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Kidney Cancer

GFR
Went to my family doctor today for results for a bunch of blood tests. He said everything was EXCELLENT. I was very happy. I asked if my hemoglobin and B12 were better (very low previously) and he said yes. Hemoglobin is on low end of scale but okay. B12 good. However when I got home, I noticed on the printout that 2…
Husband having open neph tomorrow.
This is going to not come out right, but bear with me. I've been reading all of your posts, and I am struck by how you are all just a lovely bunch of normal people. Normal, until one day everything changed, and one thing led to another, which brought us all here. Normal. Isn't that a funny thing. Suddenly, cancer is part…
scANTICIPATION
Trip to NYC tomorrow for my first post-surgery scan results. I think I am going to have a little trouble sleeping tonight. It has all been a whirlwind experience. The diagnosis in late April seems like a long time ago, but the surgery and recovery seem like yesterday. As my screen name implies, I always seek the positive…
Re-occurrence
I am getting set for a biopsy to determine if my renal cell cancer has matasisized. The doctors are 90 percent sure that it is back. They found anodule on my right lung in August and they just did a scan the week of Christmas eve to see if the nodule grew, not only did it grow but five more grew as well. They have to have…
Home!
i have previously posted about my diagnosis. Short story, incidental diagnosis after having acute renal failure following campylobacter infection from rare duck. Initial diagnosis was mid-August. Working through the system I selected a surgeon at a major hospital in North Texas. CT scan showed a 6cm tumor plan was to do an…
radioembolizaiton
I have had tests (MRI, Ultrasound, & biopsy) to proceed with radioembolization for liver mets. My provider is currently running it by the insurance co. (BCBS) for approval. Has anyone else had to deal with insurance companies for approval with this proceedure? If so, was it approved & how long did the process take? It…
Pfizer co-pay assistance
I recently found out that Pfizer has a program called "Co-Pay One". It offers some very real savings as to your out-of-pocket costs for certain Pfizer products. Included is Sutent. Maybe this is common knowledge among kidney cancer circles. But, I hadn't realized it and wouldn't have known about it except for my…
I'm just a little confused
On Nov 1, I had my first ever hematuria event. A ct scan 2 days later revealed a mass on my right kidney and several involved lymph nodes in my medistinal and collar bone area. On Dec 1 2014 I had a full radical nephrectomy and a 7 cm tumor along with my right kidney were removed. Multiple local lymph nodes were also…
Hearing loss associated with renal problems
My work colleague politely inquired whether I was having hearing issues, because he noticed I turn my head and cup my ear when he speaks to me. Three years ago, I had a 9 centimeter cancerous tumor and my left kidney removed. I have never had hearing problems in the past and neither has anyone else in my family, so I was…
Update
my husband had th biopsy on the 2d and we got results yesterday. The area in the sacrum that first showed up on the initial MRI in the staging and diagnosis but which no one alerted, was renal cancer. Based on the initial size and the current size (18 months) shows it to be very slow growing. the smaller spot on the ilium…
Saying " Thank you!"
Hello everyone! I'm new on these board, not a patient myself, but a caregiver. English is not my native language, so apologies for possible mistakes. I'd like to say thank you all very-very much for this forum, for good advise, positivity and support you give to all newbies here. Here's our family's story - my fiancée was…
Our Christmas Gift
As most of you know, my husband, John (oneputt), has been on the nivolumab/votrient trial at Hopkins for over two years now. During the first year of the trial, he basically achieved 56% tumor reduction, followed by a year plus of stability. The trial requires CT scans every 12 weeks which are read by Hopkins and then by…
Hip and lower back pain
Hi all, I'm having lower back pain that was tought to be osteoarthretisis before being diagnosed for my RCC. Nothing showed up on the bone scan in august tough. I am now dealing with this lower back pain everyday and night(worse at night), I am also having hips pain since a couple of week and i cannot cross my legs without…
Muscle weakness
It has now been three weeks since my operation, and I am experiencing quite a bit of fatigue, and my arms and legs feel like there are weights strapped to them. Very sluggist. I also noticed today that my right arm was tingling...from my foreare through my hand. Additionally I have been rather dizzy. I do know that I have…
Stuart Scott
I never saw his speech this summer as I spent most of the summer hospitalized, but saw Stuart passed away today and viewed his speech. I love what he said. "When you die, it does not mean that you lose to cancer. You beat cancer by how you live, while you live and the manner in which you live." - Stuart Scott RIP…
