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Neck dissection March 29th
12.5 hrs to go. Thanks to all of you for being here for me. It means alot. I will do well. I have had alot of phone calls today. The surprise one was from my longtime penpal in England! My oldest son and his wife came by today. My boys in Texas and Phoenix called me. Nursing supervisor called me,neighbors. It felt good to…
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vocal cord cancer
Have vocal cord cancer and a pacemaker how bad will radation harm the pace maker?
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Horrible decision to make.
I was presented a decision this week, quite taking the immunosuppressant’s and loose my transplanted kidney and go back on dialysis and let my immune system come back to full strength to help fight the cancer or take the risk that the cancer will kill me. I am coming to the terms that the life as I know will never be…
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For Micktissue
Mick a lot of us here are a little worried because we have not heard from you in a few days, hope you are doing well my friend. I know the treatment is more then likely getting very hard right now, just hold on the finish line is not to far away now. All the best to you my friend.
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Mick & Claire; Please share
Mick & Claire; Your blog describes your discovery of a smoothie receipe that has 485 to 550 calories in 2/3 of a cup? Can you share that with us here on the board. Others (myself included) were launched on this journey by physicians who told us that the PEG would not be needed. Any and all assistance would be appreciated.…
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Mild persistent cough
I am 18 months out of treatment for Squamous base of tongue. For the last couple months I have had a little annoying cough that just feels like a little tickle in my throat. Not a wet cough. I had a cold/flu that was pretty bad and seemed to start it off though it may have been completly unrelated. I always look for simple…
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Cancer Patient Humor
Or, what NOT to do to a cancer patient... My teenaged daughter trimmed her bangs over my bathroom sink yesterday morning, using my special sharp scissors, and she didn't clean up any of the hair clippings before she left. Enter Mom (just two weeks into a cisplatin chemo regime) to comb her hair over the same sink. Quick…
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ChefDaddy
The other post was getting a bit lenghty. Mike I had radiation burns to the right side of my neck. They do not sound as bad as yours though. The hospital also put some sort of dressing that cooled the area and also removed the dead skin, though didnt seem as bad as yours. I could only put a Eucerin type cream on once a day…
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vocal cord cancer
I have Vocal cord cancer and I also have a pace maker, I have been told that radation treatment can burn out a pace maker, any body with the same?
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So afraid.
I had a lump on the back of my neck and after having a needle biopsy it came out squmous cell carcinoma. I have to have a PET scan this coming Thursday. I have always felt fine and healthy. I have been a vegetariann for 10 yrs and then a vegan. I felt I have had a healthy life style. So I was so shocked when I found the…
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For my bud Mick
Hey Mick, You know me man, haven't heard from ya and just wondering if you are doing all right. They seem to have gotten all the machines working where I'm at so I will be doing some catch ups this weekend. So I guess I've gotten a little reprieve? Yea right. An agony prolongment is what I have received. Someone actually…
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Tiny spots inside upper peg tube
Hi, I've delveloped a few very tiny spots in the upper section of my peg tube. Not many, but they seemed to appear after one feeding. They are about the size of poppy seeds, and same color. Also not very many, but I'm wondering if anyone has seen this. They never go down and stick below the pressure shut off when I flush,…
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Ear pain
The longer I wait for treatment the more pain I have in my left ear, it was my left tonsil that had the tumor and both tonsils were removed. The docs told me that radiation will take care of the pain. I have my trial run this Wed. 3/10/10. And I will start radiation either on the 11th or 15th of March. Has anyone else…
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Dealing with being told you have 2 yrs left.
David Here. They told me this is what I have and that its a rare Cancer because of where it is located. I have not started any treatment yet but I do know I am in stage 3 and have 2 yrs to live.. Meeting with all of my Cancer team @ Sloan Kettering next week after I get a Pet Scan. ANYONE have any suggestions on where to…
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I need help.
