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Feeding tube and still throwing up
Hi all ny nmae is Ron and i was diagonosed with the right tonsil cancer and 1 lymph node infected. I am a non smoker never have they say it was causd by the HPV virius and said this was very curable. In my 6th week i hadn't eaten anything for almost 2weeks so I had the feeding tube placed so far it seems to be a bust My…
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Random canker sores 6 months after tx
Hi All! Hope you are all enjoying your Memorial Day weekend with the ones you love! I'm just wondering if anyone has experienced random canker sores or even cold sores after tx? Kreg has had these appearing in the last couple weeks. They have appeared in the inside of his cheek and his tongue. He doesn't see his ENT until…
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ASCO: HPV-Oral Cancer Won't Threaten Spouses
CHICAGO -- Oropharyngeal cancers that arise from human papillomavirus (HPV) are no more likely to spread to a domestic partner than to the general population, an observational study showed. ASCO: HPV-Oral Cancer Won't Threaten Spouses Interesting read for those that have discussed this topic before: Best, John
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Little Change
Not much has changed. I get two weeks of Taxole and Erbitux followed by 1 week of Erbitux. I get two rounds of this then I get one week off (no IV meds at all). FATIGUE is HUGE. I will have to rest even after composing this little update. Just getting the food/liquids/ and meds down is more than a full time occupation.…
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I did it folks
Hey friends, i ended my speech therapy yesterday! It was happy and sad Lena my therapist was such a supportive soul and i will be sad not to see her 4 times a week. But its time for me to be a big girl and push on on my own. So i finished at puree level and not many different ones at that. My bithday is coming June 4 and i…
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Radiation smell and lights
Hello. I have just joined and hope you can help me. I was diagnosed in May 2011 with Npc stage three and started treatment on June 1. I have had three rounds of chemo Cisplatin latest being this Monday. Started radiation and just did 8th treatment today. The last two sessions Of radiation I have felt horrid bc of the smell…
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Ding, Ding, Ding
of the bell. Done with all the crap, now on to heal. He is real tired and sore but ready to start climbing the hill soon. Thank you for everyone here. Your thoughts, prayers and suggestions got us through this. Sandy
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CRT - 3-2-1-done
3 days to go before I change to post-treatment status. It's been quite a journey with some bumpy road still to come but I have my next milestone set a month out where I hope to see most of the dusty road in the rear view mirror. Most days on my blog I report out various factors being currently or recently been managed. The…
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Hey guys
Sorry I've been absent for a while, phew it's been crazy! All is good on the health front so that's good, it's just life in general that has me so busy. I'm a Pre School teacher and for a whileni was so busy with getting everything ready for our Mother's Day Tea and then my older son is a senior in High School and with…
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Couldn't Resist :)
I saw this article today on MSN and just had to share. I apologize in advance if it offends anyone. I just found it to be quite amusing and interesting whether it's true or not. Regardless, I'm thinking some preventative therapy might be in order ;) http://now.msn.com/squeezing-breasts-can-stop-cancer "T"
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tonsilectomy no neck disection
My husband ron had a left tonsilectomy and that is how we found our he had scc and then pet scan shows activity in 1 node. I read on here and most ppl have had neck disections, am concerned , should he had had one? Is this the norm or are we missing something? janet
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Elderly and Treatment
Hello, My Mom's biopsy is scheduled for tomorrow at 10:30 a.m. Central. She's 84 years old and is more than mild cognitive impairment (she still knows everyone and if you only see her for a few minutes, depending on her current state, she can seem completely out of it or almost normal). Over the last couple of weeks, I've…
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2nd round of chemo tomorrow and I don't want to go
Tomorrow is my 2nd round (of 3 rounds total) of chemotherapy. I don't want to go. I didn't care the first time I had to have it, but now I do. I don't want to have to get up early in the morning. I don't want the line inserted into my arm. I don't want to sit there bored for hours. I don't want to feel sick for the next…
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Trouble breathing in neck area
My husband had squamous cell carcinoma of the neck, which had metasize with no primary. He has been done with all treatments since February 2013. However, he is now having a hard time breathing it is as if his airway has narrowed due to radiation. The lung doctor says lungs are fine but last Tuesday he went into…
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caregiver rejection
I got home Friday night on day 3o of my boyfriends radiation treatment. I left that day before he rang the bell. The bell rang for me the night before in his fentanyl oxycodone police threat. We were 10 months in to the relationship, made the committment to take care of each other if we got sick, both been married and no…
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Sprits down
Thank you all for information the other day . Today my spirits are down I am having so much pain with these blisters in my mouth. the lidocaine doesn't work that well i just want to eat I am so tired of this I know it's only been 3 months but 3 years ago I had 2 brain surgerys and only took a short time to recover I guess…
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Ignore. Hit the key twice
Oops!
