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Head and Neck Cancer

Pleural Effusion...anyone?
Anyone have this and what was it caused by,? We went in for mapping, did ct, found fluid around lungs. Drained 2200 mls... waiting for test results. Looking to see if anyone else experienced this
6 Month NED
Hello. sorry I forgot to post this earlier. Had my 6 month post Proton beam rads treatment for right side tonsil and rifght lymph node SCC. My ENT said all looked great. She went on to say after scoping my throat..." i would challenge any doctor to find any evidence that you received 6 weeks of radiation for HNC". I still…
ROLL CALL 2019 - CLOSEDInitial Submittal February 19, 2019CLOSED
ROLL CALL 2019 First Posting February 19, 2019 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to…
My Story of Cancer Therapy
My Story of Cancer Therapy & Recovery Summer of 2015 - I was my father's caregiver for a few months. During that time I did not get enough sleep. What I know now is that I became more vulnerable to cancer because I wasn't taking care of myself. Fall of 2015 – In October I notice a lump on the side of my neck that doesn’t…
Step Back To Spring Forward
Hey guys, well, it's time for another procedure adventure. It would appear that I am developing a bit of a suite tooth, so to speak. This time I was fix'in to get a dilation because my ability to swallow easily had diminished significantly over the past several months and was rapidly becoming more difficult; and by…
Need advice quickly. Recurrence to chest area... looking for similar
Life partner went in for 9 mos post treatment scan, found mass in chest, did PET...lit up, surgical biopsy confirmed same as original...Stage Iii SCC HPV+ tonsil cancer. He was 2/3 days away from death when found, had teach, feeding tube and went through hell, but came out with all tubes and trach removed, went back to…
Anyone dealing with Fibrosis?
I'm challenged with issues with the muscles and nerves in my neck. I was DX in March of 2012, (stage IV-a) treated with induction chemo, concurrent radiation and chemo and finally surgery, I've been NED for 5 years now and have some pretty substantial issues with my neck. Tight muscles, lack of flexibility and the feeling…
Back again...Need support...
Some of you may remember me, others may not. My dad went through sinus cancer and has survived. He still struggles with no taste, lack of saliva, and recently had an episode where he couldn't get mucus out of his throat and was struggling with breathing. Anyone who remembers me, knows this is very scary for me and I've…
Possibly Liquid getting into lung
Im five years from startof treatment and been signed off. Since November 2018 I've had a cough and chest infections. Recently I had double pneumonia. They think I'm leaking my liquid drinks into my lungs. Has anyone had this start up after 5 years. I had back of tongue cancer. After a massive op....9 hours ..through side…
Has this happened to anyone?
Hey all - so, my 83 yr old mom has throat cancer and she opted to not treat it. She's been doing okay, but symptoms are increasing some. She's been on hospice care for almost 4 months and i do have a nurse coming out tomorrow to check on this situation, but in the meantime, i thought i'd ask if anyone had experienced this…
Buccal mucosal squamous cell carcinoma
Hello there! I am a 51 year old woman who was recently diagnosed with squamous cell carcinoma right buccal mucosa. Started with what I thought was a cheek bite in Decemeber. It would not heal properly, and in January at my normal dentist appointment he was concerned and sent me on for a biopsy. Got the call Feb 6th that…
Radiation side effect vocal cord paralysis
Well, I guess the other shoe has dropped. We are 3 years post treatment - chemoradiation for Stage 4 nasopharyngeal tumor. The cancer is gone but 3 years post treatment there is nerve damage from the radiation resulting in vocal cord paralysis. At first it was just one side but now the other side is becoming affected. It’s…
anyone develop psoriasis?
About three years ago, two years post-treatment, we started fighting psoriasis on Jim's face. It is now spreading to his eye and I'm worried our doctor will finally want to use one of the biologics which have a propensity for making one prone to develop cancer, specifically, lymphoma. The doctor has been resisting these…
Venting....and has it happened to anyone else?
Hey all - so some of you know that my 83 yr old mother has been diagnosed with throat cancer and her treatment option was radiation. She thought about it, even had an appointment to get her teeth pulled, but we explored surgery (not an option, it turns out) and through the course of that time, mom decided she didn't want…
