Side effects - Cysplatin
Comments
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I was on heavy Cisplatin
Hi Patty
I'm sorry for your hearing loss and tingling of the extremities. I have read that those are common side effects. My only comment is that I was on heavy doses of cisplatin and did not experience those two side effects. My biggest complaint is 'Chemo Brain" in which I just space out sometimes forgetting what I was doing for a moment. Hope the tingling diminishes.0 -
Chemo Brainratface said:I was on heavy Cisplatin
Hi Patty
I'm sorry for your hearing loss and tingling of the extremities. I have read that those are common side effects. My only comment is that I was on heavy doses of cisplatin and did not experience those two side effects. My biggest complaint is 'Chemo Brain" in which I just space out sometimes forgetting what I was doing for a moment. Hope the tingling diminishes.
Hi ratface - Thanks for your timely response. I had 30 mg once a week, but do not know if that is low/high. The tingling seems more frequent lately, and I am okay as long as the severity and length of tingling do not increase since I am a "cab driver" for 2 active teens and a caregiver/deliverer for Mom, & both In-Laws. I laughed at Chemo Brain 'cause I was just calling them "senior moments"! Now you got me thinking...... lol! Yikes! Cannot wait to see what tomorrow brings, liver spots, wrinkles, arthritis???? Just happy to be around right now. Thanks for the good wishes, and may you have fewer "Chemo Brain" moments in 2010.
P.S Love your posts!
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Yea Pattypattyanny said:Chemo Brain
Hi ratface - Thanks for your timely response. I had 30 mg once a week, but do not know if that is low/high. The tingling seems more frequent lately, and I am okay as long as the severity and length of tingling do not increase since I am a "cab driver" for 2 active teens and a caregiver/deliverer for Mom, & both In-Laws. I laughed at Chemo Brain 'cause I was just calling them "senior moments"! Now you got me thinking...... lol! Yikes! Cannot wait to see what tomorrow brings, liver spots, wrinkles, arthritis???? Just happy to be around right now. Thanks for the good wishes, and may you have fewer "Chemo Brain" moments in 2010.
P.S Love your posts!
I "got" 8 bags of Cistplatin (one every 3 weeks) plus 35 rounds of radiation. Treatment ended June of 09, and I STILL have lots of tingling in my fingers and can feel very little in the bottoms of my feet. My oncologist says, "Yea, that's my fault." "It's just one of the side effects and it'll go away." It's about to drive me nuts. Ringing in the ear is being taken care of by an audiologist in Philadelphia. He gave me medication to flood the left ear with every night for ten days. We'll see what happens. Technology has me talking with him over this huge monitor. Sorta strange and hard to get used to having that type of medical appointment.0 -
Hi Patty
Ratface hit the nail on the head with the chemo brain word. I can’t remember anything anymore, it is really bad when I need to go and ask my wife if she seen me because I can’t remember where I left myself. What I do hate most is when I am preaching and forgot what I am talking about, these days I keep my sermon with me to keep me on track, anyway Jesus is there and will someday give me a new body & brain.
After treatment our bodies goes through many changes and for years to come, my last radiation & chemo was in March 2005 and I am just now having new side affects from it. One of the reasons might be because I had to have radiation twice. I am always cold and can’t get warm enough, all the vents in my office at work are plugged and I live with a space heater under my desk.
I am having nerve problems mostly in my jaw, a lot of pain and numbness, to where I can’t speak or swallow. The pain under the neck get so bad it is like a very bad Charlie horse and all I can do is hold my neck and sit sown. I tell my doctor and ENT about it but they don’t seam to know what to do about.
I am thinking about acupuncture to help the nerves Scambuster is trying it in the land down under so I am praying it works for him.
Take care Patty and I will keep you in my prayers.0 -
Cisplatin and nervesHondo said:Hi Patty
Ratface hit the nail on the head with the chemo brain word. I can’t remember anything anymore, it is really bad when I need to go and ask my wife if she seen me because I can’t remember where I left myself. What I do hate most is when I am preaching and forgot what I am talking about, these days I keep my sermon with me to keep me on track, anyway Jesus is there and will someday give me a new body & brain.
After treatment our bodies goes through many changes and for years to come, my last radiation & chemo was in March 2005 and I am just now having new side affects from it. One of the reasons might be because I had to have radiation twice. I am always cold and can’t get warm enough, all the vents in my office at work are plugged and I live with a space heater under my desk.
