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Major ringing in my ears
Hey all, Well week 2 is down with daily radiation, and 1 dose of erbittex, on tuesday the 2nd, and one high dose of cispltatin, Tuesday the 9th. I am on a variety of anti naseau and antidepressants, as well as stool softeners and occasional sleeping pill. I noticed this week that I am having severe ringing in my ears and…
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Dave is C free
Haven't been on in a while. Glad to see some old friends still here. My husband is cancer free for over a year now. He finally started eating orally again. It took him having Hyperbaric treatments to clear the over growth on his tongue before he could get his feeding tube removed. The growth was making any thing he tried…
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Off the subject but relevant
Hey everyone ! It's a beautiful day today. I have time yet to collect some pretty leaves and get them pressed in wax paper. I wanted to wish each and everyone of you a wonderful weekend ! I believe we need to take time away from our worries and dx's once in awhile to just be us. So whatever it is that takes you to a place…
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Time to Appeal a Denial
I posted the following message to Senator Tom Harkin (chair) and Senator Patty Murry (member from WA) of the committee that oversees Medicare. If you agree with me, please send a post in support. Webpage for Senator Harkin: http://www.harkin.senate.gov/ Please use your influence to extend the time patients have to appeal…
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Getting a plan
Hey guys, I go back in again this thursday for a PET and MRI with contrast. I am so impressed with my team of doctors and that they actually are so upbeat and willing to attack this demon lurking in my body. I have a tumor board...working together for me. Some may say, yeah why didn't you have this in the beginning ? Can't…
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So So PET scan results - update
I saw my radiation oncologist yesterday, the one who relayed the 'good' news about a good scan but with a spot that lit up. Long story short is that they are not sure what it may be. It could be simply calcified scar tissue, latent disease that is so damaged that it can't divide, or a slumbering beast waiting to wake up,…
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Biopsy results
Got the call from my oncologist in Hershey today with the results of the biopsy I had last Tuesday. He said the biopsy came back as inconclusive. He said he did not believe it was from my larynx and, in fact does not know if it is a cancer. Ground glass opacity nodules can do this. He said we can wait and do another scan…
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I am not a text book case!
Hello friends! How have you all been? I have been doing really good. My ENT sent me to an Oncologist just because I am not the normal person they see with tongue cancer. I have never drank or smoked, I am not HPV positive, and I am 35 years old. He wanted him to be able to have it written down for studies. Oncologist then…
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what a day !
well I just thought I would post, today was my birthday (47) and as I might of mentioned before I go to a Tiki bar on the beach on a Sunday afternoon every week (recharges the batteries). Well today when I got there unbeknown to me my wife had a suprise party all lined up. Family and friends all shown up and a good day was…
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Need Tips....Treatment started yesterday..
Hi everyone! Well, yesterday was the start of treatment. Although I've done plenty of research on the cancer...now, as a caregiver, I need some help staying ahead as much as possible to the side effects and taking some preventative measures (if there are any)to treatment. Special thanks to Skiffin16(John)in being my email…
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Cough
Hey friends! I finished 30 Rad treatments mid June, so I'm almost 4 months out. I have healed really well and I had a clean MRI and chest x-ray at the end of August. I've had a nagging cough for a while now...I've been trying to remember when it started but I think it's possible that I've had it since radiation. It feels…
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treatment plan finalized
First I want to thank everyone who has been so encouraging to David and I through the surgeries up to this point. I also wanted to update everyone on the pregnancy. Unfortunately I had a miscarriage Friday morning. It has been a long hard weekend for me to say the least. Today we went to see the radiation oncologist and as…
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Pet or CT???
Just wondering what the difference is between a PET or a CT w/contrast? I've always had a CT with contrast and never had a PET. My CA was vocal cord and seems like most of you are BOT so wonder which is the more comprehensive or why the difference, if anyone knows?? Should I ask for a PET scan?
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SECOND TIME AROUND RESULTS AND FEEDBACK
Looking for feedback from anyone who might have had a simillar recurrance and or same treatment. I have metastatic spread from SCC / right tonsil/ mets to lymph nodes in neck. The spread is to the lymph nodes in my Mediastynum (outside of lung) and several tumors in my right side of my lung. Doc's think it was probably…
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Need advice
My Husband had his port placed yesterday and we were supposed to start chemo and radiation tomorrow. He and I were prepared mentally to get this going. Already we were a little concerned because this week marks 8 weeks since his surgery and the standard is supposedly to start within 6 weeks of surgery. Well we got a call…
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Had to share this...
