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Still Have Pain! :(
Hi, Folks! Happy labor Day! I wish I could be celebrating with a nice cold beer! But I will have one next year. Anyway, as some of you may know I am about 10 weeks post treatment today! 1) Energy level is getting there I ride my bike near the beach; haven't been going to the gym as much. 2) Taste is great I would say I am…
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Last One!
I am currently sitting in my lovely chemo infusion hospital receiving my last chemotherapy treatment. Good o'l cisplatin is a running through me now and later I get my external pump connected for 5HU. I can't believe I made it this far, it seemed to go buy so fast the last three months. Crazy.. Best wishes to all!
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Gratitude with my morning coffee
I would like to offer a sincere thank you to everyone here who told me that I would get through this terrible experience, that I COULD do this. I had no idea what I was up against, and I didn't believe you at the time, but because of all of your encouragement, I gave it my best shot. And, you know what? It worked. I got…
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Mucus is not white or clear. Help anyone?
It has been a week since I ended my 33 radiations (also had four rounds of chemo) and the mucus is really bad. My question is that the first few days the mucus was clear or white and then it became yellow and eventually turned green. I went to the doctor and they ordered a chest ray to rule out pnuemonia (I have a cough…
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surface peeling on tongue flap
hi, my husband & i are new to the group..wish we knew about it sooner. mike had a complete dissection of the tongue in april with a free flap made from back muscle & skin.lately when he rinses, he's noticed some of the surface peeling off, nothing major. we think it may be scar tissue from the rad. fyi, he had his last…
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cancer treatment centers of america
anyone have experience with these hospitals
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New to board
Hi, my name is Denise and I am new to this board. I have throat cancer. On the vocal cords. Two weeks ago when they did the biospy, they put in a trach for fear my throat my close. It did not, but now I have the trach. My results were a rare cancer, long name, but I understand it is considered T3, everything else a 0, if…
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Trouble swallowing
Does anyone have an answer for trying to eat? Dave has the magic mouthwash and it does not help. He has a feeding tube and we will begin using it now, but I also want him to continue trying to swallow to keep his throat muscles working, any suggestions what will help with the soar throat. No sores yet so no problems there…
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MaryRC
Anyone heard from Mary, I haven't seen anything from her in quite some time that I can remember anyways? JG
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Chicken broth through G-Tube? Is it ok?
I have been feelilng so weak on Ensure and Gatorade and we called my Dietician yesterday and she was gone for the long weekend. Can someone tell me if it's OK to put chicken broth down the g-tube (I have a gastrostomy not a PEG) and my husband is making a chicken soup and is going to strain it and put it down the tube. Any…
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More biopsies
Well yesterday I had another round of biopsies, the intial results showed no cancer but will have to wait a week for the official results. This round of biopsies has been really painful, having a hard time swallowing and a lot of ear pain. The doctors went deeper and more extensive this time. Brad
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Feeding Tube - Check - Done!
PEG Tube done today, and Bob is spending night in hospital for observation and nutritional consult in the morning. We just got home, and he was resting comfortably when we left, on some good pain meds. He did have some pain from it - I guess from going through the stomach wall, blah blah... but he's ok. They showed me how…
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Laryngeal Cancer T2N0
From the staging, you know that I have a "mild" cancer. It is almost totally confined to a vocal cord. I was lucky in that severe hoarseness was the presenting symptom. I also had ear aches and an almost constant cough. I am finishing 6 weeks of radiation; I have 3 treatments left. I opted for a milder pain medicine, and…
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HELP PLEASE, NEED SOME ANSWERS - symptons, did you have these and SHOULD I BE WORRIED?
