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Only 7 TOMO/IGRT radiation treatments and sides of tongue red and burning today, help!
Was not expecting this reaction so soon. I have seen photos of mucositis and now am afraid I am headed in that direction. Both sides of my tongue are sore and have lots of small red spots on them and I have only had 7 treatments out of 33. This is not good. I had asked the R/O RN 2 weeks ago to see about getting me some…
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Found a neck lump--awaiting FNA results
I'm a 41 year old dad. Today is my son's 9th birthday... And I'm a wreck. Trying to keep it together, but it's tough. I found a lump in my neck a few weeks ago--a little deep, not easy to find. Feels pretty firm--but not rock hard. There's no telling how long it has been there. PCP acted like it was probably nothing--told…
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And The Results are In.
Went to the V.A. to see my oncologist for my 6 month Ct scan. NED. I can't wait for the 1 year Mark.
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Update
Folks, I haven't posted much lately but I do lurk around the site often to see how everyone is doing and thought it's probably time for a quick update. This week I had my 9 month scan. My MedOnc is of the belief that for the first year he wants to see scans every 3 months. After my next one in February we will move on to…
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Got the mask today
Well, I got the mask formed today - made it through it - almost felt like I was going to panic twice but didn't - kept trying to breathe and lower my heart rate - the techs were nice and helpful - one in training - the nurse for the contrast was great - it changed me though - I told my wife who was waiting that it was…
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Do You Believe In Miracles?
Not sure what has happened, but I am going to think of it as a miracle, perpetuated by all of you & JBG's faith in a higher being. I just spoke with her & she sounded like a different person. Her pain is gone, no more bleeding, cramps, diarrhea, nausea. She said "the most wonderful doctor in the world"(her surgeon) had…
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New and my story so far
Hi! I've been to this message board many times in the last 5 months. Thank you for posting your experiences and advice to let us know we're not alone. Over a year ago I started losing my voice and was being treated for allergies and GERD. Finally in June 2013 I had a day where I couldn't breath. Long story short, a biopsy…
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Started TOMO/IGRT
Hi all, Yesterday went well and my radiation oncologist who was trained at Sloan Kettering in NY with Dr. Nancy Lee (look at her video and how she treats her patient it moved me to tears). My r/o Dr. Sophia Edwards-Bennett spent a lot of her precious time with me explaining and going over the treatment plan looking at the…
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Johnnybegood Still In Hospital
After 7 days, docs still don't have a clue what is wrong with her. Each test is inconclusive or not able to be completed. FINALLY, tomorrow her surgeon is supposed to come to the hospital. When I spoke with her today, she sounded very weak, tired, in pain, & in tears. I told her I was coming, but she asked me to wait until…
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Food for Feeding tube?
Hello, I had a feeding tube put in over the weekend and have two more weeks of treatment left. The doctor only suggested I used the gravity drip prescribed nutrient formula for me. I asked about other options such as Ensure or blended juices for the feeding tube. The doctor does not want me to pump anything in the tube…
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Skin burn at neck
After 25 bouts of radiations to the neck area, my entire neck is red with skin peeling off. Very sensitive and itchy. No pus or watery discharge though. I've been using fresh aloe vera and neosporin to the open skin which is pink. Does anyone have any suggestion in managing the burned skin?
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Stroke as probability due to radiation to the neck?
Does anyone has information regarding to the assocation of radiation treatment to the neck which may cause stroke down the road due to the damage of the blood vessels?