Randy and I went away on vacation recently. The two young girls next door took care of our cat while we were gone. I gave them each some $$ for doing so. I saw them today and they thanked me for the money. They said they already knew what they were doing with it but didn't say what it was. A few minutes later, I asked them…
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Treatment starts
My husband, John, has his port put in today and we start chemo on Wednesday and radiation starts the next day. The unknown is all so scary but know that we have to go thru this to erradicate the cancer. Reading posts about mets to lungs is so scary...my heart aches for those that are going thru this. I thank everyone for…
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not a blood clot
MY husband went to see his rheumatologist for lower leg pain on his right leg. She sent him in for an ultrasound thinking it was a blood clot. No blood clot found. He is going on 13 days of pain and seems to be worse at night while laying in bed. We have an appointment this Friday with his GP.
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parorid tumor - not sure of diagnosis - basal cell adenocarcinoma ?basal cell adenoma ?adenoid cysti
I have not been offered radiation as they had different diagnoses. It was tubular and trabecular. It is thought malignant. I was told basal cell adenocarcinomas are usually 'ok' but I have increased lymph nodes and are round not oval and lost hilums. I have been told they cannot get all the cancer out between ear and jaw…
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I was right.
qqjj is one of them spam sites. I just saw it was a reply on every post. God bless Tonsil dad, Dan.
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Another goal accomplished......Asian Buffet!!
I finally got there last night for dinner....oh man, what alot of food to choose from!! I took a spoonful of almost everything...I skipped what I knew would be hot, but that left probably 35 dishes to choose from, and I took half that on the first round, and went back and got the rest on my second round :) . Lo Mein was…
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DID NOT THINK THE GOOD TIMES WOULD END SO SOON
Hi and hope you are all doing well. I was riding the high horse last week with my Carboplatin, Erbitux and 5FU manpurse along for the ride. Not one side effect as of Friday Night as I was watching my STL Cardinals rout the Nationals 12-2. Did the whole party box, yelled and screamed and high fived and had a great time.…
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luv4lacrosse
Great game Mike! Hoping you had a good weekend. Now if MU can just do the same tonight.
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Doctor called said new spot on latest ct scan
Hi all. I havent posted much on here but put my email address out there and have correspondence with some of you who had questions about your upcoming jaw replacement surgery. I had mine june 2011. All my ct scans every 3 months since surgery have been clear until last friday. My surgeon at md anderson says i have a new…
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Don't like roller coasters!
Really, I am the one holding the jackets and getting food for my family in line. Getting back on the bus. 'c' has raised it's ugly head. The local neurologist only had the written report when she said scar tissue. I had the hard copy of the MRI for my doctor at Stanford. He looked and looked and finally said he did not…
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Post treatment scans
My husband will be starting chemo and radiation next week. He will be having one side of neck radiated and will be receiving Cisplatin x 3 doses. He had BOT laser surgery 8 weeks ago and a right side selective neck dissection with 3 positive lymph nodes, one with extracapsular extension. Three weeks ago he had lymph nodes…
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Am I a candidate for Cyberknife?
Had SCC in 2006,left tonsil, radiation only, had SCC again this year on opposite side of neck, radiation and chemo, now, lucky me, I have developed "pre-cancerous lesions" back on my 2006 side, if this develops into cancer, can I have it treated with Cyberknife even though I have been radiated on both sides of neck? Thanks…
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Extracapsular spread
My husband had one lymph node with extracapsular spread so therefore, wil be receiving chemo with radiation. Question is, does anyone else on this site have experience with the extracapsular spread. Of course, I am worrying myself sick about this as a prognostic factor. Thinking if only we would have know a little sooner…
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Ready, Set, GO!
Well, after a few obstacles(yes HPV, no HPV, yes HPV) & (stomach scope completed due to hot spot lit up on PET...doesn't appear to be anything, but took biopsies of stomach wall..waiting on results), we are looking to get this treatment started....MONDAY! My loved one was diagnosed with Stage III / IV, BOT SCC, 2 lymph…
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Doctors and more doctors
Well we went to see David's ENT today and was told everything is healing well and that he expected David would be able to drink by mouth again within the next couple of weeks. He had a swallow test today and he is still aspirating some of the liquid so they want him to stay with tube feeds only. He tried to talk the doctor…