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*** CSN H&N Contact List ~ Update ***
OK, all of you that have sent me info so far, please let me know your preferred methods of contact and in which preference order...and any restrictions, time, personal calls, texts, cell phone calls, etc... Home Phone Number Cell Phone Number E-Mail CSN PM Text FaceTime Skype FaceBook and any other mode I have not…
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H&N Humor
I decided a couple weeks ago to buy 23andme evaluation for myself and my boyfriend. They analyze your DNA to look for heritage as well as genetic tendencies toward various diseases and disorders. I figured it would be a mouth swab. Nope! You have to spit in a tube, to collect about an inch of saliva. The instructions say…
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And so we begin.....
My husband had his radiation mask made today- radiation starts tomorrow, one side of the neck x 5 wks. This forum has been such a blessing For me- a reminder that you all have pushed through and so can we. So much courage here. Thank you.
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Pre-Radiation Dental Issues
Bunch of Questions... Brother slated to started radiation in 1.5 weeks to right and left side of head post left parotidectomy and neck dissection. Dental screening yesterday: 2 cracked teeth (they will work on and crown later)...and 3 impacted (no infection) widom teeth and one that erupted. He will be contacting rad onc…
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Lucky to be a mom
I am so grateful to be alive. I hope you'll don't mind my bragging. My son is a Senior in High School and we went to the athletic awards ceremony last week. In his 4 years of high school he has been a varsity player in 3 sports. been an All District player in 3 sports, been an All State player in Football and was awarded…
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Happy Third Anniversary to Me!
THREE YEARS TODAY. And it's been SOOOOO worth it! Always GRATEFUL to be here! Deb
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Parotid Tumor-New Diagnosis
Hi... I am new to the boards. My 45 year old brother was diagnosed with a Primary Parotid Tumor with 3 positive lymph glands (Stage 4). He had a parotidectomy and neck dissection and they severed a branch of his parotid nerve. The margins were clear. Path report show poorly differentiated "squamous like " cells. No there…
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Pathology Report
I saw my ENT that did my surgery last Tuesday this morning . Got the news I expected that the Lymph Gland that I could feel was SCC . The good news is that the other two that he removed were not Cancer ! I will be going to MDAnderson in Houston in the next 2 or 3 weeks to see what if any treatments they recommend. So I…
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TREATMENT UPDATE
A very happy Mothers Day to all of tithe moms out there. My last post regarding my treatment I think I got the Meds confusedrandom actually going to receive Taxotere one e every 3 weeks. I was randomized into the clinical trial and found out I am in the group who will not receive the other drug along with the Taxotere. It…
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Busy month !
Received a call from my Dad tonite. My Uncle passed away quietly with his family around him. He had that mesophelioma. Not sure of the spelling. So will be heading north on Thursday to be with the family. We also have a few baby showers, wedding showers, and birthdays this month. Life all around us hunh ? Was in to my…
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are there alternatives to radiation?
I recently had squamous cell cancer in lymph nodes. I have a strong sense, based on extensive testing and the results of my surgery, that radiation therapy may not be necessary. As far as my doctor is concerned, radiation is the obvious choice, but given the consequences I'm not sure I'm ready to accept that. I'm looking…
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Happy Mothers Day all
I would like to wish all you mothers out there a Happy Mothers Day! Even all the men who are a bunch of mothers. I hope that we may be able to put our issues aside for a day and give thanks to the most important people in the world who brought us into this world. And if your mom is not with us today take a moment to…
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Little update again
Hey everybody! I've been reading posts almost everyday but find it hard to be active on the board due to a lot of work lately. My dad, as some of you already know, had finished his tx in September 2012 and in January CT showed a bit enlarged lymph node in his neck (they said it was probably from radiation which hit him…
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4 weeks behind us and doing well.
Just a quick report on my husband. Yesterday was the 23rd of 33 treatments so we start the 10 day countdown on Monday. He had two double-rad days, one due to the machine breaking down and one to avoid doing his last day after the three day holiday break for Memorial day. So, it's a tidy schedule with two M-F's to go. He…
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Pumakitty Dad
Hi Everyone I just spoke to Kathy a little while ago; she said her Dad was not doing too well. He is in the hospital and they don’t expect him to live much longer, he had got Pneumonia on top of everything else and his body is just not strong enough to pull through it. He is not in any pain but resting and the hospital is…
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Throat Pain Returns?
