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Would like your opinion
In one of the topics posted earlier, Sarah had mentioned that she re-reads her husband's pathology report often. So...I read mine again. There were some terms on there that I wasn't sure about so I googled them. Lymphovascular Invasion - present. From what I read, that is indicative of a higher chance of recurrence. The…
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Happy NED year everyone
May the new Year bring good health and Ned scans to all of you here. May 2015 be the year searchers will be finding THE cure. A good year to you, your family and friends!! Dave
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Will be 3 weeks on Monday
This coming Monday (January 5) will mark 3 weeks since I had my open partial nephrectomy. This is just an update, as I haven't posted anything for a while. I came home the Thursday after surgery, and was in quite a bit of pain as expected. I slept in the recliner for three or four nights, but after that was able to move…
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Which is a better or safer open or Lap ... Here IS THE UPDATE AFTERMATH!!!!!!!!!!!! HELP SOMEONE P
Hello all, I go for a partial nep surgery next week and wanted to know if anyone can give me some insight on which surgery is safer. The open surgery or the Lap. Hello all, an official club member... But I have a question. I had surgery Dec. 19th and sad to say I'm still in the Hospital 9 days later with a servere urine…
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Returning to work. Is there a common experience?
Is there any kind of common thread or expectation about returning to work? I am a High School History teacher, teaching everything from Ancient World to Ap classes in European and American studies as well as a bit of Philosophy. I have a reputation of working well with dificult students and so am rewarded by being given…
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internal hernia caused by nephrectomy
I was wondering if anybody else developed an internal hernia after HAL nephectomy. Four weeks after my kidney surgery, I had to have a laparotomy for a bowel resection because of a closed loop obstruction that had strangulated. Over five feet of necrotic small intestine was removed. It nearly killed me. From my…
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Anyone else deal with this
I was diagnosed with stage 1 RCC in Jov of last year. I had partial nephrectomy and successful removal of mass. I have had the hardest time dealing with having cancer mentally. I havent dealt with it nor know where to start
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Votrient dose adjusted
I started Votrient six weeks ago with 400 mg the first week, 600 the second week and then 800. Had a lot of problems with my mouth so the doc went back to 400 mg for a week and then 600 mg. That meant I could eat all the Thanksgiving dishes--which was great since I made most of them. Got my six week checkup and he has me…
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Moving on....
Friends - it's been a good run. I have learned much from you and felt your courage, faith and anguish. Thank you ACS for this forum as well. I found a new "home" wherein to discuss RCC which offers more privacy and active moderation than can be found here. [Content removed by CSN Support Team]. Best wishes to all you…
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Survivors Remorse
I know this subject has come up many times before, and probably will again and again. I hate it. I hate wondering why I've had cancer twice and was blessed to not have a recurrence. Even this summer, when I was so close to dying and yet I survived. So many don't, as we know first hand, both here and in our personal lives.…
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Pain from surgery
I had a left partial Nephrectomy on Dec. 19th 2014, It was open cut, and today is 1 week post surgery. I am in so much pain I can't believe it. I feel like there is a vice around my chest squeezing and when I move much at all the vice tightens until I can hardly breath. I can only walk from the bed to the toilet before I…
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My Christmas Wish
My wish for Christmas is for our medical system to do a better job of early detection in regards to cancer. I feel incredibly lucky that my cancer was caught incidentally. But a majority of cases aren't found until the cancer has progressed and either caused serious medical issues or metastasized. And I'm sorry, but that's…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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Stomach ache
Its been 3 months since my radical nephrectomy and I'm always having stomach ache specially in the morning....My stomach is always full of air and the pain seems to be coming from the intestine...then after farting a lot, followed by a bowel movement, it goes away slowly....but it always happen every morning......anybody…
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MERRY CHRISTMAS EVERY ONE!!!