Votrient to give away
I was recently tried on Votrient for metastatic leiomyosarcoma but had to stop it because it was not working. My mail order pharmacy sent my monthly supply one day after my physician discontinued the meds. If I return the medication, they will just dispose of it. That would be almost $10,000 wasted. I never opened the…
Just received my pathology report
I just received the pathology report electronically, and the tumor ended up being 3cmX4cmX5cm. They called the tumor RENAL CELL CARCINOMA, CLEAR CELL (CONVENTIONAL) TYPE WITH DEGENERATIVE CHANGES AND METAPLASTIC BONE FORMATION (sorry for the all caps...I cut and pasted it from the report). I don't know what degenerative…
Pathology report
It appears my tumor was much larger than the original 5.5 cm they saw on the CT scan. It measures 12.5 cm x 7 cm x 6 cm. It was 50% necrotic. Given its size and the happy news that it appears to have been confined to the kidney, it was Fuhrman grade 2, clear cell renal cell carcinoma. My surgeon was sick today, so, I saw…
Votrient - side effects/ long term use?
I have had renal cell for the last 8 years, recurrence occured in the remaining kidney, pancreas and lung 5 years ago but as I was well and considered stable, with mm growth at each 6 monthly scan I had no treatment.Now my last scans show considerable growth and I have fluid in the lung. My oncologist has suggested…
Would like your opinion
In one of the topics posted earlier, Sarah had mentioned that she re-reads her husband's pathology report often. So...I read mine again. There were some terms on there that I wasn't sure about so I googled them. Lymphovascular Invasion - present. From what I read, that is indicative of a higher chance of recurrence. The…
Happy NED year everyone
May the new Year bring good health and Ned scans to all of you here. May 2015 be the year searchers will be finding THE cure. A good year to you, your family and friends!! Dave
Will be 3 weeks on Monday
This coming Monday (January 5) will mark 3 weeks since I had my open partial nephrectomy. This is just an update, as I haven't posted anything for a while. I came home the Thursday after surgery, and was in quite a bit of pain as expected. I slept in the recliner for three or four nights, but after that was able to move…
Which is a better or safer open or Lap ... Here IS THE UPDATE AFTERMATH!!!!!!!!!!!! HELP SOMEONE P
Hello all, I go for a partial nep surgery next week and wanted to know if anyone can give me some insight on which surgery is safer. The open surgery or the Lap. Hello all, an official club member... But I have a question. I had surgery Dec. 19th and sad to say I'm still in the Hospital 9 days later with a servere urine…
Returning to work. Is there a common experience?
Is there any kind of common thread or expectation about returning to work? I am a High School History teacher, teaching everything from Ancient World to Ap classes in European and American studies as well as a bit of Philosophy. I have a reputation of working well with dificult students and so am rewarded by being given…
internal hernia caused by nephrectomy
I was wondering if anybody else developed an internal hernia after HAL nephectomy. Four weeks after my kidney surgery, I had to have a laparotomy for a bowel resection because of a closed loop obstruction that had strangulated. Over five feet of necrotic small intestine was removed. It nearly killed me. From my…
Anyone else deal with this
I was diagnosed with stage 1 RCC in Jov of last year. I had partial nephrectomy and successful removal of mass. I have had the hardest time dealing with having cancer mentally. I havent dealt with it nor know where to start
Votrient dose adjusted
I started Votrient six weeks ago with 400 mg the first week, 600 the second week and then 800. Had a lot of problems with my mouth so the doc went back to 400 mg for a week and then 600 mg. That meant I could eat all the Thanksgiving dishes--which was great since I made most of them. Got my six week checkup and he has me…
Moving on....
Friends - it's been a good run. I have learned much from you and felt your courage, faith and anguish. Thank you ACS for this forum as well. I found a new "home" wherein to discuss RCC which offers more privacy and active moderation than can be found here. [Content removed by CSN Support Team]. Best wishes to all you…
Survivors Remorse
I know this subject has come up many times before, and probably will again and again. I hate it. I hate wondering why I've had cancer twice and was blessed to not have a recurrence. Even this summer, when I was so close to dying and yet I survived. So many don't, as we know first hand, both here and in our personal lives.…
Pain from surgery
I had a left partial Nephrectomy on Dec. 19th 2014, It was open cut, and today is 1 week post surgery. I am in so much pain I can't believe it. I feel like there is a vice around my chest squeezing and when I move much at all the vice tightens until I can hardly breath. I can only walk from the bed to the toilet before I…

Kidney Cancer

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