I am having nerve problems mostly in my jaw, a lot of pain and numbness, to where I can’t speak or swallow. The pain under the neck get so bad it is like a very bad Charlie horse and all I can do is hold my neck and sit sown. I tell my doctor and ENT about it but they don’t seam to know what to do about.
I am thinking about acupuncture to help the nerves Scambuster is trying it in the land down under so I am praying it works for him.
Take care Patty and I will keep you in my prayers.
pattyanny- no nerve damage with me. Did experience a week of Cranial Nerve pain, but it went away. No other nerve damage symptoms with me. Have noticed a little hearing lost in the one ear.
My Cisplatin treatment may be such that I can rightly advise you to consider that the cause of your nerve problems may be a secondary issue. Were I you, I would consider going to your regular Dr. It may or may not be related to your C. Might be a separate issue brought to light by the chemo, which is a lot for the body to deal with. The nerves on the lower torso trace to the lower spine, and an area there might be the problem. Just a suggestion.
And, Hondo- the cold feeling is with me, too. May be the thyroid, you know, but it does make this winter even colder than it is, and the summer not as hot as it is- which is a good thing.
Chemo brain: multi-tasking is my chemo brain problem. Very real. My research tells me the med community does recognize it as fact, but can't get a handle on it.
kcass0 -
Hay Big brotherKent Cass said:Cisplatin and nerves
pattyanny- no nerve damage with me. Did experience a week of Cranial Nerve pain, but it went away. No other nerve damage symptoms with me. Have noticed a little hearing lost in the one ear.
My Cisplatin treatment may be such that I can rightly advise you to consider that the cause of your nerve problems may be a secondary issue. Were I you, I would consider going to your regular Dr. It may or may not be related to your C. Might be a separate issue brought to light by the chemo, which is a lot for the body to deal with. The nerves on the lower torso trace to the lower spine, and an area there might be the problem. Just a suggestion.
And, Hondo- the cold feeling is with me, too. May be the thyroid, you know, but it does make this winter even colder than it is, and the summer not as hot as it is- which is a good thing.
Chemo brain: multi-tasking is my chemo brain problem. Very real. My research tells me the med community does recognize it as fact, but can't get a handle on it.
kcass
I was going through an Audit last years in my office; the auditor was getting so hot the sweat was dripping down his face. He looked at me and said why it is so hot in here; I told him sorry but I don’t feel a thing. When he looked at me I was as cool as I could be, no sweat or signs of every being hot, my 2 hour audit only lasted ½ hour. I did not have the heart to tell him I have all the A/C vents plugged and my space heater going under my desk. I have my thyroids check every 6 months last check-up was in October everything was OK then.
Take care and God bless0 -
Thanks Cajun Eagle! TheCajunEagle said:Yea Patty
I "got" 8 bags of Cistplatin (one every 3 weeks) plus 35 rounds of radiation. Treatment ended June of 09, and I STILL have lots of tingling in my fingers and can feel very little in the bottoms of my feet. My oncologist says, "Yea, that's my fault." "It's just one of the side effects and it'll go away." It's about to drive me nuts. Ringing in the ear is being taken care of by an audiologist in Philadelphia. He gave me medication to flood the left ear with every night for ten days. We'll see what happens. Technology has me talking with him over this huge monitor. Sorta strange and hard to get used to having that type of medical appointment.
Thanks Cajun Eagle! The ringing in the ears is driving me nuts too! Especially during the holiday family gatherings. The noise was overwhelming at times, and I felt like people were speaking a different language, because I could not hear to process the words. I found myself "squinting" so I could hear better! Lol! I did have fluid in one ear, but took sudafed. There is some hearing loss on higher pitches. I hope your medication for the ear helps, that would be great! It must be strange, having appts over the monitor. Ahh technology! Now if they could only use their technology to end this vicious disease. God Bless You!0 -
Good Idea Kent! After myKent Cass said:Cisplatin and nerves
pattyanny- no nerve damage with me. Did experience a week of Cranial Nerve pain, but it went away. No other nerve damage symptoms with me. Have noticed a little hearing lost in the one ear.
