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Cancer: The emperor of Maladies
Anyone else watching this? Hopeful and inspiring on the scientific effort and progress on dealing with this curse.
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Still plugging away
What a tough recovery. But I am making progress. There is so much more to control and stabilze. To everyone, Thank You for your support. Remember, stay positive. Even if that is all you've got. FLY. Fox.
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3 years NED
Got my MRI results today and they were good as I expected. Three years cancer free
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I'm fine
I was diagnosed with Renal Cell Carcinoma in 1999. I was so scared. I spent so much time on line, there was so much doom and gloom it actually messed with my mind more than the cancer itself. I had my left kidney removed. Stage 2 grade 3. Fast forward 15 years. I am healthy and sometimes think about how I wish I could have…
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New to CSN. First Post. L nephrectomy 5 months ago. Now 2 x5mm Nodules on lungs. concerning for Mets
Hi Survivors, This is my brief story, I'm searching for similarities in your experiences to compare with mine to give me an insight into what may happen to me now. Diagnosed with 12cm 11cm 9cm clear RCC (very aggresssive) T111N0 in Oct 2014. L nephrectomy on 24/10/14 no mets at that time,micro invasion of sinus fatty…
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Scans
my husband's scans were finalized at 5 pm; the radiologist faxed them to us. Since I got rid of my Fax, they were faxed to Kinko's (now FedEx) and this crazed wife drove to get them. there is a definite met on the left 8th rib; this showed up on his bone scans in August and December but only began to hurt two weeks ago. It…
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Need advice... Go back to work?
Hey, all, So the doctor was pretty weird regarding my return to work. Generally, with gallbladder surgery, they only tell you to take half a week to a week off of recovery. However, my surgery was open and I have a 7.5 inch incision across my right upper abdomen. Now, I DO feel better. The last couple days I've been able…
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Metastasis to bone- sutent, nexavar?
My friend’s dad was diagnosed with renal cell carcinoma in 2006 (Fuhrman NG1) - he had a nephrectomy then and the disease retracted. In 2011 he was diagnosed with metastases to spine (with pathological fracture of the spine). He was operated in Dec 2011 (stabilization of thoracic spine and cementing) and in Feb 2012 he…
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nausea
Hi All ... I'm just 5 weeks out of full kidney removal and gallbladder surgery. I'm feeling very queasy and nauseas. I was going to go to my primary doctor today but felt what would she do?? Is this a side effect or should I go see ger? Thanks
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18 yr old son... softball sized cyst has a blood supply
Hello again. I posted a few weeks ago about my 18 yr old son. He went snow skiing and thought maybe he injured something when he fell so took him to the ER. MRI showed what looked to be a cyst with some calcification and filled with blood. Because it was filled with blood the MRI image couldn't reveal what exactly it was.…
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My first 3 month scan results
Good morning everyone. Sorry I have been MIA - dealing with some seasonal allergies and feeling under the weather. The good news is that my first 3 month scan was excellent - no signs of metastasis or recurrence. I have lost apprx. 25 lbs since my surgery in December and the scan said I no longer exhibit "diffuse fatty…
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Husband's surgery yesterday
My husband's surgery went well - longer than expected due to scar tissue, but successful. I'm not sure if I've mentioned before that my cancer surgery was the same date as his 6 years ago (colorectal cancer). What an anniversay to have to share , but I'm doing fine now and praying that he does well after this also. They…
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One Year Check Up Looming!
My one year check-up is coming up on Tuesday. Chest x-ray and kidney scan. I’m getting nervous so please wish me luck. Worst part is, usually I see my oncologist afterwards so we can discuss the results but this time I won’t see him until April 2. And MSK posts the results of the tests online so I can look forward to…
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An Update Following My Adrenalectomy
Hi. Sorry I've been away without stopping by for a few weeks. I started back to work yesterday after 7 weeks of disability after my adrenalectomy. I can't recall if I checked in to say my adrenal tumor tested positive as RCC, but it did. I've just been trying not to make cancer the center of my life. I had a hard time…
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Scan Time, Deep Joy!
