-
How's Letumwork doing?
Just thinking about you. Hope you're doing well. Halfway? We are still right behind you. Helen
-
Just to say HEY
I just wanted to jump in here and say hey to all my CSN family. I know I have not posted in a while and feel bad when I think back to all the folks that responded to my post. Please be aware I read most every post and pray daily for all of you. Im so glad to know that some of the regulars are still offering their advice…
-
Cisplatin Overdose
"Phew" feel like I have just been through a washing machine and the dryer. Just over 2 weeks ago I had the first dose of Cisplatin followed by wearing a pump (with Cisplatin) for 5 days, the doc thought I was strong enough. I was supposed to have something to boost my white blood cells as well which was forgotten, that put…
-
Things are progressing
Well folks been some happenings around here in the last week or so. The big item is that I had my G-Tube and Port removed. More of a psychological than physical change. It just felt so damn good to have my body back to where it was before all this started, although much thinner and almost no muscle. It's almost hard to…
-
Kent Cass...Clean PET/CT
Just wanted to post a quick bit of news.... Kent sent me an email... He just had a PET/CT and is still clean, kicking and pushing forward.... BELIEVE, John
-
Sensitive to Cold Drinks
Hi all, Rob just finished Rad #10 and he has lost all taste. A little fast we thought but everyone is different. He is complaining of a sore spot on side of tongue although radiation is tonsil, I am sure this is normal also Is sensitivity to cold drinks a problem? He has never really been sensitive to hot of cold foods and…
-
Scan Today, Results Next Week
Hubby got his scan today. ENT said significant thickening and hardness in his neck on both sides, moreso on the left. Palpation and visual good but he said he didn't want to tell us not to worry about the rapid change in his neck without a CT scan. He said possible it is result of radiation but did not want to take any…
-
I Feel Like A Really Bad Soap Opera
Hubby's stay at home was a very short one. Our son had styed until about 8, & I had to call him back at 10 to move his dad to the commode. He is absolute dead weight & our son could barely do it. I had noticed a considerable swelling throughout his whole body when I brought him home, but he wanted home so badly. When he…
-
Surgery and neck dissection complete, 36 rads to start in 3 wks
Hi all, its me "first IDC now SCC. Well I had my surgery on my lower lip and chin with neck dissection on Wed for the oral SCC. I will have 36 rad treatments when I am healed, the rad onc said in about three wks. When he was explaining the head and neck mold and mask fitting I thought my husband was going to pass out.... I…
-
NED after 4 years!
I got the word yesterday that my recent CT scan showed NED! It's been a very long and rough ride, but those of you who are in the "Battle zone" right now should know that this is a winnable fight for a large majority of HNC patients and their caregivers. The new-normal of cancer survival is well worth the fight. While I…
-
Treatment and Pets....
When Marcia and I went to the chemo class, one of the things brought up was pets. With a cat, they said we could interact, play, pet, cuddle etc., no problem. They also said not to allow them to sleep in the bed with us. Socrates sleeps with Marcia and occasionally will sleep at my feet. As I sit here typing with the boy…
-
Need some encouragement
Hello all! I am new to this, so I am not really sure what to do. I am beyond thankful to have found this site. Just reading all of the posts give me great comfort. So yesterday my dad went to the hospital to get a golf ball size lump on his neck checked out. The results of a biopsy came back to be SCC. It is still very…
-
State of 420 in California
As I am fortunate to live in the Golden state of California where everything grows like crazy and crazy things grow too, I decided to post an official 420 post on my experience even in the hippy state. My goal is to use all tools to battle cancer including MJ. I am not a user nor have been but there is clear evidence in…
-
Newly diagnosed
I was just diagnosed today with T1 SNUC. Had surgery on January 31, 2013 to remove nasal obstruction. What should I do next? My doctor is very unfamiliar with this and he is actually researching information also. Any help would be appreciated! My doctor thinks I will need 6 weeks of photon radiation 5 days a week.
-
Steroid Side Effects
I wanted to share what happened this week concerning what has been determined as a side effect from steroids. I was given three drugs to help control nausea from the chemo. Ondansetron, Dexamethason and Prochlorper (breakthrough nausea). Dexamethason and Prochlorper are steroids. I was also given Emend during infusion with…
-
Help with dentures
Hello everyone. my mother just finished her chemo and radiation for throat cancer. She had to have the rest of her teeth removed before they would start the treatments. Now she needs help paying for the dentures. She has medicare but they do not pay for anything. Does anyone know of places that might help her out? thanks…
-
Fishmanpa...
