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How invasive is getting a "Pic line" in?
Well he's getting a pic line put in tomorrow. Wondering what to expect. I know what it does, but he's a litte anxious about it. Especially with previous heart issues and that's where they lead to the line to The reason he never had a port was because he only gets chemo once a week, but now that they are doing more IV…
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My Mom Passed Away
Hello everyone. I just wanted to let you all know the sudden and devestating update about my mom. She passed away yesterday morning. I found her on her bed, slumped over. I was home with her and had just spoken to her about an hour prior to finding her. My sister had called and talked to her as well. We do not know the…
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10 weeks out and running
My husband is 10 weeks since his last treatment and he just ran his 22 (in a row) marine corps marathon in DC last Sunday!!! His time was better than last year. (he is not a very fast runner) I think it is because he lost 50 pounds. We got out of there before Sandy stranded us!! Those of you wondering about exercising…
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101.8 fever
David started complaining of some pain last night and whining this morning. They just took his temp and it was 101.8. Now we are waiting for more lab work. This morning has been crummy. I got up early to do some work for meetings people are covering for me this morning and my laptop came up with a system error. So I am…
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Happy Halloween !
Hello guys and gals ! My wish for all the little ones - a safe evening full of adventure and excitement. I think of all the folks on the East coast and all their going through. I go in tomorrow finally for my 5th PET and 4th MRI w/contrast. Boy this yr has been an adventure....won't get results until the 19th, unless the…
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Tongue feels weird
My husband,Buzz, finished radiation/chemo on January 10th for a Stage IV BOT cancer. He still has his PEG and uses it for water and 2 cans of Osmolyte per day. Otherwise his oral intake is liquid. His throat is only slightly sore and his tongue is not hurting. However, any solid food(no matter how soft) feels weird in his…
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My father's update...
Hey everybody! I know, I know... I haven't been much here lately. Actually, I did not write for quite some time... The reason for that is the fact that I needed some time off. Off everything, off cancer and thinking about it, reading about it, writing about it. It affected me so much that I could barely live normal for the…
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Island Time...
Island Time ~ St. George Island... Island Time ~SGI Fresh raw Appalachicola Oysters, Smoked Mullet, crackers, hot sauce and a few cold beers ,,, Best Happy Halloween Survivors, John
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A day without a Smoothie
Everyone, 219 days post treatments and I can declare my first day without a smoothie or protein drink (at all). Frosted flakes with half-n-half, broiled chicken, mojo potatoes, almond joys, snickers, cake, cherry pie and a ham sandwich and I may not be finished yet, I might need some food to make it more balanced. Granted…
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Another day at Markey
Just had our rounds with the oncology people. David's chemotherapy and radiation has been put on hold. They do not think he is well enough to undergo treatment at this time. Their goal is to get him taking enough nutrition and liquid through his PEG. He has been put on the continuous feed pump and started at 10 ml per…
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First Treatment
I have stage 3 tonsil cancer on left side with left side lymph node involvment. I had my first dose of chemo/cisplatinum this morning and my radiation this afternoon. I had a little reaction to one of the anti nausea med that they tried to give me through the iv (zofran). Once the reaction was dealt with, we continued with…
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Need relief for tongue radiation tx... (Fentanyl lollipops, popcicles?)
Hi Everyone, Week three is complete today! 4 more to go.. We've had a rough go of it this week. Since he is BOT radiation,(no surgery) his tongue is really tore up. As most of you saw on a previous post, they refuse to put lidocaine in his MM for fear of aspiration to the lungs due to the condition of tongue, I guess. So I…
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Ups and Downs
I swear this mucous will be the death of me, I was doing pretty good early last week, then my ONC thought she saw some thrush and started me on an antibiotic and anti fungual, both of which made me vomitit and nauseas, next day radiation oncologist loook in my mouth didnt see any thrush, told me to stop taking the…
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Ups and downs
Hey everyone, I've been trying to stay positive and keep the humor that is so important. I had posted and deleted on this stupid throat of mine. On meds again to get rid of thrush...have had it in the past yrs ago from asthma inhalers. I need to be better for those scans Nov. 1st. According to my new team I should of…
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Update on my Mom
My Mom is doing great and ready to leave the hospital following successful laposcopic surgery for stomach cancer. Pathology report came back clean. A couple of hurdles over the last two weeks but at age 87 that was to be expected. She will be going to a care center for rehab to continue rebuilding her strength before…
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Headache
My husband just finished radiation #7 yesterday. Doing pretty well and still eating well...in fact seems like his appetite has increased. The radiation peeps told us at about the 10th treatment it starts to get alot rougher. He had a rough bout the first week but I attribute that to the chemo and since then seems like the…
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Vital Stim Therapy
I'm going on 8 weeks since my last rad treatment. Had my body scan last week-alls good. My problem is I can't eat. Anything with any texture to it causes immediate gagging. I can do liquids and puddings but after a visit with my Speech Pathologist and a "swallow test" she's putting me on a therapeutic feeding schedule and…
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NED
PET SCAN RESULTS ARE IN!! NED!!I haven't stopped smiling yet, thanks for all the prayers and support!
