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Hello Everyone!!
Hi guys! I am sorry that i haven't been on board in such a long time. Things for me haven't be the greatest. I am still trying. I just don't know which way to go anymore. I have been going through the motions for so long that I don't know what reality is anymore. I am trying to do everything I can to stay grounded. I just…
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Discouraged
My chemo has been postponed AGAIN, due to low white blood cell count. (I'm on FOLFOX, supposedly every 2 weeks, following surgical removal of a single lung metastisis, 2 yrs after tx for Stage III rectal cancer). I am a "pollyanna" by nature, and each time I have a setback I manage to see the bright side, focus on the…
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My Sweetie is Hurting and I hate it
well my husband Hayes is going through it. He asked for his chemo to be changed on FOLFOX w/Avistan as he cannot deal with the neuropathy he has it pretty bad. Well now his hands can hardly close as it so painful, does anyone know if this is normal? He will see his doc today, so that will be a main topic of conversation i…
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Elevated CEA
Hi everyone, I have been reading messages for four years now. My CEA was recently confirmed elevated and I am three weeks into the one month wait for a retake. If still elevated I will be getting the dreaded CT. We all have been there. I have read the messages regarding CEA results and it helps alot, and I do not feel so…
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Good News....
hi everyone, My mother got results from her last CT Scan - ALL CLEAR!!! We had a bit of a panic because there was a new liver spot the CT scan picked up but an emergency ultrasound confirmed its nothing but a 'sist' of some sort. Nothing to worry about! My mother was diagnosed in March 2004 with Stage 3 rectal cancer and…
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Beci -
Hello! I am so sorry to hear of your husbands passing!!!! I know to well how you are feeling!!!! It will be 9 months for me on the 24th and it still feels like the day of!! If you would like to talk, maybe we can help each other. Plese email me if you would like to!! My deepest sympathy!!!! Sue
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Sperm after chemotherapy
Does anyone know if chemotherapy for cancer damages sperm cells, and if it does, how long should men wait after the end of chemotherapy before trying to conceive?
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Avastin & Erbitux Approved In Canada
Health Canada approves pricey colorectal cancer drugs Provided by: Canadian Press Sep. 12, 2005 TORONTO (CP) -- Health Canada has approved two promising but expensive new cancer drugs, Avastin and Erbitux. Both are treatments for advanced colorectal cancer. Avastin, made by Hoffman-La Roche, was approved for first line…
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My husband
Can anyone who survived colon cancer help me. I am terrified. My husband was diagnosed with colon cancer on Aug 16th. He had surgery on the 22nd to remove the tumor, 10 inches of the colon and 13 lymnodes. They said the cancer did not enter the lymnodes and only penetrated 2 of the 5 layers of the colon wall. They put him…
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Clean liver
I got my PET/CT results today. Several weeks ago I had five liver mets, and now they are all gone. But there is some kind of "activity" in my rectal area, so tomorrow I get a special examination to see what's up with that. But the doc was really happy about the liver. I'm holding my enthusiasm to see what's up with the…
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Questions, questions, questions!
Hope everyone is doing well. I have a few questions that I was hoping someone may be able to help me out with! To refresh, I had an ultra low anterior resection with colonic j-pouch construction for rectal ca (stage 1) in April. They created a temporary ileostomy which is going to be reversed in about 6 weeks. I have had…
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change of chemo
well my husband saw oncologist last Friday, and it was decided to stop the Folfox cocktail, as he is suffering pretty bad with the neuropathy (had 6 treatments one every two weeks). So the plan now is CT Scan Wednesday (scary time) then Friday go in for chemo onc will have made decision as to what at that time, he will…
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Rectal/Vaginal fistula - Adding muscle to rectum
My 34 year old daughter had stage 2/3 rectal cancer diagnosed March 30, 2004. She underwent chemo and radiation for six weeks prior to surgery in Aug. 2004. She then went through another 5 months of chemo as a procaution, as they found no lymph involvement even though they suspected there was before her first…
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I WON!!
Well, it seems I have won an all-expense paid trip to .... New Orleans! I received a request to head down and do critical incident stress debriefs. They have put my second surgery on hold pending my return and I leave next week. I'll be like Kanga - AWOL - for a wile as I expect to be right in the heart of New Orleans…
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HAPPY BIRTHDAY, MAURA
Didn't want you to get off the hook here without having your birthday publicly announced! Many happy RETURNS! - SB
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New Orleans
On vacation with little access to the internet or TV, I missed most of the hurricaine coverage. It did not suprise me that our favorite navel officer has gone down there to help. Putting aside his goofy SpongeBob persona he becomes a hero among heros. I am proud to know him. My maternal grandmother's people came from New…
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We lost the battle
To all the friends on this network, my husband Mike just lost his battle with colon cancer,on Aug 11th at 43yrs old,he wasn't ready and did not want to leave me and our 4 small kids,how hard is that to live with??? We need you survivors to keep up the great words of encouragement and faith....to you I thank for all those…
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We do win sometimes...
