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SECOND TIME AROUND RESULTS AND FEEDBACK
Looking for feedback from anyone who might have had a simillar recurrance and or same treatment. I have metastatic spread from SCC / right tonsil/ mets to lymph nodes in neck. The spread is to the lymph nodes in my Mediastynum (outside of lung) and several tumors in my right side of my lung. Doc's think it was probably…
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Need advice
My Husband had his port placed yesterday and we were supposed to start chemo and radiation tomorrow. He and I were prepared mentally to get this going. Already we were a little concerned because this week marks 8 weeks since his surgery and the standard is supposedly to start within 6 weeks of surgery. Well we got a call…
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Had to share this...
Randy and I went away on vacation recently. The two young girls next door took care of our cat while we were gone. I gave them each some $$ for doing so. I saw them today and they thanked me for the money. They said they already knew what they were doing with it but didn't say what it was. A few minutes later, I asked them…
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Treatment starts
My husband, John, has his port put in today and we start chemo on Wednesday and radiation starts the next day. The unknown is all so scary but know that we have to go thru this to erradicate the cancer. Reading posts about mets to lungs is so scary...my heart aches for those that are going thru this. I thank everyone for…
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not a blood clot
MY husband went to see his rheumatologist for lower leg pain on his right leg. She sent him in for an ultrasound thinking it was a blood clot. No blood clot found. He is going on 13 days of pain and seems to be worse at night while laying in bed. We have an appointment this Friday with his GP.
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parorid tumor - not sure of diagnosis - basal cell adenocarcinoma ?basal cell adenoma ?adenoid cysti
I have not been offered radiation as they had different diagnoses. It was tubular and trabecular. It is thought malignant. I was told basal cell adenocarcinomas are usually 'ok' but I have increased lymph nodes and are round not oval and lost hilums. I have been told they cannot get all the cancer out between ear and jaw…
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I was right.
qqjj is one of them spam sites. I just saw it was a reply on every post. God bless Tonsil dad, Dan.
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Another goal accomplished......Asian Buffet!!
I finally got there last night for dinner....oh man, what alot of food to choose from!! I took a spoonful of almost everything...I skipped what I knew would be hot, but that left probably 35 dishes to choose from, and I took half that on the first round, and went back and got the rest on my second round :) . Lo Mein was…
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DID NOT THINK THE GOOD TIMES WOULD END SO SOON
Hi and hope you are all doing well. I was riding the high horse last week with my Carboplatin, Erbitux and 5FU manpurse along for the ride. Not one side effect as of Friday Night as I was watching my STL Cardinals rout the Nationals 12-2. Did the whole party box, yelled and screamed and high fived and had a great time.…
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luv4lacrosse
Great game Mike! Hoping you had a good weekend. Now if MU can just do the same tonight.
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Doctor called said new spot on latest ct scan
Hi all. I havent posted much on here but put my email address out there and have correspondence with some of you who had questions about your upcoming jaw replacement surgery. I had mine june 2011. All my ct scans every 3 months since surgery have been clear until last friday. My surgeon at md anderson says i have a new…
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Don't like roller coasters!
Really, I am the one holding the jackets and getting food for my family in line. Getting back on the bus. 'c' has raised it's ugly head. The local neurologist only had the written report when she said scar tissue. I had the hard copy of the MRI for my doctor at Stanford. He looked and looked and finally said he did not…
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Post treatment scans
My husband will be starting chemo and radiation next week. He will be having one side of neck radiated and will be receiving Cisplatin x 3 doses. He had BOT laser surgery 8 weeks ago and a right side selective neck dissection with 3 positive lymph nodes, one with extracapsular extension. Three weeks ago he had lymph nodes…
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Am I a candidate for Cyberknife?
Had SCC in 2006,left tonsil, radiation only, had SCC again this year on opposite side of neck, radiation and chemo, now, lucky me, I have developed "pre-cancerous lesions" back on my 2006 side, if this develops into cancer, can I have it treated with Cyberknife even though I have been radiated on both sides of neck? Thanks…
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Extracapsular spread
My husband had one lymph node with extracapsular spread so therefore, wil be receiving chemo with radiation. Question is, does anyone else on this site have experience with the extracapsular spread. Of course, I am worrying myself sick about this as a prognostic factor. Thinking if only we would have know a little sooner…
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Ready, Set, GO!
