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Singing
Happy stuff. I am three years plus post rad/chemo for BOT cancer. My voice sounds gravel like after it returned post treatment; I call it husky or even sexy when I am in a better mood. No singing range whatsoever. Three days ago my ENT went down my throat to remove some radiation built scar tissue at the junction…
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Late Side Effects Radiation
I am almost 2 years post-radiation treatments to my sinus's areas and lymphs in neck. I am now having issues with my thyroid and petuitary glands not producing or producing to much of different hormones, which is causing havic with my body. They said it is "late side-effects from radiation". MDAnderson referred me to a…
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Happy Pets
Hi All, I just wanted to say thanks for making me smile so much. I have been reading some of your posts and when you all started putting up the photos of your loved ones ( dogs & cats ) I just smiled so much. Loved seeing them all. They really are a huge part of our family. Thanks for sharing... Lisha BTW If I could figure…
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DAD 3 MONTHS OUT OF TREATMENT-BAD JAW PAIN
hello everyone, my father has been out of treatment for about 10 weeks, but is still in a lot of pain, under his tongue and shooting pain on his left side of his face, which goes behind his ear at time.. the pain gets so bad, about once a week it literally brings him to his knees in tears.. breaks my heart!... he did get…
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dry, hard cough
Morning, i think mike pulled a muscle in his chest coughing last night, is this possible
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Still Very Fatigued at 5 weeks after radiation
Guys I am worried something is wrong because of how fatigued I feel. I sit here on the couch everday and sleep all the time and I feel so tired. I am getting 6 cans a day in the peg and over 10 cups of water a day. Have any of you felt like this or should I have some concerns about what I am going through? Any replys would…
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peg tube
Hi Everyone, Just wanted to know if someone can tell me about having a peg tube put it, as I go Wednesday for one. They told me to pack a bag in case I stay the night. Oh , I hope not, my poor dogs are so tired of me being gone and someone letting them in and out. I had a trach put in a month ago, same deal, except I was…
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SKIN CARE AND DENTAL CARE PREVENTION
I just completed my first Radiaition today and start my first Chemo next Monday. I am looking for advice on products to use to keep the radiaited skin as soft as possible, I am using Caphosol mouth rinse 3 times a day to guard against or to minimize the mouthsores. Would it also be good to get a prescription high flouride…
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Clinically cured
Has anyone heard of being clinically cured. I have been in contact with a lady via email and she was due to start treatment soon. She had 40 lymph nodes removed and in a lot of pain. They are now saying she may not need rad or chem as they think she may be clinically cured. Has anyone heard anything about this before. They…
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TIPS AND ADVICE FOR NOT FREAKING OUT WITH THE MASK
Hello all, I had my first Rad treatment this morning. about the same time they finished my scan they pulled me out and I said I felt like I was hyperventilating. I finally calmed down and slowed down my breathing. Where the front of the mask comes down, it feels like it keeps my accessory muscles around my collar bone from…
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Has anyone taken 5FU in pill form and how did it go.
I went in for my chemo and they gave me my cisplatin through IV and the 5FU in pill for. I am to take it twice a day for 2 weeks. Then i have 2 weeks of before starting it all over again. Only 2 more sets of chemo after this one, but i was wondering if taking it in the pill form will be easier on me or harder on me? Any…
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2nd cisplatin treatment (sick)
Dave has had several bad days since his treatment on Tuesday! This was his 2nd chemo treatment (with 1 more in 3 weeks) and has had 15 rads getting a total of (39 rads) before done. He has been very sick to his stomach Not wanting to take his feedings at all! Forcing him to take what I can) I tell him, you have to do this…
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Burned skin post rad tx. Any ideas?
Hi guys, I have another question I want to run by you. My entire neck and upper chest is burned from radiation (very dark) and it is starting to dry and peel off. Yesterday, I was taking a shower and used a wet washcloth to gently wipe and clean the area but the washcloth kept coming back black as the skin kept coming off.…
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Salava glands
Hey everyone, I hope all of you aare doing well this morning. I have a question reguarding salava glands. I had my left salava gland removed when I had the radical left neck disection and both sides of my neck were radiated. Have any of you been through this and if so, did your taste come back in a certain time frame or…
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BOT FROZEN SECTION SAYS LYMPHOMA?
ANYONE HAVE BOT AND DIAGNOSED AS LYMPHOMA? THE ONCOLOGIST SAYS LYMPHOMA IS BETTER THAN SQUAMOUS CELL. IS THE TREATMENT EASIER? PROGNOSIS BETTER. I'M SURE I'LL FIND OUT SOON ENOUGH WHEN THE FINAL BIOPSY RESULTS ARE IN TUESDAY. JUST CURIOUS FOR INFORMATION THAT IS NOT FROM A MEDICAL STUDY.... THANKS TBOB
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NEW TO ALL OF THIS!!!!