My Cisplatin treatment may be such that I can rightly advise you to consider that the cause of your nerve problems may be a secondary issue. Were I you, I would consider going to your regular Dr. It may or may not be related to your C. Might be a separate issue brought to light by the chemo, which is a lot for the body to deal with. The nerves on the lower torso trace to the lower spine, and an area there might be the problem. Just a suggestion.
And, Hondo- the cold feeling is with me, too. May be the thyroid, you know, but it does make this winter even colder than it is, and the summer not as hot as it is- which is a good thing.
Chemo brain: multi-tasking is my chemo brain problem. Very real. My research tells me the med community does recognize it as fact, but can't get a handle on it.
kcass
Good Idea Kent! After my 1st PET, I will see a neurologist then. As for your cranial nerve pain - could you explain that? I had (in the past) severe pain in the back of my head,on both sides, behind the ears that lasted for quite a few days. Was it like that?
Thanks for you input Kent. I appreciate picking your brain! God Bless You!0 -
Hi HondoHondo said:Hi Patty
Ratface hit the nail on the head with the chemo brain word. I can’t remember anything anymore, it is really bad when I need to go and ask my wife if she seen me because I can’t remember where I left myself. What I do hate most is when I am preaching and forgot what I am talking about, these days I keep my sermon with me to keep me on track, anyway Jesus is there and will someday give me a new body & brain.
After treatment our bodies goes through many changes and for years to come, my last radiation & chemo was in March 2005 and I am just now having new side affects from it. One of the reasons might be because I had to have radiation twice. I am always cold and can’t get warm enough, all the vents in my office at work are plugged and I live with a space heater under my desk.
I am having nerve problems mostly in my jaw, a lot of pain and numbness, to where I can’t speak or swallow. The pain under the neck get so bad it is like a very bad Charlie horse and all I can do is hold my neck and sit sown. I tell my doctor and ENT about it but they don’t seam to know what to do about.
I am thinking about acupuncture to help the nerves Scambuster is trying it in the land down under so I am praying it works for him.
Take care Patty and I will keep you in my prayers.
Hi Hondo, well - if I have been experiencing "Chemo Brain" - I don't remember! Hee hee!
I can't depend on my teens because they have always said to me, "oh I told you that Mom!"
I am always cold, but being 5'9 and 120lbs does not help. If I turn sideways, and stick out my tongue - I look like a zipper! But I am eating again, I feel I have turned a corner on the taste thing.
I am sorry to hear about your jaw and neck pain, you would think someone would have an answer. I get frustrated because I know everyone is affected differently, but someone MUST
have had a similar problem. Arghhh! Have you tried a mild muscle relaxer? I only say this because my Sis suffers with severe nerve and muscle back pain, and a little helps her.
Yes, I read Scambusters' posts too, and acupuncture sounds like a viable and promising option instead of drugs. I wish him well.
When I read how Jesus suffered and died on the cross for our sins, I am truly humbled.
I know he is preparing me to do greater things for Him on this earth.
Thank you for your wisdom & prayers Hondo. God Bless You! As always, you are in mine, as
is the rest of the "club".0 -
cranialpattyanny said:Good Idea Kent! After my
Good Idea Kent! After my 1st PET, I will see a neurologist then. As for your cranial nerve pain - could you explain that? I had (in the past) severe pain in the back of my head,on both sides, behind the ears that lasted for quite a few days. Was it like that?
Thanks for you input Kent. I appreciate picking your brain! God Bless You!
My pain was a bit different: ran horizontal in left-upper cheek from my ear to about an inch away from my nose, and vertical down to my left upper-neck a couple inches below my chin. Again, I feel fortunate it went away. Couple days were kinda bad.
Believe.
kcass0 -
So sorry! Glad it was only aKent Cass said:cranial
My pain was a bit different: ran horizontal in left-upper cheek from my ear to about an inch away from my nose, and vertical down to my left upper-neck a couple inches below my chin. Again, I feel fortunate it went away. Couple days were kinda bad.
Believe.
kcass
So sorry! Glad it was only a couple of days kcass, but I can imagine even 1 day it must have been bad. I know you are being modest. Mine was more of a head ache, but in the back upper neck - immobilizing! My mantra is "This to shall pass, This too shall pass....... Hope you are doing well, and thanks again. GBU! 0 -
I'm freezing all the time too!pattyanny said:Hi Hondo
Hi Hondo, well - if I have been experiencing "Chemo Brain" - I don't remember! Hee hee!
