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Taste Has Stalled Out
Hi all, Was really doing well in taste coming back. 100% solid foods and somewhere between 30% to maybe 40% at best of my ablity to taste came back. Saliva is between 40% to 45% by my estimate. I am 5 months from last radiation and chemo. Unknown primary, full radiation and cisplatain (sp?) chemo. All of a sudden about 2…
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New to this, Husband just diagnosed with stage 3 left tonsil cancer
Hello, New to this , electronically challenged, but will try. My husband ron was diagnosed a few weeks ago with left tonsil stage 3 cancer. He had a left tonsilectomy and pathology put it as squamous cell carcinoma. His ENT set him up with a day full of appts with oncologists and radiologists. He was seen by his dentist…
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Emotional about body changes
Hello, Tonight I looked at the side of my neck with a mirror to see what other people see. I felt kind of shocked at how deep the crease is under my jaw. Added to that the swelling I still have under my jaw (surgery was Aug. 2012) and long scars. I've been struggling to feel comfortable with the loss of part of my tongue,…
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White patches on my tongue... Cancer?
Hi everyone, I'm obviously new here. My name is Megan and I'm 23 years old. I'm definitely a bit of a hypochondriac and I suffer from severe anxiety and hypothyroidism. About a month ago, I got a small white spot on the right side of my tongue. A couple days later, I got two more white spots on the same side. The one most…
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Husband Diagnosed with recurrent Nasopharyngeal Carcionma
My husband was diagnosed with Nasopharyngeal Carcionma 4 years ago it has returned in the same spot. The ENT basically gave him a year and a half to live and told him that he cannot do radiation again. Is this true? He said it would melt this spine. I am devastted he's 50 years old and I don't know what to do. The cancer…
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Mucoepidermoid Carcinoma
Those two words ROCKED my world back in January. I ignored what my dentist said was an abscess tooth and ended up having a 4cm tumor IN my lower left jaw. They did surgery (5 hours) on March 6th to remove a large portion of my jaw and the tumor. I had drainage tubes, feeding tube, 50 staples, IVs everywhere they could find…
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Happy Memorial Day!
Hope you all are able to relax and enjoy this Memorial Day. Take a moment to think of and thank all of those who have given so much to make us FREE! I toast you all with my large glass of Ensure :) Hope you all have a blessed day! No rad treatment today for me, the office is closed! Yippee!!!!!
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Base of tongue squamous cell carcinoma
I’m new to this, recently April 3 2013 PET scan said base of tongue squamous cell carcinoma. I get my feeding tube next Tuesday and start treatment 5/30/13. I’ m scared. I supposed to have 7 weeks of radiation and 3 chemotherapy’s. Everything I read says chemo kills more then it cures. Is there an alternative to chemo?…
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any ideas to fight (UPDATE)TO MANAGE THE PAIN & MUCUS foam and abundant mucus coming up?
Now the big problems are the pain and mucus Hi friends, you were so wonderfully helpful and supportive last time :-) my hubby just finished 7 wks Rad & 3 chemo. Unable to eat or swallow ANYTHING. On PEG. Treating Thrush, and is suffering from mouth/tongue/throat pain...What is really getting him is the mucus and foam…
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Would you like to be on a prayer list? UPDATED 05-24-13
UPDATE: 5-22-13 Still at it! Just updating to let you all know you are not forgotten! ++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Hi all. You all know me well enough by now to (hopefully) know where I stand on religious views (I never do like that word religious). :)…
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Quasi-Almost-Semi-Old-Timer checking in
Hi ya Kids! Long time, no see......................haven't been on in quite some time, so thought I'd pop in and see how everyone is doing and say Hi.............................Hi! Sorry to see so many newbies on-board. Even more sad to see some going into battle again and the passing of some of the other good folks -…
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cant open mouth
Hi yep Im new here,Getting frusterated cant seem to get an answer from my doctors about how much Im going to be able to open my mouth.Had surgery march 15 2013 Had Squamous cancer in my cheek ,also had lymph glands removed.tonsels.two teeth and a flap put in my mouth made from my arm o ya and a skin graft from my leg to…
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Back to normal
Happy Memorial Day weekend everyone! I hope everyone gets to drink an extra insure as we watch our relatives goble down burgers, hot dogs and steaks, just as I will. Actually I am just being a little sarcastic as this use to be one of my favorite weekends. I read a lot of posts by others and I hear a lot about returning to…
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Fighting Back Against 'Dry Mouth' .
