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PET scan today - so so results.....
I had my three month follow up PET today (SCC BOT, HPV+, Stage IVa) treated with one course of induction chemo and then with 8 weeks of erbitux and 33 rads. I expected very good news as the ENT that originally diagnosed me had scoped my throat twice and saw no visual evidence of the original tumor, and neither the medical…
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It DOES Get Better
This is my first post in a while, but I've still be visiting and checking in on folks. I don't have a good answer for why I didn't post anything for the past month or so. Sure, I've been busy but that didn't stop me before. I think part of it is that I've been figuring out what it means to be out of treatment, and how you…
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Sorry seems to be the hardest word
Just found out last evening, the wonderful, kind woman that was my roommate at The James, passed on July 17,2012. Susie and I became so close and promised each other to keep in touch after we both were up to it, we spoke on the phone and she was in a nursing home in Northern Ohio....I, at the time, had a whisper of a…
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treatment started
Well Things are progressing for me this week, I have had 2 radiations, and my induction of Erbitex. So far so good, feeling a little aches and pains, and a bit run down, but not bad overall. Hope everyone else is doing good.... Jim
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I've been on a food adventure... :)
I know it's a little early since I'm just at the beginning of my 3rd week post chemo, but I am SO hungry all the time. Last Friday I was able to return my dentures to my mouth, and tho it stung I forced myself to drink my VHC and Ensure, instead of tubing it...Anyway yesterday I went to Costco and tried nearly everything…
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Pacific Northwest Laryngectomy Conference
I was privileged to attend the PNWLC held at Oregon Health and Sciences University (OHSU). Over the next couple of days I will be relating some of the insights gained: The biggest insight was the extremely proficient use of the electro larynx by many of the patients. The speech was loud and clear. Up to this point, I…
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Grandbaby arrives !
Hey everyone ! Emily arrived at 1:30 this afternoon, and is beautiful ! 7lbs 6ozs and a head full of hair ! Posted a picture under my expressions....tried to here, but didn't work. I cried and smiled all at the same time. It's moments like this that make all the fight worth the effort ! My daughter did wonderful...and…
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Chemo round 3 done
hey all , been away for awhile, just finished round 3 of chemo 3 drug cocktail courtesy of that nasty infusion pump. So, I got the good news bad news deal, the bad news is my Ono added a round, round 4 no one does 4 rounds. The good news is that now no chemo with radiation. Only have to deal with pain management instead of…
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HOPE SOMEONE CAN HELP
Hi everyone, I am a member of this web site, and have lung cancer, I'm normally on the lung forum so I don't visit this forum that often. I'm hoping someone can help to maybe answer some questions about this type of cancer. My husband discovered a dark spot on the roof of his mouth this morning, he says it is sore to the…
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Internist Visit
Well today was my internist visit; she gets all the reports from PET/CT , etc , that my onco and rad docs get. Good news thyroid still good -check, good cholesterol 147 - check , bad cholesterol 60 - check, BP 116/84 - check , blood sugar 110 - check..she is thrilled , even with the weight loss. Then we discuss the…
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Results of PET/CT Scan
We got the results of my husband's PET/CT Scan yesterday. Needless to say we are somewhat pleased with the results. Mad at the oncologist because I don't feel he really looked at the results nor the lab work that was done before seeing us. There was some fluid in the lower right lung and first thing they wanted to do was…
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Saliva pills and vital stim therapy
Hello to all I have been keeping posted by reading everyone's posts but have not posted in a while. We have been going down to north Carolina for The tread procedure and subsequent dilations in our quest to eat again. So far I am happy to say dad is drinking, chugging water down!!! Eating speg. By the spoonfull. Foods that…
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Chemo round 3 done
hey all , been away for awhile, just finished round 3 of chemo 3 drug cocktail courtesy of that nasty infusion pump. So, I got the good news bad news deal, the bad news is my Ono added a round, round 4 no one does 4 rounds. The good news is that now no chemo with radiation. Only have to deal with pain management instead of…
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Vivacious couple (Not exactly)
Last night I realized what a sight David and I are right now. He is lying back in one recliner looking pitiful and I am lying back in the other one with my legs propped up. I am trying to take care of him as he is still recovering from the BOT surgery, while trying to rest enough since I am dead tired do to the pregnancy.…
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Golden Nuggets ~ Tampa Bay Pompano
