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Unpredictable
20 months post neck radiation ,2 chemos and 45 days of radiation. Still no taste but some saliva coming back slowly. Can chew most foods and swallow. I wanted to give up but I just didn't. Lost 40 pounds and still do not want to eat.Certain soft foods I can tolerate with liquid to wash down. Lost most of my hearing, aids…
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Lymphedema changes?
BOT cancer, stage 1 (under the new staging), surgery 12/17, modified radical neck dissection/they took a total of 57 nodes, all followed by 30 rads... and many complications. Including lymphedema, which has been an issue since about five weeks post-operation. For the past year, though, it's been almost exclusively on the…
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Buccal mucosal cancer -moving forward question
Hello. I recently had surgery March 12, 2019 (radial artery graft from my left forearm to my right cheek after removal of the tumor), skin graft left thigh to left wrist and right neck dissection. I was in the hospital 8 days with 3 days in the ICU. Had a feeding tube in the hosptial, but was gone before I went home. Just…
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Smoking post treatment
He treated for P16-positive HNSCC/ mets to local lymph nodes. He had tonsil removed did cisplatin and 6 weeks of radiation treatments. He was "cured" they said in early 2015 . He has neglected to get follow up scopes done and has begun smoking on and off. I cannot belive he is behaving like this.
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suction machine
how do i go about getting a suction machine?
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Visit to MD Anderson
I'll be at MD Anderson in Houston 3/3/19-3/5/19 for what they are calling my five year checkup. If anyone is or will be out there during my visit and you would like to get together, please send me a PM and we can work out the details. I'll post my results as soon as I get them. Best of luck. Bugsy
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mouth sores post radiation
Currently using baking soda and water rinse, magic mouthwash from pharmacy(lidocaine), biodyne mouthrinse and gel, diflucan(yeast) and my tounge is still killing me! any suggestions?
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Medication Question
I take several everyday meds, premerin, Lthyroxine, my oncologist has a list of all the meds, did anyone have issues trying to take meds during various courses of treatment?
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Cancer is Tough-Treatment is Rough
And we can not get out and do the things we like to do-we feel too lousy. But if you are used to going to church and can't get there a substitute is available. It is "The Christian Worship Hour" and it is an hour long gathering set up just like a church service. The pastor is Harold Salem who is now 97 years old and they…
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3 year NED
Just completed ENT visit. Visual scoping shows NED from original March 2016 diagnosis of Stage IVA (old staging) tonsil cancer with spread into soft palate, base of tongue and nearby lymph node. Stiff neck from time to time and thick saliva are the constant reminders of surgery, radiation and Cisplatin. Having plenty of…
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damages from radiation
Where I am from they pass out Cancer/Radiation/Chemo like it's candy. the doctors etc. have no clue what they are doing. They are neither experience or trained in the issues and damages that occur from radiation. You get NO correct diagnosis, No appropriate treatment or anything documented correctly. I have been to every…
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Tongue reconstruction with free radial forearm flap after hemiglossectomy
I had 50% of my tongue removed and replaced with a radial forearm flap. The surgery is extensive. I was in ICU for 12 days due to an infection in my neck. My main question is how long did it take for the free flap swelling to go down in order to completely close your mouth therefore increasing the ability to eat. I will be…
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Tooth Extraction-Needed rather Suddenly
Some of my tooth trouble along the way is due to aging and not necessarily from my treatments. I can't really say how much is caused by each. But actually, for the most part, my teeth are holding up pretty well with the increased maintenance I am doing. I can't complain. On Saturday my one molar on the left side second…
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Any Nasopharyngeal Cancer survivors? If so, what kind of treatments did you get?
I am researching about this cancer because my dear sister was diagnosed with stage 4 around Thanksgiving of 2015. The tumor is the size of a baseball. She immediately started chemo and did 6 rounds. The chemo was not effective at all. The cancer spread to her liver & pelvic. She is currently getting immunotherapy and…
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Temporary setbacks or forever symptoms?
