Help needed

Alimac

Hi all,

I'm not sure if I am using this site correctly? I have posted previously and also commented on a topic. However, I have received no replies etc. I am currently on a drug trial using sorafenib, having had a nephrectomy in August last year. I am keen to share experiences with others using that drug, which I believe is called nexavar as well. Hope to hear and a Merry Christmas to all on this site.

Regards

Ali

NanoSecond

Nexavar

Hi Ali,  Welcome.

You might wish to consider registering at: www.SmartPatients.com as well as checking in here. I think you may find more patients over there who have had some experience with this drug.

I hope you have a very Happy Holiday.

Best wishes,

 

-N

twinthings

I can't relate

Hi Ali and welcome to our world.  I've been using this site for about 7 months and am still not sure I use it correctly, so, you're in good company with me.

I can't relate to drug trials as I have never done one but wanted to chime in anyway to wish you a very Merry Christmas! 

 

Sindy

 

Alimac

twinthings said:

I can't relate

Hi Ali and welcome to our world.  I've been using this site for about 7 months and am still not sure I use it correctly, so, you're in good company with me.

I can't relate to drug trials as I have never done one but wanted to chime in anyway to wish you a very Merry Christmas! 

 

Sindy

 

Hi Sindy,

Thanks so much for replying and hope you have had a great christmas.

Regards

Ali

Alimac

NanoSecond said:

Nexavar

Hi Ali,  Welcome.

You might wish to consider registering at: www.SmartPatients.com as well as checking in here. I think you may find more patients over there who have had some experience with this drug.

I hope you have a very Happy Holiday.

Best wishes,

 

-N

Thanks N will check out that site.

Regards and a Merry Christmas

Ali

Suekub

Alimac said:

Hi Sindy,

Thanks so much for replying and hope you have had a great christmas.

Regards

Ali

Hi Ali

You were asking about the SORCE trial and from my experience there haven't been too many others in this trial who post on this board. I recall one other person some months ago and she withdraw from the trial due to side effects. I was on the drug for 12 months. i am in Australia.

Sue

 

Alimac

Suekub said:

Hi Ali

You were asking about the SORCE trial and from my experience there haven't been too many others in this trial who post on this board. I recall one other person some months ago and she withdraw from the trial due to side effects. I was on the drug for 12 months. i am in Australia.

Sue

 

Hi Sue,

Thanks for your reply. I did see that you had posted on one of the discussion boards about the trial. It's a shame there are no others on here that are still on the trial as I feel sometimes that it is a bit of a solitary journey without being able to share experiences.

Regards

Ali