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Thank you to everyone on this board...
My Husband of 25 years was diagnosed Sept 29 2009. He has/had stage 4 Squamus cell in throat togune tonsils pallette and jaw. We were told the tumor in his Jaw was the size of a Horseshoe. It has been a rough ride for both of us and our adult children. Yesterday Bob had his last Radiation treatment. He had 4 rounds of…
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soccerfreaks
I just wanted to tell you how much I admire you and what you have been thru.I read your profile..or whatever it is called and it took me quite a while, but after what you have gone thru and the way you wrote it is absolutly amazing. You still have humor, wit, and told your story in an incredible way. You have been thru so…
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SmithMama2 We lost track of you
Karen It has been a while I hope everything is going OK God be with you
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treatment plan
Hi everyone. I spoke with the rad oncologist today and he recommended rads of the mucosa (all my throat because of unknown primary) and the site where they found nodes in my neck and the other side of my neck where there was no evidence of disease. I addition he's recommending 3 courses of chemo (beginning of rads, middle,…
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Blood Pressure Problems
Has anyone has problems with blood pressure being too low. I am a little more then 4 ½ years passed my last treatment and just started having blood pressure problems. As normal the doctors are puzzled as to why and are running all kinds of test. Radiation killed the thyroid and I had to start taking medication to adjust…
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squamous cell carcinoma of maxillary sinus
I had radical surgery on June 9, 2008 that removed parts of the following on the left cheek Eye orb nose cheek bone upper jaw hard palate sinus nerve Wondering how long the ache in the eye muscle will continue and the pain at surgery site. Will not be having radiation treatment. I have been treating with Ratio-oxycocet…
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Need update Kurt (doitforoj)
Hey Kurt, how are you doing? Starting to feel better I hope. Please let us know. Mike
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PEG Tube 8 years after treatment
I have had problems swallowing; it appears that my food goes into the Trachea instead of the Esophagous (sp). So, 8 years after treatment, I am once again using a PEG tube. Don't know yet if this is forever or jsut a short while (it's been 5 months now). Has anyone had this experience?
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No Peg question, thank you all for your feedback
Thank you all for the tremendous response, I will get PEG, I guess you can't go by that you think your tough and can handle it. This appears to be something you do not want to take as a challenge. Thanks again to all.
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re: Update - Tube out today!!!
Feeding tube came out today! I am so thrilled!!! I was four weeks out yesterday and I'll have to say that every week is that much better. Taste buds not completely back yet but at least now the food doesn't taste awful, I can at least tolerate it enough to get it down. I am taking one day at a time. I know I could not have…
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Surgery tomorrow!
Met with the tumor board today and everybody was very excited about my chances. The Drs were all saying if the tumors are encapsulated and if there is a clear margin, I may not need rads/chemo - that's how confident they are, and these guys do not sugar anything. My wife and my brother went with me and that was great…
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New to all this
Hi everyone, just joined. I was diagnosed friday. Have a large mass on the right side of my neck. What started out as a small bump on dec 7th, has turned into this in that short length of time. Neck dissection scheduled for this coming frday. I am pretty frightened by this whole thing but I know that GOD will take care of…
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Jestawoman how are you
I have tried to contact you by e-mail and did not get an answer, I hope and pray that everything is ok, please let me know how you and your brother are doing
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distant mets opinion FINAL PATHOLOGY UPDATE!!!