In one week I turn 43...diagnosed at 36 with stage 3 rectal cancer. Did preoperative chemoradiation (lovely!), surgery, then 6 months of 5-FU (FU-2). Could barely believe that I got through it, then wondered how I would get by the ensuing years waiting to see if I survived or not. Well, I did...and thrived. Picked up and…
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PET/CT scans tomorrow
Tomorrow morning I get my first scans since starting chemotherapy. I have gone through six cycles of 5FU + Oxaliplatin + Avastin. My CEA count started at 55 and was 4.4 before my last cycle. I'm hoping for good results, but I guess I won't find out anything until meeting with my oncologist next Wednesday. Chemotherapy…
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Next week's CT Scan...
I was dx 12/17/04 with stage 4 colon cancer with mets to the liver. After surviving 12 rounds of chemo, 25 doses of radiation, a colon resection, and a plethora of side effects, my Oncologist has mercifully decided to hold on the 13 & 14th round of chemo, instead I'll get a CT scan next week. It's been well over 3 months…
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Thalidomide
Good Morning, I have been reading alot of articles on the use of Thalidomide with Ironotecan. It works as an anti-angiogenesis much like Avastin does with Folfox. It was shown to improve the performance of Ironotecan. It has also shown some reduction in the gastrointestinal side effects caused by the Ironotecan…
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Intense sore throat
I completed chemotherapy cycle six last Friday, and over the weekend started to experience really bad acid reflux. The next day I had a sore throat, which has gotten more intense over the past couple of days. My oncologist's nurse thinks the sore throat is due to the acid reflux. I'm only curious if anyone else has…
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advice
Hi ! Like I mentioned last week my Pet and Ct came back NED. ( wwwwwweeeeee ) Today I had my Dr. appt. This is what she told me....if you ask me if u are cured I will have to say NO..that u are in remission ( which i know ) We will see u every 12 ( !!!!! ???? ) weeks.,thats it ! ohhhh and that i should know that i will go…
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Maitake Mushrooms/Juicing questions
Good morning everyone... I have some juicing questions and a question about maitake mushrooms. I've been juicing daily kinda making up my own recipe mostly organic carrots and some beets and handfuls of organic spinach leaves. Is there any recipe I should be following? I try and juice in the morning on a empty stomach and…
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surgery for rectal cancer on the 8th; macrobiotics?
Hi all. It has been a while since writing. My surgery has been moved up. I will be having surgery at Johns Hopkins for rectal tumor. I know I have a good surgeon but I am nervous nonetheless. Jana, thanks for all your surgery recommendations. I will post in a couple of weeks and give you an update. Has anyone here tried…
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bleeding
I was wanting to know if anyone has ever experienced bleeding while going thru chemo and rad. My mom is doing this and the oncologist said today that it could be one of two things either the rad and chemo were breaking ( or shrinking ) the cancer cells or that the cancer could be getting worse. She is not bleeding from the…
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Shoulder Pain
The pain in my right shoulder (which is the same side that my port is on) is becoming more and more intense. My movement is very restricted. I can't dress myself, put on a necklace, get dishes off the top shelf, hang up my clothes, etc. and if my shoulder inadvertently is moved very far from it's "comfort zone," there is…
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Scan Results
Good Morning, My dad got the results of the MRI for his back and the abdominal CT scan. The MRI shows no cancer in the back which conflicts with what the PET scan showed in July. The Oncologist said the only thing he sees there is arthritis. If that's the case, why did it light up in so many places on the PET scan. I would…
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Update ~
I just figured I'd give you an update since my onocologist visit. I had my transanal excision on the 25th of August and I am still so uncomfortable. Has anyone on here had one and been this uncomfortable? I wasn't this miserable with my liver resection. Anyway at the oncologist on Friday he really wants to wait and see…
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Mom and Cancer
Hello all I somehow deleted my post on the history with my mom and this horrible disease, so I am trying again.maybe I have this thing figured out now. We found out in late July mom had colon cancer she wasput in hospital on Aug 1 and they ran test after test,found out that it had spread to her bladder and to her vaginal…