I just wanted to take a moment to wish all of my extended family a ....Wonderfully warm & heartfelt Christmas. My wish for all of us is a Happy New Year filled with the promise of nothing but good things to come:) HAPPY CHRISTMAS!! Djinnie x
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Nivolumab (Opdivo) from BMS has just been approved for Melanoma
What a wonderful Christmas present for all of us! http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm427716.htm
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Symptoms or lack of symptoms
I have read that blood in the urine is one of the main symptoms of a kidney tumor. I am happy to say that this far I have not had any visible blood in the urine...perhaps some microscopic blood, but none that I could see. Again, I am 41 and the tumor is 4.5 cm. The symptoms I do have are full flank, side, and back…
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If you can spare a prayer today
Today is my first after surgery appt. with the doctor. If you can spare a prayer for me, I would appreciate it. Will be getting the pathology report today and am praying it is stage 1 with no renal artery involvement. A bit apprehensive. On the bright side, I am doing a bit better in the pain department. I was able to get…
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Creatinine levels
hi all first, happy holidays to all. may the spiritual forces be with you all as you go through this journey. i have been in pretty good shape since my full nephrectomy in June...life has thrown another curve ball at me but that is another pint of beer (only one pint though, gotta to treat the remaining kidney with kid…
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First post-op scan ...no cancer, but a new issue
Hello all, I had my 2.2cm tumor removed via open partial Nephrectomy back at the beginning of March. Clear cell, stage 1, grade 2, clear margins etc. Because of my relatively young age for kidney cancer, I am going with 9 months between scans for the first few years rather than 6. I got my results yesterday (24 hour…
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Some surprising good news from blood work today!
I have been in a pretty bad way recently so I was not expecting my blood work to be in good shape. It was a big surprise to find everything from my Bilirubine, Creatinine and Liver Enzymes all to be in the normal range!!! Also my Oncologist has been giving me a hard time for ages in my refusing to take medication for my…
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How soon after surgery should we expect to see oncologist?
I was wondering how soon after surgery and original pathology report should one expect to see an oncologist? My husband met with his urologist the Monday after having his kidney removed on the previous Wedenesday. He told us he would send over the pathology report to the oncologist and the oncologist would contact us when…
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Scans and appointment
after a week of anxiety, my husband's bone scan, chest and abdominal scans are clear; next appointment in 4 months his oncologist is optimistic but, of course, cautious since we are dealing with renal cancer. But, he is stage 4, grade 2 with no evidence of visible disease. Sarah
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Husband Diagnosis of pT3a with Sarcomatoid components - need help
My husband was diagnosed with Kidney Cancer on December 10, 2014 at the age of 39. He is not a smoker and has no family history. His cancer was found after a CT scan that was looking for kidney stones. The mass was 10cm. The urologist performed a radical nephrectomy and said everything looked good with clear margins. There…
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Good News
I had a chest cat scan this month that is still clear and has been since December 2011. I had been diagnosed with stage IV kidney cancer with mets to the lungs in april 2011. I have been on votrient since July 2011 and oncologist is now stopping the votrient and will repeat chest scan in 6 months. He is not totally…
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Ok! Dr War has come up with a cunning plan!!
It's been a long day but productive I think. The good news is the tumours are still stable, Yay!!, so that is a total of six months so far, that's nothing to be sniffed at! I am delighted!!! With regards to the wayward lymph, these are the crux of my problems, cough, voice and sickness, busy little blighters. The plan is…
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Having a lot of pain
I am just very disappointed right now as I am in pain 24/7 on percocet and morphine tablet at bedtime for this hip pain. I have trochanter bursitis that does not respond to cortisone injections and gluteal tears in right hip also. Not a doc anywhere will do surgery on me. The last one I met 3 months ago said if my lung doc…
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It is finished
I am happy to say that the surgery is over. I am lying here in bed...in pain... but happy to be rid of that tumor. It was a bit bigger than they thought...almost 5 CM. It was also oblong shaped, and had grown into the ventricle...whatever that means. But, it was encaplulated, and they got the thing out succssfully and were…
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Cakes, chocolates, ice cream, cookies, processed fruit juices and the likes...
I've read over the internet that people with cancer should avoid these foods as cancer cells feeds on sugar....Is this true? I just thought to ask this as I couldn't find a topic here regarding this? Pardon me if I'm asking nonsense......Thanks....
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tumors that disappear???
Hi everyone, Have any of you here had one or some of your tumors disappear? The doctors planned surgery for next week and now they are not finding the tumors. Does anyone know what that means? I'm very worried. It was a good thing to know where there were!