I can't depend on my teens because they have always said to me, "oh I told you that Mom!"
I am always cold, but being 5'9 and 120lbs does not help. If I turn sideways, and stick out my tongue - I look like a zipper! But I am eating again, I feel I have turned a corner on the taste thing.
I am sorry to hear about your jaw and neck pain, you would think someone would have an answer. I get frustrated because I know everyone is affected differently, but someone MUST
have had a similar problem. Arghhh! Have you tried a mild muscle relaxer? I only say this because my Sis suffers with severe nerve and muscle back pain, and a little helps her.
Yes, I read Scambusters' posts too, and acupuncture sounds like a viable and promising option instead of drugs. I wish him well.
When I read how Jesus suffered and died on the cross for our sins, I am truly humbled.
I know he is preparing me to do greater things for Him on this earth.
Thank you for your wisdom & prayers Hondo. God Bless You! As always, you are in mine, as
is the rest of the "club".
Hondo
Same here , I'm always cold. Prior to treatment I was always the one in the room who was hot first. I have been keeping a fire going in the fireplace anytime that I'm home, really going through some wood this year. I suppose I should ask for a thyroid test. I was hoping it was this horrible Chicago winter. If I am fortunate enough to survive this long term I am going to have to move to somewhere warmer, perhaps to Louisiana?0 -
chemo side effectsratface said:I'm freezing all the time too!
Hondo
Same here , I'm always cold. Prior to treatment I was always the one in the room who was hot first. I have been keeping a fire going in the fireplace anytime that I'm home, really going through some wood this year. I suppose I should ask for a thyroid test. I was hoping it was this horrible Chicago winter. If I am fortunate enough to survive this long term I am going to have to move to somewhere warmer, perhaps to Louisiana?
Ratface, I lived in Louisianna for (2) summers to work in the oilfields/missisippi river while I was in college. I laugh when people in Massachusetts complain about heat. Louisiana is heat, but the nights are delightful, you wopuld love it. I would love to go back someday. The chills rreally freaked me out. I took erbitux instead of cisplatin. I also have developed a nerve issue in my hands. there is a slight tremor that i never had before. What i do not know is if it is related to my surgery to remove my lymph nodes in my neck. Evidently, there is a major nerve that got damaged. The doc says it will get better. After PT. Fight On! Alex.0 -
Pattyannypattyanny said:Hi Hondo
Hi Hondo, well - if I have been experiencing "Chemo Brain" - I don't remember! Hee hee!
I can't depend on my teens because they have always said to me, "oh I told you that Mom!"
I am always cold, but being 5'9 and 120lbs does not help. If I turn sideways, and stick out my tongue - I look like a zipper! But I am eating again, I feel I have turned a corner on the taste thing.
I am sorry to hear about your jaw and neck pain, you would think someone would have an answer. I get frustrated because I know everyone is affected differently, but someone MUST
have had a similar problem. Arghhh! Have you tried a mild muscle relaxer? I only say this because my Sis suffers with severe nerve and muscle back pain, and a little helps her.
Yes, I read Scambusters' posts too, and acupuncture sounds like a viable and promising option instead of drugs. I wish him well.
When I read how Jesus suffered and died on the cross for our sins, I am truly humbled.
I know he is preparing me to do greater things for Him on this earth.
Thank you for your wisdom & prayers Hondo. God Bless You! As always, you are in mine, as
is the rest of the "club".
You are so right when I think of all that Jesus did for me how can I complain about the little problems I have to bare. I look forward to that day when I will see my savoir and friend who has carried me through all my trials when I could not walk by my self.
Take care and may the light of His love shine on you always0 -
Ratfaceratface said:I'm freezing all the time too!
Hondo
Same here , I'm always cold. Prior to treatment I was always the one in the room who was hot first. I have been keeping a fire going in the fireplace anytime that I'm home, really going through some wood this year. I suppose I should ask for a thyroid test. I was hoping it was this horrible Chicago winter. If I am fortunate enough to survive this long term I am going to have to move to somewhere warmer, perhaps to Louisiana?
It is getting too cold for me in Louisiana had to have the space heater running on me all day at work, I hear south Texas is not to bad or may Mexico, will need to brush up on Spanish. The last time I spoke Spanish I was trying to order two eggs over easy, that was not what came on the plate.
Take care my friend and my the Lord bless you always0
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