-
head and neck cancer stage 4
Is there any one here that can give me some insight as to what they are about to do to me. I see the main dr on June 2nd for a consultation. which will be exactly 2 months sense I found out that I had cancer under the tongue( exactly in the middle of my tongue) is where the tumor is. One dr already did a biopsy, and thats…
-
Looking for hope
Today was a sad day for me, I had bad news after bad news. After six weeks after treatment my husband had a scan and it show it's has return, the drs for radiology and chemo told me that they were sorry but no more radiation can be given and the chemo told me they can give more. The ENT will see us tomorrow . I feel so…
-
Help me.. Am I going crazy????
I am a caregiver for my husband and he is a little over a year out. He still has a horrible sore throat, I was concerned and pushed up his appointment. Scope all clear. The other day he had severe leg pain, and he makes an appointment with his Rheumatologist, she thinks it's a blood clot and send him for an ultrasound.…
-
Pet Scan Results
Loved one had his first Pet Scan done to see what direction we need to go for treatment. According to the Surgeon base of tongue & neck appeared to be only "hot" spots, but she said she is not a Radiologist and he would confirm. After Radiolgist reviewed, saw a hot spot in stomach. Said it could be gastritis and needs to…
-
surgery on Thursday - not cancer
On Thursday I am having my knee scoped (torn cartlidge) and because of my problems with pneumonia they have decided to use a nerve block vs general anesthesia. I know this is probably best but I really don't want to be awake while they are working on me. Bad news is as soon as I heal from this they are going to do rotator…
-
Still naseauted part 2
As I mentioned in an earlier post, I have been having pretty severe naseau since Tuesday the 9th, and ended up in the hospital Sunday evening (13th), through Tuesday afternoon. The plan was to add promethazine suppositories to my anti naseau routine, scopalamine patches for the the days after chemo., and a feeding pump to…
-
Nick770?
Has anyone heard from Nick recently? I thought he was supposed to have a biopsy a while ago and I am wondering how he is doing. Myka
-
Fast growing tumor in submandibular salivary gland and I might be in for a RIDE---help i am scared
Yesterday the ENT did a biopsy on my 3 and a half week old lime-size tumor that is just under my jawline. The liquid was clear and bloody and the bad news arrives Tuesday. I already know... and I am a very healthy and optimistic person. Because I am 45 years old, a single mom of 3 with a mortgage and pets and the whole…
-
A little saying to help us along...
I have this posted on my computer and thought I would share: "Worry does not empty tomorrow of its sorrow, it empties today of its strength." I look at it MANY times a day...hope it helps. Lynda
-
All you mouth breathers....
Ya know when I had the horrible mouth sores during the 5FU treatment...the most painful part of any day was the beginning, when I woke up after having breathed thru my mouth all night. Everything that was wet stung horribly in the morning, and I really needed to get my mouth wet...On the third round of 5FU my husband…
-
And then there was 4
A few weeks ago I posted 3 down 1 to go, well we saw the ENT today, and Im blessed to get an all clear by the ENT in our Team of Onc, Rad, and Ent. she did the say AHHH review and felt the neck for lymphs and the tube down the nose scope, some swelling but no cancer. I asked about a PET scan since I only had a CT scan and…
-
Does chemo alone kill the cancer cells?
Hey all..just a quick question if I may. Since I have seen on here and also read in the past that many times you can have radiation but not always in the same place or depending on the strength... Does chemo alone kill cancer cells / tumors? I would think it does / can ..and I know everybody is different ..but can you give…
-
Comedy and Courage
http://radiatedon.com/2010/07/17/sigh/ The link I posted above ^ is to a blog that filled me with a poignant mixture of laughter and empathy. It is written by a man with a gift for sharing his experiences (dx & tx for oral cancer) in ways that few have the writing talent to do as uniquely and amusingly. Given the dire…
-
Something diffferent...
I would listening to my mp3 player during chemo and found a number of songs that helped make me feel better, give me some hope, and perhaps bring my attitude up. I particularly enjoy movie soundtracks and instead of just listening to the music, I listened to more of the words and their meaning. From "The Preacher's Wife",…
-
Back from Hershey
Hi all, back from my appointment today with the thoracic surgeon (a professor no less) really nice man. He put on the video of the needle biopsy procedure to show me the nodule, the needle missed it on the first try, got it on the next. He said the biopsy was inconclusive as to what it was, said it still could be benign or…
-
rebuilding muscle mass & feeling my age
I've always been a pretty fit guy--avid hiker, ice skater/rollerblader, frisbee thrower... until the cancer beast robbed me of 40 lbs. and sapped my energy to get off my ****. I lost so much muscle mass (and fat), sitting on a hard chair hurt my bony butt. now that I've started to gain back some of the lost weight, it's…
-
PET Scan results
PET scan was negative :-) Finished tx mid-May. To those beginning or in the process of tx, it is sometimes easy to lose sight of the goal...this much awaited phone call makes those tough days worth it. God is Good!
