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Hi All! Checkin In On My Peeps :)
Hey all, just wanted to give you guys a checkin' in on. I FINALLY got a picture for my profile. I dont like my picture being taken in the first place. And since all my changes I REALLY didnt want my picture taken until recently. My weight finally settled out. I started the whole journey at 214 lb. I got my weight stable at…
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Emergency room?
Dave don't know what to do, he says he can't swallow his throat feel swolen shut. Should he go to hospital? Can they do anything for him? He is supposed to have last chemo in morning! Don't know what to do. Should I call doctor? Take him to hospital ? What? Need advice here quickly
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Who else gets 'death support responses'?
I continue to find it amusing how people react when they find out you have cancer. I find that there are four distinct reactions: 1. The 'religous response': "Oh my god! Can I pray for you..." (I don't mind this.) 2. The 'curious response': "No way! Cancer? Really?! What kind? How did you find out? What are your…
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More Birthdays...
Yeah, I named the American Cancer Society as the official sponsor of my birthday a few years back. Well, they just gave me another one! I turned 35 today... I'm ~11 years removed from squamous cell carcinoma of the tongue, and I'd like to thank all the doctors and nurses who put me back together again all those years ago.…
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1st Post PET Scan!
Hey Folks, Hope everyone is doing well! Indian summer seems to be kicking in here in WNY! :) I love the warm breezes. I am having my 1st post PET scan on Tuesday the 28th. Won't get the results till OCT 4th. So until then I appreciate any prayers you can send my way for a good result! BIG HUGS! :) Charles
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Candies/Food that stimulates saliva production?
Hi everyone! I am trying to find candies/food that would help stimulate my mum's saliva production. She tried Biotene sugarless gum, and it burnt her tongue/throat really bad. Besides, she cannot eat/drink anything that is acidic (burns her tongue/throat as well). Recently the mint flavored mentos seemed to help her. Any…
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What vitamins or special foods are you all eating
Hello all, I am really interested in what everyone is eating or swallowing (vitamins) to keep the pooh at bay. Would really love to hear your regimes. Mine consists of juicing each day, 3 apricot kernels, wheatgrass (yuk), Vitamin D drops, vitamin C powder, enzymes for scar tissue, antioxidants, a girly vitamin, at least…
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Saliva Problems
Hello Everyone: Just want to give you all a bit of information and hope it helps. my name is Hilde and I was diagnosed with Non=hodgkins follicular lymphoma stage 4. That was after surgery in 04 and then did 22 radiation treatments to the left cheek and neck. then was in remission for 41/2 years and it came back on the…
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Emergency
Got a call into the Dr supposed to call me back! Has anyone had this kind of reaction to radiation. His tumor in tonsil area and 2 lymph nodes. they are radiating all the way around the neck though. His next 11 treatments will be focused on the tumor only so he is almost finished has had 28 rads so far! Thought I would see…
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Disability and Working or, more importantly, Getting Paid
This is my first post (though not my first try at posting). I suppose it should have been on my situation but this is something else on my mind. I have checked into my company’s disability policy and it seems that it won’t cut it for me. At its maximum it will only pay about 40% of my salary while saying that I can earn up…
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Thyroid Cancer Removal -Dangers of Surgery!
I am posting this in case someone reads this before having surgery. I had a small thyroid tumor that was papillary cancer found this year. The surgeon was a general surgeon that did the biopsy. They did not warn me that I could lose my parathyroid glands in surgery. The parathyroids are right behind the thyroid gland and…
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People who had NPC aka Nasopharyngeal Cancer I have questions about it
Hi Guys I just have a question to ask about NPC aka Nasopharyngeal Cancer how long do I do I have to live after this is treated? because I am asking this is because I am only 24 years old and only been married for a year and don't have any kids yet. This cancer did only spread to one lymph node on the right side of the…
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Past Postings On CSN Board
Hi Everyone, I hope you all are doing well, and making progress in you healing. May God bless you during your struggle. I hope someone can help answer this somewhat incidental question compared to all the life and death posts here. I need to access my postings, and cannot figure out how to go about doing this. I have to…
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chefdaddy
Any news on Mike, last I heard he may have been in Disneyworld?
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Dennis318 Wondering how you are?
I was out of the loop for a bit and haven't seen you post while I've been poking around here. Thinking about you. Gimme a shout out.
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Not eating or dinking 6 days after chemo although can swallow. Has a PEG. Start using it?
