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Feeding tube and vomiting
Hi. I've been using the feeding tube and pumpled 400 ml wihtin 2 1\2 hour of Boost VHC. Stomach felt OK but when lied down to go sleep, start to feel nauseaed. Had to get up then had a phlegm of sticky milky texture of the Boost in the back of the throat. Tried to gurgled it out and end up vomiting. Any suggestion on how…
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RON IS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
NED NED NED NED ron is ned finally oh thank God and thankyou all who gave us advice and support!!!!!!!!!!!!!!!!!!!!!!!!!! time to restart life. God Bless you ALL thankyou from the bottom of my heart for all your support and prayers. Janet
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Tooth decay post tx
I saw an oral surgeon this week who mentioned info new to me. Thought I would share and also other input. Dental decay post treatment is mentioned here so it is real and important we do what we can to minimize these issues. My impression to date is tooth decay, not jawbone issues, are caused by radiation treatment. He…
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1st check
had first checkup today. camera up nose and down throat. the surgeon said everything has been successful and I was clear of the cancer I had. I now have to go only once a month for a while then yearly. My lack of being able to swallow was because I still have swelling in my throat but I did manage to swallow a little…
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HELP Husband's Recent PET Scan Results
My husband finished his treatments mid august, we found from the PET scan that basically it did nothing he had 6 weeks of eurbitux and 5 gammaknifes. The tumor has not gotten bigger but it didn't shrink either still the same. Also, the cancer showed up now in two of the lymph nodes what does this mean. Can they treat this…
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When did you guys start getting a sore throat?
I am finishing my third week and still no sore throat - trust me, I'm not complaining. I can still eat whatever I want as long as I can tolerate the taste. When did you guys begin to suffer from a sore throat? God Bless, Jamie
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Bugging you all for advice again :(
I have another question for you experts My husband turned around pretty quickly since the last time I posted with questions. He has gotten back almost all of his taste,the stringy thick mucus went away, he still has little to no saliva yet and throat is still pretty sore But he began eating and had gotten down to no tube…
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PTSD
I have now officially been diagnosed with Post Traumatic Stress Disorder. I have suspected something like that for the past two years, fear, anger, feelings of insecurity. I have been on antidepressents prescribed by my doctor but things kept getting worse, two trips to the psychiatrist and he says I have a pretty chronic…
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Well, what do you know????
WE MADE IT!!! Just like you all said we would...Today was Pat's last day of radiation treatments. He's not feeling so hot, so here I am doing the "Happy Dance" and ringing every bell I can find all by myself...BUT, he's done and the healing starts now!!! Yeah, yee haw, giddy up, let's go!!!!! I know we still have tough…
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Boost, Resource, Ensure, etc.
I eat three meals a day. I was trying to supplement with the high calorie/protein drinks but have run into a problem. They seem to make me nauseated after I drink them. Which makes them harder and harder to get down knowing that they are going to make me feel puny. Anyone else have this problem and how did you supplement?…
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Swallow Study was a success but....`
Fiance did modified barium swallow study two weeks ago and it went well. We were very scared his swallowing muscles would not work but they did....fluids went down the wrong way but only once the therapist was pleased. His throat was severely damaged by the radiation and there are some disfunctions at the moment but with…
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Starting third week of treatment
Hi Everyone, Tomorrow I enter my third week of treatment. I am doing ok so far. I am feeling the throat swelling and drying out now (along with the beginnings of that weird kind of hurt). My problem has been losing weight because they haven't really gotten on top of the nausea (it's getting better though). Apparently, I'm…
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Shaving
How do you guys shave? I thought I saw something in the heaps of paperwork I got from the cancer center that I shouldn't shave with a razor any longer. But the thought of shaving with an electric on my already sensitive skin seem like an egyptian torture. God bless, Jamie
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Tobegolden
I am fearfull for Rick, he has not been here for a long while, I know he was having a real rough time. Anyone know anything? Denis
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update since failed gastrostomy tube
I read my last post from the hospital when I was on Percocet and it was embarassing. I will try not to write when under the influence of narcotics. I was released from the hospital Wed. am so I went to my XRT treatment and was seen by my radiation oncologist afterwards. She examined my mouth thoroughly and said "you are…
