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First Follow Up
Hi Folks, I was in Baltimore most of the day. I had my first follow up with my MO this afternoon. All in all it was very encouraging. I'm doing as well as expected for 6 weeks post Tx. Blood work was decent but several aspects were on the low side as expected. This accounts for the fatigue and gout. As far as the gout…
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Neck Dissection Question
Had a radical left neck dissection three years ago. 35 or so lymp nodes were removed. lately I have noticed the area often gets clammy, cold, and wet feeling, often while I'm eating ( no I don't need a bib ). Has anyone else had a similar experience?
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Cisplatin Docetaxel Nightmare
Hi All, 1st post here. My husband was diagnosed with SSCHN on March 24th 2013. His tumor is in his left face and is greater than 8cm. His team seemed undecided on his treatment plan for an extended period of time and after flip flopping tx decisions finally arrived at 3 rounds of cisplatan/docetaxel 21 days apart and then…
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Spell check
Just for the record- I can't stand the spell check on my I phone and I pad - I am not an idiot who can't spell - it is most frustrating so I just want to apologize for all the spelling errors you may see when I post thank you, Ralph
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Brother Update
Today is Day 6 for my brother's treatment. He's doing quite well actually, except that he has already lost 11 lbs. I was amazed on how well he did after his first chemo. He wasn't even a little bit sick. He was warned, however, that because he handled the first one well, does not mean that the subsequent ones will be a…
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olfactory neuroblastoma
Well, I had my surgery on the 31st, and am going for my followup tomorrow. They will remove the packing left in my nose and maybe have my pathology reports. Hoping to know whether I will be having the radiation treatments. I know more than likely I will but hoping I don't. Does anyone have an opinion on different clinics.…
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Speaking of getting back into normal....
Greg and I spent the day at a friend's farm.....they have riding horses, but we went to watch their draft horses work, and then to watch them start their mini-horses driving.....where we had a mini-rodeo....LOL. Last night we went to a benefit auction for our farrier, who got hurt badly a month ago. We won a two night stay…
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Flip Flop - Pop-A-Top
Here's the flip flops.... A few rainy day flatties fof the box...; Now to Pop-A-Top... John ~JG
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radiation side effects
My husband, 52, was diagnosed with HPV+ base of tongue cancer with a few lymph nodes in the neck involved. He finished 8 rounds of chemo (cisplatin) concurrent with 35 rounds of radiation. He is going to have brachytherapy on 7/9 at Beth Israel Hospital in New York City. My question has to do with two specific side…
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Great news
My salvia gland on the right side is back 14 weeks post treatment. Just happened sitting wondering how to get to the next day and bam I could talk and swallow without being in a lot of pain ! Thank you God for answering a prayer .. To anyone going through dry mouth it does get better. Susan
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Update on teeth
Thanks Pat, John, "T", Matt, and Tom for your thoughts and comments. I went to the dentist today, and need to update the info. I jumped to conclusions based on my fatalism, and misdiagnosed my condition. Though 4 years past treatment, and after following no respectable flouride regimen, my teeth are in good shape according…
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Need some help please!
I have had 24 rads, only 6 more to go. About 2 days ago I started being VERY sick on my stomach. I'll spare you the details, but the doc thinks I maybe caught some kind of bug and told me to keep up my fluids. So, I have, and today I feel back to normal. I haven't been able to eat all day because I'm scared of throwing up…
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Friendship
Why do some people who say they are your friends abandon you when you get cancer I've had 2 friends do this to me .
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PEG guidelines draft - solicit your feedback/input
DRAFT - Guide for using PEG during HNC cancer treatements. I have created a draft document that includes much of what flew across the thread the past few days, If you feel having a guide of some sort to assist with the topic of PEG, then I suggest you take a look and add your latest thoughts. I will incorproate feedback I…
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Numbness
23 years ago I had a neuroma taken out of my right foot. In December I had a carotid endarterectomy, dodgy surgery, big cut and deep inside the neck, left me with a 5 inch long scar goinng from below my left earlobe down to underneath my adams apple. After I had chemo and rads in 2009, i could feel a little numbness in my…
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How long before one can eat or drink again once treatment ends?
