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Chapstick
Has anyone found a good Chapstick? most of the ones I've tried dry out my lips. One that is ok is Dr. dans but looking to try another one. If anyone has found one that has worked
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Hyperbaric
Hello I had tongue cancer 16 years ago. Had surgery , radiation , and chemo. Loving all the side effects that come with radiation to the mouth and constantly dealing with losing teeth. I had 4 teeth removed and had the oxygen treatments 4 years ago. I then had another tooth pulled and had another 10 oxygen treatments. Now…
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End of week 2
Finished my chemo and rads - 4/5 chemo and 23 rads to go. Have had a few recent problems and thought I'd share and see what others had to say/offer..... Have been taking Glutamine mixed with 6 oz. of water 3x daily and last at night before going to bed, letting it linger in my throat after swishing it around. On Thurs.…
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My radiation journey - Week 7
Today is my last radiation treatment. Nearly 7 long weeks, I am so ready to put this behind me. Thank you all for the advice and consolation. Me and my couch are having a wonderful relationship right now. This was pretty rough. I will post my recovery process for those behind me.
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One and done.
Yesterday I finished up five rads and had my first cisplatin infusion on Tuesday. Those first few days were rough. Manager to hold off the nausea, but all I wanted to do was sleep. Today is my first day without having to take anti-nausea meds, and while i still seem to be in chemo brain fog, my energy is getting…
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Tongue issue
Hi everyone, I'm almost done with week 2 and i have a thick white stripe on the left side of my tongue. I am not having rads to the tongue, just the left side of my head where the parotid bed is and some lymph nodes. I have some metal fillings and i do wear mouth guards but i wondered if i should be concerned about this or…
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My journey so far
I was diagnosed with Stage IV Moderate differentiated invasive squamous cell carinoma of left base of tongue, left glossopharyngeal sulcus and left palattine tonsilla area on 16 Feb 16. I also had a swollen gland on the right side of my neck at the point of the jaw. This was surgically removed and biopsied as a Warthins…
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Day 1 of week 5
I started having pain in my ear and throat by the second week. Third week there was a bit of nausea and fatigue. Also loss of taste buds, but not all or for everything. Sores felt worse the end of week two. I think week 4 was better. I can taste cucumbers. Chicken is tasteless, same for potatoes, but I'm enjoying yucca…
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Some laughs at my compromised speech mistakes...
Sometimes I feel a bit embarrased about my less than perfect speech post-rads (and the knowledge that it's not really going to improve much beyond my 90% recoup...but then something happens to make me laugh about that. And two funny things definitely happened recently. While I was eating lunch last week (and I always get…
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Peg Tube is gone
I've had my tube for 6 months. So, after getting the all clear after my PET scan it was time for it to go. We had a love/hate relationship. Got the tube removed yesterday and it is remarkable how fast the hole begins to heal.Took all of 5 seconds to remove, but Doc was instructing an intern on how to do it. "This time pull…
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Cheapest places to buy ScandiShakes
I know several members going into recovery...and actively in recovery...are maintaing weight with Scandi. An excellent product to be sure, but it is spendy. A case of 24 would last me about a week (three per day) and I used it for many months, so it really is $$$. I found Amazon to be expensive. Family OTC has a better…
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Starting treatment today-nervous!
Hi everyone, Quick intro: I am a 42 year old who was recently diagnosed with HPV+ stage III SCC. The tumor site sits between my tonsils and I have two affected lymph nodes. Today I start the standard seven weeks of radiation and tomorrow I go in for my first of three infusions of cisplatin. I live on Vashon Island, which…
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My radiation journey - Week 6
Week 6 has been terrible. The effects of all this has hit me hard, as expected. I have 4 treatments left, one neck and tongue, then 3 tongue booster treatments, which will wreak more havoc on my already blistered tongue. Eating solids is nearly impossible, even with the meds, which I started this week. Shakes are my…
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Oral Cancer-Confused Need Advice
Hi Everyone! I am on here to find answers about my Dad's cancer he has been fighting for seven years. The doctors have been so vague during this whole process to the point we don’t really even know what type of cancer it really is. My Dad is 55 years old, a marathon runner, a successful business man and an all around down…
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Oral Cancer
Excision of left cheek followed by a radical neck dissection.
