Called in sooner for dx update

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Hey everyone,
Wasn't suppose to go in til Nov., for PET scan....got a call from Masonic this a.m. and wanting me in for a CT guided biopsy of my lung. I was more than a bit taken aback. The tumor board had finally met, and sorted through all of my past records, scans and re-did the pathology. Seems they want to reclassify my staging...and believe I have mets in the lungs and bone. I should be a mess....but am very calm. I made sure that the specialist I see on Thursday is a specialist in adenoid cystic carcinoma. Was reassurred he is. What a rollercoaster ride this year has been. I told the gal that called, I want to discuss options before they set up any procedure. Will update as I find out more. Hells bells....think you may be in the clear and whap ! Thinking of you all ! katie
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  • hwt
    hwt Member Posts: 2,328 Member
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    Katie
    You've certainly had more than your share to deal with. Your strong logical approach will serve you well. I will keep you in my prayers that it is not mets.

    Candi
  • ditto1
    ditto1 Member Posts: 660
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    Glad your calm
    and hope you hold on to the calm as long as you can. I know the axiety is there, but you are doing the right thing by letting them know you want to be in charge on possible procedures and discuss them accordingly. Praying all will be well. Katie you are a strong lady and we have enjoyed knowing you are out there and the many responses you have helped me with. I will be praying for you.
  • KareGiver
    KareGiver Member Posts: 301 Member
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    ditto1 said:

    Glad your calm
    and hope you hold on to the calm as long as you can. I know the axiety is there, but you are doing the right thing by letting them know you want to be in charge on possible procedures and discuss them accordingly. Praying all will be well. Katie you are a strong lady and we have enjoyed knowing you are out there and the many responses you have helped me with. I will be praying for you.

    Katie,
    Sending thoughts and prayers...
  • CivilMatt
    CivilMatt Member Posts: 4,723 Member
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    best wishes
    Katie,

    As always, hoping for the best possible outcome for you.

    Fellow warrior,

    Matt
  • phrannie51
    phrannie51 Member Posts: 4,716
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    Well s***....
    How did they go from a colonscopy to this? Is this taking ALL you history, ALL your old pathology, and records, and coming to a conclusion? I'm so sorry you are going thru this...especially after the scope just the other day. I'm thinking ok...lets get this biopsy done, it ain't cancer till somebody who KNOWS it is, says so....

    Sending a host of prayers and positive thoughts to you Katie....this ain't fair!!

    p
  • ToBeGolden
    ToBeGolden Member Posts: 695
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    A Good Plan
    I hope your team comes up with a good treatment plan for you. If you are anything like me, your emotions will tend to be all over the place. However, I hope you can find some really good times in the days ahead. All of us cancer patients, and our caregivers, must attempt to hold onto the good times and simply plow thru the bad ones. Rick.
  • katenorwood
    katenorwood Member Posts: 1,912
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    Well s***....
    How did they go from a colonscopy to this? Is this taking ALL you history, ALL your old pathology, and records, and coming to a conclusion? I'm so sorry you are going thru this...especially after the scope just the other day. I'm thinking ok...lets get this biopsy done, it ain't cancer till somebody who KNOWS it is, says so....

    Sending a host of prayers and positive thoughts to you Katie....this ain't fair!!

    p

    yeap going on all current and past reports
    Phrannie,
    I guess I knew I was ducking under the radar for too long. I did not have a team in place a yr. ago that knew anything about ACC. Heck, until 5 mo's ago I knew squat about this dx. I have had this in me for a very long time. I now have doctors with knowledge on how this dx travels in the body and what to look for. I also have educated myself...not that this helps relieve the anxiety. I was promised by the medical oncologist that if my body is able to, they will aggressively attack this demon. So here goes girl. I've seen you all fight and fight with all you have....I will do no less. Katie
  • katenorwood
    katenorwood Member Posts: 1,912
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    A Good Plan
    I hope your team comes up with a good treatment plan for you. If you are anything like me, your emotions will tend to be all over the place. However, I hope you can find some really good times in the days ahead. All of us cancer patients, and our caregivers, must attempt to hold onto the good times and simply plow thru the bad ones. Rick.

