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jaw problem
hello, haven't been in this site in a long time. hubby had surgery in 2014 for throat / oral cancer. he has had his ups and downs but overall doing good. had to have some follow up surgeries to make him a nasal drainage system. best way to describe it as the surgery left him with no nasal opening and no where for natural…
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Ringing the Bell!
Hi everyone, This is Chris50, now 53 as of February 18. I wanted to check in to say I received the best news two weeks before my 53rd birthday—2 and almost 1/2 years NED Pet scan for HPV P16+ head and neck cancer (one tonsil tumor plus 1-3 lymph node involvement). I experienced a great deal of anxiety leading up to the PET…
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I think I will stick around for awhile!
Hello Everyone, I thought I'd drop by with words of encouragement. I know when I read Phrannie's post, it encouraged me! (I'm so very happy for you, Phrannie). And Matt and others were so supportive on this site. I want to give back. It's been a 14 months since my surgery (previous posts are here somewhere) I had radiation…
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Matt's humdinger of ROLL CALL informational post!
Dear H&N Members, I (CivilMatt) is very much alive and wish to continue with the ROLL CALL, as I have been doing for a number of years. Just so you all understand what I am doing when it comes to the ROLL CALL, I will explain henceforth, for H&N Member clarity: First off, I try to stay true to the “basic rules” as laid out…
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Have I got a story to tell.....
I have been pretty scarce on the forum for a while....but I gotta tell you guys what has happened in my life. First a little history, because I don’t recognize many names....course Matt is here....he kept me laughing for years. Ok...I was dx’d in 2012 with NPC....I had the regular 35 rad treatments, plus 3 Cisplatin…
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Dizzy much? Light headed? read on..
Apparently I have a little discussed, only recently found side effect of radiation. Its called Baroreceptor Dysfunction. You (we) have 2 Baroreptors, with 1 being on our carotids. These can be damaged (same as a thyroid) during radiation. So questions are, how does your blood pressure run? Do you get faint on standing, or…
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Tooth implant
I had a back molar pulled prior to radiation treatment which I really miss as it was a main chewing tooth and now that it's gone I chew differently and have a tendency to bite the back of my tongue which is really painful. I saw a dental surgeon who's willing to do the implant and has said my jaw bone is good eonough to…
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Pleural Effusion...anyone?
Anyone have this and what was it caused by,? We went in for mapping, did ct, found fluid around lungs. Drained 2200 mls... waiting for test results. Looking to see if anyone else experienced this
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6 Month NED
Hello. sorry I forgot to post this earlier. Had my 6 month post Proton beam rads treatment for right side tonsil and rifght lymph node SCC. My ENT said all looked great. She went on to say after scoping my throat..." i would challenge any doctor to find any evidence that you received 6 weeks of radiation for HNC". I still…
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ROLL CALL 2019 - CLOSEDInitial Submittal February 19, 2019CLOSED
ROLL CALL 2019 First Posting February 19, 2019 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to…
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My Story of Cancer Therapy
My Story of Cancer Therapy & Recovery Summer of 2015 - I was my father's caregiver for a few months. During that time I did not get enough sleep. What I know now is that I became more vulnerable to cancer because I wasn't taking care of myself. Fall of 2015 – In October I notice a lump on the side of my neck that doesn’t…
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Step Back To Spring Forward
Hey guys, well, it's time for another procedure adventure. It would appear that I am developing a bit of a suite tooth, so to speak. This time I was fix'in to get a dilation because my ability to swallow easily had diminished significantly over the past several months and was rapidly becoming more difficult; and by…
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Need advice quickly. Recurrence to chest area... looking for similar
Life partner went in for 9 mos post treatment scan, found mass in chest, did PET...lit up, surgical biopsy confirmed same as original...Stage Iii SCC HPV+ tonsil cancer. He was 2/3 days away from death when found, had teach, feeding tube and went through hell, but came out with all tubes and trach removed, went back to…
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Anyone dealing with Fibrosis?
I'm challenged with issues with the muscles and nerves in my neck. I was DX in March of 2012, (stage IV-a) treated with induction chemo, concurrent radiation and chemo and finally surgery, I've been NED for 5 years now and have some pretty substantial issues with my neck. Tight muscles, lack of flexibility and the feeling…
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Back again...Need support...