I have squamous cell carcinoma, and begin my chemo and radiation on Monday. I've been trying for a few weeks to find someone whom I know, as I have no family, whom might be between jobs in this rotten economy, or a youngster who could use what I can afford to drive me back and forth to Mem Sloan K in Basking Ridge, but…
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Sleep Apnea
After reading posts looking for SmithMama2 (Welcome back, Karen) I was wondering if others have been bothered with sleep apnea after treatment and if it calmed itself as time passed or if the cpap turned out to be necessary. My husband is 4 1/2 months out of treatment and has sleep apnea something fierce. As a light…
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Sweetblood22
Has anyone heard anything from sweetblood22 lately?
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Power Port
Had to go today and get my port flushed. Go every 4-6 weeks as I'm sure do the rest of you. I am 5 months post chemo and was wondering what you were told as to how long you might have the port. In the beginning my Doc said about a year which for me will be the month of July. Is there anyone into the second year? Just…
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Alone.................................................
Alone..................... As most of you know, I keep my cards close to my vest, so to post this is very difficult for me. I just hope no one is in this position as I am now. I am a survivor, and have two teens, and a husband of 20 years. I am approaching my 6 month Pet in April, and my husband, who has treated my illness…
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Common sense with chemo and radiation
I know this seems a little off the topic. But some things about cancer are consistent accross the board,...like all cancers ferment glucsose for energy. I researched complimentary medicine for my wifes Stage IV adenocarcinoma of the lung. We had outlived her prognosis and were doing natural medicine as I saw what…
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Depression and Drinking after diagnoses/treatment
I have a family member who is battling a different form of cancer than what I have battled. He has been fighting Lymphoma for 3 years now. Recently had a bone marrow transplant and since then, he has been battling depression. They always come to me to find out how I got through my cancer and my diagnoses, but when I stop…
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Broke Down
Hey everybody, Went yesterday for chemo and then went across the street for rad treatment and the machine was broke down. The tech said the repairman would be there in about an hour. Needless to say I didn't wait. Tech said we will call if we don't get it fixed. So today I went to take back my chemo pump went across the…
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Dennis318
I saw in a previous post of yours about metal smell. I had a metal taste in my mouth, I believe it was from the Taxol that was ome of my chemo drugs during induction. Hope that helped a little. Good Luck & Best Wishes Dave
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re: Need prayers
Hi Everyone! Its me Sandy and I am happy to announce that this Wednesday I will be 15 weeks out from being done with radiation. I have about 70% of my taste buds back and I feel great! I am going into MD Anderson tomorrow (March 23rd) to have repeat scans, blood work and meeting with dentist. Then I go back on Wednesday…
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Edema following neck dissection
Following surgery for throat cancer and neck dissection I have been experiencing constant edema even after 3 months, is this normal and is there anyone out there that can shed some light on this subject.
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Esthesioneuroblastoma
Just diagnosed two days ago and in a state of shock. Looking for any info to help make informed treatment decisions.
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Newly diagnosed metatistic SCC unknow origin
Looking for others with insight into treatment and diagnosis. Newly diagnosed with stage IV (a) we think, meet with docs Tuesday. Surgery last Friday removed tonsil and 1cm tumor did multiple tissue biopsy's tonsil and all biopsy's negative. So essentially we have a PET scan with two neck masses and needle biopsy's of the…
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Any Dr recommendation for a relaped NPC case?
Dear Hondo and guys there, I have been quiet for a while after last time asking about the immuno therapy in Feb. Well, 2 chemo agents failed in this relaps and due to the "unstablized condition", not qualified to be enrolled into the immuno program which doesn't have very good outcome any way... Pain with the tumor…
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Going It Alone
Hello Everyone, thanks to you all for the support I've been given over the last few months. I have for rads to go, and I'm done--chemo is finished. The information and support here have been invaluable for me, because I--I'm sure like others--am mainly on my own. I have a wife from whom I am legally separated in town, and…
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false hope
we were told last week that the head and neck surgeon could easily remove the tumor and the tonsils. well, needless to say, we walked of that appointment elated. now back at the radiation doctor he gives us a whole different picture. the air has been knocked of our sails. we need some encouragement. we are getting so worn…