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Saliva pills and vital stim therapy
Hello to all I have been keeping posted by reading everyone's posts but have not posted in a while. We have been going down to north Carolina for The tread procedure and subsequent dilations in our quest to eat again. So far I am happy to say dad is drinking, chugging water down!!! Eating speg. By the spoonfull. Foods that…
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Chemo round 3 done
hey all , been away for awhile, just finished round 3 of chemo 3 drug cocktail courtesy of that nasty infusion pump. So, I got the good news bad news deal, the bad news is my Ono added a round, round 4 no one does 4 rounds. The good news is that now no chemo with radiation. Only have to deal with pain management instead of…
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Vivacious couple (Not exactly)
Last night I realized what a sight David and I are right now. He is lying back in one recliner looking pitiful and I am lying back in the other one with my legs propped up. I am trying to take care of him as he is still recovering from the BOT surgery, while trying to rest enough since I am dead tired do to the pregnancy.…
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Golden Nuggets ~ Tampa Bay Pompano
I had some free time Sunday morning to hit a spot I haven't fished for awhile... The target was Pompano, known in Florida as Golden Nuggets, because of the Golden Yellow color they turn when you catch them...plus the excellent table fare when prepared. I was in luck, I caught my limit of six within a few hours. The lure…
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Chemo round 3 done
hey all , been away for awhile, just finished round 3 of chemo 3 drug cocktail courtesy of that nasty infusion pump. So, I got the good news bad news deal, the bad news is my Ono added a round, round 4 no one does 4 rounds. The good news is that now no chemo with radiation. Only have to deal with pain management instead of…
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Chemo Rd. One starts Monday
Hello all my brave warriors! As you all, most know...my cancer has spread and Metastasized all over my body. After getting a few other opinions I will be doing what intimately was suggested by my new doctors at University of Chicago Medicive. I will be doing four rounds of this chemo cocktail that's a bit different than…
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Well my time has come
I will be going in on Wednesday Oct 3rd to get my 1st CT scan. Yes I have said before in other blogs that Im dealing with Scanxiety that we all talk about, I was blessed to get thru this battle in pretty good shape. As some of you know since my wife posted this information way back when I started treatment in a blog that I…
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Called in sooner for dx update
Hey everyone, Wasn't suppose to go in til Nov., for PET scan....got a call from Masonic this a.m. and wanting me in for a CT guided biopsy of my lung. I was more than a bit taken aback. The tumor board had finally met, and sorted through all of my past records, scans and re-did the pathology. Seems they want to reclassify…
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3_6months
After going thru 6 chemos and 7 weeks of chemo /radiation my wife's tumor came back with a vengeance.Rads only ended 6 weks ago. Told today that it is almost totally inoperable for an eighty yrold. Gave us 3 to 6 mths. Trying to find a clinical study and waiting on Oncologist to get back to us. We've been pretty healthy up…
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Was my doctor inept?
On the 17th of September I went for my annual CT scan of neck and chest. In the afternoon at my Oncologist appoint ment he said that the scan showed no change, was all clear except for the nodule that showed up in May. He said he was absolutely certain all was ok and he would see me next September. The next day there was a…
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Not a happy camper!
I have been going back and forth for the last few weeks on how to post this. thank you Deb for keeping in touch. I thought there was something wrong with my new glasses, then I realized that it wasn't the glasses--I am having double vision. I was able to see an opthamologist (his office was quick to dx diabetes--my…
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Saliva and Sore Lips
I had radiation and chemo for cancer of the larynx about 17 months ago and am doing pretty well. I just wondered if anyone has figured out any way to generate saliva? I still don't have any so have to keep water by my side all the time. I do use stopper's 4 at night when my mouth is the dryest. I don't seem to have…
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Head and neck
Hi My husband had surgery in may 2012, has gone thru chemo and radiation and has finished his treatment . It's been 3weeks after treatment and he has this excessive mucus and coughing that worries me, he also has pain on his cheek and muscle which was pull from his chest to jaw. His head is tilted to one side and I've…
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GOING BACK TO WORK TOMORROW!
