Sutent

dancnbear1
dancnbear1 Member Posts: 86
in Kidney Cancer #1

Well, no longer part of the Clinical Trial and will be starting Sutent on 11/4 and looking for feedback on what to expect/side effects. Also curious how long after I start taking the pills (50mg) that I should expect to see on the onset of these side effects--if any.

 

DB

Comments

  • Dutch1
    Dutch1 Member Posts: 152
    #2
    Me too

    I am interested in members' feedback also.  I just started Stutent today.

  • Darron
    Darron Member Posts: 310 Member
    #3
    Dutch1 said:

    Me too

    I am interested in members' feedback also.  I just started Stutent today.

    Sutent Expectations

    Judging from the original post date, you may be starting some of the side effects now.

    I have been on it since early 2013. Every cycle seems to be different, over time, you will learn what is coming and jump on treatment quicker.

    It ususally takes 7-10 days into the cycle before the SE's start. I have had odd metallic taste, tender hands and feet, headaches, tongue sores, mouth sores, fatigue, and diarhea. Don't hesitate to take the meds for each of your symptoms. Your quick response taking what the doctor gives you will help you deal with the issues.

    Here are some good tips:

    mouth and tongue sores - get magic mouthwash with lidocane and an antibiotic. just lidocane won't cure the sore, just cover the pain.

    sore hands and feet - use udder cream, I like the cow like tub they sell at CVS. I am on my 3rd tub.

    diarhea - get an Rx for it and take it at the 1st sign of loose stools

     

    It is a grind, I started at 50 mg and have reduced to 37.5. I am on 4 weeks, off 2. I hear 2-1; 2-1 is a more tolerable cycle. I am on Nivolumab trial and don't have dose flexibility.

     

    Hope it helps.

  • saintmont
    saintmont Member Posts: 63
    #4
    stutent

    Hi, I am on my 4th round of sutent 50 4weeks 2 weeks off. My only problems are sore feet. I changed my diet a little I reduced the amount of grains I eat. For example I eat fruit for breakfast with yohgurt and a couple of slices of toast. I haven't had diaherra since being on sutent. Something a bit tired. I work full-time, play golf and exercise. My eyes water especially playing golf which is annoying.

    Regards saintmont

  • vccortes713
    vccortes713 Member Posts: 51
    #5
    saintmont said:

    stutent

    Hi, I am on my 4th round of sutent 50 4weeks 2 weeks off. My only problems are sore feet. I changed my diet a little I reduced the amount of grains I eat. For example I eat fruit for breakfast with yohgurt and a couple of slices of toast. I haven't had diaherra since being on sutent. Something a bit tired. I work full-time, play golf and exercise. My eyes water especially playing golf which is annoying.

    Regards saintmont

    everybody is different. for

    everybody is different. for me the only side effect i had was too much tiredness and exaustion to the point that i feel like i'm dying........the diarrhea side effect of sutent levels out with the constipation side effects of my morphine.....goodluck....

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