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Head and Neck Cancer

Rads - update: CROSSED 1/2 WAY
I just finished three full weeks of daily rads and overall feeling pretty good. I am on weekly chemo as well (carboplatin 150) but my MO inidicated and I can confirm the side effects from the chemo dosing is minimal if at all. All side effects are radiation based which to date really is come down to soreness/pain in the…
Post laryngeal cancer symptoms
Hi. I live in Sydney, Australia. I was diagnosed with squeamous cell carcinoma on my right vocal cord in 2005. It was in a very primary stage and was treated successfully with 6 weeks of radiation therapy. Although the treatment and immediate post-treatment period was very uncomfortable, my recovery was fairly complete…
Swallow Study Tomorrow
Hey Everyone, On such a sad morning since I just found out about Wolfen, I feel bad asking for prayers and pocket tucks. I have my another Swallow Study for 8am tomorrow and a therapy session right afterwards to develop a plan to begin eating at home both by mouth and tube depending on how study goes and how I tolerate it…
PEG tube pain....
How long before the cramping ends...I'm literally laid up because every more brings on sweeping spasm in my gut...almost to my knees kind of spasm...I'm home now, but have pretty much laid half sitting up in bed today...with short walks to the kitchen and of course the car when I left the hospital... p
You can be fabulous even if you don't feel or look that way!
Yesterday, we had to head down to Johns Hopkins for a follow-up. Firstly, they had to take out the safety buttons from my PEG implant. That was a piece of cake. Then we met with the nutritionalist and went over the game plan again and how I was doing. After we got the hang of it and found the right flow rate, it's been…
Been Very Very Sick
The root cause was high calcium due to excessive supplementation. (I was following doctor's orders.) Ca levevels went from too low to dangerously high in a couple of weeks. Altered Ca levels and had 8 hours of fluids IV, and things are getting under control. However the ride was a rough one. Fell once. Could hardly…
My Cherokee Irishman Has Gone Home
All My Friends, With the help of the wonderful Hospice group, my Ron was transported to our home Saturday at 2:30 PM. Robert & I rode with him. It was expected that he would expire shortly afterward. However, he managed to hang on until 9:10 AM Sunday. There was no struggle, only my own. He woke as the vent was removed,…
kari any update
has anyone heard from Kari? just wondering how her recovery is going. dj
Anyone else on weekly pallitive Erbitux?
Hi!! I was diagnosed with inoperatable neck tumor, Stage 4 Terminal...it's where my brain stem and spinal cord come together and 1mm away from internal jugular vein...it had spread to my Lymph nodes and lungs in Jan...on March 5th 2012 I started high dosage of 5FU, carboplatin and erbitux...the 5fu and carboplatin were…
Sun Sensitivity
DX with BOT in March of last year, induction chemo, chemo/rads (finished July 5 of 2012) surgery x 2 for remnant issues, the second from false positives. I was told during radiation 'training' that I would need to stay out of the sun for up to a year post treatments. During a re-visit after the skin on my neck healed, I…
First scan results today
Hi All, It's been awhile since I've posted but I do read. I had my 90 day post tx scan(MRI brain and mandible\jaw area) last Monday and today I have a 3:00pm with my onc doctor to go over results. I did not sleep at all last night. I have never felt this kind of anxiety in my life. I never call in to work sick, but I did…
After two weeks of treatment -
I'm feeling more tired today than I expected. I was hoping I would "bounce back" this weekend more than I have. I finished 2 weeks plus a day of radiation on Friday. My mouth is drier and my throat has periods of pain, but not too bad so far. I'm already tired of being sick and tired and still 5 weeks to go. I'm getting…
Has Anyone Here Used Hydrocodone (APAP) In Order To Control Pain ?
Hello all ! I was just wondering if anyone found it effective. Thanks, Dennis
Unknown Primary
my husbands pathology from his tonsillectomy came back and it was negative. So, we have joined the rest of you that have a dx of "unknown primary". I understand the radiation field will be a bit different but was told the amount will be pretty much the same - 6 wks. I don't know if this includes any chemo- we will meet…
Need a recommendation for a juicer
Hi and hope all is well. I've decided to start juicing and need a recommendation(s) for type of machine, and best buy for the $$'s. don't think I need a commercial food grade model, but not looking for one that will shoit crap quickly. Thanks Mike
5 appts today, 2 patient updates
Today Dan saw both his ENT Surgeons, and his oncologist-- all raving reviews of his weight gain (still holding his 20 lb gain at 160, and TPN is only 5 nights a week now! Everyone is happy. He also got a surprise visit from his dietician, and she too is thrilled to see him, and also a little concerned like me that as the…