I guess this never gets easier, does it? And I think I fooled myself a bit as well, thinking that normalcy was right around the bend. After breezing (that's a relative term, of course) through the treatments last spring, three months post I was starting to feel pretty good, then knock, knock, knock... oh, hello…
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Squamous Cell Carcinoma of the tonsil
I am a 61-year old male newly diagnosed with cancer of the tonsil. It is in situ and my doctor recommends surgery followed by radiation. The radiologist recommends chemo/radiation followed by neck resection. I am not sure which route to take. The surgery will involve splitting my lower jaw, removing the tumor, rebuilding…
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Swollen neck
So I have a big fear of something being wrong. I have two young children so I feel I worry more because of that. Anyways, on my way to work last week, I noticed my right side neck was swollen. It looks and feels quite a bit swollen. I did make an appointment with the doctor but I can’t see her till may. The swelling feels…
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I need help- freaking out
I am sorry and I know I should calm down, but I really can’t. My husband was diagnosed with stage 1 HPV- tongue cancer in October 2015. He had surgery, chemo and rads. Was given the all clear in February 2016. Has been given the all clear (head and chest CTs) since then. He recovered amazingly well and his next appt is…
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Anyone with esophageal cancer - spread to liver
My dad was diagnosed with EC that has mets in the liver. He is a very strong man and I refuse to believe that he cannot beat this. I am looking for other EC (mets - liver) stories. Hopefully good ones. Thanks! Jen
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Metastasis to Lungs
Had a CT scan early Jan and it showed possible metastasis from oral cavity to Lungs. Death sentence or not?
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Thank You
All, I was convinced I had tongue cancer. ENT today pretty much told me I was silly but long lasting lesion on side of tongue, I figured my tobacco habits had caught up with me. I’ve been following along reading through all of your posts and discussions for about a week and am truly amazed at the positive attitudes, sense…
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CT scan results
Had neck dissection in sept. 2018 then TORS surgery the following week followed by 33 IMRT'S stage 2 with node involvement. CT scan of the head neck and chest on 3-5-19 came back all clear. Had a scope in office every thing looked great. It felt so good too get that report and hoping to have many more just like that.…
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Surgery Only choice
HI All, I have been reading these forums and noted so many people having radiation and/or chemo, but my situation so far has been just surgery. Two of them. For HPV positive, SCC of the tonsil with one node involved. I was diagnosed in November 2018 after a bilateral tonsillectomy due to growth of one tonsil. In January,…
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Teeth
Recent post got post-Rad damage to teeth and dealing with opened, so thought I'd contribute. 1) Was told 1-1/2 years after last Rad by the U. of Iowa that flouride tx., daily, should be started before tx, thru tx and continue to end of life. Came as a shock to my Rad Dr., who didn't have a clue. Head Dentist @ U. of Iowa…
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Next CT Scan is Tuesday.
Leaving tomorrow morning for Charlotte. CT scan Tuesday, ENT checkup Wednesday and Med Onc checkup Thursday. Wish I wouldn’t be scared but I guess that’s a normal ok feeling. Wish me luck for an unremarkable scan. Thanks to everyone for being here. I don’t post much but I follow everyone’s success. Thanks!
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Can never eat or drink orally again
Hello, I received forty doses of radiation for my stage 4 Squamous Cell Carcinoma of the inner tonsel, right half of the tongue, right perotid gland, right corotid artery, and 32 lymphnodes. In addition to wekly does of Erbitux during my initial tretments for my cancer, that was quite an aggressive case at the time. I then…
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Phlegm is a killer
Hi there, everyone. I am seeking some advice (home remedies/treatments/prescriptions/anything) for the dastardrly phlegm. I post about my dad a lot on here and his fight (his name is Calvin, btw) We got a CT scan back last week and it was... not good. One of his mediastinal lymph nodes is now measuring about 2 inches and…
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jaw problem
hello, haven't been in this site in a long time. hubby had surgery in 2014 for throat / oral cancer. he has had his ups and downs but overall doing good. had to have some follow up surgeries to make him a nasal drainage system. best way to describe it as the surgery left him with no nasal opening and no where for natural…
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Ringing the Bell!
Hi everyone, This is Chris50, now 53 as of February 18. I wanted to check in to say I received the best news two weeks before my 53rd birthday—2 and almost 1/2 years NED Pet scan for HPV P16+ head and neck cancer (one tonsil tumor plus 1-3 lymph node involvement). I experienced a great deal of anxiety leading up to the PET…
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I think I will stick around for awhile!
Hello Everyone, I thought I'd drop by with words of encouragement. I know when I read Phrannie's post, it encouraged me! (I'm so very happy for you, Phrannie). And Matt and others were so supportive on this site. I want to give back. It's been a 14 months since my surgery (previous posts are here somewhere) I had radiation…