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numbness
On Feb 16 2015 I had a partial nephrectomy. It started as a robotic assist laparoscopic but turned into an open partial nephrectomy. My question is -Is lower abdominal numbness normal on the side of the surgery. I was cut at waist line from bellybutton to right hip. If this is normal how long could it last?
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possible prostrate infection after kidney removal
Good Morning: I wrote before regarding my husband who had a kidney removed in Febraury. He now has a possible prostrate infection. I say possible because that was the doctors diagnosis. We went in yesterday thinking a uti from foley catheher. Anyway doctor put him on a strong antibiotic which would take care of either…
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just had a nephrectomy, unsure about future care
I had a radical nephrectomy (though just the kidney, no adrenal gland or anything else) 2 and a half weeks ago, to remove a renal cell carcinoma. I know I am very, very lucky since it was caught at 5 cm and looks like it was completely encapsulated in the kidney. Still, I went from not knowing there was even an issue with…
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1st Follow-up Ct
Having my first CT since surgery 6 months ago tomorrow. Wasn't anxious but it got me tonight! I can't sleep a feel like all those little issues i have will lit up on that scan tomorrow. Also bothered that i'll only receive the results in beginning of April, isn't that long?
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Living with 1/2 Kidney for 45 years
My daughter said that a person she knows has been living with 1/2 kidney for 45 years, having removed 1 1/2 of kidneys previous to that. Is that possible without some type of dialisis? My dad is living with 1/2 kidney function in both kidneys due to a drug he took that compromised kidney function. But if you combine 1/2…
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Trial Update
As some of you may know I am enrolled in a trial going on at UCLA in southern ca. I was randomized to the MPDL3280a + Avastin arm of the trial. Next Monday I will receive my third infusion of both drugs. So far the side effects have been minimal except for some severe shoulder pain that I went through for about two weeks.…
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I'm Back...Member for Life
Hi Everyone, I haven't been on the boards in a while (shame on me). It's been a tumultuous year. Diagnosed in Nov 2013 with RCC in left kidney, I had a left kidney nefrectomy in Dec 2013 with 10 surrounding nodes removed. CT/MRI every 3 months since. My wife's father sadly passed of esophogeal cancer August 17, 2014. We…
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total removal of kidney
2015-03-10 Hi: First time posting here. My husband had a total removal of kidney with 3.0x2.0.1.5 tumor by robotic surgery Feb 4, 2015. Foley Catheter was removed last week. This is his third week back to work staying about 5-6 hours each day. He is quite tired every afternoon, sometimes with some pain. I have told him…
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Husband has cancer
Hello: I'm usually posting on the colorectal board, hence the amount of my posts. My husband just found out that he has kidney cancer while we were vacationing. We were getting ready for a dinner/show for valentines day and he was showering and blood started dripping from penis. After getting out of shower he urinated…
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Sigh... Back at Jefferson Hospital...
Hey, guys, Well, I'm posting this from my hospital bed. Some of you may remember how my cancer was diagnosed; for those who don't, here's the Cliffs Notes version: I had a gallbladder attack and the abdominal ultrasound that my doctor ordered led to my kidney cancer being discovered. I'd had another attack back in November…
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Doctors use device for blood clot removal to suction man’s kidney cancer tumors
What a fascinating read. This procedure helped him get into a clinical trial since traditional surgery to remove his tumors would be dangerous. Very interesting. http://www.foxnews.com/health/2015/03/05/doctors-use-device-for-blood-clot-removal-to-suction-mans-kidney-cancer-tumors/
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Chemo/med therapy and RCC
I’ve always been confused about something. It is said that chemo as follow up to RCC is ineffective so it isn’t used unless there are mets. But aren’t those mets RCC? In other words, if something shows up in our lungs or bones and it’s RCC then how come chemo/meds are thought to be effective? Why is chemo ineffective after…
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New Concern
For background, my wife who is 26 was seen last Sept. for kidney stones. They found a mass that was 3.5 x 3.0 x 2.5 cm in her right kidney (RCC). By late October the mass was removed by partial nephrectomy. They said margins were negative and the Fuhrman Grade was only a 1. The Doctor assured us that it was very unlikely…
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I had my left kidney taken out Monday but I swear I feel pain in that spot now. Have I lost my marbl
Is this pain in my head? It's not bad but distracting and worse at night.
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3 years out chromophobe recurrence?!?!?
