SCAN UPDATE
luv4lacrosse
Member Posts: 1,410 Member
Well, what a difference 6 weeks makes. 6 weks ago my first every 6 wek scan for the clinical trial I am on revealed that the tumors in my lungs had not shrunk, but did change in appearance. yesterday's result was that the tumors have all but gone away, no resolution, noting recognizable.
I am in shock, and this has not yet really set in. I still have to go over the results with my Oncologist and the clinical trial doc's but feel pretty good that halfway through this, the tumors are almost gone. I guess this is still also good for the tumors in my Lymphatic system in my Mediastynum, as they are still too small to show up on a CT and were only revealed on a PET. Maybe those have shrunk too.
Thanks to all of the good mojo, and feedback from others who have had success on Carboplatin, Erbitux and 5FU or a combination of them.
Still not curable, but I will take the good news anyway.
Best!!
Mike
I am in shock, and this has not yet really set in. I still have to go over the results with my Oncologist and the clinical trial doc's but feel pretty good that halfway through this, the tumors are almost gone. I guess this is still also good for the tumors in my Lymphatic system in my Mediastynum, as they are still too small to show up on a CT and were only revealed on a PET. Maybe those have shrunk too.
Thanks to all of the good mojo, and feedback from others who have had success on Carboplatin, Erbitux and 5FU or a combination of them.
Still not curable, but I will take the good news anyway.
Best!!
Mike
0
Comments
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Amen!
I say take that news!! Keep positive....one day at a time...just as you've told the rest of us.
0 -
Steady forward march !
Mike,
Hurray for a smack down on the beast ! I intead on giving it a good punch in the nose too ! I will be writing down what you have posted for my team...for after surgery. God bless ! Katie0 -
Okay, Mike...cureitall66 said:Amen!
I say take that news!! Keep positive....one day at a time...just as you've told the rest of us.
I read this post after posting about disability. Not that I would change anything about that, I am SO HAPPY to hear that your scans showed improvement!
Randy just started today with a new trial - randomized to MEHD7945A. All palliative. We'll take it.
We wish you good luck, mojo, prayers, ALL OF IT, and to live life as long and as well as possible.
Take care...
Lynda0 -
WHOO HOO!!!
Oh Mike, this is wonderful news....I am SO relieved for you! I gotta tell you, I read this, then I had to wait and wait and wait to respond...(site is moving like molassis)...it was driving me crazy cuz I wanted to congratulate you fast...not wait 30 minutes for this thing to change screens....LOL
Treatment is working...take the good news and run with it...
p0 -
Wonderful Newsphrannie51 said:WHOO HOO!!!
Oh Mike, this is wonderful news....I am SO relieved for you! I gotta tell you, I read this, then I had to wait and wait and wait to respond...(site is moving like molassis)...it was driving me crazy cuz I wanted to congratulate you fast...not wait 30 minutes for this thing to change screens....LOL
Treatment is working...take the good news and run with it...
p
It is not yet your time Mike. Spend it well and spend it wisely!!
It's funny how all of us as humans know we all will die one day ...but something about those of us who have actually received an RSVP in the spiritual mail / mental mail appreciate so much more the life we have .....
I say don't respond to the RSVP and show up when you are ready on your time!!! LOL
Great news,
Best,
Tim0 -
GOOD scan update
Mike,
I held my breath when I clicked “Scan Update”. My goodness what terrific news, Christmas came early for all of us. I am just so explosively happy for you.
I think of you every time I see my Erbitux freckles and hope all is well. Now I can check out your other post without fear.
Best,
Matt0 -
Very Good!!
Mike,
What a wonderful relief that must have been to hear. I am so happy you are getting some good news here on the second trip.....
We all love you and are praying and pulling for you.....
Keep posting the good news.
Jim0 -
Awesome!Hard12Find said:Very Good!!
Mike,
What a wonderful relief that must have been to hear. I am so happy you are getting some good news here on the second trip.....
We all love you and are praying and pulling for you.....
Keep posting the good news.
Jim
I knew it! Like I said my dr swears that erbitux is an amazing drug for this type of thing. I am so happy for you!!
You will continue to be in my prayers.
Billie0 -
Help Me!
MIKE!
Can you tell me anything about the clinical trial. Do you know its ID number or title. Who is it's sponsor. I have lung metastasis and looking for/at anything. Rick.0 -
Wow, I just can't believe it. This is wonderful!!!!!!!NoDuck said:Great News Mike!
Keep fighting the good fight! You are a winner!
Deb
Great news, it made me so happy! Just keep on fighting, hoping, praying and enjoying those battles you win!0 -
CLINICAL TRIALToBeGolden said:Help Me!
MIKE!
Can you tell me anything about the clinical trial. Do you know its ID number or title. Who is it's sponsor. I have lung metastasis and looking for/at anything. Rick.
Rick, I will try to find some specifics for you. The Trial I am on involves 3 drugs, and one of them is manufactured in Europe, and the other is manufactured in the states. I want to say it is the Erbitux. The trial is following I think two criterias.
The combination of drugs, Carboplatin, Erbitux, and I think they are studying the addition of the 96 hour infusion of 5FU.
The other criteria i think is how simillar are the drugs that are made in Europe VS the USA.
I am being treated at Alvin Sitemann Cancer Center, Barnes Jewish Hospital, Washington University in St. Louis, MO. I see my Onco. Monday and I will see if I can drill down for more info. I do know the study I am in, involves 230 people worldwide, and 21 are being treated at the same place as I, so I assume they are a big player in this particular study.
Wish I could offer more, but they really do not even disclose very much to me regarding study details.
My particular METs originated as SCC of the R tonsil and 34 nodes in the right side of my neck. it spread to the lower right lobe of my lung and also to the nodes in my Mediastynum, which is not good at all.
Best!!
Mike0 -
Love it.!!!VanessaSLO said:Wow, I just can't believe it. This is wonderful!!!!!!!
Great news, it made me so happy! Just keep on fighting, hoping, praying and enjoying those battles you win!
Fantastic news Mike,
This is the kind of post I love to read, may you continue in the
right direction with the rest of your treatment.
God bless
Tonsil dad,
Dan.0 -
Happy that you received goodCrazymom said:Congrats
Great news! Stay strong! Ann
Happy that you received good news. Hopefully it will make your holdiday celebration alot sweeter. Enjoy the good news and thank God for Siteman.
Joan0
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