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Alone.................................................
Alone..................... As most of you know, I keep my cards close to my vest, so to post this is very difficult for me. I just hope no one is in this position as I am now. I am a survivor, and have two teens, and a husband of 20 years. I am approaching my 6 month Pet in April, and my husband, who has treated my illness…
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Common sense with chemo and radiation
I know this seems a little off the topic. But some things about cancer are consistent accross the board,...like all cancers ferment glucsose for energy. I researched complimentary medicine for my wifes Stage IV adenocarcinoma of the lung. We had outlived her prognosis and were doing natural medicine as I saw what…
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Depression and Drinking after diagnoses/treatment
I have a family member who is battling a different form of cancer than what I have battled. He has been fighting Lymphoma for 3 years now. Recently had a bone marrow transplant and since then, he has been battling depression. They always come to me to find out how I got through my cancer and my diagnoses, but when I stop…
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Broke Down
Hey everybody, Went yesterday for chemo and then went across the street for rad treatment and the machine was broke down. The tech said the repairman would be there in about an hour. Needless to say I didn't wait. Tech said we will call if we don't get it fixed. So today I went to take back my chemo pump went across the…
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Dennis318
I saw in a previous post of yours about metal smell. I had a metal taste in my mouth, I believe it was from the Taxol that was ome of my chemo drugs during induction. Hope that helped a little. Good Luck & Best Wishes Dave
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re: Need prayers
Hi Everyone! Its me Sandy and I am happy to announce that this Wednesday I will be 15 weeks out from being done with radiation. I have about 70% of my taste buds back and I feel great! I am going into MD Anderson tomorrow (March 23rd) to have repeat scans, blood work and meeting with dentist. Then I go back on Wednesday…
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Edema following neck dissection
Following surgery for throat cancer and neck dissection I have been experiencing constant edema even after 3 months, is this normal and is there anyone out there that can shed some light on this subject.
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Esthesioneuroblastoma
Just diagnosed two days ago and in a state of shock. Looking for any info to help make informed treatment decisions.
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Newly diagnosed metatistic SCC unknow origin
Looking for others with insight into treatment and diagnosis. Newly diagnosed with stage IV (a) we think, meet with docs Tuesday. Surgery last Friday removed tonsil and 1cm tumor did multiple tissue biopsy's tonsil and all biopsy's negative. So essentially we have a PET scan with two neck masses and needle biopsy's of the…
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Any Dr recommendation for a relaped NPC case?
Dear Hondo and guys there, I have been quiet for a while after last time asking about the immuno therapy in Feb. Well, 2 chemo agents failed in this relaps and due to the "unstablized condition", not qualified to be enrolled into the immuno program which doesn't have very good outcome any way... Pain with the tumor…
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Going It Alone
Hello Everyone, thanks to you all for the support I've been given over the last few months. I have for rads to go, and I'm done--chemo is finished. The information and support here have been invaluable for me, because I--I'm sure like others--am mainly on my own. I have a wife from whom I am legally separated in town, and…
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false hope
we were told last week that the head and neck surgeon could easily remove the tumor and the tonsils. well, needless to say, we walked of that appointment elated. now back at the radiation doctor he gives us a whole different picture. the air has been knocked of our sails. we need some encouragement. we are getting so worn…
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PINO TEA - Gagging and eating difficulty
gagging new I have just finished my 30 sessions (radiotherapy only) last Thursday. My problem all through this has been the taste of food/gagging. My throat is sore but not as bad as the horrible mucus in my mouth. Doctor said just to keep spitting it out. The salt/bi-carb (in warm water) does help slightly and I believe…
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gag reflex
Hi folks. The last two days it's been a roller coaster. I have 12 rad days to go and I can still eat and drink. The problem is that the mucous is so much that when expectorating the stuff pushes my gag reflex and *everything* comes up and doesn't stop until it's all out, I mean ALL OUT. This is different to nausea. I do…
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Kick-off Monday the 15th - 0800 Hours
Another one walks into the flames. Tomorrow is Day 1 for my Chemo and Radiation odyssey. Looks like they will burn me for 38 days, ending on May 5th. I will be poisoned in three rounds, in week 1, week 4 and week 7. My chemo oncologist is planning to infuse Cisplatin over a two-day interval, for each of the three rounds.…
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First Scan Tomorrow, Need Prayers
Hi everyone, Im going this morning at 8:30 to have my first Pet/CT scan since my last treatment this last December, and I humbly am asking for any prayers you could say for me. I am really nervous, hence the fact that Im still up and It's 12:15 am here on the east coast. But seriously, any prayers and luck is greatly…
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VITALSTIM OR E-STIM
Hi Everyone, My husband was diagnosed with throat cancer is August finished treatment in November had both Chemo(2) & Radiation(35) and now has difficulty swallowing. He has a PEG yet but only uses it for water. He is able to eat some foods and drinks ENSURE. His swallow studies show he is aspirating on some of his…
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Article
Although this literature is from 2000 and the survival rates are probably higher now especially with the new information about HPV Squamous, this article is very detailed and covers almost every angle. I read this a while back and then couldn't find it. Finally stumbled on it again. Copy and past the link to your address…
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Pet Scan again
Hi everyone!! I haven't been on CSN for quite some time. I do check in and see what's going on:) I wish everyone the very best, always. I go for my first PET scan at the end of April. We don't have a PET scan here on Vancouver Island, so I will be going to Vancouver to have it done. I have a few questions, if anyone could…
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interesting decision by deputy chief of american cancer society?