I am three years out from stage 1 grade 2 chromophobe left kidney. A partial nephrectomy was done and until Saturday all my scans have been clear. On Saturday I went to the ER for pelvic pain, and they did a ct of abdomen and pelvis. Pelvis was clear but abdomen showed the following. Soft tissue density mass near adrenal…
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Fluid problems - pleural Effusion and Abdomen
hey all, new to this site. going on 12 months with Sutent. 2/1 50 mg. recently added gemzar to the mix. nagging problem with Pleural Effusion and Abdominal fluid. Occurs towards the end of my off week of Sutent. Typically clears up after a week back on. Gemzar has not made much difference. We are looking at a drug change…
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Gotta date with a robot in the morn.....
Tomorrow can't get here soon enough. Just be glad when it's over and I can start to recover. Thanks for all the great info I've found on this forum. It's made the whole process easier to deal with. I'll check back in a few days.....
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New Blog "The C Word" first post
Hi, all, just a simple blog I'm starting that's helping me put some thoughts in order regarding my experiences. Read if you like :-) http://jayvelykis.blogspot.com/2015/02/the-c-word-moment-of-diagnosis.html
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nausea
This is the story, i started feeling nausea four or five years ago which never caused vomiting and didn't happen all days, as I live in a very polluted city I thought it's because of the pollution and nothing important but I also talked to different and many Dr, and they found nothing, right after the nephrectomy I felt…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
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March is kidney Cancer Awaress Month
Hi guys. I am popping around the Internet reminding people that March is Kidney Cancer Awareness month. Some may have already seen my post in other places. But his year March 1- March 31 I am proposing that we kidney Cancer survivors, patients, and caregivera start an awareness campaign on Facebook. If you have Facebook…
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Confused about Pathology report
Hello everyone.....hope you are all well. Finally got a written version of my husband's pathology reports but I am having a hard time deciphering them. From what I can make out it says CK7 - positive ( I definitely have no idea that is) Cd10 - negative (no idea about that either) PAX 2 - negative The actual tumor was 3.5…
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Rash and itch from Votrient
My diagnosis is sarcomatoid RCC with mets in lungs, spot on liver and probable bone involvement. Have had one infusion of Zometa. I am taking Votrient 800 mg and developed a rash over 60-70 of my body which is slowly clearing up but the itch is terrible and responds minimally to Sarna. Does anyone have any suggestions?…
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large complex cyst
doctors found a large complex is on my left kidney. They just called and canceled my appointment on friday and said that they would reschedule with the surgeon because decisions need to be made. Now I'm getting worried. The MRI showed it was large enough that it was cutting my kidney in two. Guess I should be concerned?
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How long after a CT scan
I'm not sure how to ask my question but I seem to have developed pain in my back a few weeks after a ct scan. I have been more active lately and dont want to run to my oncologist about every ache and pain (ecsp after a good Ct a few weeks earlier) but I also dont want to worry. Any advice?
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Battling Negativism Among a Treatment Team
There's a particular PA that works with my oncologist that I've only dealt with once 2 years ago when I first started going where I go. She communicated a very pessimistic attitude to me about this disease that I took a really strong disliking to her right away because of that. Fortunately, the program I was on I only…
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Wonderful News!
Hi everyone, In all this madness of fighting kidney cancer, I became a grandmother again to Jade Elizabeth, weighing 7 lbs and 21 inches long on February 4 at 9:55 am! She is beautiful and healthy and has reminded me that life can be good! Prayers for good health to us all! Brenda
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Dad Battled Stage 4 Cancer
My father recently lost a nine-month battle with Stage 4 Kidney Cancer. I am posting on this board to offer any advice to anyone battling this disease (patient or care-givers). I started a blog halfway through my fathers journey, and I'd like to share it. I hope that anyone who is going through this battle may find comfort…
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Follow up care
Hi guys, I was diagnosed with rcc back in October 2012. 7.5cm Stage 2a, grade 3, no lymphovascular invasion, no necrosis, no intrararenal invasion, so apart from the grade 3 not so bad. 37 years old so on the younger side of the rcc demographic! Had a quick question regarding follow up scans. I am due for my next follow up…
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Votrient failing, what next?
Hello, I don't think I've posted here before. Have been at stage 4 at least a year and a half. mets and lesions are mostly in my spleen, spine, pelvis, and lungs. Votrient was great for 6 month, now its effectiveness is waning. Last scan showed worse spleen and lung activity. My doctor thinks it's time to switch meds, as I…