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thumbing my nose at the beast
hah! not gonna knock me off so easily, you ****. 3 months after tx ended...PET scan still showed a hot spot in my throat. two weeks after that...my jaw/neck swelled up and the trismus worsened (was barely able to open my mouth). my onc was out on a two-week vacation, but the ENT doc found necrotic tissue deep in my throat…
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Help with Cancer Needs After a Natural Disaster
Hi Folks...wanted to share this information: Frequently Asked Questions for Cancer Patients and Their Caregivers Even during major weather events, the American Cancer Society is there to offer patient services and programs. People in areas affected by storms who need American Cancer Society services should call our…
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Newaround here...
Hi, My name is Kylie- I live in Maumelle, Arkansas (just north of Little Rock) and I was diagnosed with a stage 3 Sarcoma in my right maxillary sinus on June 29, 2012. I feel blessed that several circumstances came together and I was seen by the Chairman of the department of otolaryngology- head and neck surgery-at the…
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My 89 yr old Dad
WE will soon be helping our Dad make decisions on treatment and I may be coming back here to ask opinions of all you wonderful survivors. My Dad's health is good. Very active driving, mall walking, bowling, grocery shopping, bowling, laundry, some yard work, getting meals ready with my Mom (who is doing well with CHF but…
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Bleeding from the mouth after chemo treatment
I usually get me chemo treatment on Tuesday, by Friday I am suctioning out blood from my mouth. Does anyone else have this problem. I have a peg tube, i cant take anything by mouth.
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calling all amateur Oncologists (or even real ones if any are hanging around)
Ok, just to recap I'm SCC BOT Stage 1 w/n2c. Just finished Induction round 2 and all pain, swelling and visual (throat scope) of tumor negative. So, the gold standard treatment is (if no surgery) Induction Chemo followed by 35 RADs w/wo more chemo. So, here's my question, surely there have been other protocols tested.…
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HPV+ ???
When I asked my dr if my tonsil cancer was HPV+, she said that there is "varying degrees" of HPV+. Apparently, some came back positive and some negative. Has anyone else tested not completely positive for HPV??? What does this mean?? Dr. said that there are trials out there right now but not enough data to prove that lower…
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JUST CHECKING IN
Hi everybody just wanted to check in i have been doing good back to work since September running my landscaping company and i am very happy to be at work,working out and enjoying time with my family lawn maintenance is starting to slow down so i'll have more time at home woo hoo so far the scans have come back good ct went…
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Catching up
Haven't been on the board for awhile so thought I would catch up. I had to take a break after two fellow travelers passed on. Jim is doing great. Doctors are anazed. Jim's new oncologist gave him less than a year to live which devestaed us. We haven't told the family. We then decided to try the Barley Max and carrot juice…
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Metasize Squamous Cell in the lymph node in neck - radation 15 days not able to eat anything
I am deseperate and looking for any suggestions. My husband has finished chemotherapy and is now undergoing 38 rounds of radation on the throat and neck. he has lost 70lbs in over 4 weeks and is refusing to eat anything. Says everything taste horrible and is refusing to eat. the doctor does not want to do a feeding tube…
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My Day of Diagnosis Story
I post this NOT as a "negative" but for any and all who are recently diagnosed and are overwhelmed. You are not alone. Now you "hunker down" and fight for yourself, family and loved ones who need you. You get all the time you can and you love those who love you. This story depicts me at one of my worst times, and today I…
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Nausea
My husband received second dose of Cisplatin on Thursday along with the usual antimemitics(Amend, steroids, fluids) and then Zofran and Ativan for at home. With his first dose of chemo he did fairly well but this time is very nauseated and unable to eat or drink anything of consequence since yesterday. He had fluid…
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COULD USE SOME GOOD MOJO AND WHATEVER ELSE YOU CAN OFFER
6 weeks sure has gone by in a flash since I started my latest treatment for my recurrance of SCC. After my Chemo, I go for my first of my every 6 week CT Scan with contrast to see if the treatment is working. Of course would love to hear "your tumors have dissapeared", but will also take anything from they are shrinking to…
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Brachytherapy
I underwent IMRT and Erbatux in May-June-July and the pain went away in June and returned mid September. They did an MRI and biopsy verifying live cancer cells. They did a PET/CT scan and the tumor is there, but has not spread. Now, I've had a Med Port installed and they commenced Wednesday to start TPF chemo:…
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Boy, the last three days were a surprise
As I've been recalling I have just started Induction Chemo. Had my first treatment last tuesday and took the pump off on Friday. Since then, everything has been way downhill. Seems I have a bad case, but a very normal set of side effects. Turns out all the anti-naseau drugs they have been giving me tied me up with a bad…
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HNC- Carcinoma at right Upper Alveolus
Seven days back , through series of tests.i have found out that i have a malignant tumor. Initial indication was a gland swelling below the right side end of the jaw.The gland swelling has been initally observed in Jan2012 and consulted an ENT who prescribed some antibiotics. The swelling again increased by Aug/Sep 2012…
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Brachytherapy
I underwent IMRT and Erbatux in May-June-July and the pain went away in June and returned mid September. They did an MRI and biopsy verifying live cancer cells. They did a PET/CT scan and the tumor is there, but has not spread. Now, I've had a Med Port installed and they commenced Wednesday to start TPF chemo:…
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Bleeding from the mouth after chemo treatment
I usually get my chemo treatment on Tuesday, by Friday I am suctioning out blood from my mouth. Does anyone else have this problem. I have a peg tube, i cant take anything by mouth.