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My Feet Are Always Cold
After radiation treatments and chemotherapy for nasopharyngeal carcinoma, my feet are always cold. My roomate will be sweating because he is hot, but my feet are COLD! They even feel icy cold to the touch. Anybody have this ever happen?
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PET scan results... need a hug!
I got a call while I was in a team playtest at work, so I couldn't answer. When I got the message, it was from the H&N specialist with the results of the PET scan. He said it was basically negative but showed some uptake in the nasopharangeal area. He asked me to come in and so he can examine me again to check it out. At…
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Tim6003 in Daytona beach w no Internet! Drat!!
For those that know me well, know that me and this company "smart" phone dont get along!! I find myself in Daytona Beach checking on my mom w no Internet service at her house and for reasons I will spare only for sake of time I am not too sure about leaving mom alone just yet due dementia dementia issues that seem lot have…
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Now the big problem is the pain.
Hi Friends, Chris' mouth pain seems to be getting worse. He does the magic mouthwash, lidocane, oxycodone and has a Fentanyl(poor spelling I know) patch. Swishes with the baking soda water too. Does it get worse after the treatment is done? He finished all last Wednesday. thanks
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Update
Hi Folks, Yesterday, May 29th, was 5 weeks post treatment and the best I've felt in a very long time :) I've had a few small steps backward here and again but I've definitely turned the corner and there are more steps forward than backward these days. I went back to work part time (11-3pm) late last week and it's great to…
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MRI results NED
Hi Guys, I would like to shout to the world that my husband was CURED in Jesus Name. He was diagnosed July 2012 and finished his treatment on January 2013. He suffered from pneumonia on Feb and Mar 2013 and undergo an emergency tracheostomy. At first I thought his life will be ended then but I didnt let my worries overcome…
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Don't neglect fouride--test results in
Hello, as promised, back with a report and brief cautionary tale--Hal (65now) The good news is I'm now Hal65. As Hal61 I paid little attention to the posts championing flouride trays and application. The reasons for that are myriad but the m main ones were a lack of attention to that treatment by my docs--was never…
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Opposite of dry mouth problem
Sorry for all of the posts/questions lately. I'm new to this site and learning SO much! I wish I had found y'all earlier :) I read so many people have dry mouth issues. I have the opposite. I have too much spit. It's flowing ALL the time. I drool or spit constantly. I drool in my sleep and have thought seriously about…
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A Year After Treatment
One year ago tomorrow, Hubby started treatment for stage 3 tonsil cancer. 35 rads, 2 cisplatin (supposed to have been 3 but he was too ill for the final dose). While I prefer to look forward instead of back, I can't help but think back on this last year. A year ago we were anxious and scared. It didn't take long for…
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Hair loss with rads?
I was wondering if it was common to lose hair when having radiation treatments? I've noticed just in the last couple of days, when I take a shower and wash my hair, I end up with a small handful. Also when I brush it out. My mom had radiation for breast cancer and her hair thinned out a little bit, but I'm wondering with…
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Recovery
HI this is my first time on here . I finished treatment feb 23 2013,I have had every side effect that one can get. My question is when can I expect the blisters to go away so I can get rid of my feeding tube. Now I also have extreme dry mouth any suggestions on how to ease the dry mouth .thanks Susan
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husband getting mask made in the am, any helpful hints
hello, ron is going in the am to get his mask made for the radiation treatments. any helpful hints to prepare for or ask them for? thankyou janet
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3.5 years and counting
I have an anniversary coming up and thought I would post some of what has been going on in my life. I go in for my check up on Tuesday. It will be 3.5 years to the day of the dreaded biopsy. My wife created this account and was an all around life saver during this tough time. I hope to have another good check up. My "new…