My husband was just diagnosed last week with BOT cancer. I guess that's what it's called based on what I seen on line.Base of tongue?cancer stage four. We go to see the head and neck surgeon this week. Started with ENT. Have seen oncologist and oral maxillary surgeon friend of family.Other then Where do I start? What do I…
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2nd post radiation pet scan
My first pet 2 months after rads ( and 2 months ago), showed a remaining lit up lymph node and a spot on my thyroid. Just got back from the Med oncologist and my 2nd pet (now 4 months from radiation) showed no activity in my lymph nodes, the thyroid clear, and the main tumor in my nasopharynx was still clean. I am…
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Pet scan
I had a 6 month PET scan and the doctor called and said everything looks good. Nothing to be concerned about. It was a relief. I wish everyone the best and continue to pray for us all.
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Pet Scan - 1 yr. out
Haven't posted for a long long time, nor have I checked in very often. We have had much sadness in our family this spring and summer with the sudden death of my nephew who was like a son to us. I needed to take a break from cancer talk. However, Bob had his P.S. which marks his one year anniversary upon finishing…
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T.V. News story, Head & Neck
I just watched a news story on the local FOX television affiliate here in Houston. It featured Dr. Edward Kim, Chief, Neck Medical Oncology, Department of Thoracic/Head and Neck Medical Oncology, Division of Cancer Medicine, The University of Texas MD Anderson Cancer Center, Houston, TX Dr. Kim addressed HPV directly and…
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Hallways, and marathons.
My wife had a 3 month PET in late June 2010. The results were good, no trace of tumor in throat and only a small spot on the lung which is beneath the PET reolution. Next PET in October. A few days ago we saw a lump on the side of her neck, so we had an ultrasound which saw "a growth like mass") and on monday next week…
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Adding chemo to prescribed radiaiton following neck dissection
I had a modified neck dissection 2 weeks ago and 1 out of 20 nodes biopsied showed positive for SCC. They believe the node in my neck (level 2a) began as a surface level SCC on my forehead (removed twice, once in 2003 and again in 2009), both times they thought they got clean margins. Because the positive node had extra…
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Glossectomy surgery
My new ENT Doc just called to inform me that they would like to do a partial to full tounge removal or I could go through more chemo with no radiation to hold if off. I called my Oncologiest and he agreed with me that the glossectomy would be his last choice. So now I wait for the doc's to have a pow wow and discuss…
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Sorry about the previous post
Sorry about venting,I have no reason to complain, i have had it easier than most of you here, and i want to thank you for not biting my head off. I will stick around here for what i am worth cant help much, but can share my experiences. The one thing i know is i have cancer it doesent own me. Thanks again Don
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HERE WE GO!
SURGERY SCHEDULED FOR THURSDAY NOON, TOMORROW? yEAH... BIOPSY,NO DEBULKING OF BOT TUMOR,TRACHE INSERTION, PORTACATH. PREOPS TODAY. SO MANY CALLS TO MAKE... GOING THROUGH THE MOTIONS. SURREAL. HAVE TO REMIND MYSELF I'M NOT PLANNING A PARTY. BUT I DIGRESS!!! NOW THE REAL QUESTION IS MY HUSBANDS COMING HOME WITH A TRACHE.…
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Swollen Jaw, All of a Sudden?
Has anyone experienced sudden swelling of the jaw after finishing up radiation and chemo for SCC of the neck? I read a little about infections in bone and salivary glands, but I'm a little worried about the suddeness of the whole thing and I know my dad is too! Dad looks like someone socked him in the jaw real good, it's…
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nasopharyngeal treatment without radiation
I was hoping to find info from anyone who received successful treatment for NPC using chemo only. I was diagnosed with stage 4 NPC in May that had spread to my spine and other bones. After much consultation we decided to go ahead with Cisplatin and Gemzar as opposed to chemo and radiation concurrent or radiation only.…
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I'm new and about to start radiation.
Hi everyone, I just joined not too long ago and all of your discussions have been very helpful thus far! Well I was just diagnosed in April with SCC and had surgery to remove my orange sized tumor growing out of my neck. I was 7 months pregnant during the surgery and had to wait to deliver the baby to start my radiation.…
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Will i ever stop using Kleenex?
Does the stuffy nose and having to blow it all the time go away. The having to use the spit cup did, but this seems never ending. I guess i am feeling a little frustrated with it today. I hope the other 3 rounds of chemo don't make it worse. I am feeling better now that i am 6 weeks done with the radiation, but this nose…
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Weird Pain in the back
Hey everyone, i have not been on here to long but wonder if anyone has experienced back pains that feel like sunburns. It's not over bearing, just really annoying. I am trying to figure out if it's from Rad. or Chemo. Then again it may be from the fact that i have lost 53 pounds and now that i am putting weight back on, my…