I had some free time Sunday morning to hit a spot I haven't fished for awhile... The target was Pompano, known in Florida as Golden Nuggets, because of the Golden Yellow color they turn when you catch them...plus the excellent table fare when prepared. I was in luck, I caught my limit of six within a few hours. The lure…
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Chemo round 3 done
hey all , been away for awhile, just finished round 3 of chemo 3 drug cocktail courtesy of that nasty infusion pump. So, I got the good news bad news deal, the bad news is my Ono added a round, round 4 no one does 4 rounds. The good news is that now no chemo with radiation. Only have to deal with pain management instead of…
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Chemo Rd. One starts Monday
Hello all my brave warriors! As you all, most know...my cancer has spread and Metastasized all over my body. After getting a few other opinions I will be doing what intimately was suggested by my new doctors at University of Chicago Medicive. I will be doing four rounds of this chemo cocktail that's a bit different than…
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Well my time has come
I will be going in on Wednesday Oct 3rd to get my 1st CT scan. Yes I have said before in other blogs that Im dealing with Scanxiety that we all talk about, I was blessed to get thru this battle in pretty good shape. As some of you know since my wife posted this information way back when I started treatment in a blog that I…
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Called in sooner for dx update
Hey everyone, Wasn't suppose to go in til Nov., for PET scan....got a call from Masonic this a.m. and wanting me in for a CT guided biopsy of my lung. I was more than a bit taken aback. The tumor board had finally met, and sorted through all of my past records, scans and re-did the pathology. Seems they want to reclassify…
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3_6months
After going thru 6 chemos and 7 weeks of chemo /radiation my wife's tumor came back with a vengeance.Rads only ended 6 weks ago. Told today that it is almost totally inoperable for an eighty yrold. Gave us 3 to 6 mths. Trying to find a clinical study and waiting on Oncologist to get back to us. We've been pretty healthy up…
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Was my doctor inept?
On the 17th of September I went for my annual CT scan of neck and chest. In the afternoon at my Oncologist appoint ment he said that the scan showed no change, was all clear except for the nodule that showed up in May. He said he was absolutely certain all was ok and he would see me next September. The next day there was a…
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Not a happy camper!
I have been going back and forth for the last few weeks on how to post this. thank you Deb for keeping in touch. I thought there was something wrong with my new glasses, then I realized that it wasn't the glasses--I am having double vision. I was able to see an opthamologist (his office was quick to dx diabetes--my…
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Saliva and Sore Lips
I had radiation and chemo for cancer of the larynx about 17 months ago and am doing pretty well. I just wondered if anyone has figured out any way to generate saliva? I still don't have any so have to keep water by my side all the time. I do use stopper's 4 at night when my mouth is the dryest. I don't seem to have…
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Head and neck
Hi My husband had surgery in may 2012, has gone thru chemo and radiation and has finished his treatment . It's been 3weeks after treatment and he has this excessive mucus and coughing that worries me, he also has pain on his cheek and muscle which was pull from his chest to jaw. His head is tilted to one side and I've…
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GOING BACK TO WORK TOMORROW!
After 16 weeks off, 3 rounds of chemo, 35 radiation treatments, and 27 lbs lighter I go back to work tomorrow. In one way I am looking forward to it, seems like that will make me feel more "normal". On the other hand, a little anxious as to how I will do. I purchase and receive all the medications for a hospital so can be…
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Peg tube supplies and cans of Abbott free
Please see my earlier post "free tube feeding". Would love to send these supplies free to someone who is still on peg. Robin
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What a week
I just had to share what an interesting week I have had. I am so thankful that dad's appointment went so great, because I could not handle something else. Over the weekend the crazy neighbor next door came after me claiming that I mashed his ditch down in his driveway. This is the second time he has been after me. I now…
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Precancerous lesions from follow up Bx???
Need some input! SCC in 2006,left side of neck, radiation only...lots of pain and a PT scan that said I had recurrence....bx comes back negative....new SCC on right side of neck, chemo and rads....finished in April of this year....now 5 months later...pain big time and lumps on throat....PET comes back with a hot…
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NEUPOGEN
Have you got this injections too? Just wanna know who had it how it affected them as they have their chemo treatments. Thanks!
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Results today
Today is the day! I get the results from my first post trt PET/CT, my stomach is turning at a crazy speed, hardly slept at all last night. Boy is there some weird shows on tv in the wee hours! Have a great day everyone. Billie