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A Success Story
We need a good story and I was lucky enough to stumble over one the other day. I was listening to Desert Island Discs, a BBC radio show available as a podcast. The weekly guest gets to name 7 songs that he’d take with him to a desert island plus a book and a luxury. In between the musical selections, the guest talks about…
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when to start l-glutamine , and what is best schedule for tonsil cancer and rads
hello again, have been gathering a list from everyone who have been so kind and helpful. just not so sure how to schedule things to help in preventing mouth sores. when and how often on the l glutamine powder, what about the salt water rinses? and I am hearing about mugard and not sure where to get it for ron. He starts…
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Financial security
Good news - went for a beautiful ride ( in my classic vette) upstate NY today to see my financial adviser - he said I can't die because I don't have enough money( guess I don't have to worry about next pet scan). The bad news is I don't have enough money to retire - talk about being between a rock and a hard place. I am…
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muco epidermoid carcinoma and childhood cancer
My 7yr old daughter was diagnosed with muco epidermoid carcinoma of the parotid gland. She had her parotid gland removed 1 yr ago and completed 33 radiation treatments. It was stage 2(intermediate.) I have heard alot of people say that she's at a higher risk for leukemia and other major health issues. I was just wondering…
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My brother's Journey Finally Begins
Hi All. It seems like ages ago that I first came aboard. My brother is finally starting his treatment tomorrow. I have been keeping up with all of your journeys. His spirits are up and he is ready for the battle. I had mentioned before that he hasn't been reading about any possible side-effects because he thought he just…
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radiation masks
These scare me and I haven't even seen dad's. Right now it's just late and I'm having a hard time trying to stay positive at the moment bc my thoughts just consume me. Please tell me about radiation... the side effects most common and what not of you would. Thanks for everyone's support so far. I guess I'm just having a…
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Getting Sleep During the Night
Am just not able to get over 4 hours a night of sleep after 8 weeks since i completed treatment...anyone have any ideas?
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Question about metastic to lungs
As most of you know jim's tongue cancer spread to his lungs. He has numerous nodes in both lungs with the largest, 1.75 cm, in the left. Over the weekend he started having some pain under the left arm. This morning he came home from fishing very weak. He was in pain but now the pain is also in the left lower chest. He says…
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Get a look at what Michael Douglas is saying about his disease..
At least he's trying to get the conversation going. J. LONDON (AP) — Actor Michael Douglas says that his throat cancer was caused by a virus he contracted by performing oral sex on women. The Guardian newspaper published an interview Monday in which Douglas blamed cunnilingus for the grave malady that was diagnosed in…
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Squamous Carcinoma -- in jaw bone (Left posterior -- mandibular segment)
I'm new here, so happy to have this outlet and place for information! My almost 70-year old father has just been disgnosed with the above subject cancer. We met with his Specialist in Austin, TX (Dr. Scholl) last week and was told her will have 1/2 of his jaw removed and replaced with his fibula leg bone; with follow-up…
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Finished Treatment Now What?
Finished treatment on April 19th 30X rad with no chemo! Now the waiting game and it is driving me crazy! Had more of a bad reaction to the Ativan was put on during treatment and am finally getting a couple of hours of sleep at night! How does one deal with the waiting game that will be a part of our life from now on? Go…
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Does anyone know about radiative pill?
