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18 yr old son... softball sized cyst has a blood supply
Hello again. I posted a few weeks ago about my 18 yr old son. He went snow skiing and thought maybe he injured something when he fell so took him to the ER. MRI showed what looked to be a cyst with some calcification and filled with blood. Because it was filled with blood the MRI image couldn't reveal what exactly it was.…
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My first 3 month scan results
Good morning everyone. Sorry I have been MIA - dealing with some seasonal allergies and feeling under the weather. The good news is that my first 3 month scan was excellent - no signs of metastasis or recurrence. I have lost apprx. 25 lbs since my surgery in December and the scan said I no longer exhibit "diffuse fatty…
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Husband's surgery yesterday
My husband's surgery went well - longer than expected due to scar tissue, but successful. I'm not sure if I've mentioned before that my cancer surgery was the same date as his 6 years ago (colorectal cancer). What an anniversay to have to share , but I'm doing fine now and praying that he does well after this also. They…
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One Year Check Up Looming!
My one year check-up is coming up on Tuesday. Chest x-ray and kidney scan. I’m getting nervous so please wish me luck. Worst part is, usually I see my oncologist afterwards so we can discuss the results but this time I won’t see him until April 2. And MSK posts the results of the tests online so I can look forward to…
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An Update Following My Adrenalectomy
Hi. Sorry I've been away without stopping by for a few weeks. I started back to work yesterday after 7 weeks of disability after my adrenalectomy. I can't recall if I checked in to say my adrenal tumor tested positive as RCC, but it did. I've just been trying not to make cancer the center of my life. I had a hard time…
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Scan Time, Deep Joy!
I'm off for my three monthly scan this morning. I hate the early morning appointments it's over a two hour drive and the weather is wretched. I have to drink water on the way for the prep, hot coffee would be far more welcome in this weather. Brrrrr! Things have not been going so well for me lately so I am much more…
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Disappointed in my doc
I'm 3 years post nephrectomy (stageT1b, grade 2) and all has been very well. That being said, my urologist (same doc that performed by radical nephrectomy in Feb 2012) told me back in the beginning of this that my follow up would be CT scans in years 1, 3 and 5 and chest x-ray and labs only in years 2 & 4 I thought that…
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Bone Scan Question
I had a nuclear bone scan the other day, and thankfully the scan did not indicate any mets in my bones at all. One concern that was brought to my attention was the fact that my "good" kidney and my bladder were both lit up like a Christmas tree on the scan, as the radioactive material was being filtered out of my…
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3 year scans.
Tomorrow my son has his three year scans. Dr. told him after this year chances go down. This is with a different dr. so we won't get the results the same day. Read so much about chromophobe being indolent but I know the chromophobe people on here with lots of trouble. Need prayers.
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Pain question
hi everyone, It had now been a little over two months since I had my partial nephrectomy. The good news is that the pathology report was about as good as I could have hoped for...stage 1b, grade 3, no microscopic invasion of lymph system or blood vessels, and cleab edges were confirmed. I was thrilled with that result. My…
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Three month follow up scans this Friday
Hello everyone. I have my first follow up scan and x-ray this Friday. Just a wee bit nervous, but, I know that everything happens as it should in its own time. Should have my report back by Monday. Fingers crossed.
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Open vs. Laparoscopic? NO CONTEST!!
Hey, guys, I'm a little over 2 weeks removed from the gallbladder surgery, which was switched to open after the surgeons couldn't get it out laparoscopically. I've seen some people wonder about the difference between the 2 styles and I guess I'm in a pretty good position to compare the two and give you some insight. This…
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And, now we wait...
my husband will get scans today; they were scheduled for May but moved up at our request since he's experiencing discomfort in an area that had been noted last August on a bone scan the CT scans in August and December did not note it but now he does have discomfort his onc mentioned maybe starting xgeva but we want to wait…
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Advice - Papillary RCC - Mets to Spine, etc. - Inlyta
Hope all are well! I wanted to inquire if anyone can give any advice on papillary rcc and mets spreading to spine. I was told during my December scans that mets had spread to spine as I had two small spots, but no pain. I have continued as active a lifestyle as possible, working on my old tractor and pickup truck, I coach…
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May I Join the Club?
Hi All, Until recently, this isn't a club I had ever considered joining, but a CT Scan for an unrelated reason resulted in a surprise admission ticket. Clear RCC, at 4cm just made it in as a Stage 1A, which is good. Not so good was that the location precluded a partial nephrectomy, so four weeks ago my left kidney came…
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Scan Results!!! Not what I expected to hear!
