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Friendship
Why do some people who say they are your friends abandon you when you get cancer I've had 2 friends do this to me .
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Reoccurrence Rate? HPV SCC Tonsil Primary
Trying to find information on the reoccurance rate of HPV SCC. Since most studies are either, A- outdated, or B- only studied patience for 3 years post diagnososes, this leaves me wondering if there is any studies that show long term reoccurrence rate. I ask here because I imagine some of you may have doctors who were able…
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When does the swallowing get better?
Hello there, Have finished radiation and chemo treatments around about 5 weeks ago and have lost saliva or just thick saliva at times was diagnoised with SCC stage lll /left tonsil and part of right tonsil/had tumor on left side of neck with a lympnode involed,was HPV positive,had left tonsil biopsy and found the cancer…
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Back from MDA
Well we got home yesterday about 3:30 and at 6:30 the MDA Doctor's PA called and they want me to come back for a Needle Biopsy with an Ultrasound. The two Doctors that I saw on Wed. said that they saw something on the other side of my neck in the CT scan that they did on Tuesday, and they noticed it in an older PET scan…
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pain increasing things moving to fast - update
Everyday Jim's pain is increasing and breathing is starting to be a problem. Jim's color is not good either. He refuses to take the pain meds because then he will not be able to go fishing in the mornings. He is very sensitive to pain meds. The Lortab makes him sleep almost 24/7 and he can't be left alone because he starts…
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Jim Kelly
Hall of Fame QB of the Buffalo Bills joins our club. http://espn.go.com/nfl/story/_/id/9336790/ex-buffalo-bills-qb-jim-kelly-battling-cancer-jaw "T"
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Planned CSN outage
CSN will be down for a couple of hours this morning beginning at 3:00 AM Eastern Time for planned maintenance. We apologize for any inconvenience. Best to all, greta aka Your CSN staff
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Missed everyone
I have missed everyone greatly. My son graduated high school and my daughter graduated college. I am so glad to have that over with, but I missed having David by my side. My mother-in-law went with me and that helped quite a bit. I still miss David, but I am trying to start living life again. I have been thinking so much…
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Advice, Help, Newbe
Hi. I am new here. It's been a rough two months. I had a tumor removed from my thigh, came back benign and I was elated. In the time it took to have the tumor removed from my thigh, I found two masses on the BACK of my neck, and once everything was done and settled with the thigh tumor, I went and had the neck masses…
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It's the little things!
Y'all may think I'm goofy, but I am so thankful for the "little things" lately. I ate oatmeal this morning. Oatmeal. Without my mouth burning on fire, choking, gagging or having to spit 75 times. I am SO excited! I only had to use my magic mouthwash TWO times yesterday. I had no pain except later in the day. Today I am…
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A Success Story
We need a good story and I was lucky enough to stumble over one the other day. I was listening to Desert Island Discs, a BBC radio show available as a podcast. The weekly guest gets to name 7 songs that he’d take with him to a desert island plus a book and a luxury. In between the musical selections, the guest talks about…
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when to start l-glutamine , and what is best schedule for tonsil cancer and rads
hello again, have been gathering a list from everyone who have been so kind and helpful. just not so sure how to schedule things to help in preventing mouth sores. when and how often on the l glutamine powder, what about the salt water rinses? and I am hearing about mugard and not sure where to get it for ron. He starts…
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Financial security
Good news - went for a beautiful ride ( in my classic vette) upstate NY today to see my financial adviser - he said I can't die because I don't have enough money( guess I don't have to worry about next pet scan). The bad news is I don't have enough money to retire - talk about being between a rock and a hard place. I am…
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muco epidermoid carcinoma and childhood cancer
My 7yr old daughter was diagnosed with muco epidermoid carcinoma of the parotid gland. She had her parotid gland removed 1 yr ago and completed 33 radiation treatments. It was stage 2(intermediate.) I have heard alot of people say that she's at a higher risk for leukemia and other major health issues. I was just wondering…
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My brother's Journey Finally Begins
Hi All. It seems like ages ago that I first came aboard. My brother is finally starting his treatment tomorrow. I have been keeping up with all of your journeys. His spirits are up and he is ready for the battle. I had mentioned before that he hasn't been reading about any possible side-effects because he thought he just…
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radiation masks
These scare me and I haven't even seen dad's. Right now it's just late and I'm having a hard time trying to stay positive at the moment bc my thoughts just consume me. Please tell me about radiation... the side effects most common and what not of you would. Thanks for everyone's support so far. I guess I'm just having a…
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Getting Sleep During the Night
Am just not able to get over 4 hours a night of sleep after 8 weeks since i completed treatment...anyone have any ideas?
