-
Cat is ned but CEA is going up
Hi all ! My CT was NED :) ))) but my CEA keeps on going uo since I was dx in Jan. It started at 1.4 then 2 now is 3...Nurse said that is common because the chemo irritates the colon and that could make the CEA goes up...Do I worry too much ???? I was a heavy smoker before all this started.Someone please cheer me up !!!!…
-
nettie
Hope your conversation with the onc today went well. I was thinking of you and wanted to drop a note. take care, jana
-
I' m Nervous Guys
I have blood in my stool again. I went to the surgeon today and have to go back on Tuesday. I think they are going to schedule a colonoscopy. I have had trouble w/constipation too. This is really unnerving, I am 1 month shy of 3 and 1/2 years NED. I am sorry for being a whiner. I figured no one would understand as well as…
-
Aspirin
saw a news item on PBS tonight about a new study RE aspirin and CC & Breast Cancer..apparently daily doses of this inexpensive drug are preventing recurrence! Bud
-
No Erbitux
Hi All! I found out that Erbitux won't work for me. So we are beginning a regimine of Xeloda and Camposar. I read a few posts back about Xeloda, thanks for the info. Any one have information on Camposar? Thanks Rita
-
Hope I can finally post
Hey guys, I know there were problems with the site, but I also had trouble sending and receiving regular posts too. Thanks to Sue for keeping you updated. I've got some good news. Danny got another job instead of the first one he tried for. He starts Tuesday, if nothing else happens. I'm always afraid to even hope…
-
Radiation and Ovaries / Menopause
Hi all, I am supposed to start radiation next week after some delay due to miscoummunication between my team of docs. My radiation oncologist asked me today if I wanted to delay the radiation treatments more so that I can have a procedure done to move my ovaries out of the radiation field. I'm 100% sure that I don't want…
-
30 yr old diagnosed
I was diagnosed with Stage IIA colorectal cancer shortly before my 31st birthday. I had surgery and I am finishing up chemotherapy treatment now. Do any of you know of someone my age who was diagnosed with colorectal cancer? The average age for getting this cancer is something like 62. I wonder if this was a fluke. (I was…
-
friends!!!
Hiya all. All is well here.Puta problems solved so guess what??..yu'all gotta continue ta put up with me.I cannot, however let this chance go by to tell you how much we appreciated the help(technically) from our own Lisa(Scouty). I phoned Lisa to ask her to let you know we were off air changing to broadband. Lisa was a…
-
Good news; 18 month check-up
Hi everyone, As a stage III semicolon, I was very relieved to hear good news at my 18 month check up...scans were all clear, and bloodwork looks good. I understand from my onc that the chance of recurrance is highest in the first two years, than begins to drop. I can't believe how nervous I felt waiting for these results.…
-
My Mom's PET SCAN Results
Hi everyone, Just an update on my MOM. She was diagnosed in Feb. with metastisized cc to the abdomen and liver from a stage 1 cancer in a polyp. She has had 4 chemo sessions and got her PET scan results today. In the onc's words the chemo has had "a dramatic effect on all areas". It can no longer be seen in the liver and…
-
Steved
Hiya Steve.....just been reading all tha stuff I missed while away. Just wanted to say congrats on the reversal mate! Some positive stuff must be happening Steve as you sound so good in your post. As far as advice on what/what not to eat? Well....I for one would not try anything sharp...you know..Houdini tricks like razor…
-
low red blood cells-- what do you do?
