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Kidney Cancer

Awaiting answers
I went to the ER a few nights ago because I was having back spasms and pain in my abdomen that came on suddenly. They did a CT scan without contrast and found a lesion on my kidney. They also noted there was some thickening of the tissue in my kidney. They also found blood in my urine. The ER doctors sent me home with the…
update on my medical issues
As many of you know I have been having problems with my hip have torn muscles out of the bone and severe bursitis. Have seen 4 orthopedic surgeons and none interested in doing surgery on me. THe last one in sept said if my lung doc could get me off steroids for my lungs for 4 months he would do surgery . He order therapy…
Positive thoughts for all of you
I haven't been back for a bit and thought I'd check in on all of you. I'm so glad to see so many of you doing well and so sad to see so many new faces. My warmest thoughts and prayers are with all of you. I wanted to to share with all of you the philosophy that blkjak and I lived with throughout his journey as i see so…
Finally back with an update
Hello all. I have been MIA for a bit. Had a slow healing keyhole wound which became infected. Then developed some extensive pain in the area of that infection. After getting out of my car and feeling a terrible RIPPING sensation in that area and extensive pain for many hours, it was determined to be adhesions. Now, about…
Checkpoint inhibitors
http://wypr.org/post/harnessing-immune-system-fight-cancer Any thoughts? Info?
Bad News
I hate sharing this information. Today I found out my cancer has most likely metasticized to my adrenal gland. I'd been having some pain on my right side (my surgery side) for several weeks. I decided to email my oncologist yesterday morning to tell him about it. He had me come in and go to urgent care at the City of Hope.…
I don't know if this is good or how bad this is? I'm getting tired of figthing....
Your thoughts - creatinine levels, gfs
Hello I am from the uterine board, but have developed some kidney issues and wanted to see if you had any advice. I am required to have a stent due to moderate left-sided hydronehrosis and my left kidney has shrunk. My right kidney is 10.8 and my left kidney is now 8.3. I do have a soft tissue mass wherein the ureter…
cyst in pancreas at first scan
hi all - had my first 6 month scan after full nephrectomy in June and everything looks good but there is a really small (4 mm) hypodensity in the panceeas assumed to be a cyst. additional imaging was recommended and is being scheduled anyone encounter anything similar? postive vibes to all
Adrenalectomy
Has anyone here had to go back in to have their adrenal gland removed? What were the options? What did you decide and how did it go? Thanks, Todd
US and Blood work... Enough for a follow-up appt?
Hey, guys, In the interest of not repeating myself too much, because I know I have covered this ground before, I'll make this quick. I scheduled my follow up with the urologist/surgeon for March 16. This is my 4 month follow up after seeing him in November after the surgery. He ordered an abdominal ultrasound and full…
Stage 4 Need encouragement
Can someone tell me if PT4 or T4N0M0 is stage 4. My husband's 14cm tumor was removed along with the adrenal gland and right kidney. Looks like we are looking at stage 4 and could use some encouragement.
First meeting with Dr Voss
We had our first appointment today with our new oncologist, Dr Voss. He spent a good amount of time with us explaining where we go from here (4 week post radical nephrectomy) and answering our questions. He explained the stages of cancer and what made my husband's tumor stage 4. John's tumor was 14cm and went into his…
Ferry to NYC
At the suggestion of someone here on the broad, my husband and I took a ferry to NYC and walked up 1st Avenue to Dr Russo's office. It was actually a very nice way into the city. We boarded the ferry in Atlantic Highlands, NJ and got off the ferry on 35st. It's a bit of a walk but the blocks are short. This would also work…
Two years since my Met was removed
It was 104 weeks ago today that I went into surgery to remove a 1.5 cm tumor from my lung. At the time, it was not clear if it was a new tumor or a met from the RCC; the biopsy proved it to be a met. Lucky for me, it was a solitary met. I have had no other treatment...and as of today, am two years NED. My Oncologist (Hans…
Ferry to NYC
