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PET SCAN and NED
I had my first scan since finishing radiation and erbitux in July, my Onc went over the results and they came back NED. I was so happy that I actually was crying in the doc's office, the results were just too much. I look at this sight all the time for the great information and the inspiring people that respond, I am so…
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PEG Tube
Told I can not eat the day I get my Pet tube in. Do any of you know when you can start eating again and if there are any restrictions. I have a men's breakfast the next day should I cancel?
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Adenoid Cystic Carcinoma Right Submandibular Gland
Hi all. My name is Luke and I was just diagnosed with ACC and I am looking for others with this type of cancer. I have been reading lots of your stories and you all seem so informed. I am scheduled for selective neck disection 11/12/2012 and rad treatment after. There is so much info (not much positive) out their that it…
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Sugery scheduled
Surgery is scheduled for 7:15 tomorrow morning. (Pacific time) I will have my right eye removed and a partial neck dissection. Just want this cancer out. I appreciate your prayers and support. I expect it to be a 10 hour surgery. My sister will post as soon as she is able. I know from the last surgery that I will not be…
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Some symptoms I have a question on. ?
Hello All. I wanted to ask a question if I may? I think I have been doing great. I finished rads on January 20, 2012 and all of my scans and monthly scopes / finger exams have come back normal / NED. I have been out cutting wood (to the tune of four cords now. A cord of wood is 4ft deep, 4ft tall and 8ft long) ....I feel…
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New delays
We were supposed to start chemo today, but the chemo inc thought David was not healthy enough yet. She has postponed his first treatment until next Thursday. He was supposed to do radiation today, but the machine had a glitch. After freaking out about wearing the mask, then they told him they would have to start tomorrow.…
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Ear pain during tx is intensifying..
Has anyone experienced ear pain (sometimes both) during tx? He had some pain before even starting tx and now it's getting worse. Mostly effects the side that is getting radiation. It hurts so bad when he has to cough up the mucus, he plugs both his ears to help with the pain. He's mentioned this to the team at the hospital…
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Neuropathy is getting worse....
at least in my hands. Does this just continue to get worse, or does it peak and then start fading away? It's hard hanging onto something, and nearly impossible to pick up small things...like I'd have a hell of a time picking a dime off a hardwood floor. Makes it hard to write, and even put on mascara...At first it was just…
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Happy
Last Tuesday, I had a cat scan to determine if the spot on my lung ( since November 2011 ) has changed any. Went for discussion today, my lung Dr. says the spot is exactly the same, no growth or change...I don't have to go back for 6 months and that will be an xray. He also admitted He may have jumped the gun on dx of…
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new here
Hi, im Alan and i have been reading a lot of these messages over the past week and finally decided to join. Lots of wonderful advice and encouragement. I need all i can get. I'm stage 3 SCC base of tongue, only one tennis ball size node, none others affected but no primary was found. Tomorrow is #15 rad treatment with 15…
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Just starting
I am going to be starting a combination of chemo and radiation in a couple weeks. Doing chemo once a week and radiation 5 days a week. They suggested that I put in a PET tube. I am having mixed emotion on if that's a good idea or not. Any advice would be appreciated. I started juicing to get used to that, and in my opinion…
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thumbing my nose at the beast
hah! not gonna knock me off so easily, you ****. 3 months after tx ended...PET scan still showed a hot spot in my throat. two weeks after that...my jaw/neck swelled up and the trismus worsened (was barely able to open my mouth). my onc was out on a two-week vacation, but the ENT doc found necrotic tissue deep in my throat…
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Help with Cancer Needs After a Natural Disaster
Hi Folks...wanted to share this information: Frequently Asked Questions for Cancer Patients and Their Caregivers Even during major weather events, the American Cancer Society is there to offer patient services and programs. People in areas affected by storms who need American Cancer Society services should call our…
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Newaround here...
Hi, My name is Kylie- I live in Maumelle, Arkansas (just north of Little Rock) and I was diagnosed with a stage 3 Sarcoma in my right maxillary sinus on June 29, 2012. I feel blessed that several circumstances came together and I was seen by the Chairman of the department of otolaryngology- head and neck surgery-at the…
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My 89 yr old Dad
WE will soon be helping our Dad make decisions on treatment and I may be coming back here to ask opinions of all you wonderful survivors. My Dad's health is good. Very active driving, mall walking, bowling, grocery shopping, bowling, laundry, some yard work, getting meals ready with my Mom (who is doing well with CHF but…
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Bleeding from the mouth after chemo treatment
I usually get me chemo treatment on Tuesday, by Friday I am suctioning out blood from my mouth. Does anyone else have this problem. I have a peg tube, i cant take anything by mouth.
