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How long does it take to feed through the peg?
Hi guys this is Jason again, D-Byrds son. I hope you guys are doing okay this morning and feeling good. I have a question requarding the peg feeding. How long does it ake for you to do one feeding, and how many cans do you do in one feeding session? My dad does 2 cans in one session and seems to feel horrible after each…
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i have a question
well in truth two, but the most important on is what do i do to show our secetary how much i appreciate her help. I missed one appointment because i got busy and lost track of time, after that she made sure to come out and not only tell me the time but drove me back and forth. She took time out of her busy day to help me…
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SIDE EFFECTS SO SOON
Hello, hope everyone in this group has had a great day. I just completed my 15th Radiation treatment and will start my 2nd Cisplatin treatment next monday. I contracted Thrush probably shortly after my Surgeries and it has been a struggle trying to get rid of it ever since. I know the Thrush can cause pain in the areas of…
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Question Regarding Chemo w/ Pump
Hi there, everyone ... First, let me apologize for all these questions. During this journey, I've found that if I know what to expect, I can handle things a little better. Even though you have *no* control over what happens ... it gives you the sense of having a bit of control. Anyhow ... My husband was diagnosed with…
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Coughing/Aspiration
It's been 5 weeks today since my last radiation tx. and I am just sipping water. For the last 2-3 days I have been coughing a bit during the day (not much) but then I cough all night. Did anyone else experience this once they started swallowing liquids after treatment. Should I be concerned that I could be aspirating? Any…
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Starting up again
After meeting with the radiation oncologist yesterday it looks like I'm starting radiation and chemo the 11th of next month. I had just finished up 3 rounds of Cisplatin and Gemzar and had a clean PET scan at the end of August so I was hopeful that I might be done. But the protocol calls for the 35 rad and Cisplatin…
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Having problems sleeping
Hi everyone I am D-Byrds son Jason, and I was just wondering if any of you guys have problems sleeping? My father sleeps around 3 to 4 hrs a night and it is starting to get to him. He went to the doctor last week to see if he was sick because he was feeling dizzy all the time and the Dr. said he was fine. He is not that…
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Prayers for a friend
Everyone Just got some terrible news today that a friend of mine that had melonoma, has been told he is terminal. It is really hard to take as I had just spoken to him a couple of months ago as he was finishing up his rads. He and his wife were concerned about him still losing weight and when he returned that is when they…
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esophageal dilation scheduled
Hello friends. On Nov 3rd Dr G will try and open up the old esophagus. It is considered surgery so I'll be checking into Kaiser Hospital in Oakland (where they did the neck dissection back in January). He said during his assessment that after the procedure he's hopeful I'll be able to "have the coffee, but probably not the…
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99.9% Happy but Confused from PET/CT Scan
Hello, I just got off the phone with my oncologist after receiving a PET/CT scan yesterday.I also had a MRI of head and neck two weeks ago which showed an enlarged lymph node which is why he ordered the PET.I was currently fighting a nasty head cold.The MRI showed no tumor growth in my nasophyarnx.I am happy to be told my…
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BIG DAY for Glenna and Irishgypsie!
Today, I believe Glenna celebrates one year post treatment! Congratulations Glenna!! Many have said that at the year point you have regained all that you will regain. Can you please let us know what 1 year looks like. Good job girl...keep moving forward!! Irishgypsie has his first PET today...let us all send all the good…
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What is your Hobby?
While I was in treatment and long after I finished treatment I found keeping my mind busy was the best way to help me heal. As a kid I always loved models so I got into building model Rockets, Boats, and Air Planes. This is a picture of my P51 I crashed it twice and had to rebuild it each time, I found because my brain is…
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Colds causing enlarged lymph nodes 1 year post treatment
Hello, I have just reached my one year post treatment for nasophyarengeal carcinoma on September 3rd.I have had two favorable MRI,s with no disease found.Last week I had my third MRI which showed an enlarged lymph node in my neck.I was fighting a nasty headcold at the time.My oncologist has reasured my that it is probally…
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Hi All! Checkin In On My Peeps :)
Hey all, just wanted to give you guys a checkin' in on. I FINALLY got a picture for my profile. I dont like my picture being taken in the first place. And since all my changes I REALLY didnt want my picture taken until recently. My weight finally settled out. I started the whole journey at 214 lb. I got my weight stable at…
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Emergency room?