At the suggestion of someone here on the broad, my husband and I took a ferry to NYC and walked up 1st Avenue to Dr Russo's office. It was actually a very nice way into the city. We boarded the ferry in Atlantic Highlands, NJ and got off the ferry on 35st. It's a bit of a walk but the blocks are short. This would also work…
Ferry to NYC
At the suggestion of someone here on the broad, my husband and I took a ferry to NYC and walked up 1st Avenue to Dr Russo's office. It was actually a very nice way into the city. We boarded the ferry in Atlantic Highlands, NJ and got off the ferry on 35st. It's a bit of a walk but the blocks are short. This would also work…
Ten Years on August 1, 2012
Some observations and a few thoughts: NED X 10 NBD X 10 10 Annual Southern Caribbean Survivor Cruises so far. Number 11 will be in February, 2013. Each of the 5 grandchildren has become 10 years older. No new ones. The 18 year old girl I met on the beach (Icewoman) will be 68 this fall. The survivor rates for each Stage of…
Almost 5 years kidney cancer
Hello. I am coming up on my 5 year scans for RCC Chromophobe. At my 4 year my doctor said next year is the year if everything is good at the 5 year scans you are done. Is this right?? I have read so many stories of RCC Chromophobe coming back. I know it is not the norm but it happens. Does this seem right to all of you?
Almost 5 years kidney cancer
Hello. I am coming up on my 5 year scans for RCC Chromophobe. At my 4 year my doctor said next year is the year if everything is good at the 5 year scans you are done. Is this right?? I have read so many stories of RCC Chromophobe coming back. I know it is not the norm but it happens. Does this seem right to all of you?
Found 8cm on my sons kidney an hour ago
I'm not sure I'm in the right place to be posting this, but my anxiety is through the roof and my husband is at the hospital with our son but i can't be with them because I am home with our other children. My son is 18. He went snow skiing yesterday and had a couple crashes and he woke up this a.m. with a pain in his back.…
Kidney Cancer Patient and Survivor Conference: Los Angeles
I posted the link to the agenda for this free event. My husband and I attended last year and are looking forward to attending again this year. https://secure.kidneycancer.org/np/clients/kca/event.jsp?event=3970
Dietary Guidelines
I had an open incision nephroureterectomy (full removal of left kidney, ureter, adrenal gland, 38 nodes-1affected, and bladder cuff) the eek of Thanksgiving, 2014. Surgeon is 90% certain he got everything. Follow up ct scan was clean. I have been trying to find a dieticians guideline for eating but have had difficulty. I…
Ok. Come out, come out wherever you are... FOX and TODD
it has been way too long since either of you posted and inquiring mind(s) want to hear from you. Sarah
Being proactive and then some
when my husband was dx in July, 2013, it was through the MRI; it noted lesions at the T11, L2 and an area in the sacrum at S1 and S2 and of course, the mass in his right kidney as he went through tests to stage the cancer, he had a Pet Scan which again noted those areas followed by CT scans. He was treated for the T11 and…
Need help please read
Anyone that isn't familiar with our circumstances and would like to, read my other post "8cm mass found on son's kidney". NEED HELP... I am located in Missouri. I need to find a teaching hospital known for their urology dept.
Those with bone mets, please
Hi all I did the nephrectomy five months ago and i'm stage two. Since few days ago I've had a pain at the end of spine during nights, I had almost the same pain ten years ago so I did MRI and there was no problem then I changed the bed and the pain vanished. 8 months ago I did another MRI for another reason which showed no…
Hypothyroidism and Votrient
I started Votrient three months ago and have had some fatigue and dry skin. I had my first TSH test on 12/10 and it was 26. My second test was 13 with normal values between 1 and 4.5. I do sleep a few hours later since I retired 12/31. The doc wanted more than one test before any meds. Are these numbers bad enough for…
I started torisel today
My last scan showed mets to both lungs,liver and lymph nodes. So far no side effects. If I feel as good in the mourning as I do now I'll go to work. Anybody else have experience with torisel?
First Votrient scan is good news
After three months on Votrient I got my first scan today and the doc showed me all four lung mets are much smaller. Largest one is just under 2 cm after being 3.5 cm on 10/29. I am taking 400 and 600 mg on alternate days

Kidney Cancer

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