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Salt & Soda Solution for Secretions
I came across the "recipe" I was given for salt and soda solution to help control secretions. Thought it may be helpful to share. :) Into 1 quart water add: 1/2 teaspoon table salt 1/2 teaspoon baking soda Shake or stir solution. Store at room temperature. Use every 1-3 hours - especially after eating, taking oral…
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a request
I have a dear friend that is fighting breast cancer. She has had the surgery,double masectomy, and has had her first chemo treatment, radiation will follow. She is looking for scarves for when she loses her hair, the Drs have told her it will happen. They are one of the Americans with no insurance and just keeping up with…
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Pumakitty Mom up-date
Just got a text from Kathy the hospice nurse said they did not think her mom will make it passed this week-end. Please keep them all in prayer. God bless everyone Tim
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so kind of freaked out
So I am kind of freaked out....I was one of the lucky ones who made it thru treatments without many side effects....I could swallow and eat anything...didnt develop any sores....and my skin held up...not even a sore throat...not sure what is going on but woke up this morning and the inside of my throat feels swollen....and…
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New here - wish I would have found sooner! SCC-HPV Tonsil
Hi everyone, my name is Jamie (male) and I'm glad to have found this forum. In September, I was diagnosed with Stage 2 right tonsil cancer, HPV16 positive, spread to two lymph nodes that are side by side. My tonsils were removed (not fun) and the biopsy of the tonsil showed a 2.2 cm tumor that was completely encapsulated…
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OBAMACARE
Has anyone here had their insurance cancelled, modified, ETC in a negative way? I have not yet, but my Oncologist says the ACA will definitely make it hard to stay profitable. Hope you are all doing well. So far so good with me, scans show tumors continue to shrink, but the long term side effects of the Taxotere are…
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NPC spread to liver
Hello! My mom was diagnosed with nasopharyngeal cancer (NPC) back in March of this year. After completing her treatment, her pet scan showed a mass in the liver. A biopsy confirmed that the mass was cancerous. We were told by the doctor that the cancer metastasis to the liver was uncommon for her type of cancer. We are all…
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Thank you to the members of Cancer Survivors Network
Hello all. I was browsing through the message boards here and I wanted to thank you all for the support you have provided to Jesse(spazactaz) through his battle with cancer over the past year. Unfortunately Jesse passed away on November 7. It was nice to see the supportive and encouraging comments from the members of this…
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new here and scared
start my radiation and chemo treatments on nov. 13, stage 4 scc right tonsil and 2 nodes have been reading on here for a couple of days looking for answers on what to expect lot of helpful information and a lot of great people
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First CAT Scan -- NEGATIVE :)
Best news ever, NED! While my husband has had scopes since finishing tx in June, this was his first scan. We feel like we can now enjoy our daughters wedding (the end of this month) the Holidays... And Life in general. What a roller coaster this has been over this past year. I know we will continue on this journey- but it…
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Visiting Forum after long absence
My treatment (2 Cisplatin and 33 radiation) for stage 4 throat cancer ended in dec 2010. I am 3 years out and doing marginally well. Cancelled my 3 year CAT scan but still visit the Dr. to deal with the damage the treatment did to my kidneys and parathyroid. Just wondering how many out there lost sweet taste. Most other…
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Check up
just a quickie update then I,ll leave my worries behind me. onc dentist yesterday....mouth Ok next appt Jan. Clinic today and the speech therapist got me swallowing thickened water. apparently thicker liquid is easier to drink than pure water. my tongue had tightened with the scar tissue and didn,t push the thin water…
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Skin cancer
Not me. Hubby just got the call this morning. Basal cell. I had looked into Moh's surgery in 2010 thinking mine was skin cancer. Local yokle wanted to send us up the road, a doctor goes to Modesto once a month. No, I say, call Stanford or CSI (California Skin Institute) in bay area. He has an appointment on the 19th. I…
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Has anyone had Surgery for nasal adhesions after treatment for NPC????
My husband had Nasopharyngeal Cancer, diagnosed in 09/10 with mets to the lymph nodes and liver. He has been NED, since finishing treatment- Praise God!! He has had a consistent problem with nasal and sinus infections, which the ENT Doc contributes to scaring from the radiation treatment. The Dr is recommending surgery due…
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Mother struggling to deal with a life without food
My mother had a peg put in a couple of months ago and is really struggling with the prospect of a life without solid food, I am writing on her behalf because she is only getting used to computers, she is really looking for the perspective of people who are going through the same thing as opposed to medical people who have…
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Hello again
Hi it has been some time since I last checked in and it is nice to see the same names and faces of the people I read about when I was going through my cancer treatment. I am still recovering from my rad treatment, which ended May 1st of this year. I was diagnosis last week with cancer..... Again.....same one! I am still in…
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pallaitive care becoming euthanasia
http://catholiceducation.org/articles/euthanasia/eu0010.html My husband experienced this, food and water withheld for days until I signed for hospice and got him home. Be educated on this please, I was not.
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cant swallow
The last two days I cant swallow. The water goes a little way i can feel it in my throat then it comes back up. I got my voice back a little bit yesterday but its gone again this morning. My throat feels tight and I have a smattering of tiny white spots in my mouth. I have mucous again. A week Wed I have a visit with my…