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Head and Neck Cancer

Chest Xray once a yr.....that's all we get after tx.
After Kreg spoke with his Oncologist at U of M he too(along with ENT), stated that he is only recommending Chest Xray once a yr. No CT or PETs in his future. Their reasoning of this seems a bit disturbing to me, but Kreg is fine with it. Simply said, they do not want to put anymore radiation(in CT's and PET's) into him…
Just Feeling Out Of Synch
Hello All, Please know that I am here reading and watching over each & every one of you as you conquer the Beast. For many the battle is just beginning, whiile others mentor and help you through the perilous journey. I sometimes feel out of synch with the group as I cannot offer much in the way of constructive comments as…
the trival side of taste or not
Fellow taste buds, Miracle fruit, miracle berry, miraculous berry, sweet berry whatever this stuff is called. Has anyone who has gone through radiation and had their taste buds zapped ever tried any of these? At about $1.50 each, they are not cheap and I only want to take a dive off the thrill diving board if there is…
shoulder tingle
I know it is probably normal rad side effects but has anyone had tingling (like when hand falls asleep but worse) in their shoulder, arm and chest? Jim gets it in his upper back sometimes as well but mostly left shoulder and upper arm. Oncologist wasn't sure. Debbie
Great News For A Change!
Don't post that often, but do come to this sight often. I have been the sole caretaker to my hubby who was diagnosed almost a year and a half ago with Stage IV BOT cancer with lymph node involvement. Docs told us tumor was too large and close to his voicebox to operate first. So they did chemo and radiation. Thought all…
prostate biopsy
Well tomorrow is another biopsy, this time my prostate, doctor said that it's a pretty nasty procedure, apparently the prostate is a wicked bleeder, just what I need now that I take blood thinners, have not taken them since last Monday so hope things stay normal. very apprehensive about this, my dad and my brother both had…
Radiation-Single Digits
WE made it to single digits. 9 more to go. Rob is pretty beat up but taking it like a trooper We are almost there. He will be another survivor Sandy
How many chances for chemo and radiation
Please give advise. I had chemo and radiation during the period March - June 2011 but the tongue cancer is back again. I asked the oncologist if it is possible to do chemo and radiation again and he recon that I had my chance! He said that I will either need to do surgery or die! Is it true that one gets only one chance to…
Last day
I am still real new to the site. However today I ring the bell. After six weeks and a day I am almost done. I never thought the Rad would be worse than the three surgeries/ICU. Go figure. The past weekend the cumlitive affect took hold. For those that have gone this was before a question (s). How long did the burn on the…
Keeping everything in perspective
i had a bad day at work yesterday - actually made a mistake - had to hear a lot of cap from a lot of people . A year ago I would have thought that this was the worst thing that could have ever happened. I would have had someone's head even though it was actually a team mistake. Instead I accepted the responsibility and…
Today's dose of irreverence - Cancer Cliche's; post em if you've got em!
After my LONG AND COURAGEOUS BATTLE with Head Neck cancer, I am learning to deal with my NEW NORMAL. The fact that people are LIFTING ME IN PRAYER has helped me to become a SURVIVOR. Sometimes I feel a lump and fear a cancer recurrence, but I tell myself IT AIN'T CANCER TILL SOMEONE TELLS ME IT'S CANCER. Every day I LIVE…
8 week post tx CT scan
I had my 8 week post treatment CT scan last monday. The results were not as good as we had hoped. Although the scan showed NED in my head and neck, it also showed 4 nodules in the upper lobe of my right lung. All four are less then a centimeter in size. I have not spoken to my doctor about this yet as the news was…
Please help: Peg tube question
I have read on here to flush the feeding tube before and after feeding. Does flush mean force with the syringe or let the water flow in slowly like the feed? Also has anyone used fruit and vegetable juice through the feeding tube? My mom started chemo yesterday and her instructions are to get 64-96 fl oz of fluid everyday…
Pumakitty Dad up-date
Hi everyone I am sorry to report that Kathy Dad passed away today at 4pm. Please keep Kathy and her Family in your prayers Hondo
More Dental Stuff
Hi Folks, I've been following Sheilarhc's post on dental implants. I know prior to treatment I had to be cleared by my dentist. I had one tooth removed and a cavity filled as well as a thorough cleaning. My dentist recommended using a childrens fluoride rinse (Listerine) as opposed to trays. I rinse with it twice a day (am…
Stage IV Head and Neck Cancer