4 1/2 months post radiation and was feeling fine- normal diet, eating drinking, etc... Out of the blue, throat pain returns just like the post rad period-significant and cannot eat. Pet scan 4 weeks aga was NED. Had to do a lot of talking this past week for work. Has anyone else ever experienced this? Had some spicy food…
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Mucositis, throat cancer, fever
Stage 1 vocal cord cancer, being treated with radiation only, 28 treatments. 22 treatments in, my husband spiked a fever of 101, coinciding with very think mucus in his throat which causes him to cough and hack, especially after laying down. They checked him out at the ER twice, and found no infection or known virus. The…
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Narrowing in pharnayx
Hey everyone, during my last swallow study they said i have a narrowing to my pharanyx and they believe it to be scar tissue from rsds during NPC tx? They believe this among other things is why i have trouble swallowing. Ive heard others ha e esphagus narrowing but anyone had this one and would diliatiOn work? And what is…
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Our Final Time Together
We laid my husband to rest today with a simple, but elegant graveside service. Our friends are few in number but are true friends. My daughter was able to lay a single rose on her grandmother's grave as my parents' plots and ours are side by side. She and my mother were very close. In time we will heal from the loss of the…
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h&n phonebook
if u would like to b n the h&n phonebook, pls. send ur info to skiffin. send him the following: patient name, caregiver, relationship to patient, location, phone number. God bless, dj
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Dad back in hospital
Hi guys, Just wanted to update you on a couple of things. Dad went to the oncologist last weeks and was told he was doing better then expected and he would see him in 4 weeks and determine if he was strong enough to restart chemo. Sae regular doctor next week and was told doing good. Home health nurse discharged him that…
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Treatment update
Well, today was treatment #32 and tommorrow the radiation ends. The first three Chemos are also done. I get to wait about a month before the next round of adjuvent chemo starts depending on the healing of the throat and mouth. Mucositis grade 3 at this point but I'm still drinking water, Boost plus, Juven and milkshakes.…
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NjShore
Hey Kari, i read on the cite someone asking if you we're ok and I know you and Dan both had surgery, are you guys ok? Thinking about you, worried about you and praying for you! love, Rachel
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4 & 1/2 weeks Post Treatment - Thoughts
Am at 4 & 1/2 weeks post tx and thought I would share my thoughts and my recovery so far. Appreciate everyones journey is different though. Week 1 & 2 * Ulcers, mouth sores * Very sore throat * No energy thus lots of time in bed * Nausea from last chemo dose (cisplatin) * Was seriously tough work eating and drinking. In…
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Update
Completed 7 weeks of chemo and rad on Tuesday. Lost 25 lbs even with peg. Swallowing is non existance. Majic mouthwasher causes me to vomit-mouthsores. I feel worse now than ever. I need to swallow. Any suggestions?
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My family is smothering me
Ok I have complained multiple times that I didn't get any support when David was sick. Now today my family is smothering me. Everyone wants me to spend my anniversary with them. Well you know I dont want to. I will be spending that day with the Gabbards. That is where I want to be. When I try to explain then they want me…
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Billie?
Anybody heard from Billie or Kari, haven't seen them post or answer in a bit just concerned! Rachel
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Tomorrow morning
Tomorrow morning is the big day with the ENT. I hope nothing is wrong with me. I was managing well until now...I fear my life will change forever and I am so scared. If he does find something, I hope it's curable and that I won't have to wait another 3 weeks for results. It's hard, I sorta put my life on hold with the…
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New added fun
Well, We have new added fun to our adventure. Rob will be getting extra fluids 2 days a week. He will also get a port in the chest and a feeding tube. He has lost 14 lbs in 2 weeks and they don't like that. Port goes in Friday, today is consult for feeding tube. He has totally agreed to the feeding tube as he sees how…
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my struggle with negativity
Tomorrow I'll finish my third week of radiation and Monday I'll start my second round of chemotherapy. All in all I'm having a very good day. My energy level is up today, which is great. The calm before the storm, I guess, with chemo next week. My throat pain, which had been getting worse for several days, has dropped off…