Headline news in the Chicago Tribune on 3/8/2010. Deputy Chief medical officer of the american cancer society refused to have a CT scan done citing the risk for cancer was too high. It seems an imaging test revealed a small nodule in Dr. Len Lichenfelds lung. Article does not mention type of imaging test or why it was…
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treatment day 8 - taste beginning to leave
This is starting sooner than I expected, but of course not a total surprise. 8th treatment today and the sides of my tongue feel a bit numb and food is losing its flavor. I also notice I'm getting a bit cranky - short tempered, irritable, not very nice - especially when I am getting asked a barrage of questions like "how…
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Pet Scan
Had my first Pet Scan since treatment ended Dec. 27th. All clean. There was a little hot spot in throat but the Dr. said that it is common this close to treatment and is not worried. Will do another scan in 3 months then he said one a year after that. I want to thank everyone here who has provided help, encouragement and…
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Hi Fellow Fighters!
Just wanted to check in and say Hello. I do read all your posts because you have all become my family. I have been busy with my 80 year old Mom, who has been it 2 Nursing Facilities, and hospitalized twice in the last 5 weeks. The care in these places are incompetent, and I feel sorry for the elderly who have no one to be…
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Acupuncture
I have read on this website about using acupuncture treatment to help restore the saliva glands. I am now out of treatment (35 Rads) for just a little over three years and still suffer greatly from dry mouth. I have used quite a few products to help alleviate this problem with little or no avail. I have tried the drugs for…
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SCC of left oral tongue and floor of mouth
my father was diagnosed with left oral tongue cancer and it is also on the floor of his mouth.. has anyone out there had any experience with this? the doctor said it was rare, it only accounts for about 3% of oral cancer, now i have come across so much information and spoke with different people on this board regarding…
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Day 12 - Pain and what I ate today
Wow. The pain of the radiation is difficult to describe in qualitative terms. It hurts. A lot. The sheer intensity is unlike anything I've experienced before. I could imagine having my skin peeled and that seems to work. Every swallow is traumatic. How do you guys do this? I discovered the joy that is magic mouthwash…
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Head & Neck Radiation / BP
Carotid sinus Here is a problem that may or may not affect you at some point in your life; Damage to the Carotid sinus due to radiation of the Head and Neck. If you are having problems with too Hi or too Low of a blood pressure or maybe a mixed Hi & Low, you may want to just keep this web site in your files somewhere.…
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surgery/radiation
i am now thoruoghly confused. was all ready for the torture of radiation, and then went to a head and neck surgeon today and he says he can get it all with removal of the lymph nodes and the tonsils. any imput???????
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Feeding tube
Hi all, Just tried to flush my feeding tube for the 1st time. It has been in since Wednesday last week. So far other than losing control of my life, this is the only thing that scares me. It still has the bandages on it from surgery and I have asked everyone, being the Ro nurse, the MO nurse and the Rns where i get my…
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More than one surgery?
Hi there I haven't posted in a few months but was hoping someone has an answer to this question. My mum's tumour in her sinus cavity was not completely removed due to the location mum had 5 weeks of radiation in Nov 09 not a high dose because of the location of tumour that was left. Well now the bugger has come back my…