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update with ron
Ron is doing good. He is back to work full time, was extremely exhausted at first but seems to be adjusted to it now. He has lost 50 pounds, (I have gained 15) hearing is back to normal. taste is almost back, says sweet is wicked sweet now. still gets dry mouth and uses a lot of fluid to eat. had a regular ct scan and…
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Unremarkable
Greetings everyone! I'm sorry I haven't dropped in more frequently. I'm 3 1/2 years post treatment. The results of my CT scans showed to be 'unremarkable' ths week. I love 'unremarkable'. He's NED's brother! Anyway, I thought I'd drop by and share the news with my old firends. The treatment is tough, but it is worth it!…
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Peg tube failed
In hospital for observation due to failed gastrostony tube. Missed 2rad. Tx had laparoscopy placement Monday was in much pain from it and by 11am it had deflated & pulled out so went to er and resident surgeon put foley cath in as temp measure to keep holes open admitted to room at 3 am after they x ray and put iodine into…
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Hearing change
I have had 26 radiation treatment. For the past week, I've noticed a change in my hearing, more specifically the left ear. The hearing is normal when I bend my neck forward (90 degrees) but the sounds becomes muffled or lessend when the head is raised up straight. It feels like the fluid in the ear shifts when I change my…
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Feeding tube care
I had the feeding tube inserted exactly a week ago. Yesterday, I notice a little redness with some yellowish pus around the tube where it comes out of the stomach. I have been cleaning the area with alcohol wipes and finish with dapping hydrogen peroxide every hour or so. I have no fever. Is that normal for early on…
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Been meaning to ask
what is. A PET scan, you all have them after treatment but I,m not sure what they area
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Mom is gone
I wanted to let all of my friends know that my mom passed away on Sunday morning. She is now with my father and they are together like the always wanted to be. It was very peaceful and she was never in any pain. I am still in shock to have lost both of them is a 6 month period. Thank you so much for your love, support and…
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Now looking at total laryngectomy
I haven't been on here much lately so I'll give a brief history. I am the caregiver for my husband, now age 52. July 2011 - He was first diagnosed with stage II throat cancer of the epiglottis. Went through the normal 6 weeks of radiation and 3 rounds of cisplatin. Follow up PET scans showed cancer free. Dec 2011 - A spot…
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Crappie Day
Thought that I'd share a little bit of my Crappie Fishing Day....; ~J
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Brother's First Scan - NED!!
Hello My Friends, My brother had his scans yesterday and found out this morning that he is NED! To say that I had a fair amount of scanxiety about his first scan post tx, is an understatement. My family and I were definitely dancing around the kitchen table with the good news. Apparently one of his nodes isn't "perfect",…
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Prayers requested for family members UPDATE
Please pray for my sister, Rita, she has tumors in the lining of her uterus which they think are fibroid but can't have surgery because she had a stroke in April. She is bleeding and cramping. I think the blood thinners are making it worse. Also I ask for prayers for our oldest daughter, Vicki, who was a district manager…
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Anniversary time ! A bit off the subject but relevant !
Hello Everyone ! Today Rolie and I celebrate our silver anniversary ! 25 yrs together ! It's been a exciting and sometimes bumpy ride. I also am celebrating 2 yrs. of being dx'd with adenoid cystic carcinoma. And still fighting the good fight. For the past two yrs. it's been a wild ride of what if's and waiting for the…
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Gag reflex
The tissue in the back of my throat is starting to swell from the treatments and it seems to invoke my gag reflex just from talking sometimes. Anyone else deal with this? Do you get used to it? God Bless, Jamie
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Just got the PEG
Just got home from getting the PEG, not too sore at all, but got light headed and sweaty, sat down , got cold compress and water, got better, wife drove home, sipped water, tried apple juice a little, seemed to upset my stomach, got home laying around, nasty pain but went away, took some tylenol though the soreness is not…
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I am still here
Hey everyone. I am so sorry I left the grid for so long. It has been a very difficult 7 months. I lost my home to foreclosure but thank goodness David had a bit of life insurance so I was able to buy myself a cute house. It isn't as big but I love it. I am still missing my husband intensely but I am starting to really move…