    Plan on enjoying life !
    Rick,
    I have no regrets on how I've been enjoying life ! I am positive I have a good team in place now. And yes plan on plowing through this full steam ahead. Katie
  • katenorwood
    katenorwood Member Posts: 1,912
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    CivilMatt said:

    best wishes
    Katie,

    As always, hoping for the best possible outcome for you.

    Fellow warrior,

    Matt

    Thank you !
    Matt,
    Thank you. And I will try my best. Katie
  • katenorwood
    katenorwood Member Posts: 1,912
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    KareGiver said:

    Katie,
    Sending thoughts and prayers...

    welcome all !
    Thank you ! katie
  • katenorwood
    katenorwood Member Posts: 1,912
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    ditto1 said:

    Glad your calm
    and hope you hold on to the calm as long as you can. I know the axiety is there, but you are doing the right thing by letting them know you want to be in charge on possible procedures and discuss them accordingly. Praying all will be well. Katie you are a strong lady and we have enjoyed knowing you are out there and the many responses you have helped me with. I will be praying for you.

    Seems like a very long bad road trip
    Ditto1,
    I hope I can keep a level head...and I promised myself at the start of this I would stay well informed and make the best possible choices for myself. The strenghth of the group is helping me get through some impossible days. Katie
  • katenorwood
    katenorwood Member Posts: 1,912
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    hwt said:

    Katie
    You've certainly had more than your share to deal with. Your strong logical approach will serve you well. I will keep you in my prayers that it is not mets.

    Candi

    thank you
    Candi,
    I have no other choice than to be proactive. I am positive I am with the right group of doctors now.....each dx is unique in my eyes. Little anxious on mets, but what do you do ? Would explain my body kicking my butt the last few months. Thank you for your prayers (everyone) ! Katie
  • Grandmax4
    Grandmax4 Member Posts: 723
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    I'm holding your hand
    and hoping for the best. You can do this !
  • Jan Trinks
    Jan Trinks Member Posts: 477
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    Hang in There Girl!
    Kate:

    Glad you're not a mess! Hang in there! You're in my prayers!

    Jan (Basketcase)
  • NoDuck
    NoDuck Member Posts: 134
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    Sweet Katie!
    Prayers coming your way. You have been there for so many of us. Hugs from your CSN Family.

    Deb
  • CivilMatt
    CivilMatt Member Posts: 4,723 Member
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    best wishes
    Katie,
    oops
  • Hard12Find
    Hard12Find Member Posts: 218 Member
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    Kate
    I am sorry you are facing these possibilities, once is more than enough for anyone to face that tough news. We are all here for you and praying for a positive outcome.
    Jim
  • Billie67
    Billie67 Member Posts: 898
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    Kate
    I am sorry you are facing these possibilities, once is more than enough for anyone to face that tough news. We are all here for you and praying for a positive outcome.
    Jim

    Attitude
    Is everything and you have an amazing one. It also sounds like you have a great medical team to help you kick the tar out of this monster. Know you are in my prayers and thoughts.
    Be strong!
    Billie
  • katenorwood
    katenorwood Member Posts: 1,912
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    Grandmax4 said:

    I'm holding your hand
    and hoping for the best. You can do this !

    grandmax4
    Thank you ! I wish this c thing would just poof and disappear...but no worries today, I'm gonna hit some sales and buy those presents for my grandbabies. Katie
  • katenorwood
    katenorwood Member Posts: 1,912
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    Hang in There Girl!
    Kate:

    Glad you're not a mess! Hang in there! You're in my prayers!

    Jan (Basketcase)

    Thank you Jan !
    Jan,
    It's weird...the calm before the storm ? Or maybe just the knowledge I have a team of specialists in my corner that treat me as an individual. Katie