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Head and Neck Cancer

Happy Mothers Day all
I would like to wish all you mothers out there a Happy Mothers Day! Even all the men who are a bunch of mothers. I hope that we may be able to put our issues aside for a day and give thanks to the most important people in the world who brought us into this world. And if your mom is not with us today take a moment to…
Little update again
Hey everybody! I've been reading posts almost everyday but find it hard to be active on the board due to a lot of work lately. My dad, as some of you already know, had finished his tx in September 2012 and in January CT showed a bit enlarged lymph node in his neck (they said it was probably from radiation which hit him…
4 weeks behind us and doing well.
Just a quick report on my husband. Yesterday was the 23rd of 33 treatments so we start the 10 day countdown on Monday. He had two double-rad days, one due to the machine breaking down and one to avoid doing his last day after the three day holiday break for Memorial day. So, it's a tidy schedule with two M-F's to go. He…
Pumakitty Dad
Hi Everyone I just spoke to Kathy a little while ago; she said her Dad was not doing too well. He is in the hospital and they don’t expect him to live much longer, he had got Pneumonia on top of everything else and his body is just not strong enough to pull through it. He is not in any pain but resting and the hospital is…
Throat Pain Returns?
4 1/2 months post radiation and was feeling fine- normal diet, eating drinking, etc... Out of the blue, throat pain returns just like the post rad period-significant and cannot eat. Pet scan 4 weeks aga was NED. Had to do a lot of talking this past week for work. Has anyone else ever experienced this? Had some spicy food…
Mucositis, throat cancer, fever
Stage 1 vocal cord cancer, being treated with radiation only, 28 treatments. 22 treatments in, my husband spiked a fever of 101, coinciding with very think mucus in his throat which causes him to cough and hack, especially after laying down. They checked him out at the ER twice, and found no infection or known virus. The…
Narrowing in pharnayx
Hey everyone, during my last swallow study they said i have a narrowing to my pharanyx and they believe it to be scar tissue from rsds during NPC tx? They believe this among other things is why i have trouble swallowing. Ive heard others ha e esphagus narrowing but anyone had this one and would diliatiOn work? And what is…
Our Final Time Together
We laid my husband to rest today with a simple, but elegant graveside service. Our friends are few in number but are true friends. My daughter was able to lay a single rose on her grandmother's grave as my parents' plots and ours are side by side. She and my mother were very close. In time we will heal from the loss of the…
h&n phonebook
if u would like to b n the h&n phonebook, pls. send ur info to skiffin. send him the following: patient name, caregiver, relationship to patient, location, phone number. God bless, dj
Dad back in hospital
Hi guys, Just wanted to update you on a couple of things. Dad went to the oncologist last weeks and was told he was doing better then expected and he would see him in 4 weeks and determine if he was strong enough to restart chemo. Sae regular doctor next week and was told doing good. Home health nurse discharged him that…
Treatment update
Well, today was treatment #32 and tommorrow the radiation ends. The first three Chemos are also done. I get to wait about a month before the next round of adjuvent chemo starts depending on the healing of the throat and mouth. Mucositis grade 3 at this point but I'm still drinking water, Boost plus, Juven and milkshakes.…
NjShore
Hey Kari, i read on the cite someone asking if you we're ok and I know you and Dan both had surgery, are you guys ok? Thinking about you, worried about you and praying for you! love, Rachel
4 & 1/2 weeks Post Treatment - Thoughts
Am at 4 & 1/2 weeks post tx and thought I would share my thoughts and my recovery so far. Appreciate everyones journey is different though. Week 1 & 2 * Ulcers, mouth sores * Very sore throat * No energy thus lots of time in bed * Nausea from last chemo dose (cisplatin) * Was seriously tough work eating and drinking. In…
Update
Completed 7 weeks of chemo and rad on Tuesday. Lost 25 lbs even with peg. Swallowing is non existance. Majic mouthwasher causes me to vomit-mouthsores. I feel worse now than ever. I need to swallow. Any suggestions?
My family is smothering me
Ok I have complained multiple times that I didn't get any support when David was sick. Now today my family is smothering me. Everyone wants me to spend my anniversary with them. Well you know I dont want to. I will be spending that day with the Gabbards. That is where I want to be. When I try to explain then they want me…
