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Head and Neck Cancer

Oh, what a shinner!
Biopsy, check. Nothing conclusive, need to wait until next Friday. Took the bandage off last night--I don't know why I didn't think about that. At least the headache has gone with all of the meds I am taking.
Lhermittes
Hello All! Just checking in, it's been a while. I've had computer problems, ugh! Anyway just wondering if any of you out there have been effected by Lhermitte's syndrome? I'm wondering how long it lasts? For those of you that are unaware of this crazy thing it is a sort of an electrical shock that goes down your back and…
NEDDY O'NED
Had my first PET-CT scan on Saturday and ran home to look at the cd. Everything looked good to me --> NED Do it Yourself. I was not as brave as Skiffin to announce it to the public, though. Just came back from the doctor office who confirmed my self-diagnosis --> Officially NED. For the newbies: I was diagnosed in February…
Advanced NPC NED
Diagnosed stage IV NPC in April this year, finished treatment in early October and my last PET scan showed NED! I would share some of my own experiences in hope that they could be useful to new comers. First of all, a little bit of background. I am a 40-year old male, was generally healthy before this. For stage 4 NPC, the…
It just keeps getting better.
I sometimes feel a little guilty when I post the good blessing that have been given to me when so many of you are still going through the pain and side effect during and beyond your treatments. I've just come home from my visit to see my ENT at the University of Miami for my results of my CT scan last week and…
vomiting
Poor David is having such a hard time. We start chemo/radiation on the 30th and he hasn't eaten solid food since September 18 and that was only soft foods. He has lost over 40 pounds. He is down to 139 pounds and to top it off he is starting to vomit. Not only coming out his mouth, but his nose as well. He is so miserable.…
Raynauds
I finished my treatment about 19 months ago. Have gained my weight back and life is beginning to return to my "new" normal. So I'm pumping gas yesterday and my tongue starts to tingle a bit. I should mention it was chilly out.the tingling seems to be progressing and moving to numbness. So I head to the gas station bathroom…
Strange symptoms.
Hi there, I am 2 months post radiation treatment (35 fractions of 70 Greys) with concomitant cisplatin (2 rounds, day 1 and day 22) and also 4 weeks post carboplatin and 5FU (first round a month ago, second will be in a few days) for NPC stage III. I started to experience some rather unusual symptoms, beginning a few weeks…
need your help and opinion
Hello. Some of you may know my mom's story. My mom had total of 3 surgies for head and neck cancer since 11/2010 plus radiation, no chemio. Anyway after the last surgery in March of 2012 here is the list of what happend: 4/12 MRI post surgury to see if any cancer is left over- something showed but Dr. thinks it is scars…
Can't wear my dentures
I finished my treatments 4 weeks ago. I feel much better and I thought I could eat something but when i tried putting my dentures in, it was like they were too small. No way I can afford new dentures after all the medical bills. That's the only thing that's really keeping me from eating, I can't chew without my dentures.…
amoxicillin and diflucan
back on amoxicillin for 21 days. grrr. since amoxicillin is an open invitation for thrush to move in and party, my ENT gave me a script for diflucan. so the kid picks up the prescription, and it's one pill. one lousy $4 pill. what am I supposed to do with that? take it now? or wait until thrush hits? I hate antibiotics.
Rancid, Bitter Taste
**I have also posted this message over on the Cancer Compass website. Sorry for the double-up but I am trying to reach as many people as I can with this query. We really do appreciate your time spent offering advice** I am writing on behalf of my 46yr old sister who is being treated for Head and Neck with Unknown Primary.…
A confession.........I went to a witch doctor...
...well, not a witch doctor, an herbalogist...but my mom always called him the witch doctor when she went to him. She had laryngeal cancer, and went to him before she started radiation...her skin never even got red during her 30 treatments. I think the reason I decided to do this is this: Everybody talks about the "after…
I passed the weight test....
I'll be getting my PEG tube yanked here probably next week....YEAH!!! I had to cheat, tho...hubby bought me a pair of Danner work boots a couple years ago...I wore those...LOL...I mean what's a couple of pounds, huh? I haven't used my tube since Sept. 14th for gawds sakes, so what is the point of having to have one?? p
moffitt
Anyone have experience with having mandibular resection and reconstruction at Moffitt with DR T Mcaffrey? Thanks
Need recommendation to sooth the throat from Radiation
Hi Folks, We are experiencing some sores in the mouth/throat area right now. Not excruciating pain, just uncomfortable. Do not see doctor until tomorrow for some MAGIC MOUTHWASH, but wondering if you have any recommendations for now.... ie, lozenges (that aren't high alcohol based). He's using baking soda/salt water right…