Help- In Treatment - Dry Mouth
I hope you can help. My husband is receiving Chemo(Cisplatin) and Radiation for a mass on the base of his tongue. He is struggling terribly with a disgusting taste in his mouth and lack of saliva, he's nauseus and he constantly is bringing up a foamy substance. They just put in a feeding tube because he cant even tollerate…
Tongue burning and cut
Hi to all my dad is one and a half years out from chemo and radiation for tonsil and recently began complaining abut a burning tongue and if I look at it it has lines like cuts in it and he says it burns when he eats how can I help him with this? Anyone have suggestions how to clear this up? It is effecting this eating…
A question concerning couples and cancer
I hope I am not offending anyone, but I was wondering since a cancer diagnosis changes the normal in everyday life, how does a couple going through it keep intimacy, romance and love making somewhat normal though this all. I read about care givers and how wonderful you all are and how you must put so many things asside for…
ENT Visit Was Good - Thanks for Good Wishes and Prayers
Thanks to all for your wishes and payers. The ENT doctor said all looks good. Normal to have hoarse voice for a year to forever. Always great to get a "things look good" information, but then we, or at least I aways think what about next visit. Gets better after a little time passes. I suppose if we thought about it all…
Tired of being a widow
OK I wish I could say I am doing better with my loss than I am. I miss David, hell I miss people. You know other than the neighbor across the way and my mother-in-law not one person has come to check on me. People will make plans with me and then bail in the morning with lame excuses. I feel so alone and unloved. What is…
Hypothyroidism
Have been have digestive problems lately, mostly constipation and a little nausea. Saw the Gastro doctor yesterday at Penn State Hershey. She did the usual stuff, pressing around the tummy, listening to bowel sounds etc. She said I have a hiatial hernia but that is not the reason for the digestive problems. Had blood…
Thank You All So Much For Your Prayers & Healing Thoughts
I will sleep very little, if at all, tonight. I made the decision today to have my beloved husband removed from life support systems at noon tomorrow. His condition has rapidly deteriorated over the last two days. The ventilator is now completely breathing for him and the pacemaker has taken over 100%. He is in a drugged…
Q for those who used Amifostine/Ethyol
To those who have used Amifostine/Ethyol, I am on my third day of it and getting very nauseous and weak. I am taking both Zofran and Compazine to counteract the nausea but I still don't feel very good. My question is whether my body will adapt and the side effects of Amifostine will lessen, or is this as good as it will…
If this is as good as it gets
it's good enough for me! Just returned from my visit to Stanford. Tuesday, microvascular surgeon--he was happy with healing, would like to do some clean-up work but elective--I choose no surgery for the time being. Dr. Sunwoo, H&N surgeon poked and prodded and poked some more, he thinks sinus problem is due to radiation,…
Very nervous
Hi everyone - it's coming up on 5 months post treatment and I just found a bulge in my groin area- at first I thought it has to be a hernia- going to general practitioner next Friday. But then I realized the last time I saw a lump I thought it was a swollen gland. I am making myself nuts. I am praying its not C
l-glutamine experiences?
As I start designing and mixing new blenderized drinks the topic of glutamine comes up and I'm wondering what experiences you had using it as a supplement during radiation treatment to help rebuilding those blasted throat areas. Here are four links from the Superthreads -- it must have been a pretty common point of…
Bladder pain since having chemo and radiation for squamous cell carcinoma in lymph nodes of neck
Has anyone developed bladder pain during chemo and radiation for squamous cell carcinoma of the lymph nodes in the neck. Just about finished with chemo and radiation and the pain in the bladder has developed. Really, this pain has been there during most of the treatment. I am not eating or drinking anything by mouth. Had a…
End of Scanxiety -- NED Again!
Doc just called and the knot in hubby's neck is likely scar tissue from radiation and latest CT scan shows NO EVIDENCE OF DISEASE! This scan came 6 months after post-tx PET last October. Knew the 6-month scan was coming but had not expected the new "knot" in his neck discovered about 4 weeks before the scheduled 6-mth…
Kari update. NJSHORE
I just got a text from Dan. Kari did great and is in recovery. She got out of surgery at 3:10 and the nurse said everything went smoothly. I was very happy to get report and wanted to share it.

Head and Neck Cancer

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