Some of you may remember me, others may not. My dad went through sinus cancer and has survived. He still struggles with no taste, lack of saliva, and recently had an episode where he couldn't get mucus out of his throat and was struggling with breathing. Anyone who remembers me, knows this is very scary for me and I've…
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Possibly Liquid getting into lung
Im five years from startof treatment and been signed off. Since November 2018 I've had a cough and chest infections. Recently I had double pneumonia. They think I'm leaking my liquid drinks into my lungs. Has anyone had this start up after 5 years. I had back of tongue cancer. After a massive op....9 hours ..through side…
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Has this happened to anyone?
Hey all - so, my 83 yr old mom has throat cancer and she opted to not treat it. She's been doing okay, but symptoms are increasing some. She's been on hospice care for almost 4 months and i do have a nurse coming out tomorrow to check on this situation, but in the meantime, i thought i'd ask if anyone had experienced this…
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Buccal mucosal squamous cell carcinoma
Hello there! I am a 51 year old woman who was recently diagnosed with squamous cell carcinoma right buccal mucosa. Started with what I thought was a cheek bite in Decemeber. It would not heal properly, and in January at my normal dentist appointment he was concerned and sent me on for a biopsy. Got the call Feb 6th that…
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Radiation side effect vocal cord paralysis
Well, I guess the other shoe has dropped. We are 3 years post treatment - chemoradiation for Stage 4 nasopharyngeal tumor. The cancer is gone but 3 years post treatment there is nerve damage from the radiation resulting in vocal cord paralysis. At first it was just one side but now the other side is becoming affected. It’s…
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anyone develop psoriasis?
About three years ago, two years post-treatment, we started fighting psoriasis on Jim's face. It is now spreading to his eye and I'm worried our doctor will finally want to use one of the biologics which have a propensity for making one prone to develop cancer, specifically, lymphoma. The doctor has been resisting these…
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Venting....and has it happened to anyone else?
Hey all - so some of you know that my 83 yr old mother has been diagnosed with throat cancer and her treatment option was radiation. She thought about it, even had an appointment to get her teeth pulled, but we explored surgery (not an option, it turns out) and through the course of that time, mom decided she didn't want…
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Daughter New To The Forum ( HNSqcc) Metastasis to Thoriac Lymph Nodes, HPV+16
Hello everyone Im Daniella, and Im the daughter to James ( Jimmy D), 68. Hoping to find similar cases, support, treatments, stories, and comradery here! :) Ok, so Dad is a healthy man normally, never smoked or heavily drank. He weighs 165 lbs, and is 5'10. He was diagnosed with HNSqcc in the base of his tongue. Went on…
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Slow progress
Greetings to all of you Cancer survivors for which I am one. I will try to shorten a very long story which is mostly positive with some setbacks. Radiation and Chemo finished July 2017 after neck surgery for stage 4 carcinoma which can be treated successfully if it hasn't metastasized. Mine hadn't and I have so far been…
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Please post on Matt's thread :)
Please sound off, so we all know who's here. I'm Sue, Oropharangeal in 2017 - not Superwoman as I origonally thought.
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Therabite
Thought I would start a new post since trismus came up as side effect from radiation and treatment. We ended up buying something called a Therabite to exercise the jaw and gradually get it to open wider. It cost a pretty penny and insurance did not cover it, but it has improved my husband’s ability to open his jaw wider…
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MEC surgery on the 15th!
I was diagnosed with MEC on my retromolar pad on December 13th after having a "cyst" removed taht turned out to be MEC. I am praying they can get clear margins on the 15th and I can put this behind me. Has anyone else had experiece with cancer in this location?
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Surviaval rates for recurrent oropharyngeal cancer
Hi, I met with my SO yesterday and among other things he gave me a paper. its says of 181 with Oropharyngeal cancer hpv+, the 2 years survival rate was 54.6% and the hpv- was 27.6%. I have a selective Neck dissetion on 9/25/18, and will be hospitalized and under observation 24/7, for 7 days if no complication arises. So I…
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11 Yrs. after Head Neck Cancer doing great
After reading many of the posts on this board I thought I would throw some white light on the issue of head neck cancer. I am a survivor. It has been 11 years and I am stronger than ever. I never had surgery or went through chemo as I thin they are poor options for this type of cancer. Instead I did hyperthermia and low…
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WOW....I’m speechless
All the lost information.....this never happened before....and I’ve been here 7 years. p
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Missing data for current discussions
I understand this could be very frustrating for new members and those with current issues. WE CAN ONLY GO FORWARD. PLEASE - if you are anyone that was currently looking for information and/or support, please start a new thread. The same great members are still here, ready to help! Crystal