Week one done
Hi Everyone ,Shirley here with my week one report. So I've been pretty tired but it comes and goes. My tongue feels raw like i burnt it and i just today got a metallic taste behind my lower front teeth. Slight pain in the throat. Skin is doing okay as i have been slathering it with the cream i have after rads and before bed. I'm afraid of what's to come. As I have followed those before me. Yikes. See you next week.
Comments
-
Congrats!
i finished week one last week as well. Sounds like your side effects were similar to me. Are you doing chemo as well? Also, are you using glutamine? Found it to be a huge help with the throat....
Had my rad and chemo yesterday and oddly I feel very energized! Maybe it was the McCafe Frappe mocha! Keep us up to date and stay positive.
0 -
one down
Shirley here,
One in the books, pretty tired, tongue feels burnt, metallic taste, pain in throat. Sounds like H&N side effects.
What’s to come, more of the same, with extras.
Take it one day at a time, one issue at a time.
Keep your team informed on any concern, keep drinking water and swallowing.
See you around,
Matt
0 -
Chemo day is ok, watch out for afterdygit said:Congrats!
i finished week one last week as well. Sounds like your side effects were similar to me. Are you doing chemo as well? Also, are you using glutamine? Found it to be a huge help with the throat....
Had my rad and chemo yesterday and oddly I feel very energized! Maybe it was the McCafe Frappe mocha! Keep us up to date and stay positive.
My husband also has that energy on chemo day...I think it was because he received Decadron the same day which is a steroid. It helped with the nausea. Day 2 and 3 were harder. Keep in close touch with your team to deal with issues like nausea. Hoping you have minimal side effects!
Barbara
0 -
The Journey
My oral cancer of the tongue with other mouth complications is teaching me how to leant to manage proper food intake and find the nutrition to deal with ummune depletion. I know it is very difficult to move forward and if like me you can become overwhelmed. "Hang in there!" Become your own health advocate. It's a journey,
0 -
What We Don't Know?!CivilMatt said:one down
Shirley here,
One in the books, pretty tired, tongue feels burnt, metallic taste, pain in throat. Sounds like H&N side effects.
What’s to come, more of the same, with extras.
Take it one day at a time, one issue at a time.
Keep your team informed on any concern, keep drinking water and swallowing.
See you around,
Matt
Radiation and Chemo are tough enough! What I discovered to be even harder is "what we don't know" which is how to re-energize our health and body during such depleting times. Remain active in your pursuit of how to strengthen your body and provide the restoration essentials it needs during such healing times. It can make a big difference I assure you. Try to stay mentally positive and focused during your healing journey.
0 -
Hey there, I am not doingdygit said:Congrats!
i finished week one last week as well. Sounds like your side effects were similar to me. Are you doing chemo as well? Also, are you using glutamine? Found it to be a huge help with the throat....
Had my rad and chemo yesterday and oddly I feel very energized! Maybe it was the McCafe Frappe mocha! Keep us up to date and stay positive.
Hey there, I am not doing chemo just radiation. I'm not sure I could handle both. Good luck to you on your journey. I'm right there along with you.
0 -
One Week Down
One week is under your belt. You can do this! A bit of advice- You don't have to tough it out with every side effect. Let your oncologist or nurse know how you feel so they can help you. This is a tough treatment and there is no shame in asking for help to get through it.
0 -
Shirley, I was terrified, but
Shirley, I was terrified, but to be honest, it's been bearable so far. It was very helpful to follow Steven. I'm on week five and almost done with five. Going on to week six next week Wednesday. I'm still eating solids. I believe the glutamine gargling helped my throat as well as acupuncture. The discomfort became bearable and dry mouth is more improved this week than earlier weeks. Don't stop drinking water. Get yourself some coconut water if you can. It's very hydrating. Try to lose the fear and enjoy other thin so time goes by quickly. I paint,
got myself an adult coloring book, read, watch fhe euro soccer games, rest when I feel fatigued, and I can't live without my smart phone. I have music on it,
games, keep in touch with family and friends, and planning my trip to France in December. You get the idea. Don't think of the taste or the discomfort. My discomfort began the end of second week but got worse in 3rd, began to improve in 4 and amazingly still doing well on 5. Hope this helps.
0 -
Thank you. I willMrsBD said:One Week Down
One week is under your belt. You can do this! A bit of advice- You don't have to tough it out with every side effect. Let your oncologist or nurse know how you feel so they can help you. This is a tough treatment and there is no shame in asking for help to get through it.
Thank you. I will
0 -
Thanks for the info.LiseA said:Shirley, I was terrified, but
Shirley, I was terrified, but to be honest, it's been bearable so far. It was very helpful to follow Steven. I'm on week five and almost done with five. Going on to week six next week Wednesday. I'm still eating solids. I believe the glutamine gargling helped my throat as well as acupuncture. The discomfort became bearable and dry mouth is more improved this week than earlier weeks. Don't stop drinking water. Get yourself some coconut water if you can. It's very hydrating. Try to lose the fear and enjoy other thin so time goes by quickly. I paint,
got myself an adult coloring book, read, watch fhe euro soccer games, rest when I feel fatigued, and I can't live without my smart phone. I have music on it,
games, keep in touch with family and friends, and planning my trip to France in December. You get the idea. Don't think of the taste or the discomfort. My discomfort began the end of second week but got worse in 3rd, began to improve in 4 and amazingly still doing well on 5. Hope this helps.
I bought myself some coloring books too! Thanks for your information. I might get some acupunture as well. I have a gift certificate for it. I'm watching Wimbledon. It helps. So glad your hanging in there I'll try to be brave.
0 -
Tomorrow
After tomorrow's treatment I'll have finished my first week!! We can do it!!!!
Joanne
0 -
Hi Shirley
One day at a time one day at a time, if the tongue gets too bad have the doctor prescribe some magic mouth wash, if the skin on the face starts I use raw aloe vera it is very easy to grow and you can get it on e-bay. I have to stay good looking for my wife
Hope that helps
Tim
0 -
2 weeks
Hey Lise! Two weeks down! I start my 3rd week with round 3 of chemo tomorrow! Starting to feel effects - but doing good. One thing..the lymph node has gotten bigger and harder. Docs keeping a watch on it and if if doesn't get smaller will do a scan. Cheering you on as you finish you treatment! You've got this!!
Joanne
0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.2K Cancer specific
- 2.8K Anal Cancer
- 440 Bladder Cancer
- 306 Bone Cancers
- 1.6K Brain Cancer
- 28.4K Breast Cancer
- 391 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 12.9K Head and Neck Cancer
- 6.3K Kidney Cancer
- 666 Leukemia
- 789 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 235 Multiple Myeloma
- 7.1K Ovarian Cancer
- 53 Pancreatic Cancer
- 486 Peritoneal Cancer
- 5.3K Prostate Cancer
- 1.2K Rare and Other Cancers
- 532 Sarcoma
- 717 Skin Cancer
- 647 Stomach Cancer
- 190 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards