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Scared of Radiation
First time here, looking for comfort and sdvice. I had a golf ball size tumor removed from my left cheek October 2006. I was told it was an uncommon tumor call Hemangiopericytoma. Having this in my cheek makes me only the second person in the United States and I feel like I hit a brick wall everywhere I go. I have been to…
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My throat cancer
I was diagnosed in Jan 2009 with throat cancer. My drs advised me to have chemo once a week and radiation 5 days a week. The chemo was for 7 weeks and the radiation was for 8 weeks. The 37th day of radiation was the end because my neck on the outside looked like someone used a blowtorch on me. It was red, then black and I…
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Hair Regrowth
Yes, I know, I have lots of questions! You can tell by the other posts I have on here. One month ago, my husband completed his 7 rounds of chemo and 35 radiation treatments to the neck area. Prior to treatments he had a beard. Does anyone have any idea if the facial hair will grow back? Also, how long does it normally take…
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Tonsil Cancer
Thanks soccerfreaks I will give this a try. I use computers at work and to send e-mails but I have never tried this before. Heck of a reason to start. I am told my cancer is in stage one and I discovered it when my lymph node swelled up so it is in two locations. I never felt pain or discomfort (until the diagnosis…
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Learning To Eat Again For Dummies
I finished my 6 Chemo, 36 radiation treatments for Neck Cancer 10 months ago. They could not find the Primary in my neck so they did the whole neck area both sides. the last 12 Radiation treatments where twice a day. I'm still stuck on the Feeder overnight from 8 pm - 6 am and now forcing myself to drink one Ensure during…
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THE TUBE
CAN SOME ONE EXPLANE HOW THE FEEDIN TUBE WORKS.. I DONT HAVE IT YET , BUT THE DOC KEEPS THREATING ME WITH IT... I LOST 5 POUNDS THIS WEEK SO I GUESS IM GETTIN CLOSE .. CAN YOU STILL EAT WITH THIS TUBE. ARE HOW DOES THIS WORK
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Throat pain
I finished radiation Dec 12 and I am still having a lot of throat pain. The tips on dry throat at night will help, but how long until the pain gets easier?
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Dental Problems after treatment
Hi, I am new to the board, so I hope this is not a question I should not ask here. I finished my treatments in December, before I had treatment, I had to have seven teeth extracted and the remaining ones were in GREAT SHAPE, but now they are awful! I have tried for over a month to find a sedation dentist (scared to death…
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Tongue cancer....new looking for survivors
Hi i was diagnosed with stage 3 tongue cancer yesterday i have it at the base of my tongue and on the right side. ct scan showed it hadnt spread to my nodes i know im very lucky there, i have my appointment tomorrow to see if we can go with radiation and skip the surgery at first i liked this idea but now im scared of…
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Post Treatment Recovery Questions
Hi I am new to this board and I am looking for some information regarding post treatment recovery. My mom was diagonsed with head/neck cancer back in June and since then has had 1 tonsil and several lymph nodes removed and has undergone Radiation Therapy and several weeks of Erbitux treatments. I am very happy to say the…
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EMU Oil used to prevent "sunburn" effect
I am an Az. HNC survivor and thanks to many here on these boards and in my local support group I made it through 35 IMRT's and 7 Cisplatin Chemos back in Sept-Oct 2007. I recently had my first post-treatment PET/CT at 11 weeks out which came back very good with only one minor shadow of glucose uptake at 2.9 which the Docs…
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Mucositis
My husband has just finished 5 weeks of chemo/radiation therapy for stage 4 Squamous Cell Carcinoma of the tonsil that spread to his lymph node. He also had induction therapy for two weeks of Cisplatin, Taxotere and 5FU. During his 5 weeks of chemo/radiation therapy, he received 600 ml of 5FU daily for 5 days in a row each…
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Rollcall
I sometimes wonder who visits this Head and Neck Cancer area. I thought I would get a count. Probably, not everyone will sign up. If you do, please complete the following: Forum Name, Type of Cancer, Year, and Home State I will start. HAWVET,Nasopharyngeal, 1998, Hawaii Mahalo (Thank you) HAWVET
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Help! Severe hearing loss from radiation treatment?
I had about three months of radiation on my neck and chest area in 1991. Last year I started to lose my hearing in my left ear, the same side I was radiated on. I have severe nerve damage and cannot hear at all out of it. My oncologist believes it is a result of the treatment. Has anyone else had this problem?