How do you folks raise your Hb and Hct when your RBCs are low due to chemo? My dr told me to take iron--- well, you know how great THAT tastes, not to speak about the bad taste in my mouth that I already have constantly due to chemo-- add more bad taste and constiplation-- wee!!!! I am trying different iron rich foods--…
-
PET scan results
Hello to semi-colon colony. After being scared spitless by the "questionable spot" on my lung I was told yesterday the PET scan showed no evidence of malignancy anywhere and per my onc. I am Free of Disease. I am one year exactly post op. Thank you for the prayers and good thoughts. I am not yet celebrating this sensation,…
-
Humbled and Honored
Hey all you WONDERFUL Semi-Colons!! sniff sniff >SOB< Truly, my cancer compatriots, I am honored and humbled by your kind words and your love bestowed upon me. I just now opened up a package and the tears started all over again...... Thank you so much for the plaque to hang on my wall above my computer. I so wish I had a…
-
ileostomy reversal done
Well, I'm back after a few nights in hospital (they really are grimplaces to spend much time aren't they!) having my ileostomy reversed (Dx stage 3 March 2004, preop chemorad, surgery, post op chemo and reversal 8 months post op). Wasn't too bad esp as the only other experience I have to compare it to is the initial bowel…
-
Apologies
Firstly guys and gal....I am sorry for being away again. I really get frustrated at not being able to post 'cos you are all so important to us. The good news is that Jen starts her new job on monday and the organising of that has kept us on the road. Also we are shifting from "dial up" to "broadband". In OZ that is a…
-
I'm new
Hi all, I am new to this discussion group. I am a almost 2 year survivor of stage 4 colon cancer. I had surgery, chemo and radiation. I just had a colostomy reversal in Jan, after 18 mos, with the bag. I had a pet scan in April, and am in remission. I enjoy reading the stories, and am glad to participate. God bless us all.…
-
Erbitux and Xeloda
Hi All I don't post very often, but I want to share my husband's experiences with Erbitux and Xeloda since there have been some recent discussions about these therapies. My husband has been on Erbitux for over a year (!) He started in late April 2004 and has been receiving weekly infusions since then. From April 2004…
-
CEA going up, up, up....anyone?
My dad's cea level has been slowly rising since he was diagnosed with colon cancer in November. He underwent a colon resection. Of the 11 lymph nodes removed, 8 were found to have cancer in them. The surgeon believed that he had gotten out all of the tumor and saw no other lesions. My dad had a cat scan which showed no…
-
Erbitux
Hi all! I have posted here before and I see alot of new names. It's wonderful to see so many contributions. To catch up, none of the chemo therapy treatments have worked so far for me. We're starting a new regimine next week. Anyone have any experience with Erbitux? Any information would be helpful. I've previously been on…
-
hOPELESS SITUATION
Brother sent home with not much time....we are still hopeful and he is strong...need ANY INFO ON EXPERIMENTAL/ ALTERNATIVE treatments....have heard of 714X from canada and trying it....WHAT ELSE IS THERE?
-
"best half has finished chemo"
Hi everyone: Have been reading everyone's posts but have not posted since there really has not been too much to say until now. My darlin has finished his 4 rounds of 5FU/leucovorin that was adjuvant after surgery for resection. All things considered he has tolerated it very well and I guess now the waiting begins...he…
-
Xeloda
How far into treatment do the side effects start? As in the Hand and Foot syndrome ? Or any thing else ? Has anybody been on it for very long. long ?
-
results of scan
well had a scan and not sure what to think. the scan revealed in the left lung where most of the disease is that i have several lesions in the lower left lobe the biggest being 4.6 cm but no where else did he note disease in the left lung which i had disese all over it. other findings in my hiler area the nodes above the…
-
All Hail, Emily !!!!!
The sole purpose of this thread is to honor one of our own, Emily. A while back, Bud posted a thread about writing one's own eulogy. Here is what Em had to say: The thing I want to most be remembered by is my love for my husband and my kids. Being a mother and wife is the most important thing in my life. They are my world.…
-
Groshong Implanted Port
I'm wondering how long i can leave this thing in..it was installed Jan 2004, and the Doc says it's OK so long as it doesn't hurt, or get infected. I have to get it flushed once a month..do they eventually wear out? Anybody had a port for more than a year? Bud
-
A sappy day
I know many are going through a rough time right now and I think of you all often. I just wanted to share what happened yesterday with all of you on this site. My daughter graduated yesterday and received her MBA. I am so proud of her. I was crying yesterday even before the ceremony began. I had flashbacks of 2 years ago…
-
for grandma 047 a.k.a. Judy
Judy, I'm very concerned about your fever. PLEASE CALL YOUR DOCTOR IMMEDIATELY!!! When I was on chemo I was told to call about anything over 100 degrees. When you're immuno suppressed things can get out of hand quickly. My brother's mother-in-law ended up hospitalized and wheelchair bound for weeks after her fever shot…
-
Laughter and Sorrow!!
Hello everyone!!! What a week!!! I am sitting here Saturday morning trying to get caught up on the posts and the emails everyone sent. My head is spinning!!!! I hate this monster!!!!!! We lost a very special lady!!!! I cried so hard when I read about Lisa!!! She was so helpful to me after lossing Bob!!! We have lost to…