-
Clicked the Switch
Ok, in the last four days life has changed for me. I went to see my Med Onc last Tuesday complaining of a real sore throat and food getting stuck every time on the right side of my throat. Both he and my ENT are sure it is just swelling but it was tough for me to buy into and I just couldn't eat. I'm on 6 insures a day and…
-
How to make eating easier?
Hello, I am new to the board. I am currently undergoing radiation and chemotherapy treatment for a head/neck malignancy. This has resulted in dry mouth and some lost of taste. I taste sweet things the best and they go down the easiest. The major problem I have is that it is difficult for me to eat anything other than…
-
Ending Swallowing Therapy
Hey guys and gals, Today at therapy my therapist Lena said that i have reached all her goals and there is nothing more she can bring to the table. I am afraid to cut the strings though. I always try harder stuff with her and feel safer when shes there. She is on vacation next week and was already scheduled for week of 30th…
-
oops doubled it
I know it is probably normal rad side effects but has anyone had tingling (like when hand falls asleep but worse) in their shoulder, arm and chest? Jim gets it in his upper back sometimes as well but mostly left shoulder and upper arm. Oncologist wasn't sure. Debbie
-
Just Dropping By To Say Hello
Dropping by to say hello to all you wonderful people. You haved saved my sanity on many a night. Robert & I have been keeping quite busy just sorting through the many things that have accumulated here over the last 40 years. Some items have been donated and many items will be sold over the next few months to make ends meet…
-
Oh Baby!
For those of you that remember, my husband and I decided we wanted to expand our family about 6 minths ago. Just wanted to share that I am pregnant! We saw tye baby on u/s today & saw a strong fast heartbeat. We seriously couldn't be more thrilled. My onc has suspended all svans until after baby comes. I know its not the…
-
Introduction
Introduction Hello All. I am here to desperately try to get a handle on my dear brother's tonsil cancer. Unlike all of you, he cannot tell me exactly what he has. I suppose his attitude is good, as he says, "What does it matter?" He doesn't know the stage, but the tumor is T1 and it has gotten into his nodes, but he…
-
teeth problems
I had radiation to thraot 35 times and chemo 3, after going on 4 years out, i have lost 2 back teeth to radiation and had them removed, now I have 4 upper and a lower same area that the top of the tooth is decaying deeply, I am full dissability, but I heard that my medicare part b might help if they can prove that it was…
-
Vivian???
Vivian, You've been on my mind a lot lately, how are you? It is my hope that you are doing well in the healing process. Please if you have a minute, drop us a little line to let us know how you are doing. XO Billie
-
Tenderness in Neck after tx
Hi Folks, I hope you are all doing well. Kreg is doing well at 6 months out of tx. Eating, drinking, and his taste are all coming back. The question of the day is, has anyone had any tenderness around the neck where the lymph node was affected? He never had surgery, just rads and chemo. He noticed this feeling just…
-
Infected G Tube?
Rob got his feeding tube last thursday. Last night while taking off the bandage I noticed what I think to be pus. He calle the doc and some oozing is normal but I am not sure pus is considered normal. Did anyone else have any puss with there tube? He has no redness of the skin around it. and no temperature. Maybe I am just…
-
Eating solid foods
* I was diagnosed with Stage 3 BOT Cancer in 8/12 The tumor was large and it had my epiglotis (sp) stuck in the "up" position. Prior to treatment I was able to finish to the whole swallowing test (not great results, but could swallow) Had 7 weeks of radiation and 3 chemo treatments. Finished treatment in 11/12 Had PetScan…
-
Timeline question
Today marks 1 year that I rang the bell...that memory still brings tears to my eyes. My question is where the reference point in time is for figuring milestones like 18 months and five years. I have heard it is at dx, was it when I had my surgery or was it the day I finished tx?