Hello everybody! My husband Kenny was diagnosed with metastatic squamous cell cancer of the tonsils, stage IVA, last January. I've been reading these posts for several months now and appreciate all the great information and helpful souls out there. But my husband rarely goes online and prefers to get info filtered through…
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Food for Thought...
OK, back by popular demand..., LOL. I know there are many here that only dream of the food they used to eat..., many in various stages of taste and saliva recovery. I was there with you a while back..., recording every food channel out there, slobbering imaginary drool... A sip of water with every bite of tasteless food,…
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Long Term Survivors
Would love to hear from survivors past the five and even ten year mark...I know that there are people out there but would love to hear from them. Just starting the journey and need encouragment that this thing can be beat! Thanks!
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Friendship
Why do some people who say they are your friends abandon you when you get cancer I've had 2 friends do this to me .
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Reoccurrence Rate? HPV SCC Tonsil Primary
Trying to find information on the reoccurance rate of HPV SCC. Since most studies are either, A- outdated, or B- only studied patience for 3 years post diagnososes, this leaves me wondering if there is any studies that show long term reoccurrence rate. I ask here because I imagine some of you may have doctors who were able…
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When does the swallowing get better?
Hello there, Have finished radiation and chemo treatments around about 5 weeks ago and have lost saliva or just thick saliva at times was diagnoised with SCC stage lll /left tonsil and part of right tonsil/had tumor on left side of neck with a lympnode involed,was HPV positive,had left tonsil biopsy and found the cancer…
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Back from MDA
Well we got home yesterday about 3:30 and at 6:30 the MDA Doctor's PA called and they want me to come back for a Needle Biopsy with an Ultrasound. The two Doctors that I saw on Wed. said that they saw something on the other side of my neck in the CT scan that they did on Tuesday, and they noticed it in an older PET scan…
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pain increasing things moving to fast - update
Everyday Jim's pain is increasing and breathing is starting to be a problem. Jim's color is not good either. He refuses to take the pain meds because then he will not be able to go fishing in the mornings. He is very sensitive to pain meds. The Lortab makes him sleep almost 24/7 and he can't be left alone because he starts…
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Jim Kelly
Hall of Fame QB of the Buffalo Bills joins our club. http://espn.go.com/nfl/story/_/id/9336790/ex-buffalo-bills-qb-jim-kelly-battling-cancer-jaw "T"
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Planned CSN outage
CSN will be down for a couple of hours this morning beginning at 3:00 AM Eastern Time for planned maintenance. We apologize for any inconvenience. Best to all, greta aka Your CSN staff
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Missed everyone
I have missed everyone greatly. My son graduated high school and my daughter graduated college. I am so glad to have that over with, but I missed having David by my side. My mother-in-law went with me and that helped quite a bit. I still miss David, but I am trying to start living life again. I have been thinking so much…
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Advice, Help, Newbe
Hi. I am new here. It's been a rough two months. I had a tumor removed from my thigh, came back benign and I was elated. In the time it took to have the tumor removed from my thigh, I found two masses on the BACK of my neck, and once everything was done and settled with the thigh tumor, I went and had the neck masses…
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It's the little things!
Y'all may think I'm goofy, but I am so thankful for the "little things" lately. I ate oatmeal this morning. Oatmeal. Without my mouth burning on fire, choking, gagging or having to spit 75 times. I am SO excited! I only had to use my magic mouthwash TWO times yesterday. I had no pain except later in the day. Today I am…
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A Success Story
We need a good story and I was lucky enough to stumble over one the other day. I was listening to Desert Island Discs, a BBC radio show available as a podcast. The weekly guest gets to name 7 songs that he’d take with him to a desert island plus a book and a luxury. In between the musical selections, the guest talks about…
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when to start l-glutamine , and what is best schedule for tonsil cancer and rads
hello again, have been gathering a list from everyone who have been so kind and helpful. just not so sure how to schedule things to help in preventing mouth sores. when and how often on the l glutamine powder, what about the salt water rinses? and I am hearing about mugard and not sure where to get it for ron. He starts…