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Shooting pains on left side of head
I have completed my first 5 days of treatment. 1 chemo and 5 radiations down so far for left tonsil cancer. I am having shooting pains to the left side of my head which is the treatment side. Tylenol does not seem to help. Anyone else have this? Of course, I am freaked out that maybe I have cancer of the brain in addition…
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Round Three
First, you cry. Then, eat ice cream. Now I'm ready to fight. Doctor called about 5 p.m. Biopsy is positive for cancer. He (and team) want to be aggressive, and I am in agreement. I have the appointment with the opthamologist tomorrow afternoon, another appt with vascular surgeon (skin flap) Tuesday and pre op and probably…
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light headed feeling that increases during exercise
I'm 40 years old and completed treatment for NPC 2 years ago. My treatment included neck dissection with the removal of 25 lymph nodes, 5 weeks of radiation with 5 weeks of Cisplatin and then 3 months of 5FU. I have many side effects from the treatment but I have one that I can't figure out and wanted to see if anybody who…
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Maintenance chemo like Erbitux
Happy to report I had my first clean PET scan and last chemo last week. I'm still on my 5FU fanny pack until Monday, but so glad to be at the end of treatment! My chemo doc is researching putting me on a maintenance chemo like Erbitux. Of course I'm hoping I don't have to do this, but what from he tells me about Erbitux…
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KFC/Long John Silver? No Help, Save your money if you can eat out
Hi, Its been a while since I've been here. I've been doing pretty well, thankfully. My main issues are the aftereffects of cisplatin/radiation but it has been manageable. Thank God! I am writing because of my profound dissapointment in the company KFC/Long John Silver. I did go through the drive through yesterday and…
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Breathing test
Finally starting to feel better following my visit with Mr Pneumonia. Yesterday I had a test done at the local hospital to measure my lungs somehow. Shoot - taking the test tired me out more than anything. Haven't gotten the results yet but last night my GP Doctor called (he scheduled the tests) and they have advanced my…
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Going home
Today has been one of those very weird days. It started out with gagging and dry heaves at 5:00 am. At 9 we had a room full of doctors discussing our new treatment plan. They have decided to give David a nausea patch and then several other nausea medications. He still will have roxycet and they are increasing his Zoloft.…
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Scans today
Hey all ! Will be on my way shortly to the U of M. I'm excited to get these over and done with to get there uptake on where I'm at. They started out being my second opinion, and now are my primary onco's. I was looking through paper work for insurance purposes...and my other medical onc has passed me on permanently.…
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Getting tough
Think today must have been a turning point for my husband. He just completed his 13th radiation and today is worst day so far. Been doing ok but now today has alot of throat pain and just doesnt feel well. I am thinking from here on out it's gonna be a bumpy flight plus he has chemo on Thursday( his second Cisplatin). He…
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National Family Caregiver Month
once again, we thank you. ---------- National Family Caregiver Month National Family Caregivers Month (NFC Month) - observed every November - is a nationally recognized month seeking to draw attention to the many challenges facing family caregivers, advocate for stronger public policy to address family caregiving issues,…
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What should we expect with getting PEG, Types of PEG's, Care, and How to use?
We're expecting a PEG to be placed soon. Can you tell us how to expect this to be placed, what types there are, how are they used with putting food in and is it limited to just Ensure/Boost type products, or can you used blended foods you make. And also, what kind of care(cleaning/bathing) should we expect?
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Busy day at Markey
David is wore out from all the people in and out of his room today. He had a dietician, 9 doctors at rounds, hospital staff, someone took him for a CT scan, someone came to draw blood. Then you have his hourly visits from the nurse and tech. The doctors wanted new CT scans to rule out any new masses from his head through…