My dad is experiencing new and different feelings since he has finished up his radiation treatments in March. He has been complaining about his skin hurting and he is very sensitive to anyone touching him and of course he is very very tired. He is also loosing weight even tho he is drinking his ensure and eating soft…
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Another free gift
Hi folks, About a week after I came home after treatment, I developed symptoms and eventually a full blown case of gout on my left foot (joint of my big toe). Anyone who has dealt with gout knows how painful it is. I had a bout of it about 5 years ago and while it was painful, it paled in comparison to this attack. When I…
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Getting the All Clear
Friends, When have you been told you will get the "all clear" if there is such a thing in regards to cancer? I was told major milestone at year one all clear and then at year three most would say you are out of the woods. Most reoccurances happen within the first year so after that survival odds go way up. Just wondering…
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Feeding tube and still throwing up
Hi all ny nmae is Ron and i was diagonosed with the right tonsil cancer and 1 lymph node infected. I am a non smoker never have they say it was causd by the HPV virius and said this was very curable. In my 6th week i hadn't eaten anything for almost 2weeks so I had the feeding tube placed so far it seems to be a bust My…
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Random canker sores 6 months after tx
Hi All! Hope you are all enjoying your Memorial Day weekend with the ones you love! I'm just wondering if anyone has experienced random canker sores or even cold sores after tx? Kreg has had these appearing in the last couple weeks. They have appeared in the inside of his cheek and his tongue. He doesn't see his ENT until…
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ASCO: HPV-Oral Cancer Won't Threaten Spouses
CHICAGO -- Oropharyngeal cancers that arise from human papillomavirus (HPV) are no more likely to spread to a domestic partner than to the general population, an observational study showed. ASCO: HPV-Oral Cancer Won't Threaten Spouses Interesting read for those that have discussed this topic before: Best, John
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Little Change
Not much has changed. I get two weeks of Taxole and Erbitux followed by 1 week of Erbitux. I get two rounds of this then I get one week off (no IV meds at all). FATIGUE is HUGE. I will have to rest even after composing this little update. Just getting the food/liquids/ and meds down is more than a full time occupation.…
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I did it folks
Hey friends, i ended my speech therapy yesterday! It was happy and sad Lena my therapist was such a supportive soul and i will be sad not to see her 4 times a week. But its time for me to be a big girl and push on on my own. So i finished at puree level and not many different ones at that. My bithday is coming June 4 and i…
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Radiation smell and lights
Hello. I have just joined and hope you can help me. I was diagnosed in May 2011 with Npc stage three and started treatment on June 1. I have had three rounds of chemo Cisplatin latest being this Monday. Started radiation and just did 8th treatment today. The last two sessions Of radiation I have felt horrid bc of the smell…
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Ding, Ding, Ding
of the bell. Done with all the crap, now on to heal. He is real tired and sore but ready to start climbing the hill soon. Thank you for everyone here. Your thoughts, prayers and suggestions got us through this. Sandy
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CRT - 3-2-1-done
3 days to go before I change to post-treatment status. It's been quite a journey with some bumpy road still to come but I have my next milestone set a month out where I hope to see most of the dusty road in the rear view mirror. Most days on my blog I report out various factors being currently or recently been managed. The…
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Hey guys
Sorry I've been absent for a while, phew it's been crazy! All is good on the health front so that's good, it's just life in general that has me so busy. I'm a Pre School teacher and for a whileni was so busy with getting everything ready for our Mother's Day Tea and then my older son is a senior in High School and with…
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Couldn't Resist :)
I saw this article today on MSN and just had to share. I apologize in advance if it offends anyone. I just found it to be quite amusing and interesting whether it's true or not. Regardless, I'm thinking some preventative therapy might be in order ;) http://now.msn.com/squeezing-breasts-can-stop-cancer "T"
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tonsilectomy no neck disection
My husband ron had a left tonsilectomy and that is how we found our he had scc and then pet scan shows activity in 1 node. I read on here and most ppl have had neck disections, am concerned , should he had had one? Is this the norm or are we missing something? janet
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Elderly and Treatment
Hello, My Mom's biopsy is scheduled for tomorrow at 10:30 a.m. Central. She's 84 years old and is more than mild cognitive impairment (she still knows everyone and if you only see her for a few minutes, depending on her current state, she can seem completely out of it or almost normal). Over the last couple of weeks, I've…
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2nd round of chemo tomorrow and I don't want to go
Tomorrow is my 2nd round (of 3 rounds total) of chemotherapy. I don't want to go. I didn't care the first time I had to have it, but now I do. I don't want to have to get up early in the morning. I don't want the line inserted into my arm. I don't want to sit there bored for hours. I don't want to feel sick for the next…
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Trouble breathing in neck area
My husband had squamous cell carcinoma of the neck, which had metasize with no primary. He has been done with all treatments since February 2013. However, he is now having a hard time breathing it is as if his airway has narrowed due to radiation. The lung doctor says lungs are fine but last Tuesday he went into…
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caregiver rejection
I got home Friday night on day 3o of my boyfriends radiation treatment. I left that day before he rang the bell. The bell rang for me the night before in his fentanyl oxycodone police threat. We were 10 months in to the relationship, made the committment to take care of each other if we got sick, both been married and no…
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Sprits down
Thank you all for information the other day . Today my spirits are down I am having so much pain with these blisters in my mouth. the lidocaine doesn't work that well i just want to eat I am so tired of this I know it's only been 3 months but 3 years ago I had 2 brain surgerys and only took a short time to recover I guess…