mother of all strictures
The ENT Dr G and GI Dr Hewett sent me back to surgeon Dr G (no relation, not the same Dr) to deal with the esophageal stricture that prevents *anything* from going down. I cannot swallow my own spit. I cannot burp. It's bad. The trapped Chilean coal miners have a better chance than my stomach to ever see the light of day.
The good Dr G (he really is good) gave me the bad news no one else (apparently) wanted to. After a thorough exam he concluded that the stricture is so bad that it unlikely that food will ever pass. That's just the way it is. However Dr G is determined to open it and wants to give it a try. He says even though these cases usually do not work out, he thinks due to the soft quality of my mucosa, my general good health, and my attitude, I am an excellent candidate for dilation(s). He thinks I have a good chance at "having the cup of coffee, but probably not the steak".
The procedure will happen in October and I'll keep you posted.
I'm a bit bummed but I'm alive and can do the time while stuff heals. If it does mean I'll live on smoothies the rest of my life maybe I'll write a smoothie cookbook.
Best,
Mick
Comments
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your'e a sweet smoothie!Glenna M said:Smoothie....
Sorry to hear the bad news but with your attitude I know you will make it through this also.
If you write the smoothie cookbook please let me know and I will order one ;-)
Positive thoughts and prayers coming your way.
Glenna
Not the best news... but your attitude is awesome!. Life is still good!.. go, live, enjoy!.. Take care, wfl0 -
STRICTUREwifeforlife said:your'e a sweet smoothie!
Not the best news... but your attitude is awesome!. Life is still good!.. go, live, enjoy!.. Take care, wfl
Hey Mick
sorry i might have missed previouse posts.
Can u fill me in on the stricture; type, causes etc and on yr present situation.
Your gonna be fine- youl find the way - youll see.
Clear0 -
Attitude is everything!Clearblue said:STRICTURE
Hey Mick
sorry i might have missed previouse posts.
Can u fill me in on the stricture; type, causes etc and on yr present situation.
Your gonna be fine- youl find the way - youll see.
Clear
Mic, I have always admired your attitude. I'm sorry about the stricture. Check out the oral cancer foundation blog; there is some good people on that site that had stricture issues and had successful dilation's!! God Bless Brother!! Big Huggs!
http://www.oralcancer.org/
Charles0 -
type of strictureClearblue said:STRICTURE
Hey Mick
sorry i might have missed previouse posts.
Can u fill me in on the stricture; type, causes etc and on yr present situation.
Your gonna be fine- youl find the way - youll see.
Clear
The stricture is a bad type - completely closed. It's bad mainly because now my chances for pneumonia have just gone up by an order of magnitude. It as caused by radiation although the esophagus received less than other areas in the mucosa. My present situation is 5+ months post-treatment and doing very well. June PET was NED.
I'll be fine one way or another. It's whether or not I'll be fine with wine, or beer, or a burger, that is in question. Fingers crossed!
Best,
Mick0 -
I'm pulling for you Mick!micktissue said:type of stricture
The stricture is a bad type - completely closed. It's bad mainly because now my chances for pneumonia have just gone up by an order of magnitude. It as caused by radiation although the esophagus received less than other areas in the mucosa. My present situation is 5+ months post-treatment and doing very well. June PET was NED.
I'll be fine one way or another. It's whether or not I'll be fine with wine, or beer, or a burger, that is in question. Fingers crossed!
Best,
Mick
I'm pulling for you Mick! You are an inspiration.
Chuck.0 -
good swallowing
Mick, I have good feelings about this. The esophagus is tissue, and tissue, even scar tissue, should be able to be stretched given time and force. You want it bad enought that I just know this is going to happen for you. I can't wait to hear the good stories after this is all over.0 -
Triple AAA
Attitude Attitude Attitude
Mick I have believed for 14 plus years that attitude is everything. You certainly have a Great Positive Mental Attitude.
Will all of us and so many others sending prayers your way soon you will be drinking more that smoothie's.
God Bless You!
John0 -
Mickcharles55 said:good swallowing
Mick, I have good feelings about this. The esophagus is tissue, and tissue, even scar tissue, should be able to be stretched given time and force. You want it bad enought that I just know this is going to happen for you. I can't wait to hear the good stories after this is all over.
Ah, I didn't know about this. Goes without saying, Mick, that I am sorry to learn of this. I know if anyone can overcome this obstacle it is you. And you must know that you are in all of our thoughts and Prayers. Ain't a one of us who've been here since you joined that's gonna let a day go by without thinking of you, and this battle you're in. Hope you'll find a way to keep us informed on what's what post-surgery, because we're all gonna be kinda anxious about how things went, and how you're doing. Know that we're all here to help as best we can, brother.
Believe
kcass0 -
Thanks KentKent Cass said:Mick
Ah, I didn't know about this. Goes without saying, Mick, that I am sorry to learn of this. I know if anyone can overcome this obstacle it is you. And you must know that you are in all of our thoughts and Prayers. Ain't a one of us who've been here since you joined that's gonna let a day go by without thinking of you, and this battle you're in. Hope you'll find a way to keep us informed on what's what post-surgery, because we're all gonna be kinda anxious about how things went, and how you're doing. Know that we're all here to help as best we can, brother.
Believe
kcass
You know Kent this is just another bump in the road. I'm setting my expectations rather low in this case - I hope that I'll be able to swallow my spit to avoid the increased likelihood of pneumonia. If I never eat another In-N-Out Burger (sigh) that would be just fine as long as I can avoid an infection in my lung(s) by keeping the sputum out of there.
LOL - we sure post a lot of TMI here don't we?
I very much appreciate your best wishes and thoughts and prayers.
Best,
Mick0 -
Making quality of life.fisrpotpe said:Triple AAA
Attitude Attitude Attitude
Mick I have believed for 14 plus years that attitude is everything. You certainly have a Great Positive Mental Attitude.
Will all of us and so many others sending prayers your way soon you will be drinking more that smoothie's.
God Bless You!
John
Mick,
There is a condition that babies are born with where their esophagus is blocked and no food can get to their stomach (esophageal atresia) 50 years ago they used to open up the baby's body from back almost to front under the armpit to repair the blockage. I understand this extreme surgery is no longer needed, and there is a less invasive way to correct the problem.
I wonder if how they treat this condition in newborns can somehow be helpful to your stricture situation.
Regardless what I hear you writing is that whatever comes you will embrace life and make the best of it. You will define your own quality of life, and it may not be based on a burger and fries but something much bigger. Your positive attitdue is clear!!
Good Luck with surgeon who is willing to try.
Kim0 -
mother of all strictures
Mick:
Sorry to hear about this but love your attitude. That is so important. Charlie always kept a great attitude no matter what. God Bless and you're in my prayers.
Jan Trinks0 -
MickHondo said:Hi Mick
I too am sorry to hear this, but as you know never give up hope. I am glad to see you have a doctor who is willing to help.
You will be in my thought my friend.
Hondo
You da Man !! You're gonna make it, and get rid of that dang tube. I found out yesterday that radiation somehow made a small hole in my voice box area, which formerly had been hidden by scar tissue. Doc seems to think it's no big deal, as long as it doesn't get larger. Ah yes.....radiation, the gift that keeps on giving. So, I've got an extra hole in my throat if you wanna borrow it.
Hang in there, man.
Larry0
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