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Pumakitty Mom up-date
Just got a text from Kathy the hospice nurse said they did not think her mom will make it passed this week-end. Please keep them all in prayer. God bless everyone Tim
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so kind of freaked out
So I am kind of freaked out....I was one of the lucky ones who made it thru treatments without many side effects....I could swallow and eat anything...didnt develop any sores....and my skin held up...not even a sore throat...not sure what is going on but woke up this morning and the inside of my throat feels swollen....and…
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New here - wish I would have found sooner! SCC-HPV Tonsil
Hi everyone, my name is Jamie (male) and I'm glad to have found this forum. In September, I was diagnosed with Stage 2 right tonsil cancer, HPV16 positive, spread to two lymph nodes that are side by side. My tonsils were removed (not fun) and the biopsy of the tonsil showed a 2.2 cm tumor that was completely encapsulated…
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OBAMACARE
Has anyone here had their insurance cancelled, modified, ETC in a negative way? I have not yet, but my Oncologist says the ACA will definitely make it hard to stay profitable. Hope you are all doing well. So far so good with me, scans show tumors continue to shrink, but the long term side effects of the Taxotere are…
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NPC spread to liver
Hello! My mom was diagnosed with nasopharyngeal cancer (NPC) back in March of this year. After completing her treatment, her pet scan showed a mass in the liver. A biopsy confirmed that the mass was cancerous. We were told by the doctor that the cancer metastasis to the liver was uncommon for her type of cancer. We are all…
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Thank you to the members of Cancer Survivors Network
Hello all. I was browsing through the message boards here and I wanted to thank you all for the support you have provided to Jesse(spazactaz) through his battle with cancer over the past year. Unfortunately Jesse passed away on November 7. It was nice to see the supportive and encouraging comments from the members of this…
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new here and scared
start my radiation and chemo treatments on nov. 13, stage 4 scc right tonsil and 2 nodes have been reading on here for a couple of days looking for answers on what to expect lot of helpful information and a lot of great people
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First CAT Scan -- NEGATIVE :)
Best news ever, NED! While my husband has had scopes since finishing tx in June, this was his first scan. We feel like we can now enjoy our daughters wedding (the end of this month) the Holidays... And Life in general. What a roller coaster this has been over this past year. I know we will continue on this journey- but it…
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Visiting Forum after long absence
My treatment (2 Cisplatin and 33 radiation) for stage 4 throat cancer ended in dec 2010. I am 3 years out and doing marginally well. Cancelled my 3 year CAT scan but still visit the Dr. to deal with the damage the treatment did to my kidneys and parathyroid. Just wondering how many out there lost sweet taste. Most other…
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Check up
just a quickie update then I,ll leave my worries behind me. onc dentist yesterday....mouth Ok next appt Jan. Clinic today and the speech therapist got me swallowing thickened water. apparently thicker liquid is easier to drink than pure water. my tongue had tightened with the scar tissue and didn,t push the thin water…
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Skin cancer
Not me. Hubby just got the call this morning. Basal cell. I had looked into Moh's surgery in 2010 thinking mine was skin cancer. Local yokle wanted to send us up the road, a doctor goes to Modesto once a month. No, I say, call Stanford or CSI (California Skin Institute) in bay area. He has an appointment on the 19th. I…
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Has anyone had Surgery for nasal adhesions after treatment for NPC????
My husband had Nasopharyngeal Cancer, diagnosed in 09/10 with mets to the lymph nodes and liver. He has been NED, since finishing treatment- Praise God!! He has had a consistent problem with nasal and sinus infections, which the ENT Doc contributes to scaring from the radiation treatment. The Dr is recommending surgery due…
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Mother struggling to deal with a life without food
My mother had a peg put in a couple of months ago and is really struggling with the prospect of a life without solid food, I am writing on her behalf because she is only getting used to computers, she is really looking for the perspective of people who are going through the same thing as opposed to medical people who have…
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Hello again
Hi it has been some time since I last checked in and it is nice to see the same names and faces of the people I read about when I was going through my cancer treatment. I am still recovering from my rad treatment, which ended May 1st of this year. I was diagnosis last week with cancer..... Again.....same one! I am still in…
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pallaitive care becoming euthanasia
http://catholiceducation.org/articles/euthanasia/eu0010.html My husband experienced this, food and water withheld for days until I signed for hospice and got him home. Be educated on this please, I was not.
