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PET scan coverage... and hello!
I was thinking of posting a check-in over the weekend, and was reminded just now when I got the call that my insurance (Blue Shield) doesn't cover PET scans for surveillance for head and neck cancer, after the first post-treatment scan. I think the doctor is trying to find a way around it, but I'm overdue and I don't want…
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All My Special Friends
Your many prayers are working. Hubby was more alert today and understands partly whats going on. He's frustrated not being able to talk with the ventilator. Tried writing, but not good. Our son can interpret want he wants much better than I. He understands that our daughter is on her way & asks for her. The Nephrologist…
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ENT Visit - A Prayer Would Help
I am still stuggling with a hoarse voice and my chemo doc saying a week ago it could be a tumor. Thanks for all of your replies to my post about my doc's off the cuff comment about a tumor. I think he thought; not likely, but just his style. Anyway that and my continuing hoarse voice four and a half months out of treatment…
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With your permission
I will continue to be in the NED clan for now, no CT or Pet scan but did see the Onc/and ENT today,, she sent the fire hose down my nose and all looks good, gained 7lbs so the icecream is working. Just wanted to say thanks to all for prayers that I know we all do for our friends on this site and I have grabed a few of…
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1st post fear with upcoming pet
Three years ago my husband had swollen glands on the left side of his neck. A trip to our family physician resulted in a week of antiobiotic which did nothing. He was then referred to a local ENT. A biopsy was done whitch were inconclusive. Then surgery was done to biopsy. Area and some surrounding tissue proved to be do…
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Shaving after radiation
It’s been 1 month since my husband done with his radiation treatment and he really hates electric razor and wants to go back regulate shaving. When does he can shave regularly? Any advice will be helpful. Thanks Hetal
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Paralyzed by Fear - NO MORE = NED - UPDATED
When he told me it was NED it was almost like I couldn't hear him. For some reason, like never before in my life, (my service in the Army, my years of racing sports cars, the CT just 6 weeks prior, asking my wife to marry me :I, this one test got the best of me and for the life of me I can't say why. I'm very grateful to…
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thrush
what does thrush look like? is it white sores? does it get on the gums and jaws? if this is thrush, what can i use to ease the pain and get rid of it? thanks for any advice. God bless, dj
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Asking For Prayers, Please
My husband has taken a turn for the worse. I am in ICU with him & a nurse has brought me this computer to use. At 10 AM, he was wanting to get off the blood machine & get on with rehab. By noon, when I arrived, he had spiked a 104 fever & been moved to ICU. They think he vomited & aspirated. He is now semi-conscious & has…
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Alternate medicine
Today I had a friend of the family call to discuss "alternative medicine" vs radiation treatment. By the time I got off the phone I was in tears- do people think I want to see my husband go through all this treatment and Get so ill ?Do they not think we haven't thought and researched through everything out there? What do I…
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I'm Sorry, But I'm Just So Sad
I think the reality of my hubby's situation has just hit me real hard tonight. He sleeps fitfully as I sit by his bedside, mostly mumbling parts of drugged dreams. He can't sit up to urinate, so I hold the urinal for him as he lays. When awake, he is coherent. He sees what the near future holds. Social Services called…
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Dad Update Oncologist visit
Dad saw the oncologist today. It was not good and not bad. As far as the spot they saw on his lung at rehab, the oncologist knew nothing about it. Told me he did not see anything on the CT that he ordered a couple of weeks before that. He wants to wait for another 4 weeks and then rescan. If he appears stronger and…
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thrush
sorry
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So sad and lost and overwhelmed
Dad has been home two weeks and it has been a true rollercoaster. He seems so much worse then he did in rehab. He will only stay up and hour or two at the most when therapy is not there. He will work really hard for the therapist and they say how great he is doing, but when they leave it is nothing. At times he seems…
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Another Week: Treatment Goes On
Had yet another of my weekly trips to Seattle Cancer Care Alliance (SCCA), my home away from home. I also had an extra trip of Wednesday for a CT Scan. I saw the medical oncologist, himself, (rather than his PA). I see the medical oncologist about once every three weeks. The report of the CT was not back, but the MO reads…
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Monday is not such a bad day...