After 16 weeks off, 3 rounds of chemo, 35 radiation treatments, and 27 lbs lighter I go back to work tomorrow. In one way I am looking forward to it, seems like that will make me feel more "normal". On the other hand, a little anxious as to how I will do. I purchase and receive all the medications for a hospital so can be…
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Peg tube supplies and cans of Abbott free
Please see my earlier post "free tube feeding". Would love to send these supplies free to someone who is still on peg. Robin
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What a week
I just had to share what an interesting week I have had. I am so thankful that dad's appointment went so great, because I could not handle something else. Over the weekend the crazy neighbor next door came after me claiming that I mashed his ditch down in his driveway. This is the second time he has been after me. I now…
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Precancerous lesions from follow up Bx???
Need some input! SCC in 2006,left side of neck, radiation only...lots of pain and a PT scan that said I had recurrence....bx comes back negative....new SCC on right side of neck, chemo and rads....finished in April of this year....now 5 months later...pain big time and lumps on throat....PET comes back with a hot…
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NEUPOGEN
Have you got this injections too? Just wanna know who had it how it affected them as they have their chemo treatments. Thanks!
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Results today
Today is the day! I get the results from my first post trt PET/CT, my stomach is turning at a crazy speed, hardly slept at all last night. Boy is there some weird shows on tv in the wee hours! Have a great day everyone. Billie
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More questions than answers.... Can you folks help?
I am new here and why I waited so long is beyond me. Some history: My mother is 61 and was diagnosed with stage 4 neck and throat cancer in January of 2011. She has always been healthy and never drank or smoked(unlike me). She refused treatment as she and my dad have always believed in natural remadies for everything. The…
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Missed you guys
Haven't been on the board for awhile and have thought about you guys often and missed the company of fellow travelers on a strange hike. I thought I would pop in and say hi once in awhile and let you all know how well I was doing. Had hoped I wouldn't be coming back because I needed the support but that's why I'm coming…
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Which drug with chemo
My husvand will be starting chemo and radiation early next week. We see the drs again tomorrow and he will be fitted for mask. Due to his surgery at BOT, . his swallowing is not 100 percent yet...Probably about 75 percent at this point. I know that cisplatin can increase swallowing problems when combined with the…
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Woohoo he's home
Finally I got David home at 5:00 pm EST. When we pulled up there were two supply cars from two different suppliers with the exact same order. It was funny because one of the men said it's up to the costumer and the other was obviously stressed out to say the least. I finally picked the one that the hospital told me to…
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UPDATE: I do have a hernia - still waiting on chest x-ray results
Hey all... For those that saw my most "Question on Pheumonia" .... I did go get a chest x-ray today and tested for "whooping cough" (doc said it is going around our town) and she did confirm I do have a hernia. Drat! :) Just wanted to update you all on that....it will be a day or two on the X-ray results,,,,keep me tucked…
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biopsy results in the a.m.
Hey everyone, I have been saying I'm sick of feeling sick for months. Still very weak, nauseated and dizzy. Trying very hard to get calories to stay in me....but stomache wants to get rid of it as soon as I try. I get those results on the scope tomorrow...good or bad I'm hoping they can pin point why I feel like this. They…
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Ensure not setting well
David is having alot of problems with the tube feedings. First he was very nauseated and now it just always sounds like a thunderstorm erupting in his tummy. He says he feels terrible. He is supposed to have 6 cans a day, but the most he has tolerated is 3. Any recommendations.
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Decision about treatment
We met with radiation oncologist and oncologist today. Basically we had some good news. We are being put in a study to do less radiation because he had surgically proven negative nodes on the left side, which means he will have radiation to the right side only. He will still need chemo though. Of course the dr explained…
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Day 2 of Induction, the fun continues
Good morning folks, here begins day two of the Induction journal. Crashed into bed about 9:30 last night and didn't stir until an emergency trip to the commode at about 2 am. When I say emergency I mean it. For the first time since I was drunk on Jack Daniels in College I didn't make it to the commode in time. Second time…
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What a ride
Ok I have decided God has a good sense of humor. Between the stress of my job, fear of losing my home and the biggie Cancer, I thought I had hit all the stressors. Well this morning I woke up to find out I am pregnant. Yes PREGNANT. It is a huge blessing, but another thing that I have little control over and now David is…
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Tongue Cancer - Post operation clarification
My friend underwent surgery on Sep 5 and now 4 weeks completed. She looks normal. Today she found small reddish spot on the stitched area of the tongue. Looks like small lump. Is it harmful? Please advice Regards Dalapathy