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R.I.P. Vikeman10
H & N Forum, Per Coleen Sewick’s post on their CaringBridge site, Randy Sewick (Vikeman10) passed away Saturday morning. He made many hopeful posts here very recently and for those who have or haven’t read his Journal entries he was a gifted writer. My prayers go out to his family. Matt
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Healing tips anyone?
For those who have finished treatments does anyone have suggestions on jump starting the healing process? Jeff finishes rad the 31st and chemo this friday. The mouth is so cut up, red, sore, on fire and just plain beat up. You all know what I mean. He was wondering if anyone had suggestions. He uses the muguard about 10-12…
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Well, we complain when CSN is slow :) So thank you it's seems to now be fixed :)
Well the last two weeks the CSN site has really been easy to get on and I have had no errors or problems...and since it's our nature to complain when it's not easy....I just wanted to say a big THANK YOU to those who have worked hard to get us back up. I have been busy with the ski season here in resort town :) ...so I…
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Meaning of TX and other x's
i see u good people refering to TX and such, what are u talking aboit,just a country boy here..
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Post treatment confusion
Diagnosed June 27, 2012 with T2N2CM0 Stage IV SCC (HPV+) primary right tonsil with left and right lymph node involvement. I'm currently 4 months post treatment and returned to work 3 Janurary. The first thing I noticed was the amount of confusion I experienced when I had to multitask. It was and still is evident during…
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Web chat on HPV/Head and neck cancer
Hello everyone, Saw this on cancerquest. It will be on January 24th at 12:00 p.m. A Dr. Mark El-Derry of the Emery Winship Cancer Institute will be having an online web chat about HPV and H/N cancer. Sounds like there will be a chance for asking questions and getting them answered. The link is below…
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CURE magazine
I came across a great resource for patients, caregivers and survivors while in my oncologist's office yesterday. You may have seen it, but just in case you haven't, it's C.U.R.E. Magazine (Cancer Understanding, Research and Education). You can get a free subscription at: www.curetoday.com The current issue has a great…
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sore throat and canker sore been two weeks of rad and 1 chemo so far still have 4 1/2 weeks to go fo
Hello, just new here and actually my husband is the one diagnose of cancer at the base of the tongue, actually we really dont know how he get it, he dont smoke and drink but one time he had a lump of his right side of his neck and since then he went check up. until confirmed it was malignant cancer stage 3. he's dont with…
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Healing tips anyone?
For those who have finished treatments does anyone have suggestions on jump starting the healing process? Jeff finishes rad the 31st and chemo this friday. The mouth is so cut up, red, sore, on fire and just plain beat up. You all know what I mean. He was wondering if anyone had suggestions. He uses the muguard about 10-12…
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My new Acronym
I just received the results of my every six week CT of my neck and chest. Instead of being NED, I am now being called NEMD. No evidence of Metastatic Disease. I am set to have my last treatment of my clinical trial on 1-28 of Carboplatin and Erbitux, and the continue on Erbitux every Monday for as long as it works.I guess…
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HPV Infographic from Mt. Sinai Medical Center
Nothing new, but it packs a lot of info. Can I Get Cancer from Oral Sex?
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Checking in, and with good news!
Greetings all. I've been away for a while, but check in to update almost everyday. I'm now 3 1/2 months out of treatment. 1st scope check came back all clear on Dec 10th. Yesterday I had my 1st PET scan and it also came back all clear. I'm as happy as I can be. Also had that darn feeding tube removed yesterday, after being…
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Pain Level 8
Since a week ago Friday (Jan 4), I've been experiencing an ever increasing level of pain. There are actually two pain areas/levels. About half of my back is at a Level 4, and there are at least two pencil-sized spots that average about a Level-8. Touching the Level-8 area always triggers that high level of pain. The…
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update on my dad - not good
I wanted to update all of you on my dad. It seems that he has really taken a turn and not in the good direction. Like I posted before this all started on December 29th when he fell two days in a row. He was talking srange stuff and keep thinking there were people in the house. He walking became very bad. When we saw the…
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Been away...trying to survive
Hey all...been a while since I posted.....I guess I was busy just trying to survive. I am 11 days out of TX. What a journey to get here......9 days in ICU...shingles...havent had food in my mouth for over 2 months, after 27 days of rads I freaked out and it took me 5or 6 days to get back in the saddle, lost 33 LBS and…
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nasal prosthetics
If anyone one out there wears a nasal prothesis can they please tell me how they cope with blistering around the base of the nasal area
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TPF - PF - induction chemo studies no more
During my warrior intel outings I dug hard into the whole induction chemo regime some are offered these days. What I found interesting was all the studies dried up around 2010-2011. I did wonder but had no idea at the time. The one key study I was looking for was the one that evaulated TPF sequential CRT vs CRT only. I did…
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KINCK IN THE ROAD - INFECTION
Update by Beverly's husband and sister: Saturday night, January 12, Bev's right eye ruptured at the lower portion of the incision sight. It had swollen Friday after radiation with infectious fluids and ruptured late Saturday night. Dr. Showalter came to our house Sunday night and took a sample for the lab, put in a wick to…
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How do we help?.....