Hi, all. I am 9 months post 35 rad treatments. I felt good a while back but it seems i have new symptons that are starting to worry me. I would appreciate if you could let me know if you have any of these this far out of trmnt and could they indicate trouble. The symptons are: mouth (cheeks and roof) burns when I eat or…
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One year check up
I had a great report (SCC, left tonsil, 2 lymph nodes). Everything looks good. I had a PET at 9 months and it looked good too. The doctor is very pleased with the progress. I have been reading this site every couple days since I ended treatment last August. I don't post often but feel a need to say thank you to everyone…
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HPV+ Question
I keep seeing reference to HPV. What is it? How can I tell if I've been tested for it? What's the underlying impact of being or not being HPV+? My prayers are with all, keep up the good fight. Ed
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Radical left neck disection
Hi everyone, I am new to the CSN and finally decided to join up and ask some questions. I was diagnosed with SCC 4 months ago after seeing a huge knot come up on my neck. I had an unknown primary wih a radical left neck disection. They removed 23 nodes with 3 being positive along with my jugular and left shoulder…
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Trach Removed
I had My trach removed last monday, and was so glad, a few things that have come up, the hole healed in my neck, but now feels tight, i amd stretching my neck to get some relief, which seems to help, I also have noticed , my breathing gets shallow, and I need to mention my Left side of my larynx is paralyzed, we have no…
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Need some advice
To make a long story short, I have a problem with lymph fluid (chyle) drainage in my neck. Over the past week; with a drain tube in my neck, a pressure dressing, and a modified diet, the fluid drainage output is almost zero - much to my ENT's surprise. Tuesday, he removed the drain but I still have the dressing and…
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Laryngeal Cancer
I got a question for you all, how do you handle all the people that want to give you a pity party? i am 18 radiation treatments in of 35 for cancer of the larnynx and so far am still working 60 plus hours a week not saying its easy but heck i just schedule it in so it doesent affect work. The thing that bothers me the most…
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tonsils removed
I had both tonsils removed on Thursday, 8/26, along with a righ partial discession. Went home on Friday. Both Friday and Sat were not to bad. I think now the anthestis had not worn completly off. WOW was Sunday and since a difference story. The pain in the throat is bad. The neck is tollerable. The pain med put you asleep…
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Got some new news
Well I was all set to start my radiation next week on the 7th. I felt I was pretty prepared for all I had in store thanks to you guys! Well out of the blue they called me Monday to come in on Tuesday to talk with a different Oncologist. So I go and of course my mother tags along. The board of Oncologists decided it would…
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Has anyone heard from Clearblue ?
has anyone heard from them. She was questioning treatment for her husband and I was wondering if she found out anything. Last contact said she was out of the country, getting a little concerned. thanks everyone Dave
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pity party
I am feeling guilty, My husband is the one with the Cancer in his throat and here I am complaining and feeling sorry for myself! But I have lost half my family and I am only 50 Will be 51 next week. I lost the baby of the family in 1997 to a car wreck, my sister Karen (Beautiful young lady at age of 29) Lost my mother Mary…
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SCC Unknown Primary
Hello everyone my name is Joel and I live in Rochester NY. I am 39 years old and married to a wonderful angel of a wife and we have two young children. One month ago I was diagnosed with SCC unknown primary after a biopsy was performed on a swollen lymph node I noticed on my left neck. A PET scan showed activity in my…
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PET/CT results for Dad
We got good news yesterday. The oncologist said that the CT scan came back clear and the PET only showed a little activity in the original cancer site on the tongue. He said the number on the PET at the time of diagnosis was a 15 and now the number is 3. and anything over 4 is cancer. He seems to think that is really scar…
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share your stories to give me hope?
hi all. my dad is currently in a fight for his life, radical neck dissection for squamous cell carcinoma in April failed to remove all of the cancer. The surgeon told my family that his illness was terminal, the cancer had spread to the chest wall and possibly to the vertabrae. He's been going through daily radiation and…
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RE: What do you crave.
I didn't want to interupt y'alls post so I thought I'd ask it here, how long does it take to be able to eat the way you did before the treatments? I guess this is different for everyone, and I guess only people who are fully recovered can answer me, but I'm curious.
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Neck Dissection & PT
Just a quick question. How many folks went to or requested physical therapy after their neck dissection? I'm about 3 1/2 weeks out from my partial right neck dissection, back to work but my neck is still very stiff/sore. The massage and heat trick works for a time, but about half way through the day the muscles start…
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SPOHNC (anybody here familiar with this org)
I emailed our SPOHNC contact early yesterday morning looking for guidance about how to get my brother seen at a local hospital here since he is indigent & needing medical followup asap. I left her a voicemail too about 9:15 yesterday. No return email, no return call so far. Anyone have any experience or contact with…