First day...
Today was day one of treatment. Finished first radiation and cisplatin. He feels ok , a little pale and lightheaded. Hoping we will be able to eat dinner. I feel like I am waiting for al the bad stuff to happen. Knowing that alot of you on this site has been there before helps. We will prevail...one day at time. Thinking…
Family, friends...hmmm gotta love 'em !
Hi guys and gals, Was trying to help get my 79 yr. old Father relocated to my kid sisters house this past wk. end. Not alot I could do but drive a loaded van, but it was important I was there. All I heard was...you're not eating enough...you look worn out...are you sick again. I laughed and said STOP...I'm here and it's…
Saying Helloooooo
Just saying HI to everyone. I hope all are well or at least on their way to it! Everything is moving right along for me. Went to speech pathologist to learn the exercises to strengthen my swallow. Sounds kinda funny that I even need help being that I ate a 14 oz ribeye the night before last. My swallowing varied from day…
It was Monday; must mean time for a new case of pneumonia
Had/having a rough time with this bout. Sunday night I could not pile on enough blankets, temp was 102 and my blood pressure was a staggering 58/44. Needless to say I felt like crap. Went to the doctor yesterday and they said my oxygen level was 53% so they put me on O2 and Clyndomicin and one of those inhaler…
Tongue Cancer when Radiation is NOT an option... now what?!
Hello All... My mother was recently diagnosed with Cancer of the Tongue. It was surgically removed and The pathology came back with invasion to the lymph nodes and nerve. She had tonsil cancer with metastasis to the neck lymph nodes 7 years ago. She had radiation and was cancer free for 7 years. It came back on the…
My mom is having a liver biopsy
Well after getting my mom's PET Scan results back last week and seeing that the mass that was in her neck was gone, they saw a small spot on her liver(about 2 cm). She is scheduled to have a liver biopsy on Monday. I am numb. I thought this part was over and I'm sure she did too. I thought we were just gonna continue to…
Salivary Gland Cancer, Stage 4
My husband has been diagnosed with Salivary Gland Cancer, Stage 4. This cancer is very rare and the fact it spread to the lungs is even more rare. Is there anyone out there with this kind of cancer? Is so, how are you doing? Is there a chemo treatment that is working? Are you part of a clinical trial? My husband will be…
Rapid weight gain post-treatment
Hey guys, I just got back from seeing my chemo-therapist. Looks like we got it all. I'm almost a year post-treatment and I'm picking up weight FAST. Sounds good until you consider the fact that I'm not eating enough to put on THIS much weight (this rapidly, anyway). The doc says the treatments may have affected my thyroid…
Going to see my "Hero"
At 1:30 today, I have a check-up and scope with my Dr Carrau. I'm confident things are still okay, tho after, almost a year (November2,2011 )I'm still having some issues with the feeling of mucus in my throat...it's annoying. Tomorrow, I go for a CT scan, to check a spot on my lung, the Dr has been watching this since my…
Surgery is Wednesday morning with tumor in neck lymph node
Hi all and thank you for the uplifting interest and support last week with this ordeal. 4 and a half weeks ago I found lump on neck about marble size. 1st doc said salivary gland when I came to him with my swollen 'lymph node'. Now, 3 doctors and a dentist later, the CT scan shows the tumor to be the lymph node just next…
Scan Results
Hubby got the official word today on his first post tx PET scan -- all clear!! He had the scan at 7 am yesterday and we met with the ENT at 930. ENT had already reviewed the scan of the cancerous area -- left tonsil and three lymph nodes -- and told us nothing lit up and it was clear. He deferred to the radiologist for a…
Scanxiety
First post-treatment scan Tuesday, get the results Thursday. Now I know what all of you mean by scanxiety. Trying to stay positive but those doubts just creep in my mind all the time. Especially in the middle of the night when I wake up, my mind just starts racing with all the what ifs? But I am going to think NED as much…
Flouride
Ok my question of the day: Before my husband started radiation he was seen by a dentist and had flouride trays made. He never gave him any flouride though. So, 1. When do you start using flouride. Are you supposed to be using it while getting radiation or do you start when finished with treatment. 2. Where do you get the…
Adenoid Cystic Carcinoma
My name is Debbie. I was diagnosed with ACC in March 2003. I had a large portion of my upper palate removed and now wear an obturator. I don't have anyone in my community that has gone thru this. I had 6 weeks of radiation. I just want to meet someone who has this disease and visit. I feel all alone out here.

Head and Neck Cancer

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