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How do you deal with the anger?
When I was first diagnosed (June 03), I was of course scared, upset, angry, etc. Xanax was my first line of defense. As time went on and a CT scan showed shrinkage of my liver tumors, my attitude became more positive and I chose to get off of the Xanax. I also wanted off of it because it made me too tired. The last few…
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Update on Ben
Ben might be coming home Thurs :) He is having trouble tho with his bladder so may have to come home with the Cath still in... they took it out Saturday but Ben couldnt hold his urine so they decided yesterday to put it back in... Hopefully with time and healing this will improve. If not we will deal with that... Both Ben…
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Kris S
Dear Kris I'm having a hard time keeping up with everthing lately, but I wanted you to know that I appreciate your comments and advice concerning my husband's surgery story. You've given me some additional things to think about, and I appreciate it! Best of luck and health to you. Pam
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goin awol
Hiya guys--gotta go away for 2 weeks and not knowing if I can get to a puta till I get back. Going to "work"--yay!!!!!!for a while anyway--helping my son so he can have a holiday. Sorry for glogging up room space but didn't want yu to think I am leavin yah. Yu all be safe and as well as can be expected. Special ref. to…
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CMP Results (Liver Panels)
I went and had CMP re-did. This panel came back slightly abnormal as well. The oncologist dr said the Alpha somethings were better, but the ALT's were still a little high. Said he was sure it was okay but just to be on the safe side wants me to see the gastro dr. Everything else seemed to be fine other than the slight…
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Galliano
Hiya Pam and Mike--hey--sorry for the late reply--kinda got caught up in some hassles this way and was not able to check all the posts so missed your reply a while back. RE; my ozzie slang?--awwww--jest happen to talk like that--kinda natural this way. Hope Mike is gettin on ok--gee--tough time after surgery and the real…
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what to doc sd
the one tumor that is left in my lung has shrunk to the 3mm. he is going to leave me on chemo for 4 more mths then do a pet and a cat and see what happens. if all is clear he will take me off chemo and maybe just leave me on the avastin. of course i hope a pray there is nothing there and never will be agian. i hope all you…
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RebeccaJane
Hi again--thought I would post yu in a new topic in case yu don't see my message before it scrolls off the page. Look for an email from me in your csn start page! Hoping Ross is recovering well luv n huggs -kanga n Jen
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Whine Time
I was just told by "chemo club" that Folfox 6 Protocol is 12 rounds, 24 weeks, NOT 8 rounds, 16 weeks as I had previously been led to believe. Just "recovered" from round 7, which was the worst so far in respect to side-effects, 'cause they took me off Oloxi-(anti-nausea) and gave me reglan-(was getting Oloxi-(SP?) and…
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chemo before v. after
As some of you know, my husband had chemo and radiation recently - the chemo was Xeloda (oral version of 5-FU). After surgery, he'll be having just chemo - probably Xelox or Folfox (which are similar) and maybe Avastin. Have any of you done this? Was chemo just as bad after or not as bad since there wasn't also radiation?
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Hello from Europe
Hi everyone! I am in beautiful, but rainy and cold Austria. I noticed from the discussions that Monika and Bert are also in Europe. Monika, if you just happen to check in on the boards, let me know where you are, we are presently in Salzburg, tomorrow Vienna and then on to Germany (Munich) and then back home again on the…
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28 year old husband - bowel cancer
Hi, my 28 year old husband was diagnosed with bowel cancer on 29 April 2004. He had a large part of his bowel removed and we have been advised that he had Dukes B Cancer. He starts Chemotherapy on Monday. Of course this has been a difficult and scary time but we have had incredible support from family & friends. Also the…
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his surgery story
My husband's (Mike) surgery was on April 23rd. He had a tumor inside his liver, lodged between the portal vein and the vena cava. Surgeons weren't sure how operable this would be. They weren't able to do their 1st choice which would have been a resection. Part of the tumor was attached to the vena cava. Instead they did a…
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About Ben's surgery
Hi well its over and Ben did well... 13 hours of surgery boy was it a long day yesterday.. but good news too Dr Gearhart was able to spare Bens prostrate and bladder. She went in threw both the front and rear and "very" slowly worked the tumors out... not sure if any nodes yet are positive and also she wasnt able to view…
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My Cancer Story
I have been posting on this board for the last couple of weeks. I want to share my cancer story, especially for the newly diagnosed. I was diagnosed with stage 3 rectal cancer on March 17, 2003. 2 out of 12 nodes were positive. Since then I have had 5 weeks of radiation treatments along with continuous 5FU. I was able to…
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E-POST CARD
Greetings from Key West, FL Semi-Colons!! Been here for a couple of days playing with helicopters. Heading out later on today. More later. PS - The rum, although distilled from cane sugar (sorry, Em), is great! - SpongeBob
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Catch-Up
Hello All! Thanks to a sleepless night, I was able to catch up on the last 3 wks of posts. First, I'd like to say Thank-You to those of you who expressed support, prayers, and love concerning my husband's recent surgery. You helped more than you'll ever know. It has been a very difficult few wks, but I know it will get…
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Rectal Cancer Suvivor-Question
I'll try to make a long story short. Oct 31, 2003 husband was dx with rectal cancer. Dr told us he would have 6 wks chemo and rad, rest time to recoup and then surgery which would result in rectum being removed and permanent colostomy. Dr said 0% chance of not having the above surgery and colostomy. Did the chemo(Xeloda)…
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Newcomer looking for help.
