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checking in
well I havent been on this site in a while. finally finished six mos of chemo in march. 6 weeks of radiation which fried my ovaries and threw me into early meopause. Last june I was diagnosed with rectal cancer stage 2. Had surgery in august 04 and luckily did not have to have the colostomy bag that I was marked for…
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mouth sores need advice
Man, only the first treatment and one week later I have some nasty blisters in my mouth. Tell me what you did to relieve the pain, how long did it last for you, what did you eat that didn't feel like pins and needles, etc. I'm on FOLFOX plus Avastin, plus Panitumumab, which is a stage 3 clinical study drug. HELP! Chemo…
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Sorry
I shouldn't have posted that last thread asking for donations. I realized this, but I couldn't seem to get rid of it. I tried deleting it, but it didn't take. Jose is going to take care of it. But, I have to say to you George: Yes, I mean the real George. I did see the pictures and think maybe you could take after Jerry…
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Moms treatments
Mom is now about four weeks out of surgery and doing good. She has to go in next week and have an internal stent put from her kidney to her bladder then we will be ready to start treatments again. I failed to ask for sure what kind of colon cancer we are dealing with, I think there is a part of me that doesn't really care…
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There was nothing wrong with your computers
Hi everyone. I think you may have noticed the web site was hung up over the weekend and just got fixed yesterday. Don't blame your computers!!!! Of course I don't blame Jose either. Hopefully he was having a wonderful weekend!!!! Lisa P.
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Update on Mom's Plan of Action
We met with Dr. Sugarbaker and he determined that she is a candidate for liver surgery and the peritoneal chemical wash. We know it will be intense but realize surgery can lead to a cure. He said it will be a tough surgery but the5 rounds of chemo have made things very very small. He talked about the cloning of colon…
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Avastin Results & Back Question
Greetings!! I haven't posted in a while..all is moving well with Mom. The Avastin is reducing the spots on the lungs and liver very well. She does have a large spot on her liver still and they are having an MRI done to see if it is just scar tissue-----CTScan apparently can't tell the difference between the live and dead…
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Side Effects of Radiation
My last radiation was March 16, 2005. It has been 40 days since then, and I still have a couple of white blisters and redness in my vaginal area which itches sometimes and burns when I urinate. My radiation doctor said that they had found that silver sulfadiazine cream usually worked the best. It worked okay for me in the…
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i little more
i should have sd that i have been off chemo since dec17. so i am little surprised to see any shrinkage at all but again not enough to get excited about but i am going to do what i can to get as healthy as i can. i need to work out again and am going to get going on that. i hope that i am successful. my nodes in the upper…
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PLEASE!! Prayers for Judy ( grandma )
Hello Everyone!!!! the last couple of days I had received emails from Judy. Her computor is not cooperating so I am relaying the message for her!!! She is not doing well and is in need of our support!!!!! This Monster is grabing her with all its might and she is fighting with everything she has and needs our help in this.…
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Re-Post - Menopause
Hi all, I've been having a lot of problems with web-site. Wanted to re-post about my menopause questions. I'm still trying to figure out if I want to delay my radiation treatments so that I can have my ovaries moved out of the radiation field to save them from damage and me from early menopause. I really don't want to…
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Upper Respiratory Infections?
Hi all, Since my surgery 5 months ago I've had two bad upper respiratory infections causing flare up of pre-existing asthma (which is usually very mild and well controlled). I don't typically get a lot of colds. I'm not on chemo and blood work 1 month ago showed all normal. I'm also active...work out and hike. Anyone else…
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Cough
Hi My husband has lung mets due to rectal cancer. The lung mets were first detected in October 2003 and up until three days ago, have never presented with any symptoms, pain or coughing. On Saturday, he started coughing a lot and it has continued through today. I am listening to him try to go to sleep, but he keeps…
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ct. scan results
hello to all.i hope all is going well with everyone.the results are in for my ct. scan and as of right now,there is no change from my ct. scan in feb.at first,i was somewhat angry but after talking to my wife(she is my rock)i was glad that the cancer hadn't gotten worse.my oncologist wants to use this latest ct. scan as a…
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results with onc
i went to see my onc yesterday and he sd that some are worse and some are better. at this point he is going to leave me off chemo and scan me again in august after my kids r back in school. obviously i hope all these nasty things are gone by then. i saw the report and some have shrunk and some are larger but not enough to…
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6 Years Out!
