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Important Clincal trials for for tongue and throat patients
Hi everyone, I have been reading this blog alot and find I have some important infor for a lot of the head and neck cancers. I hope that some of you will be able to use this info. There are two proceedures that I want to tell you all about, that I think arwe quite exciting! These proceedures were both pineered by my…
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Celebrate, Celebrate! Dance to the Music!
"Oh Lord my God, I cried out to You, And You healed me." (Psalm 30) Thank you Jesus! Hello everyone, I finally had my first PET & CT scan after my chemo and radiation for neck cancer. (Undiagnosed Primary) The Pet showed NO increase in glucose, and NOTHING lit up! The left lymph node has returned to normal, and the right…
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Radiation side effects
My husband,(Pearlspapa)has had numerous issues from the radiation. We are currrently back in the hospital for the third time since we stopped the treatments. We started Chemo/rad on November 3rd. Diagnosed on Sept. 21st after surgury to remove a lump on the left side of his neck Sept 18th. They removed his tonsils and did…
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Post Treatment Nerve Damage
Hello Everybody, I hope this post finds people doing well and fighting hard to beat this ugly head and neck cancer. the surgery, chemo, and radiation were just debilitating and brutal. I finished treatments for tonsil cancer 11/1/09. I had a neck dissection surgery 7/24, not radical. Immediately after surgery, my left…
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Lisa
Hi Lisa I did not get your e-mail please try again,
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Prayer Request
Hi Everyone, My husband, Bob, will have his first PET scan tomorrow morning with results available to us on Friday. He has done so very well so far that we are staying positive. Prayers are the best medicine. Thanks to all of you wonderful CSN survivors. Love you, PK
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Three year since Diagnosis Petscan says...No hotspots!!!
Last Tuesday I had a Pet Scan completed and the following Friday I had an appointment with my ENT. The results confirmed what I had hoped and I am proud to say that I am free of any hotspots and continue to survive free of cancer. It was made even more special when I met and talked with another Tongue Cancer victim that…
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Full removal of tongue any one experiencing this?
HI I am looking for anyone that has more then 90% of there tongue removed due to cancer. My husband was first diagnosed in Jan 2009 with stage 1 cancer and had his first surgery Feb 2009. He had a small portion removed followed by 6wks of radiation to his neck because they also took out his lypmh nodes. He had a peg tube…
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New Treatment Plan
We met with our oncologist this morning and have a new treatment plan for my husband. We saw the PET and it showed small areas in the lymph nodes in the chest (nothing in the lungs). It is SCC which was originally in the neck. Neck is now clean. We will start erbitux next friday, every week for six to twelve weeks, with…
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Port Removal or Not
If I may, I'd like to give a little background before I ask my question. I was treated for breast cancer in 2003 - chemo, lumpectomy and radiation. I developed lymphadema about a year after treatment. I am not allowed to have any vitals taken on my right side and cannot have blood drawn from my right arm. I didn't have a…
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hearing loss
Kevin had a follow-up appointment with the audiologist yesterday. Kevin had a baseline hearing test before he started chemo. The cisplatin chemo he had did affect his hearing, which is why they switched his treatment plan mid-way to carboplatin and taxol. The follow up shows that he has hearing loss in the upper range of…
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Lisa
Very sorry to hear about your husband having trouble, again. Please keep us informed on how he is doing, and if he needs any advice. I'm 14-month, NPC. I, too, fear having to do another battle with C. Hondo is the authority with experience, and others know far more than I do about head and neck. Please stay active in this…
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did any one use the fentanyl patch for pain
my mouth sores are so bad the doctor rad and chemo doctor agreed to put me on the fentanyl patch for pain? it is a very high drug and i am thinking about this but nothing else is helping the mouth sore pain.. what are your thoughts on this. thanks diane w from wisconsin also email is rlwcpa@execpc.com
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syspthoms
can anyone tell me what the sysptoms of neck and head cancer is????? the drs found 3 bumps on me one on the throat just under the right jaw and one on the back of the tounge and one in my nose.......... going tuesday for swallow and and new ct tests....thanks just getting more and more worried
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Clean PET scan
Just wanted to let everyone know that Evan's first PET scan came back clean. He still can't eat, but he has seen a different Dr. & we are waiting for the appt. with the general surgeon. We will keep everyone updated. Thanks everyone for all your help & advice. We would not have been able to move forward so quickly without…
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It is finally over
