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Head and Neck Cancer

Treatment plan finalized!
This past Thursday my MO presented by case to the Tumor Board. I asked to attend and was really impressed that around 16 doctors (lost count) were all positioned around the long table and the projector was going through the key PET-CT scan. There was much discussion, questions asked, options reviewed, but at the end the…
In the hospital
Well, he finally told the doctor today, he feels weak and can't keep up. With one rad left for tomorrow. Dans done really well, but he needs some help across the finish line. He's sleeping with the meds, they are working on getting his meds realigned, hydrating him, and getting the pain level down from an eight. Maybe we…
ZESTING
Anyone have info on eating outer layers of citrus fruits for cancer?
I missed you guys
Sorry I haven't been posting much lately or joining conversations. I have been reading people's posts, but I just haven't had it in me to reply. My life is so complicated and I often find myself just surviving the days. David hasn't made a whole lot of progress, which leaves me doing all the chores and paying bills. He…
The official half way mark!
Hello Warriors, Well, today is treatment 17 of 33 and Dad announced he couldn't really taste anything, but we are so happy he gained 1/10 of a pound from last week. Means he's "holding" and that alone is a miracle. Hair on the side of jaw and part of mustache is gone...no biggie. Skin still looks good, but he's slathers on…
How Long Has This Been Goin' On'
Remember that song by Ace? A question I posed in my first thread post, I'm posing to the group. Two part really. How long was it from the time you were first diagnosed until you began treatment? Also, from the time you got the mask and had the simulation done until the treatments started? I had my visits with the radiation…
Update on Dad
Hey everybody! I read you every day but I hardly find time to write something due to pretty busy weeks at work (I work in Finance dept. of City Municipality and it's this part of the year when Finance has the most work to do). My dad is now 4 months post treatment (for those who don't know: BOT cancer with lymph nodes,…
Pet Photos..
We have done a spin of this in the past, changing out avatars to our pets for a week. Once even changing our avatar to our caregiver or spouse...kinda fun, but a little weird, LOL. Anyways, with Rick's golden, Matt's calico (I believe), and I know Phrannie will post up her new boy and maybe her bestest sheppard...Maybe…
Scandi Shakes?
Having a very hard time finding this- is it sold over the counter? Have been to local pharmacies and grocery stores- they don't sell it. Tried a local medical supply store as well. Ordered online and they said 2 month back log. Any recommendations where to buy? Can you buy this stuff over the counter?
Pay up front?
I was due for radiation and chemo tomorrow 1/15/2013. The chemo people called to say they will require $1700 prepay up front for first week and $290 per week after that for Erbitux (about 7 visits). Up to that point I have had 6 operations and 11 teeth extracted along with many visits to various doctors at $40 per visit…
Amy's Yummy high protein (20 grams per 4 oz) mashed potatoes
8 each potatoes, peel and boil *8 scoops protein powder *2c. heavy cream *1c. whole milk *4 eggs Salt and Pepper to taste * Mix all ingredients together in a sauce pan. Heat in a sauce pan constantly stirring to avoided curdling and lumps. When mixture becomes warm and thin custard like remove from heat. Place potatoes in…
Free Iso Source Vanilla Formula/Sacramento
I have 2 cases of unopened Iso Source vanilla formula free for the taking. This is to be used with the feeding tube. I live in Sacramento. If you are interested and can come pick it up, feel free to private messege me through this board. Thank you! Joan Thompson
Erbitux?
Jeff was switched to Erbitux for his last 3 chemo's since he had the ringing in the ears from cisplatin. Before they gave him Erbitux, they infussed him with benadyl. He had it at 9:30 in the morning and slept most of the day. Then from 4 til 5 in the morning he could not pee. Anybody else have this issue? I know morphine…
1 Year NED!
Happy to say that I had CT w/contrast this morning and results showed NED! God is Good :-) During my journey and the dark days of radiation and chemo I lost sight of the goal and everytime I hear NED it reminds me of why I went through it all. To those beginning or in the middle of the journey, don't lose sight of the…
Energy Level
Hello, I'm 9 weeks post radiation and chemo. I'm feeling much better than I was. Able to have to quality time in my days now. I never was a person with a lot of energy before cancer. I seem to get more tired more easily now and think maybe I'm expecting too much from myself. It's easy to try and go back to the amount of…
Out of the Mouth of ENTs
cometh I dont know, maybe he is just a slow healer?? But its NOT CANCER......................... Back to the beginning as I know it, I was in recovery but Diane said the Doc came and and told her she took multiple biobsys in different locations and theres no cancer Thank God, although she reviewed the cancer under glass…