I was diagnosed in November 03' at the age of 52 with colorectal cancer following a colonscopy. I had 25 radiation/chemotherapy (Xeloda) treatments in December and January to shrink the tumor and was lucky enough to have few side effects. I had surgery on 2/23/04. The tumor was so low in my rectum I needed a permanent…
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Bon Voyage!
Well, we're off to Europe for about four weeks. Plane leaves tomorrow a.m. and I've got tons to do before then. I'm going to try real hard to put Bert's rising CEA on the very back burner and focus on what my girlfriend, who has survived both breast and colon cancer told me...that being, unless the onc gives you bad news,…
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why can't I chat???
Hi all I am still sorta new here and am wondering why I can't get in the chat rooms? Everytime I try to enter I get a blank page that says something like type here and press enter, but here are no buttons nor anywhere to type? I work on Macintosh computers.. maybe it's not compatible? I use Interenet explorer 5 also. maybe…
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to all the mom's...
I wish you all a VERY HAPPY MOTHER'S DAY!!! Enjoy this weekend - I hope you have better weather than me in Toronto. It's gonna rain all weekend. Happy Mother's Day!! julie
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Words of encouragement
Hi all, I am putting together a small book to take to the hospital on the 20th when I have my surgery. I would like words of encouragement, poems you may have, prayers, anything that will uplift me, as I go through the next phase of my treatment. I also request your prayers that when I have surgery everything will go well…
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the results r in!!
hello all. i will remind u a little about what has been going on. in 02 was told of recurrance in both lungs and in pelvic and ab. in 03 went to mayo to have to major surgerys one in feb and one in march. just in jan 04 had at least 7 very visible lung lesions and several small ones. got scans monday and everything is gone…
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lump on leg
On my right leg I have a lump on the inside part. My onc said to me, not to worry that is a soft lump with fat. But I'm not to happy with his opinion. I would like to hear from you guys if you had a similar experience. Jose
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Stacy: Everyone: Worrisome Isn't It
Stacey, I am so honored by your praise...really, I am! I don't exactly agree with you because there are certain days that I feel like I'm the horse just out of the gate again :o ) but then again, there are other days when yes, Bert and I have come a long, long way and still have a long way to go. Hell, it beats having a…
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Why are we here?
If I can stop one heart from breaking, I shall not live in vain; If I can ease one life the aching, Or cool one pain, Or help one fainting robin Unto his nest again, I shall not live in vain. Emily Dickenson
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Worrisom & Scary
I had some extra time this weekend, a rarity in and of itself :o ), and spent it reading some of the past posts as well as several new ones that have been added recently and I was extremely amazed and without a doubt concerned about how many posts that I read that mention recurrences without detection by either a CAT or a…
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Minor problem
Hi all, With all the heavy stuff happening at this site, I feel somewhat silly about this post, but here goes... Has anyone found a cure for cracks in the corners of the mouth? I kept hoping that with the warmer weather up here my skin would get better. My fingers and heels have healed up, with ongoing attention, but the…
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Ben's Big Day
Tomorrow is Ben surgery day.. He will have it at 7:45 am at John Hopkins with a team of 3 surgeons... Dr Gearhart, Dr Singh and Dr Schoenberg I am asking for prayers please as this is going to be a very large surgery . Teresa