-
Still naseauted
Had cisplatin on Tue, been on my anti naseau meds, but still struggling with naseau today, is this radiation or chemo, making me sick, god I hate naseau ..... Tube feelings suck when you don't feel good. Jim
-
Concerning symptoms - request help getting ready for ENT appt
Hi all. I've been ready your board trying to better educate myself on my concerns about oral cancer in preparation for my ENT appt Tuesday. I am concerned about being blown off as I have been three times already when I went to my PCP for my symptoms. I could use some feedback on how to verbalize my concerns to my ENT and…
-
Is this ok
My husband received first cisplatin and radiation on Friday. Today he had some nausea so gave him compazine and earlier today gave him an Ativan for unreleived nausea. Long story short, he ate a little and basically has been sound asleep since 4pm and it's now 1030 at night. He literally has not even moved , that's how…
-
free tube feeding
I have the following supplies that I would like to donate to someone on tube feeding: Abbott Vital AF 1.2cal vanilla - 2 cases that are in date (Go to Abbott website to read about this product. It is very costly and was recommended for my husband, Andy from a friend who has worked for Abbott for 30 years.) Abbott 1000 ml…
-
Question about Radiation tx
Is there a maximum amount one can have in a lifetime? This was mentioned to us at our very first appointment with the ENT that diagnosed. Once the decision was made to go to our U of M hospital and we were assigned to an new ENT, there was no discussion about this..nor with the Radiaologist or Oncologist. Does anyone have…
-
Clear Scans / NED
Hi All Just wanted to let you all know some good news. I had my 6 monthly MRI scan results today following my mucoepidermoid carcinoma and the results were NED. Bit of fluid, polyps in sinuses that were present on previous scan which were of interest had gone, tiny nodes in both parotids of no concern, see you again in 3…
-
Insurance Co denied 6 month PET / Any suggestions?
Hey all ...looking for some ammo here (and opinions if anyone thinks it's fair or not fair, I want to be sure I am being reasonable). Here's my history in a nutshell. Oct 20, 2011 of head and chest reveals mass at base of tongue with mets to one lymph node Nov 6, 2011 biopsy on tongue, confirms SCC HPV+ Nov 16, 2011 PET…
-
The Beginning
I recently found out that I have squamous cell cancer of the tonsil and in one lymph node on the left side. The tonsil has been removed. I met with my radiation Dr for the 1st time today. We plan to start the 7 week treatment plan plus 3 sessions of chemo beginning the end of October. I have been reading all of the posts…
-
lovinox
Don't think it is really "legal" to offer medical supplies but, my husband died and I have 30 syringes of lovinox that I would be happy to send anyone who is on this blood thinner for blood clots. Just private message me. Robinleigh
-
My Tx Updates
Hi Gang. Well, I received my 1st round of chemo on Oct. 1st. I went in that Monday and got a cocktail of Cisplatin and Taxotere. This was administered thru IV for a period of about 5 hrs or so. They then hooked me to a pump filled with 5FU and wore that till Friday when they finally took this poison out and thought…
-
Major ringing in my ears
Hey all, Well week 2 is down with daily radiation, and 1 dose of erbittex, on tuesday the 2nd, and one high dose of cispltatin, Tuesday the 9th. I am on a variety of anti naseau and antidepressants, as well as stool softeners and occasional sleeping pill. I noticed this week that I am having severe ringing in my ears and…
-
Dave is C free
Haven't been on in a while. Glad to see some old friends still here. My husband is cancer free for over a year now. He finally started eating orally again. It took him having Hyperbaric treatments to clear the over growth on his tongue before he could get his feeding tube removed. The growth was making any thing he tried…
-
Off the subject but relevant
Hey everyone ! It's a beautiful day today. I have time yet to collect some pretty leaves and get them pressed in wax paper. I wanted to wish each and everyone of you a wonderful weekend ! I believe we need to take time away from our worries and dx's once in awhile to just be us. So whatever it is that takes you to a place…