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Question about metastic to lungs
As most of you know jim's tongue cancer spread to his lungs. He has numerous nodes in both lungs with the largest, 1.75 cm, in the left. Over the weekend he started having some pain under the left arm. This morning he came home from fishing very weak. He was in pain but now the pain is also in the left lower chest. He says…
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Get a look at what Michael Douglas is saying about his disease..
At least he's trying to get the conversation going. J. LONDON (AP) — Actor Michael Douglas says that his throat cancer was caused by a virus he contracted by performing oral sex on women. The Guardian newspaper published an interview Monday in which Douglas blamed cunnilingus for the grave malady that was diagnosed in…
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Squamous Carcinoma -- in jaw bone (Left posterior -- mandibular segment)
I'm new here, so happy to have this outlet and place for information! My almost 70-year old father has just been disgnosed with the above subject cancer. We met with his Specialist in Austin, TX (Dr. Scholl) last week and was told her will have 1/2 of his jaw removed and replaced with his fibula leg bone; with follow-up…
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Finished Treatment Now What?
Finished treatment on April 19th 30X rad with no chemo! Now the waiting game and it is driving me crazy! Had more of a bad reaction to the Ativan was put on during treatment and am finally getting a couple of hours of sleep at night! How does one deal with the waiting game that will be a part of our life from now on? Go…
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Does anyone know about radiative pill?
My dad is experiencing new and different feelings since he has finished up his radiation treatments in March. He has been complaining about his skin hurting and he is very sensitive to anyone touching him and of course he is very very tired. He is also loosing weight even tho he is drinking his ensure and eating soft…
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Another free gift
Hi folks, About a week after I came home after treatment, I developed symptoms and eventually a full blown case of gout on my left foot (joint of my big toe). Anyone who has dealt with gout knows how painful it is. I had a bout of it about 5 years ago and while it was painful, it paled in comparison to this attack. When I…
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Getting the All Clear
Friends, When have you been told you will get the "all clear" if there is such a thing in regards to cancer? I was told major milestone at year one all clear and then at year three most would say you are out of the woods. Most reoccurances happen within the first year so after that survival odds go way up. Just wondering…
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Feeding tube and still throwing up
Hi all ny nmae is Ron and i was diagonosed with the right tonsil cancer and 1 lymph node infected. I am a non smoker never have they say it was causd by the HPV virius and said this was very curable. In my 6th week i hadn't eaten anything for almost 2weeks so I had the feeding tube placed so far it seems to be a bust My…
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Random canker sores 6 months after tx
Hi All! Hope you are all enjoying your Memorial Day weekend with the ones you love! I'm just wondering if anyone has experienced random canker sores or even cold sores after tx? Kreg has had these appearing in the last couple weeks. They have appeared in the inside of his cheek and his tongue. He doesn't see his ENT until…
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ASCO: HPV-Oral Cancer Won't Threaten Spouses
CHICAGO -- Oropharyngeal cancers that arise from human papillomavirus (HPV) are no more likely to spread to a domestic partner than to the general population, an observational study showed. ASCO: HPV-Oral Cancer Won't Threaten Spouses Interesting read for those that have discussed this topic before: Best, John
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Little Change
Not much has changed. I get two weeks of Taxole and Erbitux followed by 1 week of Erbitux. I get two rounds of this then I get one week off (no IV meds at all). FATIGUE is HUGE. I will have to rest even after composing this little update. Just getting the food/liquids/ and meds down is more than a full time occupation.…
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I did it folks
Hey friends, i ended my speech therapy yesterday! It was happy and sad Lena my therapist was such a supportive soul and i will be sad not to see her 4 times a week. But its time for me to be a big girl and push on on my own. So i finished at puree level and not many different ones at that. My bithday is coming June 4 and i…
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Radiation smell and lights
Hello. I have just joined and hope you can help me. I was diagnosed in May 2011 with Npc stage three and started treatment on June 1. I have had three rounds of chemo Cisplatin latest being this Monday. Started radiation and just did 8th treatment today. The last two sessions Of radiation I have felt horrid bc of the smell…