Well, after a few obstacles(yes HPV, no HPV, yes HPV) & (stomach scope completed due to hot spot lit up on PET...doesn't appear to be anything, but took biopsies of stomach wall..waiting on results), we are looking to get this treatment started....MONDAY! My loved one was diagnosed with Stage III / IV, BOT SCC, 2 lymph…
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Doctors and more doctors
Well we went to see David's ENT today and was told everything is healing well and that he expected David would be able to drink by mouth again within the next couple of weeks. He had a swallow test today and he is still aspirating some of the liquid so they want him to stay with tube feeds only. He tried to talk the doctor…
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PET -> Lung Cancer?
Today's PET showed new stuff in the lungs. 2 or 3 very small and hot specks. So I don't feel bad about vomiting in their machine (from the contrast). However, when I mentioned my recent pneumonia to the medical oncologist, he said recent pneumonia is a good sign in my case. In other words it could be pneumonia. My voice…
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Lung mets. Here goes...
Hi Friends, Back in April 2012, I posted about my 60 year-old husband's possible lungs mets from stage 2, HPV+ tonsil cancer. Back and forth in my mind I have thought whether I should post on this board about our follow up, even PMing friends on this board whether to do this or not. Well, here it is: after biopsy, it was…
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Scar Tissue!
Just got the call from the doctor. Scar Tissue! Woo-hoo. I can live with that, not 'c' just a gift! I still need a specialist and will need surgery, I can deal with that. Thank you for prayers and well wishes.
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Cataract as promised
Had my cataract removed yesterday and I would be a liar if I said I wasn't worried/stressed going in. Not for a fear of the surgery rather the thought of someone messing with my eyes gave me the heebie jeebies..I should have taken a Xanax :>). The entire process lasted less than 10 minutes and I can't believe the positive…
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3 down 1 to go
Well thank you all for your prayers and well wishes on my CT scan. Onc doc and Rad Doc as well as the Radiologist who reviewed the scan says all looks great, Rad Doc was willing to say NED. However I still need to see my ENT on the 15th October/ she hopefully will concur with the other Docs. She will look at a spot on my…
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Im desperate for your input
Hi all, just finished round three of chemo and my biggest battle has been taste. Ever taste terrible, have to eat things that slide down to avoid chewing and the nasty taste. I would like to know your experiences as far as taste returning to normal. Does it get worse with the rads and if so do return to normal after TX and…
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Andy
My husband died last Friday. He died peacefully surrounded by his loved ones. He was beyond courageous in the face of his metastatic cancer at the age of 58. I will continue to draw strength and courage from him. Robin
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Top 5 suggestions for dealing with neck dissection
I'm 10 weeks post-op for a modified radical neck dissection and here are my top 5 suggestions for the physical issues that I had. I am neither a doctor nor a PT but I have been lifting weights since I was a teenager and have studied the affects of diet for many years as well. Only one side on my neck was dissected and 59…
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PET scan today - so so results.....
I had my three month follow up PET today (SCC BOT, HPV+, Stage IVa) treated with one course of induction chemo and then with 8 weeks of erbitux and 33 rads. I expected very good news as the ENT that originally diagnosed me had scoped my throat twice and saw no visual evidence of the original tumor, and neither the medical…
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It DOES Get Better
This is my first post in a while, but I've still be visiting and checking in on folks. I don't have a good answer for why I didn't post anything for the past month or so. Sure, I've been busy but that didn't stop me before. I think part of it is that I've been figuring out what it means to be out of treatment, and how you…
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Sorry seems to be the hardest word
Just found out last evening, the wonderful, kind woman that was my roommate at The James, passed on July 17,2012. Susie and I became so close and promised each other to keep in touch after we both were up to it, we spoke on the phone and she was in a nursing home in Northern Ohio....I, at the time, had a whisper of a…
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treatment started
Well Things are progressing for me this week, I have had 2 radiations, and my induction of Erbitex. So far so good, feeling a little aches and pains, and a bit run down, but not bad overall. Hope everyone else is doing good.... Jim
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I've been on a food adventure... :)
I know it's a little early since I'm just at the beginning of my 3rd week post chemo, but I am SO hungry all the time. Last Friday I was able to return my dentures to my mouth, and tho it stung I forced myself to drink my VHC and Ensure, instead of tubing it...Anyway yesterday I went to Costco and tried nearly everything…