Six years ago I left New York Hospital after a 5 day stay for resection related to my stage 3 rectal cancer. I had already undergone preoperative chemoradiation that had wiped out the tumor...but they took some colon to be safe. I then had to go through 6 months of chemotherapy. I remember thinking, as I rode home in the…
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Countdown to Surgery...
I'm going in for surgery next Tuesday and will become the latest member of the semicolon club. I've been off the chemo now for 3 weeks, did 8 cycles of folfox, and I have to say I feel pretty good. Food is starting to taste better, energy level is up, and so too are my spirits. I'm several days away from my resection…
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Cat is ned but CEA is going up
Hi all ! My CT was NED :) ))) but my CEA keeps on going uo since I was dx in Jan. It started at 1.4 then 2 now is 3...Nurse said that is common because the chemo irritates the colon and that could make the CEA goes up...Do I worry too much ???? I was a heavy smoker before all this started.Someone please cheer me up !!!!…
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nettie
Hope your conversation with the onc today went well. I was thinking of you and wanted to drop a note. take care, jana
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I' m Nervous Guys
I have blood in my stool again. I went to the surgeon today and have to go back on Tuesday. I think they are going to schedule a colonoscopy. I have had trouble w/constipation too. This is really unnerving, I am 1 month shy of 3 and 1/2 years NED. I am sorry for being a whiner. I figured no one would understand as well as…
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Aspirin
saw a news item on PBS tonight about a new study RE aspirin and CC & Breast Cancer..apparently daily doses of this inexpensive drug are preventing recurrence! Bud
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No Erbitux
Hi All! I found out that Erbitux won't work for me. So we are beginning a regimine of Xeloda and Camposar. I read a few posts back about Xeloda, thanks for the info. Any one have information on Camposar? Thanks Rita
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Hope I can finally post
Hey guys, I know there were problems with the site, but I also had trouble sending and receiving regular posts too. Thanks to Sue for keeping you updated. I've got some good news. Danny got another job instead of the first one he tried for. He starts Tuesday, if nothing else happens. I'm always afraid to even hope…
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Radiation and Ovaries / Menopause
Hi all, I am supposed to start radiation next week after some delay due to miscoummunication between my team of docs. My radiation oncologist asked me today if I wanted to delay the radiation treatments more so that I can have a procedure done to move my ovaries out of the radiation field. I'm 100% sure that I don't want…
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30 yr old diagnosed
I was diagnosed with Stage IIA colorectal cancer shortly before my 31st birthday. I had surgery and I am finishing up chemotherapy treatment now. Do any of you know of someone my age who was diagnosed with colorectal cancer? The average age for getting this cancer is something like 62. I wonder if this was a fluke. (I was…
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friends!!!
Hiya all. All is well here.Puta problems solved so guess what??..yu'all gotta continue ta put up with me.I cannot, however let this chance go by to tell you how much we appreciated the help(technically) from our own Lisa(Scouty). I phoned Lisa to ask her to let you know we were off air changing to broadband. Lisa was a…
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Good news; 18 month check-up
Hi everyone, As a stage III semicolon, I was very relieved to hear good news at my 18 month check up...scans were all clear, and bloodwork looks good. I understand from my onc that the chance of recurrance is highest in the first two years, than begins to drop. I can't believe how nervous I felt waiting for these results.…
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My Mom's PET SCAN Results
Hi everyone, Just an update on my MOM. She was diagnosed in Feb. with metastisized cc to the abdomen and liver from a stage 1 cancer in a polyp. She has had 4 chemo sessions and got her PET scan results today. In the onc's words the chemo has had "a dramatic effect on all areas". It can no longer be seen in the liver and…
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Steved
Hiya Steve.....just been reading all tha stuff I missed while away. Just wanted to say congrats on the reversal mate! Some positive stuff must be happening Steve as you sound so good in your post. As far as advice on what/what not to eat? Well....I for one would not try anything sharp...you know..Houdini tricks like razor…
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low red blood cells-- what do you do?
How do you folks raise your Hb and Hct when your RBCs are low due to chemo? My dr told me to take iron--- well, you know how great THAT tastes, not to speak about the bad taste in my mouth that I already have constantly due to chemo-- add more bad taste and constiplation-- wee!!!! I am trying different iron rich foods--…