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I just got diagnoised with oral cancer and am scared!
Dont know what to say---found a white lump on my tongue, it is cancer and I go to a team of doctors on friday to discuss treatment. Anyone have mouth cancer? Any encouraging news/words?
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My Mom's oral cancer
My mom was diagnosed this past november for squamous cell oral cancer. She has undergone surgery to remove 4 bottom teeth and a piece of her jaw bone underneath those teeth. The doctor resected the gum with cheek and under the tongue skin. My question is has anyone out there had somthing similar to this. She is very…
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Super quick and soothing watermelon salad
I've been eating this lately and thought I would pass it along. And don't like to cook, so If I tell you it's done in under five minutes, you gotta believe it. Very cooling and soothing for your throat and it's goes down well since it's mostly liquid. Buy some watermelon (spears or cubed or even a half melon, if you like…
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Introduction
Hi everyone, I'm new here. I have cancer of the parotid gland. I was diagnosed after my surgery. They thought it was benign due to negative results of biopsy. I am glad this discussion board exists as I feel alone a bit. I'm starting radiation next week for six weeks. My name is Shirley and I'm thankful that you're all…
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Aloha!
Aloha, I was diagnosed in late May with T2N2bM0 squamous cell carcinoma of the left supraglottic larynx, Stage iVa. After diagnosis, I had PET scan which showed up negative. My excellent ENT in Honolulu (I visited 3 and consulted with a 4th) told me that he did not think that surgery of my larynx was a good option due to…
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Is anyone else having trouble uploading pictures?
I know how to do it...my request just keeps getting denied. I tried resizing to make it smaller. barbara
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Intro
Hello, new to the forum. diagnosed in March SCC of the tongue, Stage IVA, 4 positive left lymph, PET cleared the rest of the body. In April underwent a hemiglossectomy, with a free flap reconstructed from a thigh graph, also had a tracheotomy, right and left neck dissection to remove positive nodes and the right was…
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Update on my freaking out
So last week, my husband was going to see his ENT about a suspicious spot at the back of his mouth. He is 5 months NED after stage 1 tongue cancer treatment. I was freaking out naturally. You all helped me calm down. He had the appointment, and the doc did not think it was cancer, but to be on the safe side, he decided to…
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Looking for tongue reconstruction survivors
Hi. After 12 years of remission my tongue cancer returned with a vengeance in December - two tumors removed, one round of targeted brachy radiation, a new tumor appearing almost monthly. I "changed teams" to University of Chicago - much more satisfied with the doctors and staff there. I went through five weeks of…
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ROLL CALL 2016 - UPDATE 3/1/16 CLOSED, SEE UPDATE
ROLL CALL 2016 Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to Enroll (name, town, state, dx) or Check-In whenever you see…
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Update and a few words about HPV+ SCC
I haven't posted in the past few months because dealing with treatments, etc. was pretty draining. For folks who may have missed my few posts last year, I had Stage IV HPV+ SCC in my left tonsil and soft palate in 2012. I was all clear for all scans and exams in that area. In late 2015, I had a persistent cough. When I…
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when you are dropped from a drug trial
Good evening: This is my first post regarding drug trials. My husband, who had stage four metastatic head and neck cancer, joined a phase one drug trial involving Keytruda and incye 02436 at the University of Pennsylvania Abramson Center in February 2016. Within three weeks he was hospitalized and dropped 15-pounds during…
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My radiation journey - Week 5
Well, the **** has hit the fan. As I expected, the dark side of treatments is rearing its ugly head. According to my doctor, I'm doing exceptionally well at this point. May be. But this week started getting difficult. My ferocious appetite has waned. The sores in my mouth coupled with the terrible taste of many foods, is…
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feeling hopeless
Hi everyone my name is william and i have few questions for you guys. 1. It is possible to develop oral cancer through hpv and just months after a possible exposure? ? 2 can someone get medical treatment for cancer despite lack of insurance? ? Recently i visited two ent doctors and both told me that i have hypertrophy on…
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Back home on the Bay Island
Sorry but it will not let me post