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cant swallow
The last two days I cant swallow. The water goes a little way i can feel it in my throat then it comes back up. I got my voice back a little bit yesterday but its gone again this morning. My throat feels tight and I have a smattering of tiny white spots in my mouth. I have mucous again. A week Wed I have a visit with my…
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Concerns
I'm the wife of Tom who was diagnosed the end of August with stage IVa SCC of the epiglotis & 2 nodes. Finished 8 cisplatin chemos last week & has 2 more rads to go for a total of 38. The last 6 rads are to be directed at the tumor. I've been reading a lot of the posts here and have an idea what to expect, but a big…
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WBC still low. New baseline?
Hello, Robert is doing well being 19 months post treatment. He is holding on to this WBC of 2.1, just wondering if anyone else has had a new low baseline with their WBC? thanks, Denise
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clean PET scan again Update
I again have no signs of my cancer. In Dec 2009 I had a lump on the left side of my face. It was cancer I was operated on at John Hopkins ln Baltamore Md on 2/5/2010 then had 33 Rad treatments ln 2011 the cancer returned in my Right shoulder the Dr gave me 2 to 4 months to live .I had 14 rad treatments and months of…
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Any insight?
When my dry mouth is bad, it's bad. No amount of water can help. Xylimelts and Stoppers 4 not too much help but my swish and swallow does give relief. Eating also provides relief. I'm fortunate that it isn't a constant thing but it is annoying when it does happen. I have been trying to determine what, if anything, triggers…
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Roof of mouth
I promised myself I wouldn't, get overly concerned by symptoms that appear in the early stages of recovery...but.. I have lumps on the roof of my mouth. I can run my tongue over them and they feel smooth lumpy, different sizes. I looked in my mouth and can see them with a torch. it.s the same colour as the roof of my mouth…
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Bronchitis
Well at lease it is not pneumonia - - - - yet. I been feeling sick for the last week or so and finally went to see the doctor. After she checked and did an x-ray told me I had Bronchitis and I am one step away from pneumonia. For some reason I can’t help but to remember our friend Denny, he was always having problems with…
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Johnnybegood Doing A Little Better
The bleeding has finally stopped, but still no answer as to the cause. She is still having severe diarrhea & abdominal cramps. Crazy doc asked her if she felt comfortable going home tomorrow with the dairrhea & cramps & no answer. She told him "NO". She lives 100 miles from the hospital. Makes me angry that hospitals just…
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Hi guys update on mom
Sorry it has been so lond since I have posted. My life has been anything but peaceful. Mom got sick and started throwing up blood the first week in September. After doing a chest xray they told her she had a mass in her lung that had been there for 2 1/2 years and after futher test the found spots in her liver. The blood…
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PEG for LIFE
I was just wondering if there were any others here who will have to keep a PEG tube in for life. I am right at 15 months now with my first PEG tube and it’s due to be changed next month. It has been a lifesaver to me but it has its times of just getting in the way and I want to just pull it out but then think, how will I…
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Hi friends...
Well, here we are, nine days left. I sure am happy that Matt told me to leave 'my big girl pants on' for a little bit after my last post. I may have been a bit too 'upbeat' that early in the game. LOL! I have been reading up on most of the new posts, and want to be around to help; especially the 'newbies' who are here, and…
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Major worries about my taste returning to normal
I'm 4 weeks post treatment from SCC right tonsil cancer with two right neck lymph nodes affected. I've had 35 rad treatments and 2 high dose cisplatin chemo treatments. None of my surgeries were to actually remove the cancer, so it’s being treated completely by the rad and chemo. 3 DEC is my next visit for results of this…
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Check up with the surgeon yesterday...
and he said that everything looked GREAT! I can open my mouth in the "normal range" again....the very lowest reading, but still just barely in the range. He said that I was good for another 3 months but to continue to see my rad onc a couple of more times. Boo!! haha I will see him later this month. He is not recommending…
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What is worse then not having Saliva.
After both my radiation treatments were over and having too drink water with all my food I thought that there was nothing worse then loosing my Saliva glands; well I found out that there is. As many of you know I am unable to swallow due to nerve damage from all the treatments. Not being able to swallow is something I…
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Questions concerning tips for XRT
Hello again, I think I have most of what I need from reading the thread on RT, but still have a few questions to ask the group. My nurse gave me some ALRA therapy lotion to use but not less than 4 hours before treatments. I started the L-Glutamine powder from Vitacost. It has a small scoop that has 5G in it and I am not…