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Ignore. Hit the key twice
Oops!
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My Feet Are Always Cold
After radiation treatments and chemotherapy for nasopharyngeal carcinoma, my feet are always cold. My roomate will be sweating because he is hot, but my feet are COLD! They even feel icy cold to the touch. Anybody have this ever happen?
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PET scan results... need a hug!
I got a call while I was in a team playtest at work, so I couldn't answer. When I got the message, it was from the H&N specialist with the results of the PET scan. He said it was basically negative but showed some uptake in the nasopharangeal area. He asked me to come in and so he can examine me again to check it out. At…
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Tim6003 in Daytona beach w no Internet! Drat!!
For those that know me well, know that me and this company "smart" phone dont get along!! I find myself in Daytona Beach checking on my mom w no Internet service at her house and for reasons I will spare only for sake of time I am not too sure about leaving mom alone just yet due dementia dementia issues that seem lot have…
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Now the big problem is the pain.
Hi Friends, Chris' mouth pain seems to be getting worse. He does the magic mouthwash, lidocane, oxycodone and has a Fentanyl(poor spelling I know) patch. Swishes with the baking soda water too. Does it get worse after the treatment is done? He finished all last Wednesday. thanks
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Update
Hi Folks, Yesterday, May 29th, was 5 weeks post treatment and the best I've felt in a very long time :) I've had a few small steps backward here and again but I've definitely turned the corner and there are more steps forward than backward these days. I went back to work part time (11-3pm) late last week and it's great to…
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MRI results NED
Hi Guys, I would like to shout to the world that my husband was CURED in Jesus Name. He was diagnosed July 2012 and finished his treatment on January 2013. He suffered from pneumonia on Feb and Mar 2013 and undergo an emergency tracheostomy. At first I thought his life will be ended then but I didnt let my worries overcome…
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Don't neglect fouride--test results in
Hello, as promised, back with a report and brief cautionary tale--Hal (65now) The good news is I'm now Hal65. As Hal61 I paid little attention to the posts championing flouride trays and application. The reasons for that are myriad but the m main ones were a lack of attention to that treatment by my docs--was never…
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Opposite of dry mouth problem
Sorry for all of the posts/questions lately. I'm new to this site and learning SO much! I wish I had found y'all earlier :) I read so many people have dry mouth issues. I have the opposite. I have too much spit. It's flowing ALL the time. I drool or spit constantly. I drool in my sleep and have thought seriously about…
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A Year After Treatment
One year ago tomorrow, Hubby started treatment for stage 3 tonsil cancer. 35 rads, 2 cisplatin (supposed to have been 3 but he was too ill for the final dose). While I prefer to look forward instead of back, I can't help but think back on this last year. A year ago we were anxious and scared. It didn't take long for…
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Hair loss with rads?
I was wondering if it was common to lose hair when having radiation treatments? I've noticed just in the last couple of days, when I take a shower and wash my hair, I end up with a small handful. Also when I brush it out. My mom had radiation for breast cancer and her hair thinned out a little bit, but I'm wondering with…
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Recovery
HI this is my first time on here . I finished treatment feb 23 2013,I have had every side effect that one can get. My question is when can I expect the blisters to go away so I can get rid of my feeding tube. Now I also have extreme dry mouth any suggestions on how to ease the dry mouth .thanks Susan
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husband getting mask made in the am, any helpful hints
hello, ron is going in the am to get his mask made for the radiation treatments. any helpful hints to prepare for or ask them for? thankyou janet
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3.5 years and counting
I have an anniversary coming up and thought I would post some of what has been going on in my life. I go in for my check up on Tuesday. It will be 3.5 years to the day of the dreaded biopsy. My wife created this account and was an all around life saver during this tough time. I hope to have another good check up. My "new…
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Nasopharyngeal cancer
Hi everyone .. 8 days ago my dad start the chemotherapy he feel all these pain in bone but he had pain in his stomach he vomiting after eating so we gave him IV fluids but he still vomiting (green colour) and he had pain in his stomach !! Is this normal
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Questions
For those who finished tx before me. Just finished Rad 3 days ago. When will the mucos stop? where is it coming from? Should I be concerned with a little blood coming out. I tried to eat old fashion oat meal. After gagging, choking and spitting, I spit some blood out. Needless to say I have eaten solid food the whole time…
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Scanxiety...