I could use some advise on what to do for my husband. His appetite has gone to nothing and all he managed to get down yesterday was a scrambled egg and 1 milkshake. He has been asking me to put water in the peg and I have done so. He can swallow still. We have not seen a dietitian about tube feedings but should I start…
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blood drainage
Hi all I hope all is well im so sorry i know this well be gross so for give me twice this week im not sure if it coming from my throat or my nasol but its been real thick mucus along with blood and the the blood is getting darker help!!!! but it only happend twice
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Thick mucous
Does anyone have any other suggestions for very thick mucous. We are doing mucinex D maximum streghnth, saline nasal spray, and gingerale. Nothing seems to be helping much. David has 12 more rads and I'm afraid it will get worse before better. Any sugesstions would be greatly appreciated. He is also using soda and salt…
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Teeth, saliva and thyroid cancer
Hi All, I have been following your posts on teeth and find it eye opening. I have had thy ca 2 previous times with mets. Now having third relaspe. Onc told me that the salivary damage from the rads I received can't be prevented. She never mentioned long term problems such as teeth damage. I have had tons of issues since…
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totally miserable at 8 weeks out
Has anyone used heat on their throat to relieve some swelling? We saw the excercises that Marine recommended and perform these each day. There is sometimes a clicking noise when he swallows and the ENT said the scope looked good nd it was a little internal swelling and again told "that's normal" The next ENT visit is 3…
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shortness of breath
good morning everyone. i need help, mike got his trech out a week ago & since then he's having some breathing problems. to me it kinda sounds like sleep apnea the way his breathing starts & stops. i took him to the E.R.thursday morning & after 5 hours all they did was give him an iv of fluids & something for his headache.…
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Trache - Questions
My husband's recovery is going well. He's 9 days out of surgery, had his post op doc appt today and the report was good. Doc wants to leave the trache in for at least another week.... he is pretty miserable with it. Doc said he still has some swelling and would remove it if we insisted, but duh, we aren't that stupid, we'd…
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Pet Scan
Now beginning to get really antsy. I have a Pet scan coming coming up on the 20th of September. I had my treatment for laryngeal cancer last year ending on the 21st of June 2009. have had little problem since, for which I am really thankful, but now things that did not bother me 3 months ago now make me think, I had a…
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pet scan report
Hi my favorite group. Just wanted to add that I did get thru the pet scan. Bummer, I thought you were kidding about being bolted down. Lived thru it. Went for the results today and at first it was not good news. The nurse informed me they found a large mass on the scan and I needed to undress and the dr was going to do an…
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I started Cisplatin and Rads
Hi everyone! I like to keep up to date with all that is going on with you guys, so I thought I'd fill y'all in on my past week. I started the Ciplatin this past Thursday, it lasted about 7 hours then right after went to do the radiation. I felt just fine and dandy the rest of the day. Then that night at about 10:00 pm it…
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Day #2 - Cisplatin & Rads
Boy was yesterday a long day! Had my first rad session yesterday at 10A and then infusion at 2:30. When we finally got sprung at 9:30P, the hospital was totally deserted. Feeling very tired today and am keeping ahead of nausea with the cocktail of drugs they sent home with me. Hopefully it will work to keep my stomach…
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reassurance and guideance needed: for aftercare
ok long story ...made alittle shorter. years ago ( way before cancer) a dentist broke off a file in one of my husbands teeth while performing a root canal. it is now infected...they have him on antibiotics. Options: 1. surgery to try and remove the file. 2. pull tooth. here's where I need help.... if the antibiotics clear…
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Weight loss and fatigue
My husband finished 35 radiation treatments and 3 Cisplatin treatments almost three weeks ago for hypopharyngeal and BOT late Stage 3. He did very well with the treatments, very little nausea, maintained his weight, never lost the ability to eat and felt fairly well throughout the whole series of treatments. In the past…
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Baseline CAT Scan
Just a short note about the results of my baseline CAT Scan today. My ENT surgeon said that it was clean. She also scoped me and said everything looked like it had healed up fine. She told me to come back in a couple of months and we'd do our first PET Scan post-treatment. She said that KU Med liked to do their PET Scans…
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HPV and throat cancer
I would like some info on HPV causing throat cancer. My husband has been diagnosed with Stage IV tongue cancer. He is a non-smoker and has been since college days (he is 66 now). We have been married for 37 years. How long does this virus stay active? He has not had his cancer tested for HPV so we don't know if that is the…