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calling all amateur Oncologists (or even real ones if any are hanging around)
Ok, just to recap I'm SCC BOT Stage 1 w/n2c. Just finished Induction round 2 and all pain, swelling and visual (throat scope) of tumor negative. So, the gold standard treatment is (if no surgery) Induction Chemo followed by 35 RADs w/wo more chemo. So, here's my question, surely there have been other protocols tested.…
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HPV+ ???
When I asked my dr if my tonsil cancer was HPV+, she said that there is "varying degrees" of HPV+. Apparently, some came back positive and some negative. Has anyone else tested not completely positive for HPV??? What does this mean?? Dr. said that there are trials out there right now but not enough data to prove that lower…
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JUST CHECKING IN
Hi everybody just wanted to check in i have been doing good back to work since September running my landscaping company and i am very happy to be at work,working out and enjoying time with my family lawn maintenance is starting to slow down so i'll have more time at home woo hoo so far the scans have come back good ct went…
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Catching up
Haven't been on the board for awhile so thought I would catch up. I had to take a break after two fellow travelers passed on. Jim is doing great. Doctors are anazed. Jim's new oncologist gave him less than a year to live which devestaed us. We haven't told the family. We then decided to try the Barley Max and carrot juice…
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Metasize Squamous Cell in the lymph node in neck - radation 15 days not able to eat anything
I am deseperate and looking for any suggestions. My husband has finished chemotherapy and is now undergoing 38 rounds of radation on the throat and neck. he has lost 70lbs in over 4 weeks and is refusing to eat anything. Says everything taste horrible and is refusing to eat. the doctor does not want to do a feeding tube…
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My Day of Diagnosis Story
I post this NOT as a "negative" but for any and all who are recently diagnosed and are overwhelmed. You are not alone. Now you "hunker down" and fight for yourself, family and loved ones who need you. You get all the time you can and you love those who love you. This story depicts me at one of my worst times, and today I…
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Nausea
My husband received second dose of Cisplatin on Thursday along with the usual antimemitics(Amend, steroids, fluids) and then Zofran and Ativan for at home. With his first dose of chemo he did fairly well but this time is very nauseated and unable to eat or drink anything of consequence since yesterday. He had fluid…
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COULD USE SOME GOOD MOJO AND WHATEVER ELSE YOU CAN OFFER
6 weeks sure has gone by in a flash since I started my latest treatment for my recurrance of SCC. After my Chemo, I go for my first of my every 6 week CT Scan with contrast to see if the treatment is working. Of course would love to hear "your tumors have dissapeared", but will also take anything from they are shrinking to…
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Brachytherapy
I underwent IMRT and Erbatux in May-June-July and the pain went away in June and returned mid September. They did an MRI and biopsy verifying live cancer cells. They did a PET/CT scan and the tumor is there, but has not spread. Now, I've had a Med Port installed and they commenced Wednesday to start TPF chemo:…
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Boy, the last three days were a surprise
As I've been recalling I have just started Induction Chemo. Had my first treatment last tuesday and took the pump off on Friday. Since then, everything has been way downhill. Seems I have a bad case, but a very normal set of side effects. Turns out all the anti-naseau drugs they have been giving me tied me up with a bad…
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HNC- Carcinoma at right Upper Alveolus
Seven days back , through series of tests.i have found out that i have a malignant tumor. Initial indication was a gland swelling below the right side end of the jaw.The gland swelling has been initally observed in Jan2012 and consulted an ENT who prescribed some antibiotics. The swelling again increased by Aug/Sep 2012…
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Brachytherapy
I underwent IMRT and Erbatux in May-June-July and the pain went away in June and returned mid September. They did an MRI and biopsy verifying live cancer cells. They did a PET/CT scan and the tumor is there, but has not spread. Now, I've had a Med Port installed and they commenced Wednesday to start TPF chemo:…
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Bleeding from the mouth after chemo treatment
I usually get my chemo treatment on Tuesday, by Friday I am suctioning out blood from my mouth. Does anyone else have this problem. I have a peg tube, i cant take anything by mouth.
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Shooting pains on left side of head
I have completed my first 5 days of treatment. 1 chemo and 5 radiations down so far for left tonsil cancer. I am having shooting pains to the left side of my head which is the treatment side. Tylenol does not seem to help. Anyone else have this? Of course, I am freaked out that maybe I have cancer of the brain in addition…