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NED!!!

boardwalkgirl
boardwalkgirl CSN Member Posts: 269
in Head and Neck Cancer #1

 I haven't been on here for a while but wanted to check in and share my good news. 3 years ago this week I started my treatment for my cancer. 35 radiation and 3 rounds of Cisplatin. Today I got the results from my Cat Scan that I had done yesterday and it was all clear. NED. Saw the radiation oncologist and medical oncologist and they were both very pleased. No scan for a year this time. I am so thankful. 

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Comments

  • phrannie51
    phrannie51 CSN Member Posts: 4,716
    #2
    Hey you!!!

    We don't hear from you enough....but so glad you want to share your meet up with Mr. Ned!!  How are you feeling (besides elated?)...I love it when the people I know check in and share their news...

    Hugs.

    p

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  • boardwalkgirl
    boardwalkgirl CSN Member Posts: 269
    #3
    I am feeling fairly good. I

    I am feeling fairly good. I don't have the energy I used to but that could just be old age, lol. I would say my taste is about 75% of what I had before. Some things (chocolate esp) still don't taste right so I am guessing that is my new "normal" Saliva is still not good. Take Salagen routinely, use Act Mouthwash for dry mouths with fluoride and use sugar free mints along with my constant buddy, a bottle of water. I have a lot of muscle spasms in my neck, take Flexeril prn for that. But aside from all of that, I am good! I am here and I am thankful for that. I have a little pity party for myself ever so often and then kick myself in the butt and move on. I have been truly blessed that I am cancer free at this time, I am here to watch my grandchildren grow up. I have got to go on vacations with family and friends. And I am here to help the love of my life, my husband, who stood by my side thru it all as his vision is failing more and more every day. It breaks my heart but I am so glad that God has seen fit to let me be here to help him.Hope you are doing well Phrannie. 

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  • CivilMatt
    CivilMatt CSN Member Posts: 4,725 Member
    #4
    congtats

    BWG,

    Good news, all clear, very pleased, so thankful.  Even your vocabulary is NED, but why not, you are too.

    Matt

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  • boardwalkgirl
    boardwalkgirl CSN Member Posts: 269
    #5
    CivilMatt said:

    congtats

    BWG,

    Good news, all clear, very pleased, so thankful.  Even your vocabulary is NED, but why not, you are too.

    Matt

    Thanks, hope things are going

    Thanks, hope things are going well for you too!

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  • wmc
    wmc CSN Member Posts: 1,804
    #6
    Do love to hear NED

    It is always so good to hear or read someone is NED. Celebrate

    Bill

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  • Noellesmom
    Noellesmom CSN Member Posts: 1,859 Member
    #7
    that's great!

    So good to hear this!

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  • Greg53
    Greg53 CSN Member Posts: 849
    #8
    Noellesmom said:

    that's great!

    So good to hear this!

    My fav 3-letter word!

    Yay for you!!

    Congrats - love hearing this!

    Greg

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  • MrsBD
    MrsBD CSN Member Posts: 617 Member
    #9
    Thank You

    Thank you for sharing your good news! I wish you many more NEDs.

     

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  • josh r.
    josh r. CSN Member Posts: 264 Member
    #10
    Hello New Ned,

    "Do the walk on bye!" josh r.

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  • cureitall66
    cureitall66 CSN Member Posts: 913
    #11
    Great News!

    We're right behind you...just hit 2 1/2 yrs! Have you tried Dark Chocolate? Not sure if you've ever liked it, but it doesn't seem to have changed in taste nearly as bad. It's some of the sugary things that we notice  the taste is off. 

    Thanks for checking in with us! Nice to know some of the peeps that were on the same bus are doing well.

    ~C

     

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  • MrsBD
    MrsBD CSN Member Posts: 617 Member
    #12
    cureitall66 said:

    Great News!

    We're right behind you...just hit 2 1/2 yrs! Have you tried Dark Chocolate? Not sure if you've ever liked it, but it doesn't seem to have changed in taste nearly as bad. It's some of the sugary things that we notice  the taste is off. 

    Thanks for checking in with us! Nice to know some of the peeps that were on the same bus are doing well.

    ~C

     

    Dark Chocolate

    Oh good. I'm not the only one who thinks dark chocolate still tastes okay. Other sweets just don't tempt me anymore. All other food tastes fine. That's one blessing to come out of having cancer!

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  • Duggie88
    Duggie88 CSN Member Posts: 760 Member
    #13
    Boardwalkgirl

    It has been a while, I am glad you stopped by and shared your good news. One year scans puts you right around the corner of the 5 year mark. Don't threat over the chocolate thing, my theory  is keep practicing like I did with choclate licorice. It took about 3 years but I acquired my craving back.

          Jeff

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  • Hondo
    Hondo CSN Member Posts: 6,636 Member
    #14
    Mr. NED

    Wow that is some great news girl, keep up doing what you are doing because it is working..

     

    Tim

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  • jim and i
    jim and i CSN Member Posts: 1,788 Member
    #15
    Whoo Hooo. Doing my happy

    Whoo Hooo. Doing my happy dance. Now to pray for the NED to last many, many years.

    Debbie

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  • debbiejeanne
    debbiejeanne CSN Member Posts: 3,102 Member
    #16
    bwg, when i don't hear from

    bwg, when i don't hear from someone, I assume they are out enjoying life!  good for you and congrats on NED!  now you have another reason to go out and enjoy living.  I'm doing a happy dance for you.

    God bless you,

    dj

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