Hello Cancer Fighters and Survivors. I hope everybody is doing well. I am 4 weeks out of 35 consecutive rads and 6 treatments of Erbitux. Aside from the rash from Erbitux, I was doing pretty good until the end of week 6. the rad cone down of week 7 and the first 10 days of recovery were very tough. In week 2 of recovery,…
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Spread to Lymph Nodes
We had our biopsy yesterday and the results revealed that the cancer has spread to the lymph nodes in his chest. I am guessing we will have more chemo. All the cancer was gone in the neck. SCC likes to travel. Has anyone experienced this and what do you think our treatment options will be and what are our odds. :( Thanks,…
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Power of Positive Thinking
Good Morning Y'all: Thank you all for the great comments and prayers regarding our minor setback in my husbands battle with this animal. I truly believe in the power of prayer and that God only wants the best for us. I know our future is in God's hands and I will allow him to fight the battle for us. However, we can choose…
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vocal cords
I am a teacher of 18 yrs. and have just had my 4th surgery on my vocal cords. I have carcincoma in stiu on both vocal cords. Since this last surgrey I can hardly talk-it's been a little over a month now. My vocal cords are still swollen. My dr thinks my voice will come back as the swelling goes down-as to how much-it is…
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Eating after Tongue Cancer Treatment
I was diagnosed with stage 4 tongue cancer with no mestaseses in November of 2008. My oncologist and his team gave me 2 options: have 3/4 of my tongue removed followed by radiation or have intense chemotherapy and radiation. I chose the second option and as of May, 2009 I am cancer free. Before my treatment I had trouble…
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Mucoepidermoid carcinoma
My mother was just diagnosed withh Mucoepdermoid carcinoma , probable metestatic. Four years ago she was diagnosed with paratoid gland adenocarcinoma. She just noticed a spot on the back of her ear on the side of her previous cancer and I had her see a dermatologist to have it biopsied. The pathology report came back with…
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A Good Day Vals update
So I had my appointment today at the Cross Cancer Institute, and it went fine. They gave me alot to think about, lots of info, and facts. The nice thing was the oncoligist agreed with Dr. Seikaly in that my cancer is CURABLE! From what I have read oncoligists do not like to use that word… but he did. He also said that the…
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TxN2b and surgery date
I have my surgery date and my Dr feels very good, but cautions that the "final pathology" will determine prognosis. I go under the knife for a selective neck dissection a week from tomorrow (Jan 15). Wish me luck! He also said I am staged at TXN2BM0, essentially stage 4. Not the greatest of news, but I am strong, young-ish…
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Brother w/NPC IV losing it! HELP Hondo!
My 43 year old brother has been living the nightmare of recurrent Nasopharyngeal cancer since Jan. 2006. At this point, after continuous weekly chemo and re-irradiation, both the radiation oncologist and his regular onc have, within a month of each other, told him that they are disappointed in treatment progress and that…
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treatment options
I met with my onco (Dr G) today and he did a complete exam and took more tissue for his pathologist because UC had not yet sent the FNA slides to him (ARGH!). My official diagnosis ("for now") is squamous cell carcinoma (scc) of unknown origin with multiple (3 or 4) lymph node metastasis (right jugular chain, above and…
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Waterpiks
As so many of us have problems with our teeth after radiation I got a waterpik for Christmas, model wp-450. I've got to say I'm very disappointed. It seems to have very little pressure and I expected something more along the lines of what a dentist uses. It pulses and shoots water but not with any degree of force. My…
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Anyone with experience of EBV-Specific T-Cell Therapy for NPC?
We are looking into gettting into a clinical trial of it after the Stage4 NPC relapsed 4-month afer chemo/radio therapy...In a dreadful time now...
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Need update Kurt (doitforoj)
Kurt, I am sure I am not alone in wondering how you are doing. Hoping you are starting to feel better and making the climb back to your old self. Post if you can. As always, thinking of you and your family and hoping all is well. Mike
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Post Treatment Fatigue
Hello Everyone, I hope that this message finds everyone doing well with treatment and recovery. I am 7-8 weeks out of radiation and chemo. I had my peg tube out a few weeks ago. I was really feeling quite good. So good, that I worked (2) days on a stone masonry project with my crew last week. I am from the Boston area and…
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Side effects - Cysplatin
I am getting discouraged, and am trying to stay positive, but the side effects are worse than the TX! Has anyone had nerve damage from the chemo? Tingling down both legs 10 weeks after treatment, and hearing loss. I have learned the hearing loss is permanent, and have come to terms with it. The nerves are, quite frankly,…