That's right, Monday is not such a bad day. I had my 5 week re-visit with the ENT surgeon who performed by second neck dissection in late March and was told that I was healing "fantastically" and that my tongue (site of the primary tumor) and throat were clean, clear and normal in all respects, and she said again "No…
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Bone Disease / cancer due to Radiation
Has anyone had any issues - side effects with their bones as a result of their cancer treatments? I ask as 5 years ago I had radation to my sinus / neck for Esthesionueroblastoma. Over the past 16 months my alkaline phosphatase levels (found in blood tests) are increasing and are in the "High" levels. Over the past 8…
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Jim & I scan results???
Jim & Deb....just checking in on your scan results and see how all is going ...... not that you have to share of course....just letting you know you are being thought of and prayed for.... Tim
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Lidocaine Viscous
Rob is in a severe amount of pain. He is taking only liquid Vicodin and it takes the edge off for about 2 hours. He just does not want to drink because it hurts so bad. This man was in tears today and he doesn't cry, ever. Wondering if anyone has used Lidocaine orally and did it help to numb enough to eat. We will be…
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NJ Shore is awesome another example of wonderful CSN folks
I had a wonderful conversation with Kari tonight. She is an awesome friend and wonderful listener. A wonderful example of the CSN family I have found here. I was very sad this weekend, but in our conversation I found a few moments of laughter I want to thank her for. One thing I wanted everyone to know is that even if you…
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Anxious NPCsurvivor -- turmeric / curcumin ?
Next week I am due for my first MRI after treatment for stage 2 Nasopharyngeal cancer (T2-N0-M0). I had 30 IMRT sessions followed by 3 Cyberknife sessions with concurrent Cisplatin (3 doses) which ended on July 1 2009. I didn't receive any adjuvant chemo. Recently, I have started becoming anxious that cancer has returned…
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Still here..
Hi all, I am still reading as many posts as possible, but during work hours.. you all know the drill. We have been super busy trying to get our kitchen finished, pool open, now we mow weekly.. and getting ready for surgery next Friday, but wanted you to know I think about you all every day, and can't wait til next week, I…
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simple pleasures and smiles
Hello everyone ! We've had a few hard knocks on site but also alot of very good outcomes. I was on the site accoi....and alot of folks there are fighting hard to beat back this dx. We've lost a strong warrior there also. Prayers are very welcomed for fellow warriors. Words just don't seem like enough....my heart breaks for…
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A New Contraption Has Been Added Into The Mix
I think I'm learning way more about medicine than I ever wanted to know. Not really. Some of it is scary, but interesting. Hubby's Nephrologist was called in because the Lasix is not doing a good job of removing fluid. In order to deter further kidney damage, a central line was put in hubby's neck that connects to a…
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Doing well
Hi to all, I thought it would be nice to share some good news. I'm almost 6 months post rad and doing well. Saw three of my doctors in the past week or so, and they are all happy with my progress. My ability to taste is much better. It still fades while eating, but it should only get better in time. I'm getting used to my…
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3 weeks
It has been three weeks since David died. I had one big melt down today. I was completing paperwork for an upcoming doctor appointment and they asked for my emergency contact. OMG I didn't have one. I called David's mom in tears and she told me to put her down. This is really a rough ride. Thanks to all my CSN friends for…
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Ringing the Bell and other things.
Hi Folks, A BIG THANK YOU to ellamenno, Joe, P and Helen for asking about what's going on as well as a BIG THANK YOU to EVERYONE for your encouragement and support. Today I rang the bell! 6 chemos and 30 radiation treatments officially ended at approximately 8:35am Wednesday April 24th, 2013. Here's a pic of Marcia and I…
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How's Letumwork doing?
Just thinking about you. Hope you're doing well. Halfway? We are still right behind you. Helen
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Just to say HEY
I just wanted to jump in here and say hey to all my CSN family. I know I have not posted in a while and feel bad when I think back to all the folks that responded to my post. Please be aware I read most every post and pray daily for all of you. Im so glad to know that some of the regulars are still offering their advice…
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Cisplatin Overdose
"Phew" feel like I have just been through a washing machine and the dryer. Just over 2 weeks ago I had the first dose of Cisplatin followed by wearing a pump (with Cisplatin) for 5 days, the doc thought I was strong enough. I was supposed to have something to boost my white blood cells as well which was forgotten, that put…