Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Last radiation treatment today
I've been out of touch for awhile, surviving my treatment, but today I received my last radiation treatment and had them throw the g#*! mask away. I received Amifostene/Ethyol shots throughout and sti…
32 views
31 comments
0 point
Started by MICH4EL
Most recent by ToBeGolden
Jun 17, 2013
Head and Neck Cancer
Motorcycle ride and fish fry on a beautiful day....
What a beautiful day it was! Was able to take the bike out today and drive along the gorgeous lake.....then stopped for a good perch fry! Boy, it's nice to feel normal. Hope everyone was able to enjoy…
13 views
7 comments
0 point
Started by cureitall66
Most recent by cureitall66
Jun 16, 2013
Head and Neck Cancer
No one is invincible to cancer....
I just wanted to say that no one is invincible to cancer.... I came across this story about Steve Perry (ex lead vocalist for the group Journey) and his girlfriend and it just made me cry. I've always…
212 views
13 comments
0 point
Started by cureitall66
Most recent by cureitall66
Jun 16, 2013
Head and Neck Cancer
trout and flounder
Thanks everyone for the good thoughts. Jim's catch today was a flounder and 22 inch trout. Definately lifted his spirits. John, how do I attach a picture? Please explain for dummies:)
2 views
4 comments
0 point
Started by jim and i
Most recent by peggylulu
Jun 16, 2013
Head and Neck Cancer
3rd Round of Cisplatin
My husband is being treated for Stage 4a tonsil cancer (HPV - SCC) with 30 rounds of radiation and 3 rounds of Cisplatin (at the beginning, middle and end of the RAD treatments). He finished his last …
105 views
12 comments
0 point
Started by iluvbeagles
Most recent by iluvbeagles
Jun 15, 2013
Head and Neck Cancer
Just checking in
Good morning, I have not posted much at all as still getting settled in from my move from STL to Austin Tx. I'm sitting at the treatment center waiting for my bloodwork to come back so I can hopefully…
51 views
15 comments
0 point
Started by luv4lacrosse
Most recent by Crazymom
Jun 15, 2013
Head and Neck Cancer
Dry mouth
Hey everyone, My dad is going to treatment today and going to mention to the docs that his mouth is starting to feel slightly dry. Is there anything you can recommend that worked for you? I just want …
483 views
28 comments
0 point
Started by CherieLW
Most recent by CivilMatt
Jun 15, 2013
Head and Neck Cancer
Howdy!
Checking in. Tired as hell. Brain won't cooperate. Besides that, I'm peachy keen. Get another scan in 2 months. I'd like to add another NED to the file. hope all is well!
1 views
7 comments
0 point
Started by tuffenuff
Most recent by katenorwood
Jun 15, 2013
Head and Neck Cancer
Tim6003 Update and a few prayers could be used if you all don't mind
Hey All. Sure have missed talking to all of you as well as missed keeping up. I apologize in advance if I have not responded to posts to say I'm thinking about, whispering prayers and what have you. S…
41 views
24 comments
0 point
Started by Tim6003
Most recent by katenorwood
Jun 15, 2013
Head and Neck Cancer
I see you / you see me ? photo no show
I tried ... and failed ... to upload a pic to my profile page. I like being able to see a face when reading posts and comments, so thought it only fair to have a profile pic myself. The browse area se…
4 views
3 comments
0 point
Started by alligatorpointer
Most recent by alligatorpointer
Jun 15, 2013
Head and Neck Cancer
If y'all kick me off of here, I'll understand..
How sick are y'all of my rollercoaster of treatments? I know I am. So, the oncologist that I like (but never get to see) consulted with my oncologist (the older one) and my surgeon. He is concerned a…
13 views
9 comments
0 point
Started by TracyLynn72
Most recent by Eddie J
Jun 14, 2013
Head and Neck Cancer
Ok, Ok, I give...
My surgeon recommended finishing treatment if I can. I've cried all afternoon, but I guess this is what I have to do. How long will they "give me a break" as I can't lay flat without vomiting. I'm ri…
32 views
24 comments
0 point
Started by TracyLynn72
Most recent by Eddie J
Jun 14, 2013
Head and Neck Cancer
update on Jim
Jim saw the oncologist Friday. He said the pain was from pluresy. The ER xray showed less than normal lung function in the left lung. The pain has lessened a lot and doc said Jim doing great consideri…
49 views
16 comments
0 point
Started by jim and i
Most recent by Skiffin16
Jun 14, 2013
Head and Neck Cancer
Thanks for information on USAUNA (scam)
I'm sure that a few of you will recall me posting about my uncle trying to push these antioxidant pills on my father not long ago. It was really ticking me off bc he thought they were miracle pills-ye…
3 views
2 comments
0 point
Started by CherieLW
Most recent by CherieLW
Jun 13, 2013
Head and Neck Cancer
Another First Followup After Treatment
Have my first set of followup appointments this Monday-Wednesday at MD Anderson in Houston. A little anxious about the whole thing but know it is something I need to get used to at least for the next …
33 views
23 comments
0 point
Started by jthornsbury
Most recent by Skiffin16
Jun 13, 2013
Head and Neck Cancer
When was everyone able to start
eating again? If you had a PEG when where you able to start eating real food by mouth again after finishing treatment. Rob is almost 2 weeks out and says he is worse now than 2 weeks ago. Maybe I am j…
11 views
6 comments
0 point
Started by robswife87
Most recent by hwt
Jun 13, 2013
Head and Neck Cancer
Update on dad