Haven't seen you post for a couple of days. Just want to let you know you're being thought of prayed for. I know things are probably rather rough for you at the moment. One foot in front of the other. You can do this!!
-
Vivian
I finally just caught up with my weekend emails and saw that there was a caring bridge post in your journal. I just wanted to tell you that you amaze me......for so many reasons! That's all :-) I know God has something special planned for you, I just know it. With love, Billie
-
feeling sorry for myself
Hello, I'm new here but after reading some posts I finally realise I'm not alone. I had been cancer free since last June (Uvula) but just found out that the big C's back with a vengeance. So now I need my soft palate removed and replaced with grafts from my forearm and due to a necrosis of my jaw my teeth will probably…
-
Wouldn't You Know It!
Now, I am sick. Started with the achy krap & fever yesterday afternoon. I left the hospital immediately and came home & went to bed. Alternated between fever, chills and dizziness all night. Drinking OJ right now. I really don't need this. Hubby may come home on Monday with IV antibiotic, so I must get better. He had more…
-
One Year Ago
Tomorrow is the anniversary of when Hubby was first diagnosed with tonsil cancer. Seems like so long ago and seems like only yesterday at the same time. He has had one cancer free scan, that was in October. Next appointment is Friday and we expect more scans. Scanxiety set in early. Hubby noticed a knot in his neck about…
-
ok so...
Hi everyone, Just thought id tell you where I am at today, after mealtime therapy(which they have become) of oatmeal and chocolate pudding, we scheduled my next swallow study for May 7 @ 8am followed by 9am therapy to discuss video. If all goes well I will be incorporating eating meals @ home into treatment and possibly…
-
ugh was told margins were not clear
It's me again, "first IDC now SCC" I had my follow up after surgery appt today. My surgeon told me my margins weren't clear on two place on my lip. One being close to surface, the other inside. She said she was going to talk to my team tonight at the tumor board meeting and is hopng my rad onc thinks he can kill the rest…
-
One Year Ago
Tomorrow is the anniversary of when Hubby was first diagnosed with tonsil cancer. Seems like so long ago and seems like only yesterday at the same time. He has had one cancer free scan, that was in October. Next appointment is Friday and we expect more scans. Scanxiety set in early. Hubby noticed a knot in his neck about…
-
appitite
sharon, does ur husband have an appitite? does food taste right to him? does food sometimes get stuck in his throat? can he eat anything he wants? i still have no appitite and food doesnt' taste right. it still gets stuck in my throat too. does any of this get back to normal? thank u 4 ur help w/my questions. God bless, dj
-
New Here
Hello all. I have been coming to this board since February of this year after my husband was diagnosed with unk primary involving a lymph node in his neck. Since that time, he has had surgery to remove the node while taking out 23 extra for a sample. Those were all negative. I remember thinking at the time how wonderful…
-
Kinda Personal (as in sex)
We were told by the Medical Oncology dept, that from time chemo is given and for 48 hours after infusion, we should not be kissing, sharing drinks, etc. because of the possible chemo being expelled through saliva, urine, etc. Now here is the question, should we use barrier type protection if we choose to get intimate? I…
-
I HAVE A PLAN B
I spoke with my Nurse Coordinator earlier today, and it looks like I will have to come off the clinical trial I have been on since early September due to two of my lymph nodes in my Mediastynum have grown greater then 20%. I do not have any new growth, which I guess is good, but hearing that my 24 plus week of good luck…
-
Asking for Prayers
Asking for prayers for tomorrows PET scan . I had a Ct scan a month ago and was told it was clear, then I found a lump on the top of my shoulder just above my colar bone last week so they took another look and there is "something " there so we are heading to San Antonio tomorrow for a PET scan . I will be having surgery no…
-
Skype ~ FaceTime
I just wanted to throw this out there for those of you that are pretty up to speed communication and computer wise... With technology and data speeds pretty good these days, communication is pretty great. Shelley (living in Florida), and her cousin (Melissa, living in Massachusetts), have Skype Saturdays..., cooking,…