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Clam chowder Friday
Went to lunch with my loving wife today, only the second time I have eaten in public since treatment. Anyway had a large bowl of clam chowder and it really tasted good, also had a small salad and had a little problem with that. Anyway it is nice to be able to go out and eat somthing without feeling like a freek, always…
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Good days and Bad days
Could anyone comment on recovery? My husband is 25 days since his last radiation treatment. He is still unable to taste anything and is still on the PEG. He was back in the hospital a week ago for fluids and antibiotics. His fatigue is almost debilitaing and unbearable, he has nausea, he still has large amounts of mucous.…
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depression
i am crying all the time and dont want of get out of bed anymore. i am cancer free, but i just pace around the house. i used to love to cook and that is not interesting anymore. i am afraid to go out in the heat because of sweating. i watch other people mow and cry that i cant do it. i am a man and am used to being strong
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9 year survivor, with a couple questions..please help!
9 years ago I was diagnosed with Tonsilar cancer. Ever since then, I have been having 2 sorts of problems. One is where my memory is really bad. I don't remember much of my past, nor what I have done even last week. It's extremely frustrating. The other problem is that I get a pain in the left side of my neck, below my ear…
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Oncologist Scope Today
So my radiation oncologist scoped me today, 6-8 weeks post rads, 5 chemo down and one to go. Doc said everything looks good, my tissue has healed well. The only complaint I have is that my tongue is still burned to crap and so is my throat, internal of course. Eating food is my biggest challenge because it hurts so bad. I…
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HPV study interesting article
My niece sent me this link to an article about HPV and oropharyngeal cancer. Excerpt: "Cancer-causing HPV strains have been implicated in half of oropharyngeal cancers, and 90% of HPV-related cases have been pinpointed to HPV-16 in studies" http://www.medpagetoday.com/InfectiousDisease/STDs/6508 Best, Mick
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Ex-TUBE-ation
Mark had his tube removed today. Took it into his own hands and made the appointment without any recommendation from his docs. They had to scramble to get his ENT to say it was ok. He has not used it in four weeks and his weight is on the rise. Looks like he has been shot in the stomach. Never thought we would be here. I…
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GOOD THAT ACTUALLY HAD A TASTE
I have been trying to find something to eat that was even remotely close to what it tasted like prior to chemo and radiation. I tried Quaker Instant Cheddar Cheese Grits with salt and pepper and butter today. For the first time, I could not tell a difference in the taste between the Grits now and prior to rads and chemo.…
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last scheduled tomarrow
I am excited tonight. I go in for the last of 35 rad treatments tomarrow. And while it has been no walk in the park,It aint as bad as what I was told to expect. We all react differently to treatments, My biggest problem was learning when to stop trying to eat certain foods that would wreck my mouth and throat with every…
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Should one bite the ENT doctor?
Just checking. It is kind of tempting though. Stacey
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The Prayer
Thank you all for keeping this forum active. I do wish it was available during my time. I had spent hours in the library, but found the bookstore had more recent publications. There are more individuals posting so I consider this the best forum for cancer survivors. I do not contribute as often since there are newer…
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Laryngeal Cancer
Long story short… My father was diagnosing with laryngeal cancer stage 4 (Aug 3) He had 2 options either to have Chemo/Radiation which the doctor couldn’t guarantee the cancer will be gone, or surgery. The surgery was a major one. It took 16 hr. He had a complete Larygectomy and bilateral neck dissection of the neck. He’s…
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14 Rads and 1 Chemo down
Hi to all. My dad is receiving treatment for stage IVA larynx cancer. He is having 35 rads and 3 rounds chemo (cisplatin). He has had 14 rads and 1 chemo treatment so far. Today he had an appointment with his radiation oncologist. My dad asked him how things looked so far and the doctor told him not too good. No one else…
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PEG placement today
I'm going in for my PEG placement today and just want to stop by and say thank you to all the folks who have come before and posted their experiences and advice regarding treatment. I've been pretty good about accepting all the pre-treatment procedures that been done to date. However I've not been very accepting over the…
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Great New Picture of Dennis...Everybody take a look!!
