia.
Sue
Hi Sue,
Thanks for your reply. I did see that you had posted on one of the discussion boards about the trial. It's a shame there are no others on here that are still on the trial as I feel sometimes that it is a bit of a solitary journey without being able to share experiences.
Regards
Ali
0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.8K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 397 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 671 Leukemia
- 793 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 61 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 539 Sarcoma
- 730 Skin Cancer
- 653 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards