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Clinical Trials Question: Did you have to research and bring up the possibility yourself, or was it
Our story: My husband was diagnosed at Stage 4 two years ago. We have been to two large metropolitan teaching hospitals and also local treatment facility. We have seen a total of 5 RCC Oncology Docs. (they keep relocating and getting new jobs). On our very first visit we were told there are 7 drugs and we will go through…
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After the Everolimus trial
I’m another new member here. We keep showing up, don’t we? With a CT scan in January of 2013, I was found to have a large tumor on my right kidney. Shortly thereafter, surgeons removed the right kidney, the tumor, the neighboring adrenal gland and a number of nearby lymph nodes. It was papillary renal cell carcinoma –…
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Doctors, more Doctors, and expensive Doctors wanting to see me....that and sports cars
I had my nephrectomay abou 21 months ago. Yesterday I got a call from the urologist's office (who did the surgery), that he wanted to see me to go over my Path report. Huh? We did that 8 days after surgery. Granted, I have not been to him in a year because I am being followed by a excellent medical oncologist. The…
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2-year followup last week
Hello everyone, I don't sign on alot these days. I had my 2-year followup exam, bnlood tests, and x-ray. Thankfully NED from kidney cancer;-)! I did have a short (hopefully) run in with skin cancer (melanoma) at the beginning of the year. I had gone for a motorcycle ride the week before Thanksgiving last November. Moving…
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NED, But.....
Friday i had my first 6 month follow up/scans since my radical nephrectomy in September (Chromophobe type tumor 17.5 cm)....My scans looked great, cancer free, except now I have a septated cyst on my right ovary and Hemmeroghic (sp?) cyst on my other...Both about 2.5 centimeters. These did not show up on my initial scans…
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Renal Mass Bioposy's increasing....
I found this surprising http://www.news-medical.net/news/20140319/Renal-mass-biopsy-rates-increasing-in-kidney-cancer.aspx
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NED
Had my follow up this morning w the Onc - NED from Pelvis, Abdomen scan w 1/2 contrast - & Chest XRay Next scans September. Thanks for all the support :)
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Sleep Apnea
Hi All..!! OK, this is (for some) an important subject. If you snore badly.. you should get checked out for Sleep Apnea. I will try to make this short... but.. OK, so after my March 2012 aurgery, I was found to have an Arythmia. I also knew I had a sleep issue. Finally I got a referral to a pulmonary Doc and he did the…
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Ipilimimab and Nivolumab Trial-!st CT Scan Results
Got the results of my first CT Scan and was told no expansion and no growth of what I currently have which considering it was compared with a CT Scan taken 10 weeks ago and I only had one infusion is simply great. Next scan in May. They had previously told me to expext some growth with the 1st CT Scan and that we wouldnt…
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Pathology report
So I followed up with my urologist today. He says as far as he's concerned I am cancer free. I did get my path report today: tumor site: renal ccortex size: 1.7cm focality: single focus margins: all negative histologic grade: nuclear grade 3 pathologic staging: pT1a So the grade worries. My urologist says he will u/s my…
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Planned CSN Outage Tonight
Dear Users, CSN will be down for routine maintenance tonight from around midnight to 3:00 AM Eastern Time. We apologize for any inconvenience. The site will be up and running as quickly as possible. Thank you for all you do for CSN! CSN_Nick
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Staging Question
I'm wondering what is the difference between nx and mx vs no and no? If the nodes or metastasis cannot be assessed how do you know you are a stage 1?
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battle-cancers-one-by-one
A very interesting read about the future of tumor treament http://www.nytimes.com/2014/03/27/science/enlisting-a-computer-to-battle-cancers-one-by-one.html?ref=technology&_r=0
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what is "met"?
I am getting antsy about surgery next Tuesday. I appreciate reading the posts. I am not sure what many of you mean when you discuss 'met'? I will probably enjoy pizza and beer for the last meal!
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Scared of surgery?
I've read this often. Also have read reports like Sindy's who've had many parts removed. Can't scare her with a scapel. It got me thinking....hmm.... elbow bone tumor removed at 12 yo. the start of it all. I ate aspirin like m&ms for a year. Carried a bottle in my pocket. rt. knee, 3 or 4 procedures for bilateral…
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new member- stage 3a grade 4 considering clinical drug trial of Everolimus
Hi! My name is Stacy and Im 39 years old, very healthy and no risk factors. I'm married with 2 young daughters. I went to the ER 1/5/14 for Abdominal pain that turned out to be an 8.5 cm tumor on my right kidney. It was also hemorrhagic. Had total right open nephrectomy on 1/15/14. Pathology. stage 3 grade 4. No renal vein…
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Clinical Trial-Ipilumab & Nivolumab
Well, after waiting some 4-5 months I finally got all the go heads from the Doctor, Cancer Center, Insurance Company, and the Sponsor. I signed my contract about two weeks ago and tomorrow I start the trial. Get both Ipilumab and Nivolumab every three (3) weeks for 4 sessions.then only one of the two drugs every three…
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About Fatigue from Radiation
My father is receiving radiation treatments for kidney cancer (Stage IV, RCC- poorly differentiated cell type). He is to receive a total of 15 radiation treatments and has had half of them already. Before the radiation, he had enough energy. He could walk around (though not stand for extended period of time); he could talk…
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Getting drain removed
I'm heading back to Sloan Kettering today to have my drain removed. Had the little sucker in for a week so it's high time, but I'm also getting very anxious. For one, I'm worried that it'll hurt and for another, Dr. Russo might have the pathology report and I'm really scared of it.
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IL2 blog
Spent yesterday getting scanned and ported and got my first dose about six hours ago. No nasty side effects but I am told these will come with subsequent doses. Staff have all been great and my wife is here sleeping in a chair. Really didn't need any help yesterday but I am sure that will change too. this protocol is for…
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Partial Nephrectomy Done!
Hi everyone. Finally able to sit and post. Thank you all so much for all the comments, advice, support, and shared experiences on my intro thread. This board is invaluable and has been such a huge help for me. I had the open partial nephrectomy on Monday, home yesterday on Wednesday. I kept thinking of Iceman’s words of…
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Slimming World!!
Ok guys, I joined last week...needed to shift a few pounds and all I can say is that I love it!!! Is anyone else here doing it? It's not really a diet its just healthy eating but the joy of it I am never hungry woo hoo which is a bonus!! I even went out and bought a bike too......I am losing the run of myself but I want…
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Cabo Clinical Trial
Hi Gang... just found this on another WEB site.. and checked it out... They are recruiting in a bunch of countries all over the world and in many places here in the U.S. This is a Cabo Vs Everolimus Phase 3 Study... FYI... NCT01865747 Says they are looking for 650 participants.. Yes several spots in the U.K. (no Ireland,…
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scans coming up and Fox I have report on hip
Its that time again for scans of kidney in 3 weeks. I already dread it lol. Colonoscopy follows in June. Good news is ,,,, my breast biopsy from Monday was benign. I am so very happy. I am at high risk of breast cancer and now every 6 months its a mammogram and ultrasound. They placed tumor marker on the mass i have now to…
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anxiety
Drs. concerned over a suspicious small cyst on outside of right cancer. They believe 70% chance of cancer so they want to operate. DaVinci, almost a year to the day I had prostate done. Never been in the hopsital in 68 years! appreciate comments.
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Would you mind giving a caregiver some helpful ideas for emotional support? For me.
My husband was diagnosed with clear cell RCC with bone mets 2 years ago. Since then I have really appreciated the knowledge that has been shared, and the compassion and support you have given to me, so that I can help my husband. I am asking for some advice on ideas that may help me. It's so difficult sometimes and I know…
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Ctrl+Alt+Del.
So many come to this forum. Seeking advice, information and to share experiences. This becomes a first person pipeline on collecting input about surgery, recovery, scans, drugs and lifestyle changes. Academic and emotional information is openly discussed... Cancer has such a huge impact on our lifes. I couldn't even spell…
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The War on Cancer....
FYI. http://www.businessinsider.com/the-war-on-cancer-enemy-of-the-state-2014-3
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Unexplained weight loss, anyone have experience with it
I had unexplained weight loss which lead me to having a ct scan which in turn lead to the discovery of my kidney cancer. After I had my partial nephrectomy the surgeons told me they didn't think it was likely that that small tumor was responsible for my weight loss. So a couple days ago I had upper and lower g.i.…
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International Day of Happiness
Today is the International Day of Happiness! Soooo....Happy Happiness Day everyone! It is also the first day of SPRING!! (can somebody please let Mother Nature know??) So today, please forget your troubles, and watch a funny movie, google youtube for Happiness Day clips, hug your loved ones and feel that wonderful feeling…