Billie?
Anybody heard from Billie or Kari, haven't seen them post or answer in a bit just concerned! Rachel
Tomorrow morning
Tomorrow morning is the big day with the ENT. I hope nothing is wrong with me. I was managing well until now...I fear my life will change forever and I am so scared. If he does find something, I hope it's curable and that I won't have to wait another 3 weeks for results. It's hard, I sorta put my life on hold with the…
New added fun
Well, We have new added fun to our adventure. Rob will be getting extra fluids 2 days a week. He will also get a port in the chest and a feeding tube. He has lost 14 lbs in 2 weeks and they don't like that. Port goes in Friday, today is consult for feeding tube. He has totally agreed to the feeding tube as he sees how…
my struggle with negativity
Tomorrow I'll finish my third week of radiation and Monday I'll start my second round of chemotherapy. All in all I'm having a very good day. My energy level is up today, which is great. The calm before the storm, I guess, with chemo next week. My throat pain, which had been getting worse for several days, has dropped off…
Rads - update: CROSSED 1/2 WAY
I just finished three full weeks of daily rads and overall feeling pretty good. I am on weekly chemo as well (carboplatin 150) but my MO inidicated and I can confirm the side effects from the chemo dosing is minimal if at all. All side effects are radiation based which to date really is come down to soreness/pain in the…
Post laryngeal cancer symptoms
Hi. I live in Sydney, Australia. I was diagnosed with squeamous cell carcinoma on my right vocal cord in 2005. It was in a very primary stage and was treated successfully with 6 weeks of radiation therapy. Although the treatment and immediate post-treatment period was very uncomfortable, my recovery was fairly complete…
Swallow Study Tomorrow
Hey Everyone, On such a sad morning since I just found out about Wolfen, I feel bad asking for prayers and pocket tucks. I have my another Swallow Study for 8am tomorrow and a therapy session right afterwards to develop a plan to begin eating at home both by mouth and tube depending on how study goes and how I tolerate it…
PEG tube pain....
How long before the cramping ends...I'm literally laid up because every more brings on sweeping spasm in my gut...almost to my knees kind of spasm...I'm home now, but have pretty much laid half sitting up in bed today...with short walks to the kitchen and of course the car when I left the hospital... p
You can be fabulous even if you don't feel or look that way!
Yesterday, we had to head down to Johns Hopkins for a follow-up. Firstly, they had to take out the safety buttons from my PEG implant. That was a piece of cake. Then we met with the nutritionalist and went over the game plan again and how I was doing. After we got the hang of it and found the right flow rate, it's been…
Been Very Very Sick
The root cause was high calcium due to excessive supplementation. (I was following doctor's orders.) Ca levevels went from too low to dangerously high in a couple of weeks. Altered Ca levels and had 8 hours of fluids IV, and things are getting under control. However the ride was a rough one. Fell once. Could hardly…
My Cherokee Irishman Has Gone Home
All My Friends, With the help of the wonderful Hospice group, my Ron was transported to our home Saturday at 2:30 PM. Robert & I rode with him. It was expected that he would expire shortly afterward. However, he managed to hang on until 9:10 AM Sunday. There was no struggle, only my own. He woke as the vent was removed,…
kari any update
has anyone heard from Kari? just wondering how her recovery is going. dj
Anyone else on weekly pallitive Erbitux?
Hi!! I was diagnosed with inoperatable neck tumor, Stage 4 Terminal...it's where my brain stem and spinal cord come together and 1mm away from internal jugular vein...it had spread to my Lymph nodes and lungs in Jan...on March 5th 2012 I started high dosage of 5FU, carboplatin and erbitux...the 5fu and carboplatin were…
Sun Sensitivity
DX with BOT in March of last year, induction chemo, chemo/rads (finished July 5 of 2012) surgery x 2 for remnant issues, the second from false positives. I was told during radiation 'training' that I would need to stay out of the sun for up to a year post treatments. During a re-visit after the skin on my neck healed, I…
First scan results today
Hi All, It's been awhile since I've posted but I do read. I had my 90 day post tx scan(MRI brain and mandible\jaw area) last Monday and today I have a 3:00pm with my onc doctor to go over results. I did not sleep at all last night. I have never felt this kind of anxiety in my life. I never call in to work sick, but I did…

Head and Neck Cancer

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