Just wanted to take a minute and update everyone on my pops! He has 29 (out of 35) radiation treatments left and 2 chemos left. 29 seems like way too many more for him to go through... it's scary to t…
12 views
14 comments
0 point
Started by CherieLW
Most recent by CherieLW
Jun 13, 2013
Head and Neck Cancer
5 Weeks Post Treatment - Need to Transition from Peg
I am now 5 weeks post treatment, and I need to transition from PEG. (7weeks/35 rads, and 7 weeks cisplatin). Lost 35 lbs. Swallowing water fine, Boost can do but tastes like cardboard and towards the …
22 views
16 comments
0 point
Started by Ron Silver
Most recent by JacquieinFrance
Jun 13, 2013
Head and Neck Cancer
trental and scar tissue
my new radiation oncologist just gave me a script for Trental (Pentoxifylline), and instructed taking it with Vitamin E to break up scar tissue in the throat. getting home and looking this stuff up, I…
483 views
9 comments
0 point
Started by blackswampboy
Most recent by JacquieinFrance
Jun 13, 2013
Head and Neck Cancer
1 down and 38 more to go
Ron had his first rad and chemo today. 4 hours of chemo, wow. He is tired and had a little nausea but started his meds immediately. a little dizzy, which is probably due to all the hydration and low p…
33 views
24 comments
0 point
Started by janetluvsron
Most recent by Skiffin16
Jun 12, 2013
Head and Neck Cancer
Hernia
I finally made an appointment with the surgeon today and he confirmed I have a double hernia - not swollen lymph nodes- thank god. I have scheduled the operation for repairs in two weeks.
2 views
3 comments
0 point
Started by Roar
Most recent by fishmanpa
Jun 12, 2013
Head and Neck Cancer
Flounder Day - Revisited...
OK, to add to this journey...; Cleaned, boneless fillets ared ready to go... Spicy Seasoned Breading and ready for the pan... Dinner is served... Best ~ John
36 views
10 comments
0 point
Started by Skiffin16
Most recent by fishmanpa
Jun 12, 2013
Head and Neck Cancer
Hi everyone
I decided to take a break, didn't feel that I was really contributing much to the board. I'm so sorry to see so many new names on here and pray they'll all conquer this beast as many of us old timers …
22 views
10 comments
0 point
Started by Grandmax4
Most recent by CivilMatt
Jun 12, 2013
Head and Neck Cancer
Unbelievbable
I was strolling the East Bay shore over the weekend and I asked them if they knew John from Florida, They said sure he was a friend of their mutual friend, floundafish. They pass along their hellos, J…
1 views
4 comments
0 point
Started by donfoo
Most recent by rachel12yrsuv
Jun 12, 2013
Head and Neck Cancer
Create a PEGless club profile?
Not sure when to declare myself officially PEGless but I feel good enough and far enough along to step out there and say I won't be getting one. PEG is such an emotional topic and not many elect or wi…
169 views
56 comments
0 point
Started by donfoo
Most recent by donfoo
Jun 12, 2013
Head and Neck Cancer
Tongue Cancer?
Hi all. I'm currently waiting to go for a biopsy of a lump (or three) in my tongue next Monday. I'm making myself insane worrying and I just want to hear feedback from those who may have more insight …
57 views
8 comments
0 point
Started by doulamama
Most recent by hwt
Jun 12, 2013
Head and Neck Cancer
Cisplatin v. Centuxmab
I am recentlydiagnosed tonsil/BOT SCC primary with secondary lymph nodes of side neck,stager IVaI I have the chance to participate in a clinical study, RTOG 1016 testing centuxmab v. Cisplatin. Has an…
49 views
14 comments
0 point
Started by JerryNG
Most recent by Fire34
Jun 11, 2013
Head and Neck Cancer
Sense of smell - decreased or increased?
I was wondering if anyone who has undergone radiation treatment to the head/neck region noticed an increase in their sense of smell? Or perhaps a decrease? I read an account online of someone whose sm…
40 views
18 comments
0 point
Started by cadharose
Most recent by Skiffin16
Jun 11, 2013
Head and Neck Cancer
Teeth problems after radiation treatment
I have been reading on line about teeth pulling after radiation treatments and am scared to death about what I am reading!. I am 40 months out of radiation treatments. One of my teeth is now at the po…
1114 views
25 comments
0 point
Started by miklosk
Most recent by hawk711
Jun 11, 2013
Head and Neck Cancer
Have you heard of this scam?
I cannot 100% say this is a scam, but in my mind it is 99.99% scam. My uncle has sworn by USauna (spelling?) products for years now. I have never heard of these pills from anyone ever besides my uncle…
35 views
19 comments
0 point
Started by CherieLW
Most recent by mls351w
Jun 11, 2013
Head and Neck Cancer

Head and Neck Cancer

Head and Neck Cancer

Last radiation treatment today

Motorcycle ride and fish fry on a beautiful day....

No one is invincible to cancer....

trout and flounder

3rd Round of Cisplatin

Just checking in

Dry mouth

Howdy!

Tim6003 Update and a few prayers could be used if you all don't mind

I see you / you see me ? photo no show

If y'all kick me off of here, I'll understand..

Ok, Ok, I give...

update on Jim

Thanks for information on USAUNA (scam)

Another First Followup After Treatment

When was everyone able to start

Update on dad

5 Weeks Post Treatment - Need to Transition from Peg

trental and scar tissue

1 down and 38 more to go

Hernia

Flounder Day - Revisited...

Hi everyone

Unbelievbable

Create a PEGless club profile?

Tongue Cancer?

Cisplatin v. Centuxmab

Sense of smell - decreased or increased?

Teeth problems after radiation treatment

Have you heard of this scam?

Welcome!

Quick Links

Discussion Boards

Head and Neck Cancer

Head and Neck Cancer

Discussion List

Welcome!

Quick Links

Discussion Boards