I've seen two doctors after moving from SF to the LA area. One was a general oncologist, who I figured I didn't need to see and yep, I totally didn't need to see him. I guess I had to pay him a visit, though, to enter the UCLA system for post-treatment surveillance by a H&N specialist. At any rate, he didn't do much of…
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Post treatment questions BOT HPV 16 dx
Hi all I just finished my last rad treatment on 4/29/2013 along with my 3 chemo (cisplatin) treatments as well. BOT HPV related cancer was diagnoses. My question is when to expect taste buds to come back as I cannot taste sweets, some sour foods but most foods taste like paste and bland. Sore throat is mostly gone away…
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No more treatment, now what?
My brother in law has opted not to have radiation or chemotherapy for his head/neck cancer. He has three large tumors, one on each side of his neck and one in the front. He is very tired, gets dizzy easy and is popping morphine like crazy. Wondering if anyone had any similar experience. I am trying to figure out what to…
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soreness a year after finishing radiation?
Hey friends! On June 11th it will be a year since I rang the bell. I noticed this morning that I am really sore under my tongue which is where I first started feeling soreness during radiation. That is where the tumor was so I guess where the most Rads were concentrated. Is it normal to have soreness out of the blue this…
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Taste Has Stalled Out
Hi all, Was really doing well in taste coming back. 100% solid foods and somewhere between 30% to maybe 40% at best of my ablity to taste came back. Saliva is between 40% to 45% by my estimate. I am 5 months from last radiation and chemo. Unknown primary, full radiation and cisplatain (sp?) chemo. All of a sudden about 2…
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New to this, Husband just diagnosed with stage 3 left tonsil cancer
Hello, New to this , electronically challenged, but will try. My husband ron was diagnosed a few weeks ago with left tonsil stage 3 cancer. He had a left tonsilectomy and pathology put it as squamous cell carcinoma. His ENT set him up with a day full of appts with oncologists and radiologists. He was seen by his dentist…
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Emotional about body changes
Hello, Tonight I looked at the side of my neck with a mirror to see what other people see. I felt kind of shocked at how deep the crease is under my jaw. Added to that the swelling I still have under my jaw (surgery was Aug. 2012) and long scars. I've been struggling to feel comfortable with the loss of part of my tongue,…
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White patches on my tongue... Cancer?
Hi everyone, I'm obviously new here. My name is Megan and I'm 23 years old. I'm definitely a bit of a hypochondriac and I suffer from severe anxiety and hypothyroidism. About a month ago, I got a small white spot on the right side of my tongue. A couple days later, I got two more white spots on the same side. The one most…
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Husband Diagnosed with recurrent Nasopharyngeal Carcionma
My husband was diagnosed with Nasopharyngeal Carcionma 4 years ago it has returned in the same spot. The ENT basically gave him a year and a half to live and told him that he cannot do radiation again. Is this true? He said it would melt this spine. I am devastted he's 50 years old and I don't know what to do. The cancer…
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Mucoepidermoid Carcinoma
Those two words ROCKED my world back in January. I ignored what my dentist said was an abscess tooth and ended up having a 4cm tumor IN my lower left jaw. They did surgery (5 hours) on March 6th to remove a large portion of my jaw and the tumor. I had drainage tubes, feeding tube, 50 staples, IVs everywhere they could find…
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Happy Memorial Day!
Hope you all are able to relax and enjoy this Memorial Day. Take a moment to think of and thank all of those who have given so much to make us FREE! I toast you all with my large glass of Ensure :) Hope you all have a blessed day! No rad treatment today for me, the office is closed! Yippee!!!!!
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Base of tongue squamous cell carcinoma
I’m new to this, recently April 3 2013 PET scan said base of tongue squamous cell carcinoma. I get my feeding tube next Tuesday and start treatment 5/30/13. I’ m scared. I supposed to have 7 weeks of radiation and 3 chemotherapy’s. Everything I read says chemo kills more then it cures. Is there an alternative to chemo?…
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any ideas to fight (UPDATE)TO MANAGE THE PAIN & MUCUS foam and abundant mucus coming up?
Now the big problems are the pain and mucus Hi friends, you were so wonderfully helpful and supportive last time :-) my hubby just finished 7 wks Rad & 3 chemo. Unable to eat or swallow ANYTHING. On PEG. Treating Thrush, and is suffering from mouth/tongue/throat pain...What is really getting him is the mucus and foam…
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Would you like to be on a prayer list? UPDATED 05-24-13
UPDATE: 5-22-13 Still at it! Just updating to let you all know you are not forgotten! ++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Hi all. You all know me well enough by now to (hopefully) know where I stand on religious views (I never do like that word religious). :)…