1 yr still fighting

rkliveson

Hello Hello, it has been awhile since last posting. Must admit the last year is one I would rather not remember.  As you see I may look a bit different in the pic. It is funny how bad one can feel yet everyone around you tells you how good u look. I guess my new catagory is survivor at least so far.  The after effects of surgery and radiation have left me down. mouth only opens 10 mm. lost hearing in left ear, constant pain in face massive headache that never leaves ..etc etc.. but yes still here.. not sure that means as much as many make it out to be... hope the rest of you continue to fight & remember you do not fight alone.. we are all in this together..  reach out if ever need strength I will be here. (hopefully) RK

debbiejeanne

I completely understand how

I completely understand how you feel and why you feel that way.  I feel that way sometimes too.  I'm 3 yrs out now and it is easier and I have more good days than bad so hang in there.  I pray its gets a lot better for you.

God bless you,

dj

wmc

Thanks for the update RK

The side effects can be brutal but they will get a little better I hope. Just one day at a time........

hwt

wmc said:

Thanks for the update RK

The side effects can be brutal but they will get a little better I hope. Just one day at a time........

RK

Good to see your post. You are right, lots of ups and downs.  We just have to take it as it comes and try to deal with it.

Hondo

Hi RK

 

Same here Jaw only opens 12mm teeth can’t brush them, pain in face on the left side mostly having to take pain meds daily for it, I can’t hear with out hearing aids and I have a very bad smell always coming out of my mouth.

Ops I left out that I eat with a PEG tube

 

 

 

 But the good news is that we are both still alive

 

Tim