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BUDDY UPDATE
I know Dawn, "Sweetblood" had said some time ago she was taking a break from CSN, but has anyone heard from her? is she doing OK?? And the same for "Kimba", Marks Partner, "Doctor Mary", "ECKDENNIE" ETC. I may have butchered some of the names. Thanks Mike
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Two down, four to go
We start our third week of treatment tomorrow and on thursday he will be getting his second round of Cisplatin. Did fairly well with the first but am wondering will the second round be more difficult. Does the chemo have a cumulative effect? Also, doing ok with radiation. He is only having the right side of the neck…
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Has anyone had hypercalcemia
I am trying to figure out what impact hypercalcemia will have on his outcome. He has stage IV BOT cancer. He had a 4.5 cm cancerous tumor removed in July 2012. That lymph node showed extracapsilar spread. A BOT tumor removed September 19 with clean margins. He is scheduled to start chemo and radiation on Tuesday. As of now…
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Pregnancy after cancer?
My husband and I are ready for another baby. Seems simple enough, right? Oh to have the days back when a decision like this would be simple and cancer played no part in the process! I finished treatment in June, only radiation no chemo. I had a clean MRI and chest x-ray. So far every thing looks good. I visited my OBGYN…
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ROLL CALL, JANUARY 2011
Roll call was established a couple of years ago so individuals can briefly view the status of all who were treated for head and neck cancer. Only names of those who enrolled will be listed. An update will be provided in January and July of each year. In the past, I included the status of the individual. This takes a lot of…
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Beach Bound ~ Florida Panhandle - St. George Island...
I just wanted to wish all of my buds gals/guys and Abi-Normal Clan a great week-end. Shelley, Kali, Jazzy and myself will be beach bound for a week.... Azz in the Sand, Toes in the Water.... It's our anniversary week, and a time to relax and reflect. Just know from myself and the several other veterans here that you going…
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Oh, what a shinner!
Biopsy, check. Nothing conclusive, need to wait until next Friday. Took the bandage off last night--I don't know why I didn't think about that. At least the headache has gone with all of the meds I am taking.
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Lhermittes
Hello All! Just checking in, it's been a while. I've had computer problems, ugh! Anyway just wondering if any of you out there have been effected by Lhermitte's syndrome? I'm wondering how long it lasts? For those of you that are unaware of this crazy thing it is a sort of an electrical shock that goes down your back and…
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NEDDY O'NED
Had my first PET-CT scan on Saturday and ran home to look at the cd. Everything looked good to me --> NED Do it Yourself. I was not as brave as Skiffin to announce it to the public, though. Just came back from the doctor office who confirmed my self-diagnosis --> Officially NED. For the newbies: I was diagnosed in February…
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Advanced NPC NED
Diagnosed stage IV NPC in April this year, finished treatment in early October and my last PET scan showed NED! I would share some of my own experiences in hope that they could be useful to new comers. First of all, a little bit of background. I am a 40-year old male, was generally healthy before this. For stage 4 NPC, the…
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It just keeps getting better.
I sometimes feel a little guilty when I post the good blessing that have been given to me when so many of you are still going through the pain and side effect during and beyond your treatments. I've just come home from my visit to see my ENT at the University of Miami for my results of my CT scan last week and…
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vomiting
Poor David is having such a hard time. We start chemo/radiation on the 30th and he hasn't eaten solid food since September 18 and that was only soft foods. He has lost over 40 pounds. He is down to 139 pounds and to top it off he is starting to vomit. Not only coming out his mouth, but his nose as well. He is so miserable.…