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vomting--how long does it persist?
After 4 rounds of cysplatin(given inter arteial) once a week my husband is still throwing up. It has been one week since the last round. Does anyone know how long the nausea lasts? Thanks! coachL
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aloe vera
A friend suggested drinking some distilled aloe vera during radiation treatment- does anyone have any knowledge about this? Is it safe? Is it helpful? Any input is appreciated. Dazey
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driving
Any feedback on driving yourself to treatment each day? Is it possible at all or for the entire 6 weeks? What about working while in treatment? From all that people have shared, I expect "post" treatment to be a good time to not be working, but at what point is it still possible? Any feedback on the day to day expectations…
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How long after finishing rads did you all try eating via the swallowing method???
My hub finished rads a week ago and has more pain now than before. We know that this will subside in another couple of weeks. For those of you who have been there, how long after rads did you start swallowing something via the regular method??? And what did you find to be the best food to start with?????
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Radical Neck Dissection
Hello, everyone, I keep missing so much time in checking the boards! Today we went to the ENT's for prognosis after the second round of F&A's and another CT scan 10 days ago and although we knew they'd want to do surgery I was sure they'd only do a 'selective' neck dissection cuz through all the conversations with all the…
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Does this forumn support Private messages?
Wondering if you can PM someone on here. If so does anyone know how to do it?
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MERKEL CELL CARCINOMA
MY FATHER IN-LAW WAS DIAGNOSED WITH MERKEL CELL CARCINOMA. THE BIOPSY WAS TAKEN FROM A BUMP ON HIS FOREHEAD. I BELIEVE THE NEXT STEP OF DIAGNOSIS IS THE LYMPH BIOPSY. OF COURSE, WE WANT ANSWERS NOW! SURVIVAL RATE, THERAPY, ETC. HE IS 65 YEARS OLD AND HAS BEEN IN EXCEPTIONAL HEALTH. THANK YOU.
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Neck Disections recovery times and eating schedules.
I know there is a post a few lines down about radical neck disections but I wanted more specific info. If you can, can you tell us the: Type of disection- was it radical, was it selective????? Time spent in hospital? How long on pain meds? How soon after you could eat by mouth? How soon after you could leave the house? How…
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blood
I was diagnosed with cancer about 3 weeks ago. I Have a growth on the base on my tongue and it has spread to my neck. Today they did the PET scan to see if it had spread to the lungs or any where else. Later this evening I coughed a little and spit out a small about blood. It is mixed with the saliva. Is this caused from…
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Keeping Positive?
Ok...so here's the latest in my saga..... I come home today and my husband tells me he has written up all instructions as to how he wants his funeral, where he wants to be laid out and where he wants to be buried!!!! I asked him if he feels like something has changed - does he feel a difference in his nose or mouth, etc?…
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I was really hoping for good news
On Tuesday he had a follow up CT scan and we had hoped for good news. Unfortunately what we got was the complete opposite -- all this intensive treatment did not work. My husband has a huge choice ahead of him. Not do anything and the tumors will eventally kill him - the doctors can't say how long it will take as they do…
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treatment ending, how did you deal with it?
Hello all. I have 2 RAD treatments left and then they cut the apron strings and I wait 9 weeks for the PET scan. I just feel so left out in the cold. Yes I've read that this is normal but are there any other considerations I should be thinking about. This is not a major cancer hospital. I ;m thinking I should be looking…
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Graduation Day!!!!
My husband completed his last radiation treatment today. We had a party and took treats to his radiation team. He will now follow up with his ENT in about 4 weeks and then have his PET the first part of January with a follow up with his radiation oncologist. He was told today that he endured this treatment far better than…
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How long did you wait for PET post trearment?
Trying to find out what the norm or average time for a followup Pet post trearment. My Doc says 9 weeks. I've heard other folks anywhere from 4 weeks to 9 months? What was yours and did it affect the results?
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mouth dehydration
Hello everyone. I'm not on this particular board often, because my primary diagnosis is lung cancer, but it has now metastasized to my bones and throat. It has created a tumor which has completely obstructed my esophagus so I am no longer able to swallow anything (not even my saliva). Because of this, my mouth gets…
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PEG Question?
I am 4 months post chemotherapy and radiation. I had my PEG removed about two months ago, after having it for about four months. Almost immediately after my PEG was installed, I had no sense of being hungry or being full, but maintained my intake of Carnation and water. To this date, I have no feelings of hunger or…