Good Morning, Many here are the caregivers for those of us battling this beast. They are the voice of the individual going through this journey. My thoughts and prayers are with them all and I cannot even begin to imagine what it is like for them to see their loved one go through this ordeal. Moreso, facing the fact that…
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Post from Crispee1974 - Jaw Replacement for Mom
I'm reprinting a post from today from Crispee1974, so it doesn't get lost in the shuffle (it started as a reply to an old post): my mother is having jaw replacement surgery New she has had head and neck cancer for 4 years now, they said it started from her tonsils. she had a lump at the base of her neck but left alone…
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Nine treatments, eleven days or 232 hours (but who's counting)
I'm trying really hard not to fall into the trap that in that 232 hours (calculated from 6:00 PM today) I will be finished and I'll finally feel better. I know it's not true, if fact I'm sure I'm going to feel a whole lot worse. But, I WILL BE FINISHED WITH THE RADS AND THE CHEMO. No more early morning rush hour trips down…
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Hope For Those Struggling With Eating
I haven't posted in a while but I check in nearly every day. I wanted to post this great news-- Hubby ate THREE full meals today -- a Subway flatbread breakfast sandwich, beans, rice and chips at the Mexican restaurant, and two full plates tonight from the Chinese buffet. This is the first time he has eaten 3 meals in one…
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Home... Not a hotel, really in our house!
I was just reading the lastest news here, while laying in bed, listening to Dan snore lightly, and realized I forgot to post we are home! it was a long day yesterday. The doctors talked with the insurance company, and the sent the scripts to the pharmacy, where 4 of 8 were rejected! How do these companies reject via…
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I don't want to be a widow
I have hesitated to write this, but it is on my mind so often. I follow three caring bridge pages and as of today, David is the only one still alive. First BarefootBob and now Randy. As I read the final journal entries from the spouses I just hope I can have the grace and love for my husband to be able to speak so…
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Nick
There use to be a kid on here, Nick & some numbers, I've wondered a lot how hes doing...He doctored at The James in Columbus, Ohio, which is where I go....anyone remember Him or know how He is?
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something that I don look forward too!
Good Day all.. hope all are fine!.. well i am here to inform that my dad cancer is back and now he going for his 2nd line treatment with single agent of drug Taxotere. the latest scan show all the tumour in his lung / liver has grown both close to 4cm. And there some new spot.. in 2005, he was dignose with head and neck…
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Has anybody Heard From
Mike aka Chefdaddy, I know Hondo kept in touch was just wondering. The last I heard his son had taken a turn. Any info would be appreciated. Thanks all Dave
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Life after Cancer!
Good Positive story!!! :) http://shine.yahoo.com/secrets-to-your-success-20120120/secrets-success-kristen-trattner-200500932.html
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Relay For Life....Smashing Out Cancer! ~ PHOTOS
Our Relay For Life's Biggest Fundraiser
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PET/CT
Hello all, Hubby had PET/CT and separate Ct at MDA yesterday. We were supposed to go for bloodwork and onc appt. today, but it has been changed to the 28th. This will follow the lung biopsy scheduled on the 23rd. A "chemo chair" has been reserved for him on the 28th in case the onc wants to start infusions. He has no port…