Dave don't know what to do, he says he can't swallow his throat feel swolen shut. Should he go to hospital? Can they do anything for him? He is supposed to have last chemo in morning! Don't know what to do. Should I call doctor? Take him to hospital ? What? Need advice here quickly
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Who else gets 'death support responses'?
I continue to find it amusing how people react when they find out you have cancer. I find that there are four distinct reactions: 1. The 'religous response': "Oh my god! Can I pray for you..." (I don't mind this.) 2. The 'curious response': "No way! Cancer? Really?! What kind? How did you find out? What are your…
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More Birthdays...
Yeah, I named the American Cancer Society as the official sponsor of my birthday a few years back. Well, they just gave me another one! I turned 35 today... I'm ~11 years removed from squamous cell carcinoma of the tongue, and I'd like to thank all the doctors and nurses who put me back together again all those years ago.…
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1st Post PET Scan!
Hey Folks, Hope everyone is doing well! Indian summer seems to be kicking in here in WNY! :) I love the warm breezes. I am having my 1st post PET scan on Tuesday the 28th. Won't get the results till OCT 4th. So until then I appreciate any prayers you can send my way for a good result! BIG HUGS! :) Charles
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Candies/Food that stimulates saliva production?
Hi everyone! I am trying to find candies/food that would help stimulate my mum's saliva production. She tried Biotene sugarless gum, and it burnt her tongue/throat really bad. Besides, she cannot eat/drink anything that is acidic (burns her tongue/throat as well). Recently the mint flavored mentos seemed to help her. Any…
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What vitamins or special foods are you all eating
Hello all, I am really interested in what everyone is eating or swallowing (vitamins) to keep the pooh at bay. Would really love to hear your regimes. Mine consists of juicing each day, 3 apricot kernels, wheatgrass (yuk), Vitamin D drops, vitamin C powder, enzymes for scar tissue, antioxidants, a girly vitamin, at least…
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Saliva Problems
Hello Everyone: Just want to give you all a bit of information and hope it helps. my name is Hilde and I was diagnosed with Non=hodgkins follicular lymphoma stage 4. That was after surgery in 04 and then did 22 radiation treatments to the left cheek and neck. then was in remission for 41/2 years and it came back on the…
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Emergency
Got a call into the Dr supposed to call me back! Has anyone had this kind of reaction to radiation. His tumor in tonsil area and 2 lymph nodes. they are radiating all the way around the neck though. His next 11 treatments will be focused on the tumor only so he is almost finished has had 28 rads so far! Thought I would see…
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Disability and Working or, more importantly, Getting Paid
This is my first post (though not my first try at posting). I suppose it should have been on my situation but this is something else on my mind. I have checked into my company’s disability policy and it seems that it won’t cut it for me. At its maximum it will only pay about 40% of my salary while saying that I can earn up…
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Thyroid Cancer Removal -Dangers of Surgery!
I am posting this in case someone reads this before having surgery. I had a small thyroid tumor that was papillary cancer found this year. The surgeon was a general surgeon that did the biopsy. They did not warn me that I could lose my parathyroid glands in surgery. The parathyroids are right behind the thyroid gland and…
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People who had NPC aka Nasopharyngeal Cancer I have questions about it
Hi Guys I just have a question to ask about NPC aka Nasopharyngeal Cancer how long do I do I have to live after this is treated? because I am asking this is because I am only 24 years old and only been married for a year and don't have any kids yet. This cancer did only spread to one lymph node on the right side of the…
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Past Postings On CSN Board
Hi Everyone, I hope you all are doing well, and making progress in you healing. May God bless you during your struggle. I hope someone can help answer this somewhat incidental question compared to all the life and death posts here. I need to access my postings, and cannot figure out how to go about doing this. I have to…
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chefdaddy
Any news on Mike, last I heard he may have been in Disneyworld?
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Dennis318 Wondering how you are?
I was out of the loop for a bit and haven't seen you post while I've been poking around here. Thinking about you. Gimme a shout out.
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Not eating or dinking 6 days after chemo although can swallow. Has a PEG. Start using it?
I could use some advise on what to do for my husband. His appetite has gone to nothing and all he managed to get down yesterday was a scrambled egg and 1 milkshake. He has been asking me to put water in the peg and I have done so. He can swallow still. We have not seen a dietitian about tube feedings but should I start…
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blood drainage
Hi all I hope all is well im so sorry i know this well be gross so for give me twice this week im not sure if it coming from my throat or my nasol but its been real thick mucus along with blood and the the blood is getting darker help!!!! but it only happend twice