I'm off for my three monthly scan this morning. I hate the early morning appointments it's over a two hour drive and the weather is wretched. I have to drink water on the way for the prep, hot coffee would be far more welcome in this weather. Brrrrr! Things have not been going so well for me lately so I am much more…
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Disappointed in my doc
I'm 3 years post nephrectomy (stageT1b, grade 2) and all has been very well. That being said, my urologist (same doc that performed by radical nephrectomy in Feb 2012) told me back in the beginning of this that my follow up would be CT scans in years 1, 3 and 5 and chest x-ray and labs only in years 2 & 4 I thought that…
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Bone Scan Question
I had a nuclear bone scan the other day, and thankfully the scan did not indicate any mets in my bones at all. One concern that was brought to my attention was the fact that my "good" kidney and my bladder were both lit up like a Christmas tree on the scan, as the radioactive material was being filtered out of my…
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3 year scans.
Tomorrow my son has his three year scans. Dr. told him after this year chances go down. This is with a different dr. so we won't get the results the same day. Read so much about chromophobe being indolent but I know the chromophobe people on here with lots of trouble. Need prayers.
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Pain question
hi everyone, It had now been a little over two months since I had my partial nephrectomy. The good news is that the pathology report was about as good as I could have hoped for...stage 1b, grade 3, no microscopic invasion of lymph system or blood vessels, and cleab edges were confirmed. I was thrilled with that result. My…
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Three month follow up scans this Friday
Hello everyone. I have my first follow up scan and x-ray this Friday. Just a wee bit nervous, but, I know that everything happens as it should in its own time. Should have my report back by Monday. Fingers crossed.
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Open vs. Laparoscopic? NO CONTEST!!
Hey, guys, I'm a little over 2 weeks removed from the gallbladder surgery, which was switched to open after the surgeons couldn't get it out laparoscopically. I've seen some people wonder about the difference between the 2 styles and I guess I'm in a pretty good position to compare the two and give you some insight. This…
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And, now we wait...
my husband will get scans today; they were scheduled for May but moved up at our request since he's experiencing discomfort in an area that had been noted last August on a bone scan the CT scans in August and December did not note it but now he does have discomfort his onc mentioned maybe starting xgeva but we want to wait…
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Advice - Papillary RCC - Mets to Spine, etc. - Inlyta
Hope all are well! I wanted to inquire if anyone can give any advice on papillary rcc and mets spreading to spine. I was told during my December scans that mets had spread to spine as I had two small spots, but no pain. I have continued as active a lifestyle as possible, working on my old tractor and pickup truck, I coach…
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May I Join the Club?
Hi All, Until recently, this isn't a club I had ever considered joining, but a CT Scan for an unrelated reason resulted in a surprise admission ticket. Clear RCC, at 4cm just made it in as a Stage 1A, which is good. Not so good was that the location precluded a partial nephrectomy, so four weeks ago my left kidney came…
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Scan Results!!! Not what I expected to hear!
Well I have my results and they are not good. The Votrient had stopped working unfortunately I have 30% growth, the lymph in my chest is huge and wrapped tightly around my windpipe, leaving little room to breath. The speed at which the Cancer is growing the pindpipe could be engulfed in a matter of weeks. I have been…
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Open Partial Nephrectomy or Radical Laproscopic?
Hi everyone, a 5 cm T1b tumor was found on the lower lobe of my left kidney last week while looking for a kidney stone. Surgery is scheduled in about a month, in the meantime I am scheduled for a variety of tests and imaging to ensure that it is localized and there are no further surprises. My question is the surgeon has…
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New cheap test for RCC?
Just found this while browsing... A urine sample in certainly a fast and inexpensive way to test! I am always looking for the breakthrough that will allow cancers to be detected early and prolong prognosis for all patients! I'm not sure if this is an old idea, but the article is new so enjoy!…
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Another NED for today
Hello everyone, my turn to share good news. My fiance had his 3 months follow up today. Ultrasound is clear, blood work is perfect except for slight liver enzymes elevation (due to hepatitis C). And last chest x-ray he had was about a month ago - he had pneumonia, but no mets :-) So far so good! Next check is in 6 months,…
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Action to Cure Kidney Cancer
I invite everyone to visit the website of an organization called Action to Cure Kidney Cancer-- ACKC. Just google the name and websites will come up. They are lobbying Congress for money to fund research to cure Kidney Cancer. They visited Washington DC this week on March 16 and 17th. I signed a letter to Congress they…
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newbie
Hi All I'm a newbie to this board. I had my right kidney removed nearly 3 weeks ago. It was a 4.5cm ccrcc stage 1 grade 2 so caught early. I'm feeling strong and happy. Everyone in the community has been so good and kind to me but I think I needed to connect with people who understand what I am going through. Everyone is…