-
Back again
That Cisplatin seems to knock me around. The first dose put me in hospital for 2 weeks, the second time around the doc managed to control my white blood cells better and only had to stay in hospital for 1 week (just out now). Thankfully with the Erbitux, radiation cisplatin etc. my treatments are over, now is the time to…
-
Winding up week 4
Those of you following my posts over the past couple of weeks know that I have a tendency to obsess about the negative. Well somehow I've turned that around. I think it came when I got a chance to actually see the scans of my neck showing the tumor and the treatment plan. I feel much more confident that things are going to…
-
Checking In
Hi all: Basketcase checking in finally!. A lot has been going on. Y'all know about my best friend's house fire and losing her 95 year old father in the fire and her husband Steve undergoing lung ca treatment. Well, they have demolished the old house and getting ready to build the new one. Steve has finished chemo and rads…
-
Still in treatment
Just joined the board yesterday. Guess I posted yesterday in the wrong place who knows. I was diagnosed with Squamos cell carcinoma HPV-16 Tonsil and neck, on Feb 8, 2013. I've had three surgeries and have five radiation treatments left. Couldn't do Chemo because of a solitary kidney. They took 25 nodes and 1 salivary…
-
*** CSN H&N Contact List ~ Update ***
OK, all of you that have sent me info so far, please let me know your preferred methods of contact and in which preference order...and any restrictions, time, personal calls, texts, cell phone calls, etc... Home Phone Number Cell Phone Number E-Mail CSN PM Text FaceTime Skype FaceBook and any other mode I have not…
-
my dental issues PLEASE HELP
dx: 8/09 laryngel cancer tx: 35 radiation tmnts recurrence: 2/12 tx: total laryngectomy 2/28/12 i've been reading "more dental stuff" and getting more scared the more i read. my teeth have all moved and i bite my tounge EVERYTIME i eat. plus i have a sore on my gum and my mouth is pretty sore. due to these problems i went…
-
Struggling tonight
I am really struggling. With my anniversary on Sunday I am feeling like I can't breathe. I miss David and his smile and his warm hand to hold mine. I tried to be brave and not whine, but I am so tired. I just keep wondering when it will get a little better. Why was it that my husband was chosen to go to heaven so early?…
-
*** CSN H&N Contact List ~ Update ***
OK, all of you that have sent me info so far, please let me know your preferred methods of contact and in which preference order...and any restrictions, time, personal calls, texts, cell phone calls, etc... Home Phone Number Cell Phone Number E-Mail CSN PM Text FaceTime Skype FaceBook and any other mode I have not…
-
H&N Humor
I decided a couple weeks ago to buy 23andme evaluation for myself and my boyfriend. They analyze your DNA to look for heritage as well as genetic tendencies toward various diseases and disorders. I figured it would be a mouth swab. Nope! You have to spit in a tube, to collect about an inch of saliva. The instructions say…
-
And so we begin.....
My husband had his radiation mask made today- radiation starts tomorrow, one side of the neck x 5 wks. This forum has been such a blessing For me- a reminder that you all have pushed through and so can we. So much courage here. Thank you.
-
Pre-Radiation Dental Issues
Bunch of Questions... Brother slated to started radiation in 1.5 weeks to right and left side of head post left parotidectomy and neck dissection. Dental screening yesterday: 2 cracked teeth (they will work on and crown later)...and 3 impacted (no infection) widom teeth and one that erupted. He will be contacting rad onc…
-
Lucky to be a mom
I am so grateful to be alive. I hope you'll don't mind my bragging. My son is a Senior in High School and we went to the athletic awards ceremony last week. In his 4 years of high school he has been a varsity player in 3 sports. been an All District player in 3 sports, been an All State player in Football and was awarded…
-
Happy Third Anniversary to Me!
THREE YEARS TODAY. And it's been SOOOOO worth it! Always GRATEFUL to be here! Deb
-
Parotid Tumor-New Diagnosis
Hi... I am new to the boards. My 45 year old brother was diagnosed with a Primary Parotid Tumor with 3 positive lymph glands (Stage 4). He had a parotidectomy and neck dissection and they severed a branch of his parotid nerve. The margins were clear. Path report show poorly differentiated "squamous like " cells. No there…
-
Pathology Report
I saw my ENT that did my surgery last Tuesday this morning . Got the news I expected that the Lymph Gland that I could feel was SCC . The good news is that the other two that he removed were not Cancer ! I will be going to MDAnderson in Houston in the next 2 or 3 weeks to see what if any treatments they recommend. So I…
-
TREATMENT UPDATE
A very happy Mothers Day to all of tithe moms out there. My last post regarding my treatment I think I got the Meds confusedrandom actually going to receive Taxotere one e every 3 weeks. I was randomized into the clinical trial and found out I am in the group who will not receive the other drug along with the Taxotere. It…
-
Busy month !
Received a call from my Dad tonite. My Uncle passed away quietly with his family around him. He had that mesophelioma. Not sure of the spelling. So will be heading north on Thursday to be with the family. We also have a few baby showers, wedding showers, and birthdays this month. Life all around us hunh ? Was in to my…