Well I have my results and they are not good. The Votrient had stopped working unfortunately I have 30% growth, the lymph in my chest is huge and wrapped tightly around my windpipe, leaving little room to breath. The speed at which the Cancer is growing the pindpipe could be engulfed in a matter of weeks. I have been…
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Open Partial Nephrectomy or Radical Laproscopic?
Hi everyone, a 5 cm T1b tumor was found on the lower lobe of my left kidney last week while looking for a kidney stone. Surgery is scheduled in about a month, in the meantime I am scheduled for a variety of tests and imaging to ensure that it is localized and there are no further surprises. My question is the surgeon has…
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New cheap test for RCC?
Just found this while browsing... A urine sample in certainly a fast and inexpensive way to test! I am always looking for the breakthrough that will allow cancers to be detected early and prolong prognosis for all patients! I'm not sure if this is an old idea, but the article is new so enjoy!…
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Another NED for today
Hello everyone, my turn to share good news. My fiance had his 3 months follow up today. Ultrasound is clear, blood work is perfect except for slight liver enzymes elevation (due to hepatitis C). And last chest x-ray he had was about a month ago - he had pneumonia, but no mets :-) So far so good! Next check is in 6 months,…
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Action to Cure Kidney Cancer
I invite everyone to visit the website of an organization called Action to Cure Kidney Cancer-- ACKC. Just google the name and websites will come up. They are lobbying Congress for money to fund research to cure Kidney Cancer. They visited Washington DC this week on March 16 and 17th. I signed a letter to Congress they…
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newbie
Hi All I'm a newbie to this board. I had my right kidney removed nearly 3 weeks ago. It was a 4.5cm ccrcc stage 1 grade 2 so caught early. I'm feeling strong and happy. Everyone in the community has been so good and kind to me but I think I needed to connect with people who understand what I am going through. Everyone is…
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First 6-month Follow-up <<<NED>>>
Hi, all, Just got back with my first follow-up with Dr. Lallas at Jefferson. It was a nice visit; he said everything looked great, no evidence of disease whatsoever and continued to spout that my chances of recurrence were "around 2%." Can't say anything bad about a visit like that. The plan is ultrasound, chest X-ray and…
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The Politics of Kidney Cancer
As far as I know kidney cancer is a strictly nonpartisan equal opportunity disease, but you wouldn't know it from reading various websites of the Kidney Cancer Association (KCA). While the organization does much good work they post virtually every day to articles from The Heritage Foundation or Forbes or other right…
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Need eGFR advice
I was diagnosed with ccRCC last year and had a partial neph last May. The tumor was less than 2cm and the surgeon told me that he only took about 10 percent of the kidney when he removed the tumor. I just got back the results of some bloodwork I had done and my eGFR went down sustantatially from prior tests (I get regular…
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CT Scan Showed Changes
Yesterday I went through CT Scan, CXR and cystoscopy. The CXR and cystoscopy looked fine, the CT scan, however, showed a lesion on my right kidney. This is the kidney that had the tumor 3 years ago in which the tumor plus 1/3 of the kidney was removed because of tumor location. Looking at the CT scan the right kidney…
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wrong events....
Well,...Spent this past week in the finast institution in America. Yale New-Haven Smilow cancer hospital. Short story. Near total loss of right arm. 70% loss of left. Clots in arm and lungs. Tumor growth from base of brain to about T-2 down spinal canal. Around some nerve roots. And rt. brachial plexus. Did not expect to…
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needing prayers
My mom found out nearly a month ago she has stage 4 kidney cancer. Mom has been being treated for arthritis in her hip for months and months. At long last she finally went to er when her drs office couldnt give her referrals or appointments until 2 months out. Mom was hospitalized for a week and found that it has…
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Blood Pressure Medications
Before my kidney cancer, I was told that my weight made it likely I was going to have blood pressure issues "soon". My blood pressure was actually pretty good even though I was overweight before the surgery. It was generally in the 120's/high 70's range. Since my kidney was removed, my BP has gone up some and so now…
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Pain Resulting from Kidney Cancer
Hi Everyone, I had an open partial nephrectomy in January 2012 which was found after complaint to my doctor of right sided pain. I am curious to know how many of you experienced only pain as a symptom of your kidney cancer? A few months ago I started experiencing the same sort of pain again and unfortunately was in the…
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Some of our story I shared online
I started writing at the advice of my therapist. I've shared some of our story (and a pic of 6 months NED from last april) on the Story Wall for the Ken Burns Documentary "Cancer: The Emperor of all Maladies: Feel free to read. Did anyone else here share on the wall? Is anyone going to watch the documentary?…