Rang that Bell!
Finally, Dan rang that bell this morning! And brought that mask upstairs in the hospital To his room where in being pushed in the wheel chair down the hall of oncology during rounds, he received a few atta boys and cheers. He is thrilled! Although the IV drugs finally caught up to his need for sleep, and that's all he's…
Bump in the road
This has been a long and slow recovery. I am half way done with radiation and yes, chemo this time. Sunday, very early in the morning, my surgery site (eye area) was beginning to ooze. Got some medical help later in the day--doctor took a culture to send to lab, antibiotic and opened up the area a bit for more drainage.…
Not Good New for Best Friend's Husband
Hi all: Steve (best friend's Beki's husband) had his broncospy yesterday and it is cancer after all and 4 lymph nodes involved are also cancerous. The preliminary diagnosis is adenenocarcinoma. However they feel it is contained in just the one lung and will have brain scan later this week to make sure it has not spread…
An alternative for your feeding tube
While they may work well for most people, the Novartis products that were prescribed for me I found wanting. I have seen on other forums that many have concerns about the nutritional value of these canned feeds. For me they were almost toxic. I felt sick from them. They were my only source of nourishment so I had to find…
About to begin the Journey
Hello everyone. I'm new to the forum. Glad to have found you all! I'm 53. I've been diagnosed with Metastatic Squamous Cell Carcinoma of the Head and Neck with an unknown primary. The current diagnosis/classification is Tx N2b, MO stage IV. The cancer is in the lymph nodes on the left side of my neck and has spread to…
Kicking off 2013 with some changes!
I decided a couple months ago that it was time for a reboot of sorts. I had trouble feeling like myself again after the treatments ended in June. It was a combination of a lot of things: the tiredness, the side effects, reduction in the size of the company I worked for (and a corresponding huge change in my…
Off board for the past few weeks, but doing OK
Just checking in, I am almost 3 months post treatment and doing well. still only able to swallow thin liquids, and have wasted away to nearly nothing with the tube as my only source of nutrition. Even though I am tired most of the time I am contemplating a return to work (part time at first) because I reallly need the…
Happy New Year to all from a lately silent member
OK, well, since DrMary broke the silence with a posting about Vitamins and people ask about us, let me tell you. I have about a half hour before I have to pack up and go play hockey so that should give you an indication of how things are. First, for you new folks, I was HPV+ STC tonsil and lymph node. I am just past two…
Getting CSN system well
Here is what I have done so far to get a hot cattle prod to the right place on the right person to get this site running well and getting the lost messages restored. I found the following contacts within the ACS IT organization. Jay Ferro - CIO Gabriel Lewis - Director Enterprise Data Center Keith Weller - VP…
Gentlemen, are you tired all the time?
I have been suffering from fatigue for years. I've been taking levothyroxine to combat my low thyroid levels and even that hasn't helped. Sometimes it is all I can do to drag myself up out of the chair to get going. I've been using 5 Hour Energy to get me going at times but I really don't want to rely on that. I was…
Off board for the past few weeks, but doing OK
Just checking in, I am almost 3 months post treatment and doing well. still only able to swallow thin liquids, and have wasted away to nearly nothing with the tube as my only source of nutrition. Even though I am tired most of the time I am contemplating a return to work (part time at first) because I reallly need the…
Vitamins
I checked the Superthread (thanks Sweetblood!) but didn't find this particular topic. Doug hasn't had a Boost nutrition drink for months (during treatment he was doing 4 daily and later would have one or two on busy days or after playing hockey). I'm thinking I'd like to make sure he's getting enough of the important…
Neck Cramps
Hello all! I haven't been in the forums in a looong time, but I know it's a great resource to turn to. Here goes. My hubby has severe, debilitating cramps in his neck that come on quickly and seemingly at random. He was diagnosed with neck cancer in May of 2011, had 12 rounds of chemo and 37 rounds of radiation that ended…
ENT Visit
Saw my ENT yesterday , scopef throat, looked inside mouth , felt neck , checked ears..all looks great... So I'm saying to myself , surely he will say I can come back in 6 months, instead of every 6 weeks ...nada 3 month return ... But heck that's better than 6 weeks. Next major appointment is my rad doc in march.

Head and Neck Cancer

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