My brother in law has two large tumors on both sides of his neck along with growth in the front. Radical surgery in Nov 2012 removed a very large mass in his throat, however, it has all grown back. The chemo did not work and they put off radiation because of a fistula from the surgery. Now he is starting radiation tomorrow…
Clicked the Switch
Ok, in the last four days life has changed for me. I went to see my Med Onc last Tuesday complaining of a real sore throat and food getting stuck every time on the right side of my throat. Both he and my ENT are sure it is just swelling but it was tough for me to buy into and I just couldn't eat. I'm on 6 insures a day and…
How to make eating easier?
Hello, I am new to the board. I am currently undergoing radiation and chemotherapy treatment for a head/neck malignancy. This has resulted in dry mouth and some lost of taste. I taste sweet things the best and they go down the easiest. The major problem I have is that it is difficult for me to eat anything other than…
Ending Swallowing Therapy
Hey guys and gals, Today at therapy my therapist Lena said that i have reached all her goals and there is nothing more she can bring to the table. I am afraid to cut the strings though. I always try harder stuff with her and feel safer when shes there. She is on vacation next week and was already scheduled for week of 30th…
oops doubled it
I know it is probably normal rad side effects but has anyone had tingling (like when hand falls asleep but worse) in their shoulder, arm and chest? Jim gets it in his upper back sometimes as well but mostly left shoulder and upper arm. Oncologist wasn't sure. Debbie
Just Dropping By To Say Hello
Dropping by to say hello to all you wonderful people. You haved saved my sanity on many a night. Robert & I have been keeping quite busy just sorting through the many things that have accumulated here over the last 40 years. Some items have been donated and many items will be sold over the next few months to make ends meet…
Oh Baby!
For those of you that remember, my husband and I decided we wanted to expand our family about 6 minths ago. Just wanted to share that I am pregnant! We saw tye baby on u/s today & saw a strong fast heartbeat. We seriously couldn't be more thrilled. My onc has suspended all svans until after baby comes. I know its not the…
Introduction
Introduction Hello All. I am here to desperately try to get a handle on my dear brother's tonsil cancer. Unlike all of you, he cannot tell me exactly what he has. I suppose his attitude is good, as he says, "What does it matter?" He doesn't know the stage, but the tumor is T1 and it has gotten into his nodes, but he…
teeth problems
I had radiation to thraot 35 times and chemo 3, after going on 4 years out, i have lost 2 back teeth to radiation and had them removed, now I have 4 upper and a lower same area that the top of the tooth is decaying deeply, I am full dissability, but I heard that my medicare part b might help if they can prove that it was…
Vivian???
Vivian, You've been on my mind a lot lately, how are you? It is my hope that you are doing well in the healing process. Please if you have a minute, drop us a little line to let us know how you are doing. XO Billie
Tenderness in Neck after tx
Hi Folks, I hope you are all doing well. Kreg is doing well at 6 months out of tx. Eating, drinking, and his taste are all coming back. The question of the day is, has anyone had any tenderness around the neck where the lymph node was affected? He never had surgery, just rads and chemo. He noticed this feeling just…
Infected G Tube?
Rob got his feeding tube last thursday. Last night while taking off the bandage I noticed what I think to be pus. He calle the doc and some oozing is normal but I am not sure pus is considered normal. Did anyone else have any puss with there tube? He has no redness of the skin around it. and no temperature. Maybe I am just…
Eating solid foods
* I was diagnosed with Stage 3 BOT Cancer in 8/12 The tumor was large and it had my epiglotis (sp) stuck in the "up" position. Prior to treatment I was able to finish to the whole swallowing test (not great results, but could swallow) Had 7 weeks of radiation and 3 chemo treatments. Finished treatment in 11/12 Had PetScan…
Timeline question
Today marks 1 year that I rang the bell...that memory still brings tears to my eyes. My question is where the reference point in time is for figuring milestones like 18 months and five years. I have heard it is at dx, was it when I had my surgery or was it the day I finished tx?
Back again
That Cisplatin seems to knock me around. The first dose put me in hospital for 2 weeks, the second time around the doc managed to control my white blood cells better and only had to stay in hospital for 1 week (just out now). Thankfully with the Erbitux, radiation cisplatin etc. my treatments are over, now is the time to…

Head and Neck Cancer

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