Daughter New To The Forum ( HNSqcc) Metastasis to Thoriac Lymph Nodes, HPV+16
Hello everyone Im Daniella, and Im the daughter to James ( Jimmy D), 68. Hoping to find similar cases, support, treatments, stories, and comradery here! :) Ok, so Dad is a healthy man normally, never smoked or heavily drank. He weighs 165 lbs, and is 5'10. He was diagnosed with HNSqcc in the base of his tongue. Went on…
Slow progress
Greetings to all of you Cancer survivors for which I am one. I will try to shorten a very long story which is mostly positive with some setbacks. Radiation and Chemo finished July 2017 after neck surgery for stage 4 carcinoma which can be treated successfully if it hasn't metastasized. Mine hadn't and I have so far been…
Please post on Matt's thread :)
Please sound off, so we all know who's here. I'm Sue, Oropharangeal in 2017 - not Superwoman as I origonally thought.
Therabite
Thought I would start a new post since trismus came up as side effect from radiation and treatment. We ended up buying something called a Therabite to exercise the jaw and gradually get it to open wider. It cost a pretty penny and insurance did not cover it, but it has improved my husband’s ability to open his jaw wider…
MEC surgery on the 15th!
I was diagnosed with MEC on my retromolar pad on December 13th after having a "cyst" removed taht turned out to be MEC. I am praying they can get clear margins on the 15th and I can put this behind me. Has anyone else had experiece with cancer in this location?
Surviaval rates for recurrent oropharyngeal cancer
Hi, I met with my SO yesterday and among other things he gave me a paper. its says of 181 with Oropharyngeal cancer hpv+, the 2 years survival rate was 54.6% and the hpv- was 27.6%. I have a selective Neck dissetion on 9/25/18, and will be hospitalized and under observation 24/7, for 7 days if no complication arises. So I…
11 Yrs. after Head Neck Cancer doing great
After reading many of the posts on this board I thought I would throw some white light on the issue of head neck cancer. I am a survivor. It has been 11 years and I am stronger than ever. I never had surgery or went through chemo as I thin they are poor options for this type of cancer. Instead I did hyperthermia and low…
WOW....I’m speechless
All the lost information.....this never happened before....and I’ve been here 7 years. p
Missing data for current discussions
I understand this could be very frustrating for new members and those with current issues. WE CAN ONLY GO FORWARD. PLEASE - if you are anyone that was currently looking for information and/or support, please start a new thread. The same great members are still here, ready to help! Crystal
Still here!
I don't post often, but I am still here to lend an ear or a shoulder to lean on!
Missing Data Event-Check your Account-
This is to let everyone know you should sign in and click on home at the top left if you are not already there and click on "preferences and settings" in the green box lower left. Check your information is correct. I had my email address and other things just on this page that I had to reenter and click save at the bottom…
Lost Discussions
This breakdown of the system resulting in the loss of so many conversations, helpful tips, resources, guidance, etc. is awful. i can't believe that there wasn't a solid back-up system in place to prevent something like this from occuring. It's a terrible blow to folks who are struggling with life threatening health issues…
It's Becoming "REAL"
It's official...liver resection to happen on February 19th. Got the call and I can't explain what I'm feeling. I "knew" it would happen but it still feels like I am watching clips from a movie about someone else. But, it's ME!!!I still don't know if both colon and liver with be resected at the same time. I have a…
CT/PET
2 1/2 months ago I fininshed treatment fir tonsil cancer with lymph node involement. 35 rads and 3 intense chemos. CT was really good. PET in 10 days....and scared to death. Is the CT predictive of PET results?
Hate it but it's back again
sorry it's been so long, but just yesterday left my ENT office and got my results from my recent ct scans, Was told i have a recurrent from my cancer, this time it's on my base of my tongue, not many options was told to me, First option was open surgery and i was told that,that would consist of loss of tongue,…
PET scan not covered by insurance?
Just got an EOB (explanation of benefits) yesterday for the PET scan I had in early August, the insurance company has decided it was "medically unnecessary" and isn't going to pay for it. Any of you folks run into this? In retrospect I or my rad onc should have sought preauthorization, but I admit it didn't even occur to…

Head and Neck Cancer

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