Hello everyone. I was wondering what those of you suffering with dry mouth are doing about it. ???? Pain pills and 'majic mouthwash' are doing very little for me. It is very hard for me to believe that there is not some sort of lozenge on the market that would give some relief. I know there is not a majic bullet but there…
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Today's scans not good
I guess the wheels are starting to fall off the wagon. I have not yet spoke with my Oncologist, but the read on my scan is "progression of disease." I have significant growth of the tumors in my Mediastynum, and the pneumonia they said I had 6 weeks earlier is gone. I am a "mental wreck" as this is a huge blow to handle…
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8 weeks post treatment
Hi all my appologies for it being so long since I've posted! It's been a rough 8 weeks. My second week out of treatment I ended up in the hospital for 5 days due to malnutrition and a reaction to one of the drugs I was on. A week later I was back in the hospital for 6 days for failure to thrive ( a fancy way to say that I…
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Crisis averted
With all of the recent dental talk, I got very concerned when one of my top teeth started to bleed allot when I brushed. It was not the normal sensative gum bleeding. Having read posts about shards of bone, I could see something small and hard at the gum line that I could not floss or brush out. After 2 weeks of worry, I…
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SCC skin
Just found out today that I have a small area of scc on my back, doc said pretty common, pretty small, he is going to have a dermatologist remove it in a week or so. Something about me and C, seems to like me. Denis
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My dad just diagnosed
Heyas I am from Australia and my dad has just been diagnosed 4 weeks ago with a Squamous cell carcinoma in one of the lymph nodes in his neck. It was removed 3 weeks ago along with 40 other lymph nodes in the area. tests come back showing it as only the one lymph node as being cancerous though. so thats good news. It…
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Hi friends
Hi everyone. It seems like the days are flying by and I am not getting too much accomplished. I have started getting out of the house some. Tomorrow my mother and brother in law and I are going to the cemetery. It will be my first visit there since David's death. I still miss him and find I wish I could hear his voice. I…
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Swimming
Hey guys and gals, not getting straight answer from drs. Can you swim in Public Community Pool Club Pool, it is choleranted? I usaually go to one during week with daughter in summer and my boyfriends cabin at the lake on weekends, they were matter of fact about no lake with Peg Tube, but all not sure on swimming pool? What…
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New to chemo just got pump off
What should I expect?
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finding my new normal
I've been in a crazy place in my mind lately, wondering if I'd ever find myself back to a normal of any kind. I haven't been in for the CT of the lung yet, had to reschedual. (just a re-check on surgery site) But I was very surprised to hear from my onc's that my next PET/CT won't be until Nov. I started laughing and…
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Hello Again
Hi All. I appreciate everyone who responded to my first post a while back. My brother will not start his treatment until next Monday (May 27). He went to have his tube in but there was a bit of miscommunication on his need for a driver, so now that is scheduled for this Friday. I have been faithfully reading posts, and I…
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Chest Xray once a yr.....that's all we get after tx.
After Kreg spoke with his Oncologist at U of M he too(along with ENT), stated that he is only recommending Chest Xray once a yr. No CT or PETs in his future. Their reasoning of this seems a bit disturbing to me, but Kreg is fine with it. Simply said, they do not want to put anymore radiation(in CT's and PET's) into him…
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Just Feeling Out Of Synch
Hello All, Please know that I am here reading and watching over each & every one of you as you conquer the Beast. For many the battle is just beginning, whiile others mentor and help you through the perilous journey. I sometimes feel out of synch with the group as I cannot offer much in the way of constructive comments as…
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the trival side of taste or not
Fellow taste buds, Miracle fruit, miracle berry, miraculous berry, sweet berry whatever this stuff is called. Has anyone who has gone through radiation and had their taste buds zapped ever tried any of these? At about $1.50 each, they are not cheap and I only want to take a dive off the thrill diving board if there is…
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shoulder tingle
I know it is probably normal rad side effects but has anyone had tingling (like when hand falls asleep but worse) in their shoulder, arm and chest? Jim gets it in his upper back sometimes as well but mostly left shoulder and upper arm. Oncologist wasn't sure. Debbie
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Great News For A Change!
Don't post that often, but do come to this sight often. I have been the sole caretaker to my hubby who was diagnosed almost a year and a half ago with Stage IV BOT cancer with lymph node involvement. Docs told us tumor was too large and close to his voicebox to operate first. So they did chemo and radiation. Thought all…
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prostate biopsy
Well tomorrow is another biopsy, this time my prostate, doctor said that it's a pretty nasty procedure, apparently the prostate is a wicked bleeder, just what I need now that I take blood thinners, have not taken them since last Monday so hope things stay normal. very apprehensive about this, my dad and my brother both had…