UPDATE: just got this email from my Dr: "Your interpretation is correct [I asked him to clarify what I heard the day before, see below]. It is uncommon to survive distant mets although people do. No 100%'s in medicine. Regional mets (what you have) is a different story. I expect you to do very well and continue to come…
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Fighting the BEAST alone
I just joined today. I've been reading the posts for about 2 weeks. I'm so blessed by all the love,info and encouragement here. My son in law(who is MY SON in heart)has been incarcerated since Oct.2007.He was just riding my bike and was stopped and harassed by police and unfortunately didnt co operate and landed a 4 year…
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endostatin plus quick update
I just saw the Nova report 'Cancer Warrior' (2001) on the work of Dr Judah Folkman. His studies and perseverance found a molecule that prevented cancer cells from recruiting blood vessels (a process called angiogenesis) for food/survival. I accessed the research area of my college library and found a couple of older…
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Big 3
Well I go for the big 3 today, ENT, Rad onco, oral surgeon. Saw my med onco yesterday. I stunned her with the Question "What can I do to help you?" Don't think anybody had ever asked her that before. If I am lucky I will get a PET done today and maybe cancel the dentist till after the surgery Friday. Onco couldn't…
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My story Info welcome and appreciated
Sept, 08, I noticed a lump on the right side of my neck, at the time I had been sick a lot, I have a daughter who attended day care and daddy always got what she brought home. But after about 2 months, and the lump still existed, I had suspicions that this was more than just a swollen lymph node from being sick. I went to…
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Surgery sounds Radical and Scary to me
I went for my saliva scan and test on Friday. What we have to do when we have been diagnosed with such a horrible disease. First off I was not allowed to swallow saliva for 5 minutes, then she swabbed my tongue with lemon and I had to repeat the 5-minute thing again. I was then taken to a room where saliva scans are taken.…
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Questions
Hi everyone, Okay, meeting with med onco tomorrow. What are the most important things I need to know from her? Steve
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Kent!
Hi Kent. Just a question about why you did not choose surgery. My Dr said he could remove the tumors and biopsy them for a final pathology. This would accomplish removing the only known tumors in my body, give them a lot of tissue to work with to determine type, and reduce the amount of rads I'd need because we wouldn't be…
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Work
Good morning everyone, Just wondering if a person can still work when going thru chemo and rad? Seems like most everyone gets pretty sick. Just a question, my mind is wandering a little this morning. Steve
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Books, websites info on nutrition
Hello everyone. I am new to this site, my brother in law has just been recently diagnosed. I must tell you that reading what we are facing through your words has been a God send. I admire each of you for the support that you give each other while facing and conquering this dreadful disease. You have helped my BIL, his wife…
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Humidifier
Has anyone tried a humidifier in their bedrooms to help with dry throat and dry coughs? Cindy
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Important Clincal trials for for tongue and throat patients
Hi everyone, I have been reading this blog alot and find I have some important infor for a lot of the head and neck cancers. I hope that some of you will be able to use this info. There are two proceedures that I want to tell you all about, that I think arwe quite exciting! These proceedures were both pineered by my…
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Celebrate, Celebrate! Dance to the Music!
"Oh Lord my God, I cried out to You, And You healed me." (Psalm 30) Thank you Jesus! Hello everyone, I finally had my first PET & CT scan after my chemo and radiation for neck cancer. (Undiagnosed Primary) The Pet showed NO increase in glucose, and NOTHING lit up! The left lymph node has returned to normal, and the right…
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Radiation side effects
My husband,(Pearlspapa)has had numerous issues from the radiation. We are currrently back in the hospital for the third time since we stopped the treatments. We started Chemo/rad on November 3rd. Diagnosed on Sept. 21st after surgury to remove a lump on the left side of his neck Sept 18th. They removed his tonsils and did…
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Post Treatment Nerve Damage
Hello Everybody, I hope this post finds people doing well and fighting hard to beat this ugly head and neck cancer. the surgery, chemo, and radiation were just debilitating and brutal. I finished treatments for tonsil cancer 11/1/09. I had a neck dissection surgery 7/24, not radical. Immediately after surgery, my left…
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Lisa
Hi Lisa I did not get your e-mail please try again,
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Prayer Request
Hi Everyone, My husband, Bob, will have his first PET scan tomorrow morning with results available to us on Friday. He has done so very well so far that we are staying positive. Prayers are the best medicine. Thanks to all of you wonderful CSN survivors. Love you, PK