Sorry Dennis to put you out there...but I agree with Hondo...that is a great picture and you need to be seen, and deserve your own thread. You have traveled one of the toughest roads I have read about on these boards. New picture of Dennis is on the Michael Douglas thread!!! Like Billy Crystal said..."if you look…
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eeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee
Yes. I had my scope done. Yes I still hate it. But all looks well.. Thanks for the nudge of support! Stacey
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feeding tube
My mother had her surgery 15 months ago. A majority of her tongue was removed and she has been using a peg for nutrition ever since. She tries to swallow liquids or pureed foods without much success. Any feedback on what has worked for others would be appreciated. Thanks.
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Today's Procedure
Well folks, I made it through my simulation with flying colors! I had to remind myself several times to breathe, relax and that I was not choking. I feel great knowing that I can make it through the daily treatments. Now the funny news. I have some fluid collection from my neck dissection that will not go away, despite…
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Bloodtest Result
Hi All, I had my bloodwork done a couple of weeks ago but held off posting as there was no urgency. I requested to have the Thyroid function done (TSH) and also Vitamin D3 along with the other routine tests. The TSH came back in the normal range 1.54 uiu/ml (Ref Range: 00.35 - 4.94) The D3 came back also normal 28.81 ng/ml…
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Work
I returned to work today - with a bag of goodies to eat and my feeding bag and slupplies if I can't get enough down. It feels so good to be back. I work at the tech desk at a high school - not very labor intensive.
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endoscopy fail
I had an endoscopy yesterday, well an aborted endoscopy. The nice Dr could not get the endoscope down my throat and did not want to risk perforating my esophagus. So now I have a barium swallow on the 25th to determine the location of the stricture so they can go back in another week to try and open it up. I know Joe has…
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FINAL PATH IN FROM SURGERIES
My Doc's Nurse Called my wife earlier to let her know that the Doc did get good margins in my mouth, but there may be some uncertianties regarding the removal of all of the cancer in the neck. Of course my Doc is in the OR all day today. The final repot now makes the Chemo portion mandatory so my journey will endure…
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Hello All! We are New to this discussion board!
Hello All! My name is Crystal and I am helping my mom Tammy ( who isnt tech smart haha) get used to using this site. She just found out last week she has cancer; Basal Cell Carcinoma and Matastatic neck cancer. She had surgery on Friday and The doctor said That they cancer didnt start in her neck and that they need to find…
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Still Have pain!
Hello, Hope everyone had a good weekend!! I am starting my 7th week post treatment and still have pain in the back of my throat on the right side when I swallow. Also some pain in the right jaw area. These areas are obviously where I got the most radiation. Is this normal to still have pain this far out of treatment? :(…
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Update on Hubby
Hi all: Basketcase checking in here. Charlie has finished 5 of 7 erbitux/taxotere treatments. One is this Tuesday and the other next Tuesday. He has not gotten the taxotere the past two weeks due to mouth sores. Don't know when the scan will be to check our progress; onc. told us if we are getting a good response, we will…
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Swelling
Hi - I'm new here, and looking for help. My husband had surgery for HPV-related pharyngeal cx in March,2010, followed by a series of radiation & chemo treatments that ended in late June. The removal of his lymph nodes left him with the familiar "turkey neck" appearance. In the past 2 weeks or so, he has begun swelling at…
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Over Radiated
There are some discussions in different posts on this board that some patients feel and know they were over radiated. Looking back, does anyone know or have any ideas as what effects during radiation would send any warning signals?
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TPF chemotherapy treatments
Hi, I am new to this board... I apologize in advance for giving so much detail and for the lenghty post... My father is in this 3rd round battling tonsil cancer. First round major surgery followed by Radiation; knock out, cancer free 10 years. 2nd round Feb this year, further surgery not an option another round of…
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Amifostine (ethyol)
During my rads treatment I took two shots before they zapped my head called amifostine. I was curious out of the lot of us here, who all took this drug? Did you find it to be beneficial post treatment? I'm just curious because I think I only saw one person mention the use of the drug in a post somewhere. Amifostine:…
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Feeding tube hole
I had my feeding tube taken out six days ago, my question is. How long did you wait before going swimming and getting into the lake? I have not gone swimming or boating this year since I could not get into the water. Tommorow will be 100 degrees and I want to take the fishing boat to the lake. Should I wait or get in the…